Foundation for Ichthyosis and Related Skin Types Inc logo

Foundation for Ichthyosis and Related Skin Types Inc

Public charity · Grantmaker Lansdale, PA EIN: 94-2738019 Website

To improve the lives and seek cures for those affected by ichthyosis and related skin types.

Key facts about Foundation for Ichthyosis and Related Skin Types Inc

In short: Foundation for Ichthyosis and Related Skin Types Inc gave $138K across 5 grants in 2025 (avg $28K), top state Connecticut. Source: 2025 IRS Form 990.

EIN
94-2738019
Latest 990 filing
Form 990, 2025
Annual giving (2025)
$137,500
Grants made (2025)
5
Average grant
$27,500
Median grant
$17,500
Total assets
$3,272,432
Primary geography
Connecticut (45% of itemized 2025 grant dollars)

Data from IRS Form 990, 2025; updated September 2026.

Financial Overview

From 2025 IRS Form 990 · View filing

Total Assets

$3.3M

-0.3% YoY

Annual Giving

$138K

+31.0% YoY

Grant Count

5

+150.0% YoY

Avg Grant Size

$28K

-47.6% YoY

How Foundation for Ichthyosis and Related Skin Types Inc gives

  • Giving grew 175% from 2022 to 2025. Method

From the foundation's IRS Form 990 filings. Methodology.

About Foundation for Ichthyosis and Related Skin Types Inc

Based on IRS filings

Foundation for Ichthyosis and Related Skin Types Inc is a public charity, based in Lansdale, PA. IRS filing data is available from 2019 through 2025. As of 2025, the organization holds $3.3M in total assets. In 2025, it awarded 5 grants totaling $138K. Net investment income was $134K.

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Geographic Focus

Where this funder awards grants

Grant Distribution by State

5states

Share of 2025 grant dollars across all 5 itemized grants.

Cities

New HavenCharlotteCincinnatiDarienEvanstonSeattle

Giving Over Time

Total grant dollars and number of grants per year

$0$50K$100K$150K1 grant2019 1 grant2020 1 grant2021 1 grant2022 1 grant2023 2 grants2024 5 grants2025

From 2019 to 2025, annual grant giving ranged from $25K (2021) to $138K (2025). In 2025 it made 5 grants totaling $138K.

Grant Insights

How this funder distributes its grants

Top Recipients

Top 5 recipients in 2025

Yale University Dermatology: $45KYale University Dermatology$45KNorthwestern University: $45KNorthwestern University$45KImpact Health Communications: $18KImpact Health Communications$18KWake Forest University Health: $15KWake Forest University Health$15KChildren's Hospital Medical Center: $15KChildren's Hospital MedicalCenter$15K

The largest 2025 recipient was Yale University Dermatology ($45K). Together the top 5 received $138K.

Grant Size Distribution

10 grants across all recorded years

6<$50K4$50–100K$100–250K$250–500K$500K–1M$1–5M$5M+

The most common grant size was under $50K: 6 grants of 10 (60%).

Giving History

Grant recipients and amounts by year

RecipientPurposeAmount
Yale University Dermatology New Haven, CT—$45,000
Northwestern University Evanston, IL—$45,000
Impact Health Communications Darien, CT—$17,500
Wake Forest University Health Charlotte, NC—$15,000
Children's Hospital Medical Center Cincinnati, OH—$15,000

Financial History

Multi-year comparison from IRS filings

Revenue
Expenses
Net Investment Income
$0$1M$2M$3M2019 2020 2021 2022 2023 2024 2025
Metric202520242023
Total Assets$3,272,432$3,282,013$2,074,173
Revenue$966,515$1,970,863$734,946
Expenses$1,072,101$1,182,513$756,091
Net Investment Income$133,599$55,895$58,515

Data update history

When this profile's IRS filing data changed on Grantable

  1. Added Form 990 for fiscal year 2019 (received by the IRS August 17, 2020)
  2. Updated Form 990 for fiscal year 2020 (received by the IRS October 3, 2022)
  3. Updated Form 990 for fiscal year 2021 (received by the IRS October 3, 2022)
  4. Updated Form 990 for fiscal year 2022 (received by the IRS July 6, 2023)
  5. Updated Form 990 for fiscal year 2023 (received by the IRS June 18, 2024)
  6. Updated Form 990 for fiscal year 2024 (received by the IRS April 23, 2025)

Leadership & Key People

Officers and directors from IRS filings

Foundation for Ichthyosis and Related Skin Types Inc is led by Christopher Boynton, Chief Executive on every filing since 2020; 1 of 18 officers listed in 2025 is compensated.

Officers on the 2025 filing

  • Christopher Boynton

    Chief Executive

    On filings since 2020

    40 hrs/week

    $61K (2020) → $207K (2025)

  • Beth Hampshire

    Board Chair

    Board Member → 2nd Vice President, 2021

    2nd Vice President → Board Chair, 2022

    On filings since 2019

    2 hrs/week

    No compensation reported

  • Sean McTernan

    Chair

    CFO → Board Member, 2022

    Board Member → Chair, 2024

    On filings since 2019

    3 hrs/week

    No compensation reported

  • Bailey Pretak

    Secretary

    Board Member → Secretary, 2022

    On filings since 2019

    2 hrs/week

    No compensation reported

  • Brittany Craiglow MD

    Board Member

    On filings since 2019

    1 hr/week

    No compensation reported

  • Jolie Cina

    Board Member

    On filings since 2019

    1 hr/week

    No compensation reported

  • Keith Choate MD PhD

    Board Member

    On filings since 2019

    1 hr/week

    No compensation reported

  • Latanya Benjamin MD

    Board Member

    On filings since 2019

    1 hr/week

    No compensation reported

  • Mark Evans

    Vice President

    Co-President → Board Member, 2022

    Board Member → Vice President, 2024

    On filings since 2019

    2 hrs/week

    No compensation reported

  • Jason Thogmartin

    CFO

    Secretary → CFO, 2022

    On filings since 2021

    2 hrs/week

    No compensation reported

  • Lowell Wright

    Board Member

    On filings since 2021

    1 hr/week

    No compensation reported

  • Jackie Barrett

    Board Member

    On filings since 2022

    1 hr/week

    No compensation reported

  • Sarah Asch MD

    Board Member

    On filings since 2022

    1 hr/week

    No compensation reported

  • Tejal Kamdar

    Secretary

    Board Member → Secretary, 2024

    On filings since 2022

    2 hrs/week

    No compensation reported

  • Fulvia Veronese

    Board Member

    On filings since 2024

    1 hr/week

    No compensation reported

  • Jeffrey Blake

    Board Member

    On filings since 2024

    1 hr/week

    No compensation reported

  • Jennie Wiklow-Riley

    Board Member

    On filings since 2024

    1 hr/week

    No compensation reported

  • Sarah Aughenbaugh

    Board Member

    On filings since 2024

    1 hr/week

    No compensation reported

Former officers (10)
  • Former: Brian Stern (2019–2023) — Vice Chair
  • Former: Denise Benedetto (2019–2021) — Board Member
  • Former: Gabriele Richard MD (2019–2021) — Board Member
  • Former: Tracie Pretak (2019–2021) — Co-President
  • Former: Jeff Hoerle (2019–2020) — President
  • Former: Maureen Wenik (2019–2020) — Fmr Chief Executive
  • Former: Daniel Siegel (2020) — Board Member
  • Former: Denise Gass (2019) — Board Member
  • Former: Kimberly Cole (2019) — Board Member
  • Former: Robert Silverman (2019) — Board Member

Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.

Compensation Overview

From 2025 IRS filing

Christopher Boynton — Chief Exec.: $207KChristopher BoyntonChief Exec.$207K

The highest reported compensation on the 2025 filing was $207K, to Christopher Boynton (Chief Exec.).

Frequently asked questions about Foundation for Ichthyosis and Related Skin Types Inc

How much does Foundation for Ichthyosis and Related Skin Types Inc give each year?

Foundation for Ichthyosis and Related Skin Types Inc gave $138K across 5 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $105K across 2 grants.

What is Foundation for Ichthyosis and Related Skin Types Inc's typical grant size?

Foundation for Ichthyosis and Related Skin Types Inc's median grant in 2025 was $17,500, and its average grant was $27,500, across 5 grants on its 2025 IRS Form 990.

Where does Foundation for Ichthyosis and Related Skin Types Inc give grants?

Foundation for Ichthyosis and Related Skin Types Inc's top state is Connecticut, with 45% of the grant dollars itemized on its 2025 IRS Form 990. The next largest states were Illinois (33%) and North Carolina (11%).

Who are Foundation for Ichthyosis and Related Skin Types Inc's largest grantees?

Foundation for Ichthyosis and Related Skin Types Inc's largest 2025 grantees include Yale University Dermatology ($45,000), Northwestern University ($45,000) and Impact Health Communications ($17,500), according to its 2025 IRS Form 990. Together they received 78% of its itemized 2025 grant dollars.

How large is Foundation for Ichthyosis and Related Skin Types Inc?

Foundation for Ichthyosis and Related Skin Types Inc reported $3.3M in total assets on its 2025 IRS Form 990. Its revenue that year was $967K.

What is Foundation for Ichthyosis and Related Skin Types Inc's EIN?

Foundation for Ichthyosis and Related Skin Types Inc's EIN (Employer Identification Number) is 94-2738019. IRS Form 990 filing data is available on this page for 2019–2025.

Data last updated September 2026. Sourced from IRS Form 990 filings.

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