THE CYSTINOSIS RESEARCH NETWORK IS AN ALL VOLUNTEER, NON-PROFIT ORGANIZATION DEDICATED TO SUPPORTING AND ADVOCATING RESEARCH, PROVIDING FAMILY ASSISTANCE AND EDUCATING THE PUBLIC AND MEDICAL COMMUNITIES ABOUT CYSTINOSIS.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$605K
+102.8% YoY
Revenue
$646K
+26.4% YoY
Net Investment Income
$13K
+347.7% YoY
Expenses
$357K
-48.3% YoY
About Cystinosis Research Network Inc
Based on IRS filings
Cystinosis Research Network Inc is a nonprofit organization focused on Education, based in LAKE FOREST, IL. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $605K in total assets. Net investment income was $13K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $604,986 | $298,290 | $505,368 |
| Revenue | $646,021 | $511,051 | $346,267 |
| Expenses | $356,700 | $690,537 | $537,436 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $13,283 | $2,967 | $394 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 0 recipients in 2024
Grant Size Distribution
5 grants across all recorded years
Open Grants
5 open opportunities from Cystinosis Research Network Inc
CRN Individual with Cystinosis Scholarship
CYSTINOSIS RESEARCH NETWORK INC
Amount
Varies
Deadline
Rolling / Open
CRN Sierra Woodward Sibling Scholarship
CYSTINOSIS RESEARCH NETWORK INC
Amount
Varies
Deadline
Rolling / Open
Cystinosis Ireland Seedcorn Funding
CYSTINOSIS RESEARCH NETWORK INC
Amount
€10,000 per project (more where justified)
Deadline
Rolling / Open
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| JOHNATHAN DICKS | PRESIDENT, V | 16 | — |
| KAREN GLEDHILL | SECRETARY | 2 | — |
| CAROL HUGHES | DIRECTOR | 7 | — |
| CLAIR JOHNSTONE | EXECUTIVE DI | 4 | — |
| MARYBETH KRUMMENACKER | VP EDUCATION | 4 | — |
| CHELSEA MESCHKE | VP FAMILY SU | 2 | — |
| MEGAN MORRILL | DIRECTOR | 3 | — |
| GAIL POTTS | DIRECTOR | 2 | — |
| HEATHER FIELDS ROTHROCK | DIRECTOR | 1 | — |
| TERRI SCHLEUDER | DIRECTOR | 1 | — |
| KRISTINA SEVEL | VP RESEARCH | 2 | — |
| HERBERTH SIGLER | DIRECTOR | 1 | — |
| JEN WYMAN | DIRECTOR | 2 | — |
| TIM WYMAN | TREASURER | 1 | — |
Subject Areas
Focus areas based on grantmaking activity
Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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