Curepsp Inc
Curepsp Inc is a New York, New York–based public charity focused on progressive supranuclear palsy (PSP), corticobasal degeneration (CBD), and multiple system atrophy (MSA). Its mission is to raise awareness, build community, improve care, and find a cure for these conditions. It supports research, patient and caregiver services, education, and advocacy.
Curepsp Inc at a glance
In short: Curepsp Inc gave $1.2M across 16 grants in 2025 (avg $77K), top state Texas. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $1,235,474
- +119.7% vs 2024
- Grants made (2025)
- 16
- +100.0% vs 2024
- Average grant
- $77,217
- +9.9% vs 2024
- Median grant
- $77,237
- Total assets
- $11,029,404
- +27.0% vs 2024
- Primary geography
- Texas (25% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
How to apply to Curepsp Inc
- How to Apply
-
The published instructions invited proposals from academic and non-academic institutions and described submission through ProposalCentral. The application cycle described on that page had a deadline in 2023 and is a past cycle; the source does not establish a current application cycle.
- Review Cycle
- October 31, 2023, at 5 p.m. ET (past cycle).
- Deadline
- October 31, 2023, at 5 p.m.
- Contact
Mailing address: 325 Hudson Street 4Th Floor, New York, NY 10013-1045
Phone: (646) 725-1453
Website: https://curepsp.org
Application details from Grantable's research on the foundation's public materials; confirm on its website before applying.
Who Curepsp Inc funds
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2025
The largest 2025 recipient was North Texas Community Foundation ($200K). Together the top 10 received $1.1M.
Grant Size Distribution
51 grants across all recorded years
The most common grant size was under $50K: 18 grants of 51 (35%).
Geographic Focus
Where this funder awards grants
CurePSP is based in New York, New York. Its 2025 grant dollars went to recipients in multiple states; the largest listed shares were Texas (25%), New York (15%), Illinois (13%), Florida (8%), and Massachusetts (8%).
Grant Distribution by State
Share of 2025 grant dollars across all 16 itemized grants.
States
Cities
How Curepsp Inc gives
Estimate from itemized grant lists in IRS Form 990 filings (2025). Recipient names are matched across years, so a renamed or misspelled grantee can look new; grants to individuals are left out. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2019 to 2025, annual grant giving ranged from $110K (2019) to $1.2M (2025). In 2025 it made 16 grants totaling $1.2M.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| North Texas Community Foundation Forth Worth, TX | Funding Research - Cure Pillar of Our Mission | $200,000 |
| Regenerative Research Foundation Albany, NY | Funding Research - Cure Pillar of Our Mission | $150,000 |
| Alzheimers Association Chicago, IL | Special initiative grant: reimb. For global tau meeting, london, april 24-25, 2025 | $125,000 |
| Baylor College of Medicine - Grants Houston, TX | Funding Research - Cure Pillar of Our Mission | $100,000 |
| Mayo Clinic Jacksonville Jacksonville, FL | Funding Research - Cure Pillar of Our Mission | $100,000 |
| University of Massachusetts Westborough, MA | Funding Research - Cure Pillar of Our Mission | $100,000 |
| University of Nebraska Medical Center Omaha, NE | Funding Research - Cure Pillar of Our Mission | $100,000 |
| Washington University Seattle, WA | Funding Research - Cure Pillar of Our Mission | $100,000 |
| SJO Research & Consulting Phoenixville, PA | Research Grant | $54,474 |
| Stanford Office of Research Administration Los Angeles, CA | FY25 Center of Care Award Grant | $50,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $11,029,404 | $7,903,274 | $5,865,853 | $1,235,474 | 16 | $370,642 |
| 2024 | $8,687,169 | $5,127,686 | $4,845,918 | $562,321 | 8 | $-82,146 |
| 2023 | $7,777,249 | $3,308,947 | $4,256,576 | $689,310 | 10 | $53,126 |
| 2022 | $7,863,202 | $3,806,911 | $3,461,407 | $701,900 | 8 | $217,382 |
| 2021 | $8,414,669 | $6,342,039 | $3,488,363 | $647,195 | 9 | $27,438 |
| 2020 | $5,358,201 | $3,522,143 | $2,632,741 | $390,000 | 5 | $80,238 |
| 2019 | $4,347,464 | $3,115,437 | $2,394,117 | $110,000 | 2 | $48,189 |
Research compiled by Grantable AI from public sources. Last updated September 2026.
Mission & Focus Areas
CurePSP says its mission is to raise awareness, build community, improve care, and find a cure for PSP, CBD, and MSA. Its research program supports work on PSP and CBD, particularly fundamental neurobiology and disease mechanisms, as well as translational research on potential therapeutics and biomarkers. Its stated research priorities also include understanding causes and risk factors, identifying genetic variants, improving diagnosis and clinical-trial participation, and developing therapies aimed at protein-related brain damage.
The organization accepts research proposals from academic and non-academic institutions. Its giving also reaches a range of organizations. For example, the Regenerative Research Foundation describes its mission as developing regenerative stem-cell therapies for diseases of the central nervous system. The Michael J. Fox Foundation describes its mission as finding a cure for Parkinson’s disease through research and developing improved therapies. The Foundation for the National Institutes of Health describes its mission as creating partnerships to advance biomedical discoveries and improve people’s lives.
Grantmaking
In filing year 2025, CurePSP reported 16 grants totaling $1,235,474. Grant amounts ranged from $6,000 to $200,000, with a median of $77,237. The largest awards included $200,000 to North Texas Community Foundation and $150,000 to Regenerative Research Foundation, both for research; $125,000 to the Alzheimer’s Association for reimbursement related to the Global Tau meeting; and $100,000 each to Baylor College of Medicine, Mayo Clinic Jacksonville, the University of Massachusetts, the University of Nebraska Medical Center, and Washington University for research. CurePSP also awarded $50,000 to Stanford Office of Research Administration and $45,000 to Michigan State University for FY25 Center of Care awards.
CurePSP’s research-grant information describes a scientific review process: its Scientific Advisory Board reviews submissions and recommends projects for funding. The stated maximum award was $100,000 total for a grant period of up to two years, with award amounts or duration potentially varying according to available resources. Investigators were required to provide two progress reports during the grant term; payment could be withheld pending satisfactory reports. Applicants were directed to review the organization’s research policies and procedures.
Leadership & Key People
Leadership team and compensation from IRS filings
Officers and directors listed on the 2025 filing were Jack Phillips, Chair; Amy Branch, Vice Chair; Justin Shea, Treasurer; Lawrence Levien, Secretary; Lawrence Golbe, Chair – Scientific Advisor; and directors William McFarland, James McClellan, Ileen McFarland, Louis Foxwell, and Alexander Pantelyat.
Curepsp Inc is led by Jack Phillips, Chair since 2024 (on filings since 2021); 3 of 17 officers listed in 2025 are compensated.
Officers on the 2025 filing
Jack Phillips
Chair
Director → Chair, 2024
On filings since 2021
25 hrs/week
No compensation reported
Lawrence Golbe
Chair - Scientific Advisor
Chair - Scientific Advisory Board → Chair - Scientific Advisor, 2025
On filings since 2024
2 hrs/week
No compensation reported
Kristophe J. Diaz
Exe Director & Chief Science Officer
Vp-Sci. Affairs → Executive Director, 2022
Executive Director → Exe Director & Chief Science Officer, 2024
On filings since 2021
40 hrs/week
$170K (2021) → $267K (2025)
Richard T. Spain IV
Director & Development
On filings since 2024
40 hrs/week
$131K (2024) → $162K (2025)
Ileen McFarland
Director
On filings since 2019
35 hrs/week
No compensation reported
William McFarland
Director
Director → Chair, 2024
Chair → Director, 2025
On filings since 2019
3 hrs/week
No compensation reported
Alexander Pantelyat
Director
On filings since 2021
3 hrs/week
No compensation reported
James McClellan
Director
On filings since 2021
0.5 hrs/week
No compensation reported
Mana Bhatt Sanghvi
Director
On filings since 2021
2 hrs/week
No compensation reported
Paul Freeman
Director
On filings since 2022
3 hrs/week
No compensation reported
Louis Foxwell
Director
On filings since 2023
3 hrs/week
No compensation reported
Nadine Tatton
Director
On filings since 2023
0.5 hrs/week
No compensation reported
Maria Schmidt
Director
New on the 2025 filing
2 hrs/week
No compensation reported
Jennifer L. Brummet
Associate Director Clinical Affairs & Advocacy
Associate Director, Scientific Affairs & Partner → Associate Director Clinical Affairs & Advocacy, 2025
On filings since 2024
40 hrs/week
$126K (2024) → $150K (2025)
Amy Branch
Vice Chair
On filings since 2019
8 hrs/week
No compensation reported
Justin Shea
Treasurer
On filings since 2019
2 hrs/week
No compensation reported
Lawrence Levien
Secretary
On filings since 2021
1 hr/week
No compensation reported
Former officers (21)
- Former: Jessica Shurer (2020–2025) — Director Clinical Affairs & Advocacy · Filing note: Thru 10/2021
- Former: Maggie Orseth (2021–2024) — Director
- Former: Jaclyn C. Zendrian (2023–2024) — Vp-Events
- Former: Larry Golbe (2019–2023) — Chair Sab · Filing note: Thru 022019
- Former: Andrew Maus (2021–2023) — Chair
- Former: Robert Hand (2021–2023) — Director
- Former: David Kemp (2019–2022) — President
- Former: Everett Cook (2019–2022) — Director · Filing note: Thru 622
- Former: John Sr Burhoe (2019–2022) — Chair Emeritus · Filing note: Thru 32020
- Former: Brent R Bluett (2020–2022) — Director · Filing note: Thru 522
- Former: Jeff Freidman (2019–2020) — Director · Filing note: Thru 102019
- Former: Larry Levien (2019–2020) — Secretary
- Former: McClellan James (2019–2020) — Director
- Former: Orseth Maggie (2019–2020) — Director
- Former: Stephen Goldman (2019–2020) — Director
- Former: Alex Pantelyat (2020) — Director
- Former: Andy Maus (2020) — Director
- Former: Bobby Hand (2020) — Director
- Former: Larry Golbe rejoined (2020) — Director
- Former: Alexander Klein (2019) — Dir-Scient Affairs · Filing note: Thru 022019
- Former: Mike Dixon (2019) — Director
Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $267K, to Kristophe J Diaz (EXE DIR and Chief Science Officer). 4 officers or directors reported compensation on that filing.
Frequently asked questions about Curepsp Inc
How much does Curepsp Inc give each year?
Curepsp Inc gave $1.2M across 16 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $562K across 8 grants.
What is Curepsp Inc's typical grant size?
Curepsp Inc's median grant in 2025 was $77,237, and its average grant was $77,217, across 16 grants on its 2025 IRS Form 990.
Where does Curepsp Inc give grants?
Curepsp Inc's top state is Texas, with 25% of the grant dollars itemized on its 2025 IRS Form 990. The next largest states were New York (15%) and Illinois (13%). The most frequent recipient cities were Chicago, IL (2 grants).
Does Curepsp Inc give general operating support?
Not in 2025: none of the 16 grants with a stated purpose on Curepsp Inc's 2025 IRS Form 990 were described as general or operating support. Recurring purposes include "Funding Research - Cure Pillar of Our Mission" (7 grants) and "FY25 Center of Care Award Grant" (3 grants).
Who are Curepsp Inc's largest grantees?
Curepsp Inc's largest 2025 grantees include North Texas Community Foundation ($200,000), Regenerative Research Foundation ($150,000) and Alzheimers Association ($125,000), according to its 2025 IRS Form 990. Together they received 38% of its itemized 2025 grant dollars.
How large is Curepsp Inc?
Curepsp Inc reported $11.0M in total assets on its 2025 IRS Form 990. Its revenue that year was $7.9M.
What does Curepsp Inc fund?
CurePSP says its mission is to raise awareness, build community, improve care, and find a cure for PSP, CBD, and MSA. See mission & focus areas ↑
How do I apply for a grant from Curepsp Inc?
The published instructions invited proposals from academic and non-academic institutions and described submission through ProposalCentral. Eligibility and process details are in the grantmaking section of this profile. See how to apply ↑
What is Curepsp Inc's EIN?
Curepsp Inc's EIN (Employer Identification Number) is 52-1704978. IRS Form 990 filing data is available on this page for 2019–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings. Research dossier generated September 2026.
Data update history
(8)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS May 4, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS May 9, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS May 10, 2023)
- Updated Form 990 for fiscal year 2024 (received by the IRS April 25, 2025)
- Added Form 990 for fiscal year 2019 (received by the IRS May 26, 2020)
- Updated Form 990 for fiscal year 2023 (received by the IRS May 14, 2024)
- Added Form 990 for fiscal year 2025 (received by the IRS April 27, 2026)
- IRS filings on file for fiscal years 2020–2024
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Cite this profile
Grantable. (2026). Curepsp Inc funder profile. GrantGraph. Retrieved October 15, 2026, from https://grantable.co/funders/curepsp-inc-morg_3a033b92f4934bf0aeb9d05ae4e0a3ee
BibTeX
@misc{grantable_521704978_2026,
author = {{Grantable}},
title = {{Curepsp Inc funder profile}},
howpublished = {GrantGraph},
year = {2026},
url = {https://grantable.co/funders/curepsp-inc-morg_3a033b92f4934bf0aeb9d05ae4e0a3ee},
note = {Accessed 2026-10-15. Data licensed CC BY 4.0}
}The figures on this page are open data under CC BY 4.0: reuse them with credit to Grantable and a link. Download the data.
Figures come from Curepsp Inc's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.
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