Research & Support Grants
Funding Amount
Varies
Deadline
Rolling / Open
Grant Type
Foundation
Deadline history & next window
- Cycle
- Annual
- Tracked since
- April 2026
From the program guidelines: “Application Cycles: Submissions are reviewed annually”
Can we apply?
Check your organization against each line. Taken from the listing; confirm with the funder's guidelines.
Eligible organizations
- Institutions, nonprofits, or teams conducting relevant medical or clinical research
Geography
- Based in Maryland, US (h-abc.org)
Overview
Mission: The Foundation to Fight H-ABC is committed to accelerating research and improving quality of life for children affected by H-ABC and other TUBB4A-related leukodystrophies.
Funding Priorities
The foundation focuses grantmaking in these core areas:
- Medical Research: Advancing scientific studies, including gene therapy (AAV), antisense oligonucleotide (ASO) therapy, and other promising treatments
- Clinical Care Tools: Supporting projects that improve diagnosis, management, and daily living for individuals with H-ABC
- Family Support Initiatives: Funding services or resources that directly benefit children and families living with H-ABC
Eligibility
- Institutions, nonprofits, or teams conducting relevant medical or clinical research
Focus Areas
- H-ABC/TUBB4A leukodystrophy research
- Gene therapy (AAV)
- Antisense oligonucleotide (ASO) therapy
- Clinical care and diagnosis tools
- Family support services
Background
The foundation emphasizes early-stage funding as critical in rare disease research. Strategic philanthropic funding at this stage can unlock years of progress by making future research viable, as government grants are competitive and slow, and commercial investment typically waits until risk is reduced.
How to Apply
How to Apply
- Application Cycles: Submissions are reviewed annually
- Complete the application form for consideration
- Detailed step-by-step application process and required materials are not specified in the provided content
What Foundation to Fight H-ABC actually gave
Source: IRS Form 990, 2024
- Grants in 2024
- 2
- Total given
- $58K
- Median grant
- $29K
- Range
- $5,528–$52K
- By dollars: Massachusetts 100%. Top recipient cities: Worcester, MA; Boston, MA.
Example grants
University of Massachusetts Chan Medical School · Worcester, MA
$52K
Boston Childrens Hospital · Boston, MA
$5,528
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