Cure JM Foundation
CURE JM FOUNDATION is a public charity filing on Form 990, based in Leesburg, Virginia. Founded in 2003, it supports research and care related to juvenile myositis (JM), as well as families affected by the disease.
Key facts about Cure JM Foundation
In short: Cure JM Foundation gave $1.1M across 20 grants in 2025 (avg $53K), top state District of Columbia. 75% of 2025 grantees were new. Source: 2025 IRS Form 990.
- EIN
- 35-2222262
- Latest 990 filing
- Form 990, 2025
- Annual giving (2025)
- $1,054,866
- Grants made (2025)
- 20
- Average grant
- $52,743
- Median grant
- $11,220
- New grantees (estimate)
- 75% first-time grantees (15 of 20, 2025)
- Total assets
- $2,406,778
- Primary geography
- District of Columbia (20% of itemized 2025 grant dollars)
- How to apply
- For the 2026 research grant cycle, submit a single PDF electronically. Full details ↓
- Deadline
- The 2026 research RFP deadline is October 31, 2026.
Data from IRS Form 990, 2025; updated September 2026. New grantees are estimated by matching recipient names across years (methodology). Application details from Grantable's research on the foundation's public materials; confirm on its website before applying.
Financial Overview
From 2025 IRS Form 990 · View filing
Total Assets
$2.4M
-6.8% YoY
Annual Giving
$1.1M
+18.4% YoY
Grant Count
20
+66.7% YoY
Avg Grant Size
$53K
-29.0% YoY
Is Cure JM Foundation open to new grantees?
75%
first-time grantees, 2025
In 2025, 15 of 20 grantees (75%) were first-time recipients. First grants averaged $29K; repeat grants $125K. How we count
Medians: $10K first-time, $129K repeat.
Estimate from itemized grant lists in IRS Form 990 filings (2019–2025). Recipient names are matched across years, so a renamed or misspelled grantee can look new; grants to individuals are left out. Methodology.
Mission & Focus Areas
The foundation’s mission is to find better treatments and a cure for juvenile myositis and improve the lives of families affected by JM. Its website describes research funding for clinicians and researchers, mental health grant funding intended to integrate mental health into pediatric rheumatology care, and education and support for patients and families.
Its reported grantees include universities, hospitals, and research organizations. For example, The George Washington University describes its mission as educating students across a range of fields and conducting and publishing scholarly research. Rady Children’s Hospital San Diego describes its mission as improving children’s health and developmental potential through care, education, research, and advocacy.
Grantmaking
In filing year 2025, the foundation reported 20 grants totaling $1,054,866. Grant amounts ranged from $10,000 to $210,629, with a median of $11,220.
Review Cycle
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Geographic Focus
Where this funder awards grants
The 2025 grant dollars went to recipients in multiple states. The largest shares were reported for Washington, DC (20%), Wisconsin (16%), California (15%), North Carolina (12%), and New York (11%).
Grant Distribution by State
Share of 2025 grant dollars across all 20 itemized grants.
States
Cities
Giving Over Time
Total grant dollars and number of grants per year
From 2019 to 2025, annual grant giving ranged from $629K (2022) to $1.1M (2025). In 2025 it made 20 grants totaling $1.1M.
Grant Insights
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2025
The largest 2025 recipient was Childhood Arthritis & Rheumatology ($211K). Together the top 10 received $955K.
Grant Size Distribution
57 grants across all recorded years
The most common grant size was under $50K: 26 grants of 57 (46%).
Giving History
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Childhood Arthritis & Rheumatology Washington, DC | Support the Expansio | $210,629 |
| Medical College of Wisconsin Milwaukee, WI | — | $170,000 |
| Duke University Medical Center Durham, NC | — | $128,797 |
| Univ California SF Benioff Childre San Francisco, CA | — | $125,000 |
| Binghamton Univ State of New York Binghamton, NY | — | $112,500 |
| The George Washington University Ashburn, VA | — | $70,000 |
| Seattle Childeren's Hospital Founda Seattle, WA | — | $62,500 |
| Lurie Children's Hospital of Chicag Chicago, IL | — | $47,000 |
| National Institutes of Health Bethesda, MD | Research | $16,000 |
| Rady Children's Hospital San Diego San Diego, CA | Support the Cure of | $12,440 |
Financial History
Multi-year comparison from IRS filings
| Filing year | Assets | Revenue | Expenses | Grants |
|---|---|---|---|---|
| 2025 | $2,406,778 | $2,486,838 | $2,661,142 | $1,054,866 |
| 2024 | $2,581,082 | $2,318,946 | $2,062,981 | $891,309 |
| 2023 | $2,301,494 | $2,243,763 | $2,055,068 | $686,632 |
| Metric | 2025 | 2024 | 2023 |
|---|---|---|---|
| Total Assets | $2,406,778 | $2,581,082 | $2,301,494 |
| Revenue | $2,486,838 | $2,318,946 | $2,243,763 |
| Expenses | $2,661,142 | $2,062,981 | $2,055,068 |
| Net Investment Income | $155,414 | $17,483 | $9,728 |
Data update history
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2024 (received by the IRS February 5, 2025)
- Updated Form 990 for fiscal year 2025 (received by the IRS June 3, 2026)
- Updated Form 990 for fiscal year 2019 (received by the IRS August 17, 2020)
- Updated Form 990 for fiscal year 2020 (received by the IRS August 16, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS August 15, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS October 18, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS May 15, 2024)
Leadership & Key People
Leadership team and compensation from IRS filings
The 2025 filing lists Kristine Alderfer as chair; Justin Whitney as president; Tim Shelby as treasurer; and Denise Koch as secretary. Directors listed are Debbie Daum, Shari Hume, Tom Hume, Dr. Tracy Van Ness, Karen Berman, and Zach Harrison.
Cure JM Foundation is led by Justin Whitney, President since 2025 (on filings since 2022); 2 of 17 officers listed in 2025 are compensated.
Officers on the 2025 filing
Justin Whitney
President
Director → President, 2025
On filings since 2022
1 hr/week
No compensation reported
Kristine Alderfer
Chair
Director → Chair, 2025
On filings since 2019
1 hr/week
No compensation reported
Shari Hume
Director
Co-Founder → Director, 2025
On filings since 2019
1 hr/week
No compensation reported
Tom Hume
Director
Co-Founder → Director, 2025
On filings since 2019
1 hr/week
No compensation reported
Tracy Van Ness
Director
On filings since 2019
1 hr/week
No compensation reported
Karen Berman
Director
On filings since 2022
1 hr/week
No compensation reported
Randy Putt
Director
On filings since 2022
1 hr/week
No compensation reported
Zach Harrison
Director
On filings since 2022
1 hr/week
No compensation reported
Anna Schwartz-Ramsey
Director
On filings since 2023
1 hr/week
No compensation reported
Julie Houpt
Director
On filings since 2023
1 hr/week
No compensation reported
Michelle Best
Director
On filings since 2023
1 hr/week
No compensation reported
Debbie Daum
Director
New on the 2025 filing
1 hr/week
No compensation reported
John Caldwell
Director
New on the 2025 filing
1 hr/week
No compensation reported
James Minow
Executive Di
On filings since 2019
40 hrs/week
$153K (2019) → $183K (2025)
Andrew Heaton PhD
Chief Scient
On filings since 2020
40 hrs/week
$219K (2020) → $162K (2025)
Denise Koch
Secretary
Director → Secretary, 2025
On filings since 2020
1 hr/week
No compensation reported
Tim Shelby
Treasurer
Director → Treasurer, 2025
On filings since 2020
1 hr/week
No compensation reported
Former officers (13)
- Former: Mitali Dave (2020–2024) — Chairman
- Former: Nikki Hahn (2020–2024) — President
- Former: Brent Hauser (2022–2024) — Treasurer
- Former: Dave Maher (2022–2024) — Director
- Former: Shannon Malloy (2024) — Assistant Treasurer
- Former: Annie Mitchell (2019–2023) — Director
- Former: Kevin Coffey (2019–2021) — Director
- Former: Ragan Cantrelle (2019–2021) — Secretary
- Former: Suzanne Edison (2019–2021) — Director
- Former: Allison Taylor (2020–2021) — Director
- Former: Rhonda McKeever (2020–2021) — Chairman Emeritus
- Former: Tim Hauser (2020–2021) — Treasurer
- Former: Denise C. Doria (2019) — CFO & Director
Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $183K, to James Minow (Executive Di). 2 officers or directors reported compensation on that filing.
Contact
Mailing address: 19309 Winmeade Drive Suite 204, Leesburg, VA 20176
Phone: (202) 596-6267
Website: https://curejm.org
Frequently asked questions about Cure JM Foundation
How much does Cure JM Foundation give each year?
Cure JM Foundation gave $1.1M across 20 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $891K across 12 grants.
What is Cure JM Foundation's typical grant size?
Cure JM Foundation's median grant in 2025 was $11,220, and its average grant was $52,743, across 20 grants on its 2025 IRS Form 990. Organizations receiving their first grant from Cure JM Foundation that year got $29K on average.
Where does Cure JM Foundation give grants?
Cure JM Foundation's top state is District of Columbia, with 20% of the grant dollars itemized on its 2025 IRS Form 990. The next largest states were Wisconsin (16%) and California (15%). The most frequent recipient cities were Baltimore, MD (2 grants).
Does Cure JM Foundation give general operating support?
Not in 2025: none of the 13 grants with a stated purpose on Cure JM Foundation's 2025 IRS Form 990 were described as general or operating support. Recurring purposes include "Support the Cure of" (11 grants).
Who are Cure JM Foundation's largest grantees?
Cure JM Foundation's largest 2025 grantees include Childhood Arthritis & Rheumatology ($210,629), Medical College of Wisconsin ($170,000) and Duke University Medical Center ($128,797), according to its 2025 IRS Form 990. Together they received 48% of its itemized 2025 grant dollars.
How large is Cure JM Foundation?
Cure JM Foundation reported $2.4M in total assets on its 2025 IRS Form 990. Its revenue that year was $2.5M.
What does Cure JM Foundation fund?
The foundation’s mission is to find better treatments and a cure for juvenile myositis and improve the lives of families affected by JM. See mission & focus areas ↑
How do I apply for a grant from Cure JM Foundation?
For the 2026 research grant cycle, submit a single PDF electronically. Eligibility and process details are in the grantmaking section of this profile. See how to apply ↑
What is Cure JM Foundation's EIN?
Cure JM Foundation's EIN (Employer Identification Number) is 35-2222262. IRS Form 990 filing data is available on this page for 2019–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings. Research dossier generated September 2026.
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