Foundation for Ichthyosis and Related Skin Types Inc
To improve the lives and seek cures for those affected by ichthyosis and related skin types.
Foundation for Ichthyosis and Related Skin Types Inc at a glance
In short: Foundation for Ichthyosis and Related Skin Types Inc gave $138K across 5 grants in 2025 (avg $28K), top state Connecticut. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $137,500
- +31.0% vs 2024
- Grants made (2025)
- 5
- +150.0% vs 2024
- Average grant
- $27,500
- -47.6% vs 2024
- Median grant
- $17,500
- Total assets
- $3,272,432
- -0.3% vs 2024
- Primary geography
- Connecticut (45% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
Who Foundation for Ichthyosis and Related Skin Types Inc funds
How this funder distributes its grants
Top Recipients
Top 5 recipients in 2025
The largest 2025 recipient was Yale University Dermatology ($45K). Together the top 5 received $138K.
Grant Size Distribution
10 grants across all recorded years
The most common grant size was under $50K: 6 grants of 10 (60%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2025 grant dollars across all 5 itemized grants.
Cities
How Foundation for Ichthyosis and Related Skin Types Inc gives
- Giving grew 175% from 2022 to 2025. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2019 to 2025, annual grant giving ranged from $25K (2021) to $138K (2025). In 2025 it made 5 grants totaling $138K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Yale University Dermatology New Haven, CT | — | $45,000 |
| Northwestern University Evanston, IL | — | $45,000 |
| Impact Health Communications Darien, CT | — | $17,500 |
| Wake Forest University Health Charlotte, NC | — | $15,000 |
| Children's Hospital Medical Center Cincinnati, OH | — | $15,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $3,272,432 | $966,515 | $1,072,101 | $137,500 | 5 | $133,599 |
| 2024 | $3,282,013 | $1,970,863 | $1,182,513 | $105,000 | 2 | $55,895 |
| 2023 | $2,074,173 | $734,946 | $756,091 | $93,500 | 1 | $58,515 |
| 2022 | $1,958,602 | $708,551 | $891,681 | $50,000 | 1 | $89,104 |
| 2021 | $2,615,716 | $1,013,506 | $626,248 | $25,000 | 1 | $315,221 |
| 2020 | $2,302,341 | $591,429 | $653,951 | $50,000 | 1 | $95,539 |
| 2019 | $2,275,431 | $598,014 | $523,059 | $50,000 | 1 | $70,803 |
About Foundation for Ichthyosis and Related Skin Types Inc
Based on IRS filings
Foundation for Ichthyosis and Related Skin Types Inc is a public charity, based in Lansdale, PA. IRS filing data is available from 2019 through 2025. As of 2025, the organization holds $3.3M in total assets. In 2025, it awarded 5 grants totaling $138K. Net investment income was $134K.
Leadership & Key People
Officers and directors from IRS filings
Foundation for Ichthyosis and Related Skin Types Inc is led by Christopher Boynton, Chief Executive on every filing since 2020; 1 of 18 officers listed in 2025 is compensated.
Officers on the 2025 filing
Christopher Boynton
Chief Executive
On filings since 2020
40 hrs/week
$61K (2020) → $207K (2025)
Beth Hampshire
Board Chair
Board Member → 2nd Vice President, 2021
2nd Vice President → Board Chair, 2022
On filings since 2019
2 hrs/week
No compensation reported
Sean McTernan
Chair
CFO → Board Member, 2022
Board Member → Chair, 2024
On filings since 2019
3 hrs/week
No compensation reported
Bailey Pretak
Secretary
Board Member → Secretary, 2022
On filings since 2019
2 hrs/week
No compensation reported
Brittany Craiglow MD
Board Member
On filings since 2019
1 hr/week
No compensation reported
Jolie Cina
Board Member
On filings since 2019
1 hr/week
No compensation reported
Keith Choate MD PhD
Board Member
On filings since 2019
1 hr/week
No compensation reported
Latanya Benjamin MD
Board Member
On filings since 2019
1 hr/week
No compensation reported
Mark Evans
Vice President
Co-President → Board Member, 2022
Board Member → Vice President, 2024
On filings since 2019
2 hrs/week
No compensation reported
Jason Thogmartin
CFO
Secretary → CFO, 2022
On filings since 2021
2 hrs/week
No compensation reported
Lowell Wright
Board Member
On filings since 2021
1 hr/week
No compensation reported
Jackie Barrett
Board Member
On filings since 2022
1 hr/week
No compensation reported
Sarah Asch MD
Board Member
On filings since 2022
1 hr/week
No compensation reported
Tejal Kamdar
Secretary
Board Member → Secretary, 2024
On filings since 2022
2 hrs/week
No compensation reported
Fulvia Veronese
Board Member
On filings since 2024
1 hr/week
No compensation reported
Jeffrey Blake
Board Member
On filings since 2024
1 hr/week
No compensation reported
Jennie Wiklow-Riley
Board Member
On filings since 2024
1 hr/week
No compensation reported
Sarah Aughenbaugh
Board Member
On filings since 2024
1 hr/week
No compensation reported
Former officers (10)
- Former: Brian Stern (2019–2023) — Vice Chair
- Former: Denise Benedetto (2019–2021) — Board Member
- Former: Gabriele Richard MD (2019–2021) — Board Member
- Former: Tracie Pretak (2019–2021) — Co-President
- Former: Jeff Hoerle (2019–2020) — President
- Former: Maureen Wenik (2019–2020) — Fmr Chief Executive
- Former: Daniel Siegel (2020) — Board Member
- Former: Denise Gass (2019) — Board Member
- Former: Kimberly Cole (2019) — Board Member
- Former: Robert Silverman (2019) — Board Member
Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $207K, to Christopher Boynton (Chief Exec.).
Frequently asked questions about Foundation for Ichthyosis and Related Skin Types Inc
How much does Foundation for Ichthyosis and Related Skin Types Inc give each year?
Foundation for Ichthyosis and Related Skin Types Inc gave $138K across 5 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $105K across 2 grants.
What is Foundation for Ichthyosis and Related Skin Types Inc's typical grant size?
Foundation for Ichthyosis and Related Skin Types Inc's median grant in 2025 was $17,500, and its average grant was $27,500, across 5 grants on its 2025 IRS Form 990.
Where does Foundation for Ichthyosis and Related Skin Types Inc give grants?
Foundation for Ichthyosis and Related Skin Types Inc's top state is Connecticut, with 45% of the grant dollars itemized on its 2025 IRS Form 990. The next largest states were Illinois (33%) and North Carolina (11%).
Who are Foundation for Ichthyosis and Related Skin Types Inc's largest grantees?
Foundation for Ichthyosis and Related Skin Types Inc's largest 2025 grantees include Yale University Dermatology ($45,000), Northwestern University ($45,000) and Impact Health Communications ($17,500), according to its 2025 IRS Form 990. Together they received 78% of its itemized 2025 grant dollars.
How large is Foundation for Ichthyosis and Related Skin Types Inc?
Foundation for Ichthyosis and Related Skin Types Inc reported $3.3M in total assets on its 2025 IRS Form 990. Its revenue that year was $967K.
What is Foundation for Ichthyosis and Related Skin Types Inc's EIN?
Foundation for Ichthyosis and Related Skin Types Inc's EIN (Employer Identification Number) is 94-2738019. IRS Form 990 filing data is available on this page for 2019–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(6)
When this profile's IRS filing data changed on Grantable
- Added Form 990 for fiscal year 2019 (received by the IRS August 17, 2020)
- Updated Form 990 for fiscal year 2020 (received by the IRS October 3, 2022)
- Updated Form 990 for fiscal year 2021 (received by the IRS October 3, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS July 6, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS June 18, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS April 23, 2025)
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