Cure JM Foundation
Cure JM Foundation is a public charity filing on Form 990, based in Leesburg, Virginia. Founded in 2003, it supports research and care related to juvenile myositis (JM), as well as families affected by the disease.
Cure JM Foundation at a glance
In short: Cure JM Foundation gave $1.1M across 20 grants in 2025 (avg $53K), top state District of Columbia. 75% of 2025 grantees were new. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $1,054,866
- +18.4% vs 2024
- Grants made (2025)
- 20
- +66.7% vs 2024
- Average grant
- $52,743
- -29.0% vs 2024
- Median grant
- $11,220
- Total assets
- $2,406,778
- -6.8% vs 2024
- New grantees (estimate)
- 75% first-time grantees (15 of 20, 2025; small sample)
- Primary geography
- District of Columbia (20% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026. New grantees are estimated by matching recipient names across years (methodology).
How to apply to Cure JM Foundation
- How to Apply
-
For the 2026 research grant cycle, submit a single PDF electronically. The foundation also says clinicians in its Clinical Care Network are invited to apply for Miracle Grants, with funding awarded on a rolling basis.
- Review Cycle
- The 2026 research RFP deadline is October 31, 2026.
- Deadline
- The 2026 research RFP deadline is October 31, 2026.
- Contact
Mailing address: 19309 Winmeade Drive Suite 204, Leesburg, VA 20176
Phone: (202) 596-6267
Website: https://curejm.org
Application details from Grantable's research on the foundation's public materials; confirm on its website before applying.
Who Cure JM Foundation funds
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2025
The largest 2025 recipient was Childhood Arthritis & Rheumatology ($211K). Together the top 10 received $955K.
Grant Size Distribution
57 grants across all recorded years
The most common grant size was under $50K: 26 grants of 57 (46%).
Geographic Focus
Where this funder awards grants
The 2025 grant dollars went to recipients in multiple states. The largest shares were reported for Washington, DC (20%), Wisconsin (16%), California (15%), North Carolina (12%), and New York (11%).
Grant Distribution by State
Share of 2025 grant dollars across all 20 itemized grants.
States
Cities
Is Cure JM Foundation open to new grantees?
75%
first-time grantees, 2025
In 2025, 15 of 20 grantees (75%) were first-time recipients. With only 20 grantees, that is a small sample: one grantee more or less moves the share by about 5 points. First grants averaged $29K; repeat grants $125K. How we count
Medians: $10K first-time, $129K repeat.
Estimate from itemized grant lists in IRS Form 990 filings (2019–2025). Recipient names are matched across years, so a renamed or misspelled grantee can look new; grants to individuals are left out. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2019 to 2025, annual grant giving ranged from $629K (2022) to $1.1M (2025). In 2025 it made 20 grants totaling $1.1M.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Childhood Arthritis & Rheumatology Washington, DC | Support the Expansio | $210,629 |
| Medical College of Wisconsin Milwaukee, WI | — | $170,000 |
| Duke University Medical Center Durham, NC | — | $128,797 |
| Univ California SF Benioff Childre San Francisco, CA | — | $125,000 |
| Binghamton Univ State of New York Binghamton, NY | — | $112,500 |
| The George Washington University Ashburn, VA | — | $70,000 |
| Seattle Childeren's Hospital Founda Seattle, WA | — | $62,500 |
| Lurie Children's Hospital of Chicag Chicago, IL | — | $47,000 |
| National Institutes of Health Bethesda, MD | Research | $16,000 |
| Rady Children's Hospital San Diego San Diego, CA | Support the Cure of | $12,440 |
Ready to take the next step with Cure JM Foundation?
Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $2,406,778 | $2,486,838 | $2,661,142 | $1,054,866 | 20 | $155,414 |
| 2024 | $2,581,082 | $2,318,946 | $2,062,981 | $891,309 | 12 | $17,483 |
| 2023 | $2,301,494 | $2,243,763 | $2,055,068 | $686,632 | 9 | $9,728 |
| 2022 | $2,112,799 | $1,824,036 | $1,760,953 | $629,144 | 7 | $9 |
| 2021 | $2,049,716 | $2,232,153 | $1,987,838 | $1,018,760 | 9 | $220 |
| 2020 | $1,977,559 | $1,907,570 | $1,964,707 | $697,023 | 7 | $14,640 |
| 2019 | $1,920,336 | $1,923,270 | $1,740,400 | $794,081 | 9 | $13,143 |
Research compiled by Grantable AI from public sources. Last updated September 2026.
Mission & Focus Areas
The foundation’s mission is to find better treatments and a cure for juvenile myositis and improve the lives of families affected by JM. Its website describes research funding for clinicians and researchers, mental health grant funding intended to integrate mental health into pediatric rheumatology care, and education and support for patients and families.
Its reported grantees include universities, hospitals, and research organizations. For example, The George Washington University describes its mission as educating students across a range of fields and conducting and publishing scholarly research. Rady Children’s Hospital San Diego describes its mission as improving children’s health and developmental potential through care, education, research, and advocacy.
Grantmaking
In filing year 2025, the foundation reported 20 grants totaling $1,054,866. Grant amounts ranged from $10,000 to $210,629, with a median of $11,220.
Among its largest 2025 grants were $210,629 to Childhood Arthritis & Rheumatology Research Alliance, $170,000 to Medical College of Wisconsin, $128,797 to Duke University Medical Center, $125,000 to the University of California San Francisco Benioff Children’s Hospital, and $112,500 to Binghamton University State University of New York.
The foundation’s 2026 research RFP offers awards of up to $75,000 per year for up to two years. Eligible applicants must hold a Ph.D., M.D., or equivalent and work at an accredited medical school, university, hospital, or research institute able to provide the required facilities. The RFP strongly encourages collaboration between two or more institutions and gives preference to applicants with at least 25% protected research time. A portion of awards may be reserved for JM researchers within five years of completing residency. Applications require a proposal of up to four pages, a one-page lay summary, an NIH-format CV or biosketch, institutional support, and collaboration letters from investigators involved.
The 2026 mental health RFP offers up to $15,000 for up to 18 months. Its application materials include a project proposal, a lay summary, a timeline and budget, an NIH-format CV or biosketch, institutional support, and collaboration letters. Its July 31, 2026 application deadline has passed.
Leadership & Key People
Leadership team and compensation from IRS filings
The 2025 filing lists Kristine Alderfer as chair; Justin Whitney as president; Tim Shelby as treasurer; and Denise Koch as secretary. Directors listed are Debbie Daum, Shari Hume, Tom Hume, Dr. Tracy Van Ness, Karen Berman, and Zach Harrison.
Cure JM Foundation is led by Justin Whitney, President since 2025 (on filings since 2022); 2 of 17 officers listed in 2025 are compensated.
Officers on the 2025 filing
Justin Whitney
President
Director → President, 2025
On filings since 2022
1 hr/week
No compensation reported
Kristine Alderfer
Chair
Director → Chair, 2025
On filings since 2019
1 hr/week
No compensation reported
Shari Hume
Director
Co-Founder → Director, 2025
On filings since 2019
1 hr/week
No compensation reported
Tom Hume
Director
Co-Founder → Director, 2025
On filings since 2019
1 hr/week
No compensation reported
Tracy Van Ness
Director
On filings since 2019
1 hr/week
No compensation reported
Karen Berman
Director
On filings since 2022
1 hr/week
No compensation reported
Randy Putt
Director
On filings since 2022
1 hr/week
No compensation reported
Zach Harrison
Director
On filings since 2022
1 hr/week
No compensation reported
Anna Schwartz-Ramsey
Director
On filings since 2023
1 hr/week
No compensation reported
Julie Houpt
Director
On filings since 2023
1 hr/week
No compensation reported
Michelle Best
Director
On filings since 2023
1 hr/week
No compensation reported
Debbie Daum
Director
New on the 2025 filing
1 hr/week
No compensation reported
John Caldwell
Director
New on the 2025 filing
1 hr/week
No compensation reported
James Minow
Executive Di
On filings since 2019
40 hrs/week
$153K (2019) → $183K (2025)
Andrew Heaton PhD
Chief Scient
On filings since 2020
40 hrs/week
$219K (2020) → $162K (2025)
Denise Koch
Secretary
Director → Secretary, 2025
On filings since 2020
1 hr/week
No compensation reported
Tim Shelby
Treasurer
Director → Treasurer, 2025
On filings since 2020
1 hr/week
No compensation reported
Former officers (13)
- Former: Mitali Dave (2020–2024) — Chairman
- Former: Nikki Hahn (2020–2024) — President
- Former: Brent Hauser (2022–2024) — Treasurer
- Former: Dave Maher (2022–2024) — Director
- Former: Shannon Malloy (2024) — Assistant Treasurer
- Former: Annie Mitchell (2019–2023) — Director
- Former: Kevin Coffey (2019–2021) — Director
- Former: Ragan Cantrelle (2019–2021) — Secretary
- Former: Suzanne Edison (2019–2021) — Director
- Former: Allison Taylor (2020–2021) — Director
- Former: Rhonda McKeever (2020–2021) — Chairman Emeritus
- Former: Tim Hauser (2020–2021) — Treasurer
- Former: Denise C. Doria (2019) — CFO & Director
Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $183K, to James Minow (Executive Di). 2 officers or directors reported compensation on that filing.
Frequently asked questions about Cure JM Foundation
How much does Cure JM Foundation give each year?
Cure JM Foundation gave $1.1M across 20 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $891K across 12 grants.
What is Cure JM Foundation's typical grant size?
Cure JM Foundation's median grant in 2025 was $11,220, and its average grant was $52,743, across 20 grants on its 2025 IRS Form 990. Organizations receiving their first grant from Cure JM Foundation that year got $29K on average.
Where does Cure JM Foundation give grants?
Cure JM Foundation's top state is District of Columbia, with 20% of the grant dollars itemized on its 2025 IRS Form 990. The next largest states were Wisconsin (16%) and California (15%). The most frequent recipient cities were Baltimore, MD (2 grants).
Does Cure JM Foundation give general operating support?
Not in 2025: none of the 13 grants with a stated purpose on Cure JM Foundation's 2025 IRS Form 990 were described as general or operating support. Recurring purposes include "Support the Cure of" (11 grants).
Who are Cure JM Foundation's largest grantees?
Cure JM Foundation's largest 2025 grantees include Childhood Arthritis & Rheumatology ($210,629), Medical College of Wisconsin ($170,000) and Duke University Medical Center ($128,797), according to its 2025 IRS Form 990. Together they received 48% of its itemized 2025 grant dollars.
How large is Cure JM Foundation?
Cure JM Foundation reported $2.4M in total assets on its 2025 IRS Form 990. Its revenue that year was $2.5M.
What does Cure JM Foundation fund?
The foundation’s mission is to find better treatments and a cure for juvenile myositis and improve the lives of families affected by JM. See mission & focus areas ↑
How do I apply for a grant from Cure JM Foundation?
For the 2026 research grant cycle, submit a single PDF electronically. Eligibility and process details are in the grantmaking section of this profile. See how to apply ↑
What is Cure JM Foundation's EIN?
Cure JM Foundation's EIN (Employer Identification Number) is 35-2222262. IRS Form 990 filing data is available on this page for 2019–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings. Research dossier generated September 2026.
Data update history
(7)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2024 (received by the IRS February 5, 2025)
- Updated Form 990 for fiscal year 2025 (received by the IRS June 3, 2026)
- Updated Form 990 for fiscal year 2019 (received by the IRS August 17, 2020)
- Updated Form 990 for fiscal year 2020 (received by the IRS August 16, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS August 15, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS October 18, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS May 15, 2024)
Live grants for the work Cure JM Foundation funds
Diseases, Disorders & Medical Disciplines Open opportunities, soonest deadline first.
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Browse active grant opportunities in Cure JM Foundation's focus areas in our free grants database
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Cite this profile
Grantable. (2026). Cure JM Foundation funder profile. GrantGraph. Retrieved October 21, 2026, from https://grantable.co/funders/cure-jm-foundation-morg_c39ba08962a4429994a97ffd11e60e8e
BibTeX
@misc{grantable_352222262_2026,
author = {{Grantable}},
title = {{Cure JM Foundation funder profile}},
howpublished = {GrantGraph},
year = {2026},
url = {https://grantable.co/funders/cure-jm-foundation-morg_c39ba08962a4429994a97ffd11e60e8e},
note = {Accessed 2026-10-21. Data licensed CC BY 4.0}
}The figures on this page are open data under CC BY 4.0: reuse them with credit to Grantable and a link. Download the data.
Figures come from Cure JM Foundation's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.
Cure JM Foundation down — hundreds of funders to go?