Foundation to Fight H-ABC

ROCKVILLE, MD EIN: 81-0950905 Website

The Foundation supports organizations, hospitals and research groups with the search for a cure for H-ABC Hypomyelenation with Atrophy of Basal Ganglia and Cerebellum with funding and volunteer work.

Financial Overview

From 2024 IRS Form 990-PF

Total Assets

$501K

+27.2% YoY

Annual Giving

$58K

+15.1% YoY

Grant Count

2

+100.0% YoY

Avg Grant Size

$29K

-42.5% YoY

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Financial History

Multi-year comparison from IRS filings

Revenue
Expenses
Qualifying Distributions
Net Investment Income
$0$57K$113K$170K$227K20202021202220232024
Metric202420232022
Total Assets$501,012$393,971$386,650
Revenue$206,326$81,403$127,304
Expenses$99,285$74,082$149,470
Qualifying Distributions
Net Investment Income$13,455$8,353$993
Distributable Amount

Giving Over Time

Total grant dollars and number of grants per year

$0$33K$67K$100K$134K3 grants20202 grants20212 grants20221 grants20232 grants2024

Grant Insights

How this funder distributes its grants

Top Recipients

Top 2 recipients in 2024

University of Massachuse…$52KBoston Childrens Hospital$6K

Grant Size Distribution

10 grants across all recorded years

5<$50K4$50–100K1$100–250K$250–500K$500K–1M$1–5M$5M+

Giving History

Grant recipients and amounts by year

No grants recorded for .

Who else does Foundation to Fight H-ABC fund?

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Key People

Officers and directors from IRS filings

Compensation Overview

From 2024 IRS filing

From 2024 filing

NameTitleHoursCompensation
Chris DrescherBoard Member0.5
Diana Boncheva GooleyBoard Member0.5
Robert ZiarkoFundraising Chair1
Oscar B SloanPresident3
Michele Levoir SloanTreasurer10
William MillerSecretary0.5

Geographic Focus

Where this funder has awarded grants

Grant Distribution by State

3states

Cities

BostonNew HavenPhiladelphiaWorcester

Data last updated March 2026. Sourced from IRS Form 990-PF filings.

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