The Foundation supports organizations, hospitals and research groups with the search for a cure for H-ABC Hypomyelenation with Atrophy of Basal Ganglia and Cerebellum with funding and volunteer work.
Key facts about Foundation to Fight H-ABC
In short: Foundation to Fight H-ABC gave $58K across 2 grants in 2024 (avg $29K), mostly in Massachusetts. Source: 2024 IRS Form 990 filing.
- EIN
- 81-0950905
- Latest 990 filing
- Form 990 filing, 2024
- Annual giving (2024)
- $57,528
- Grants made (2024)
- 2
- Average grant
- $28,764
- Median grant
- $28,764
- Total assets
- $501,012
- Primary geography
- Massachusetts (100% of itemized 2024 grant dollars)
Data from IRS Form 990 filing, 2024; updated September 2026.
Financial Overview
From 2024 IRS Form 990 filing · View filing
Total Assets
$501K
+27.2% YoY
Annual Giving
$58K
+15.1% YoY
Grant Count
2
+100.0% YoY
Avg Grant Size
$29K
-42.5% YoY
How Foundation to Fight H-ABC gives
- Giving fell 38% from 2021 to 2024. Method
From the foundation's IRS Form 990 filings. Methodology.
About Foundation to Fight H-ABC
Based on IRS filings
Foundation to Fight H-ABC is a nonprofit organization focused on Human Services, based in Rockville, MD. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $501K in total assets. In 2024, it awarded 2 grants totaling $58K. Net investment income was $13K.
Focus Areas
Open Grants
1 open opportunity from Foundation to Fight H-ABC
Ready to take the next step with Foundation to Fight H-ABC?
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2024 grant dollars across all 2 itemized grants.
Cities
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2024, annual grant giving ranged from $50K (2023) to $134K (2022). In 2024 it made 2 grants totaling $58K.
Grant Insights
How this funder distributes its grants
Top Recipients
Top 2 recipients in 2024
The largest 2024 recipient was University of Massachusetts Chan Medical School ($52K). Together the top 2 received $58K.
Grant Size Distribution
10 grants across all recorded years
The most common grant size was under $50K: 5 grants of 10 (50%).
Giving History
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| University of Massachusetts Chan Medical School Worcester, MA | — | $52,000 |
| Boston Childrens Hospital Boston, MA | — | $5,528 |
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $501,012 | $393,971 | $386,650 |
| Revenue | $206,326 | $81,403 | $127,304 |
| Expenses | $99,285 | $74,082 | $149,470 |
| Net Investment Income | $13,455 | $8,353 | $993 |
Data update history
When this profile's IRS filing data changed on Grantable
- IRS filings on file for fiscal years 2020–2024
Leadership & Key People
Officers and directors from IRS filings
Foundation to Fight H-ABC is led by Oscar B Sloan, President since 2024 (on filings since 2020); none of the 6 officers listed in 2024 report compensation.
Officers on the 2024 filing
Oscar B Sloan
President
President → Director, 2023
Director → President, 2024
On filings since 2020
3 hrs/week
No compensation reported
Robert Ziarko
Fundraising Chair
New on the 2024 filing
1 hr/week
No compensation reported
Chris Drescher
Board Member
Director → Board Member, 2024
On filings since 2020
0.5 hrs/week
No compensation reported
Diana Boncheva Gooley
Board Member
Director → Board Member, 2024
On filings since 2020
0.5 hrs/week
No compensation reported
Michele Levoir Sloan
Treasurer
Secretary → Treasurer, 2023
On filings since 2020
10 hrs/week
No compensation reported
William Miller
Secretary
New on the 2024 filing
0.5 hrs/week
No compensation reported
Former officers (3)
- Former: Gerald Lee Clemmons (2020–2023) — Director
- Former: Joseph M Cassin (2020–2023) — President
- Former: Mari Galvin (2020–2023) — Secretary
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Frequently asked questions about Foundation to Fight H-ABC
How much does Foundation to Fight H-ABC give each year?
Foundation to Fight H-ABC gave $58K across 2 grants in 2024, according to its 2024 IRS Form 990 filing. In 2023 it gave $50K across 1 grant.
How large is Foundation to Fight H-ABC?
Foundation to Fight H-ABC reported $501K in total assets on its 2024 IRS Form 990 filing. Its revenue that year was $206K.
What is Foundation to Fight H-ABC?
Foundation to Fight H-ABC is a nonprofit organization focused on Human Services, based in Rockville, MD. It holds $501K in total assets as of 2024.
Where does Foundation to Fight H-ABC operate?
Foundation to Fight H-ABC has awarded grants in Connecticut, Massachusetts, Pennsylvania.
What is Foundation to Fight H-ABC's EIN?
Foundation to Fight H-ABC's EIN (Employer Identification Number) is 81-0950905. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Here's the math on researching Foundation to Fight H-ABC by hand.
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