THE CYSTINOSIS RESEARCH NETWORK IS AN ALL VOLUNTEER, NON-PROFIT ORGANIZATION DEDICATED TO SUPPORTING AND ADVOCATING RESEARCH, PROVIDING FAMILY ASSISTANCE AND EDUCATING THE PUBLIC AND MEDICAL COMMUNITIES ABOUT CYSTINOSIS.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$605K
+102.8% YoY
Revenue
$646K
+26.4% YoY
Net Investment Income
$13K
+347.7% YoY
Expenses
$357K
-48.3% YoY
About Cystinosis Research Network Inc
Based on IRS filings
Cystinosis Research Network Inc is a nonprofit organization focused on Education, based in LAKE FOREST, IL. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $605K in total assets. Net investment income was $13K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $604,986 | $298,290 | $505,368 |
| Revenue | $646,021 | $511,051 | $346,267 |
| Expenses | $356,700 | $690,537 | $537,436 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $13,283 | $2,967 | $394 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 0 recipients in 2024
Grant Size Distribution
5 grants across all recorded years
Open Grants
5 open opportunities from Cystinosis Research Network Inc
CRN Individual with Cystinosis Scholarship
CYSTINOSIS RESEARCH NETWORK INC
Amount
Varies
Deadline
Rolling / Open
CRN Sierra Woodward Sibling Scholarship
CYSTINOSIS RESEARCH NETWORK INC
Amount
Varies
Deadline
Rolling / Open
Cystinosis Ireland Seedcorn Funding
CYSTINOSIS RESEARCH NETWORK INC
Amount
€10,000 per project (more where justified)
Deadline
Rolling / Open
Giving History
Grant recipients and amounts by year
No grants recorded for 2024.
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| JOHNATHAN DICKS | PRESIDENT, V | 16 | — |
| KAREN GLEDHILL | SECRETARY | 2 | — |
| CAROL HUGHES | DIRECTOR | 7 | — |
| CLAIR JOHNSTONE | EXECUTIVE DI | 4 | — |
| MARYBETH KRUMMENACKER | VP EDUCATION | 4 | — |
| CHELSEA MESCHKE | VP FAMILY SU | 2 | — |
| MEGAN MORRILL | DIRECTOR | 3 | — |
| GAIL POTTS | DIRECTOR | 2 | — |
| HEATHER FIELDS ROTHROCK | DIRECTOR | 1 | — |
| TERRI SCHLEUDER | DIRECTOR | 1 | — |
| KRISTINA SEVEL | VP RESEARCH | 2 | — |
| HERBERTH SIGLER | DIRECTOR | 1 | — |
| JEN WYMAN | DIRECTOR | 2 | — |
| TIM WYMAN | TREASURER | 1 | — |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Cystinosis Research Network Inc?
Cystinosis Research Network Inc is a nonprofit organization focused on Education, based in LAKE FOREST, IL. It holds $605K in total assets as of 2024.
How large is Cystinosis Research Network Inc?
As of 2024, Cystinosis Research Network Inc holds $605K in total assets with $646K in annual revenue.
Where does Cystinosis Research Network Inc operate?
Cystinosis Research Network Inc has awarded grants in California, New York.
What is Cystinosis Research Network Inc's EIN?
Cystinosis Research Network Inc's EIN (Employer Identification Number) is 04-3323789. IRS Form 990 filing data is available on this page for 2020–2024.
Explore Open Grants
Browse active grant opportunities in Cystinosis Research Network Inc's focus areas in our free grants database
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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