Research & Support Grants

Research & Support Grants

Funder: Foundation to Fight H-ABC

Mission: The Foundation to Fight H-ABC is committed to accelerating research and improving quality of life for children affected by H-ABC and other TUBB4A-related leukodystrophies.

Funding Priorities

The foundation focuses grantmaking in these core areas:

• Medical Research: Advancing scientific studies, including gene therapy (AAV), antisense oligonucleotide (ASO) therapy, and other promising treatments
• Clinical Care Tools: Supporting projects that improve diagnosis, management, and daily living for individuals with H-ABC
• Family Support Initiatives: Funding services or resources that directly benefit children and families living with H-ABC

Eligibility

• Institutions, nonprofits, or teams conducting relevant medical or clinical research

Geographic Scope

Based in Maryland, US (h-abc.org)

Focus Areas

• H-ABC/TUBB4A leukodystrophy research
• Gene therapy (AAV)
• Antisense oligonucleotide (ASO) therapy
• Clinical care and diagnosis tools
• Family support services

Background

The foundation emphasizes early-stage funding as critical in rare disease research. Strategic philanthropic funding at this stage can unlock years of progress by making future research viable, as government grants are competitive and slow, and commercial investment typically waits until risk is reduced.