Foundation to Fight H-ABC logo

Foundation to Fight H-ABC

ROCKVILLE, MD EIN: 81-0950905 Website

The Foundation supports organizations, hospitals and research groups with the search for a cure for H-ABC Hypomyelenation with Atrophy of Basal Ganglia and Cerebellum with funding and volunteer work.

Financial Overview

From 2024 IRS Form 990-PF · View filing

Total Assets

$501K

+27.2% YoY

Annual Giving

$58K

+15.1% YoY

Grant Count

2

+100.0% YoY

Avg Grant Size

$29K

-42.5% YoY

About Foundation to Fight H-ABC

Based on IRS filings

Foundation to Fight H-ABC is a nonprofit organization focused on Human Services, based in ROCKVILLE, MD. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $501K in total assets. In 2024, it awarded 2 grants totaling $58K. Net investment income was $13K.

Focus Areas

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Geographic Focus

Where this funder awards grants

Grant Distribution by State

3states

Cities

BostonNew HavenPhiladelphiaWorcester

Financial History

Multi-year comparison from IRS filings

Revenue
Expenses
Qualifying Distributions
Net Investment Income
$0$57K$113K$170K$227K20202021202220232024
Metric202420232022
Total Assets$501,012$393,971$386,650
Revenue$206,326$81,403$127,304
Expenses$99,285$74,082$149,470
Qualifying Distributions
Net Investment Income$13,455$8,353$993
Distributable Amount

Giving Over Time

Total grant dollars and number of grants per year

$0$33K$67K$100K$134K3 grants20202 grants20212 grants20221 grants20232 grants2024

Grant Insights

How this funder distributes its grants

Top Recipients

Top 2 recipients in 2024

University of Massachuse…$52KBoston Childrens Hospital$6K

Grant Size Distribution

10 grants across all recorded years

5<$50K4$50–100K1$100–250K$250–500K$500K–1M$1–5M$5M+

Open Grants

1 open opportunity from Foundation to Fight H-ABC

Giving History

Grant recipients and amounts by year

No grants recorded for .

Leadership & Key People

Officers and directors from IRS filings

Compensation Overview

From 2024 IRS filing

From 2024 filing

NameTitleHoursCompensation
Chris DrescherBoard Member0.5
Diana Boncheva GooleyBoard Member0.5
Robert ZiarkoFundraising Chair1
Oscar B SloanPresident3
Michele Levoir SloanTreasurer10
William MillerSecretary0.5

Subject Areas

Focus areas based on grantmaking activity

Related Funders

Similar funders by location and focus area

Data last updated April 2026. Sourced from IRS Form 990-PF filings.

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