Pediatric Brain Tumor Foundation of the United States Inc
Vision A world without childhood brain tumors. Mission Care. Cure. Thrive.
Pediatric Brain Tumor Foundation of the United States Inc at a glance
In short: Pediatric Brain Tumor Foundation of the United States Inc gave $791K across 9 grants in 2025 (avg $88K), top state Massachusetts. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $791,177
- -40.7% vs 2024
- Grants made (2025)
- 9
- +12.5% vs 2024
- Average grant
- $87,909
- -47.3% vs 2024
- Median grant
- $60,013
- Total assets
- $2,864,550
- -14.2% vs 2024
- Primary geography
- Massachusetts (42% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
How to apply to Pediatric Brain Tumor Foundation of the United States Inc
Open Grants
5 open opportunities from Pediatric Brain Tumor Foundation of the United States Inc
Early Career Development Grant
Pediatric Brain Tumor Foundation of the United States Inc
Amount
Varies
Deadline
Deadline not published
General Research Funding Program
Pediatric Brain Tumor Foundation of the United States Inc
Amount
Varies
Deadline
Rolling (quarterly review)
Pediatric Brain Tumor Research Funding Proposals Grant
Pediatric Brain Tumor Foundation of the United States Inc
Amount
Varies
Deadline
Deadline not published
Who Pediatric Brain Tumor Foundation of the United States Inc funds
How this funder distributes its grants
Top Recipients
Top 9 recipients in 2025
The largest 2025 recipient was Dana-Farber Cancer Institute ($325K). Together the top 9 received $791K.
Grant Size Distribution
98 grants across all recorded years
The most common grant size was under $50K: 53 grants of 98 (54%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2025 grant dollars across all 9 itemized grants.
States
Cities
How Pediatric Brain Tumor Foundation of the United States Inc gives
- Giving fell 61% from 2022 to 2025. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2019 to 2025, annual grant giving ranged from $791K (2025) to $2.0M (2022). In 2025 it made 9 grants totaling $791K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Dana-Farber Cancer Institute Boston, MA | Research Grant | $325,000 |
| Regents of the University of Michigan Ann Arbor, MI | Research Grant | $125,664 |
| Society for Neuro-Oncology Houston, TX | Research Grant | $100,000 |
| Health Research Alliance Inc Raleigh, NC | Research Grant | $100,000 |
| Central Brain Tumor Registry of the United States Hinsdale, IL | Brain Tumor Report Grant | $60,013 |
| American Association for Cancer Research Foundation Philadelphia, PA | Research Grant | $60,000 |
| Association of Pediatric Oncology Social Workers Inc Newcastle, ME | Research Grant | $10,000 |
| Tough2gether Foundation Wamego, KS | Research Grant | $5,500 |
| Richi Childhood Cancer Foundation Holliston, MA | Research Grant | $5,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $2,864,550 | $5,848,026 | $6,133,132 | $791,177 | 9 | $76,883 |
| 2024 | $3,337,274 | $5,039,446 | $6,650,108 | $1,333,944 | 8 | $158,216 |
| 2023 | $5,390,187 | $5,058,429 | $6,568,526 | $1,920,454 | 24 | $129,201 |
| 2022 | $5,993,060 | $6,022,145 | $6,187,974 | $2,037,830 | 36 | $21,568 |
| 2021 | $6,277,731 | $5,999,996 | $5,267,809 | $1,183,605 | 21 | $-15,461 |
| 2019 | $5,780,879 | $6,362,573 | $7,128,175 | $1,637,730 | 37 | $45,877 |
About Pediatric Brain Tumor Foundation of the United States Inc
Based on IRS filings
Pediatric Brain Tumor Foundation of the United States Inc is a public charity focused on Medical Research, based in Winston-Salem, NC. IRS filing data is available from 2019 through 2025. As of 2025, the organization holds $2.9M in total assets. In 2025, it awarded 9 grants totaling $791K. Net investment income was $77K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Pediatric Brain Tumor Foundation of the United States Inc is led by Courtney Davies, CEO & President on every filing since 2019; 7 of 22 officers listed in 2025 are compensated.
Officers on the 2025 filing
Courtney Davies
CEO & President
On filings since 2019
50 hrs/week
$23K (2019) → $320K (2025)
Jeffrey A Gelfand
Chair
New on the 2025 filing
20 hrs/week
No compensation reported
Kimberly Roy-Canning
Director of Donor Relations
On filings since 2024
40 hrs/week
$101K (2024) → $102K (2025)
Michael Henry
Director of Advocacy
On filings since 2024
40 hrs/week
$106K (2024) → $110K (2025)
Tammy Bates
Senior Director of Operations
On filings since 2024
40 hrs/week
$104K (2024) → $108K (2025)
Andrew Aj Janower
Director
Chair → Director, 2024
On filings since 2019
1 hr/week
No compensation reported
Anne Sutton
Director
Secretary → Director, 2024
On filings since 2019
1 hr/week
No compensation reported
John Ragnoni
Director
On filings since 2019
2 hrs/week
No compensation reported
Karl Mueller
Director
On filings since 2019
1 hr/week
No compensation reported
Kristin Young
Director
Vice Chair → Director, 2024
On filings since 2019
1 hr/week
No compensation reported
Ken Murphy
Director
On filings since 2021
1 hr/week
No compensation reported
Bryan Waddell
Director
On filings since 2023
2 hrs/week
No compensation reported
Katie Bernard
Director
On filings since 2024
1 hr/week
No compensation reported
Sanjay Gupta
Director
On filings since 2024
1 hr/week
No compensation reported
Sam Blackman
Director
New on the 2025 filing
1 hr/week
No compensation reported
Tyler Henritze
Director
New on the 2025 filing
1 hr/week
No compensation reported
Geoff Still
CFO & COO
CFO → CFO & COO, 2023
On filings since 2021
50 hrs/week
$133K (2021) → $179K (2025)
Ian M Joyce
Chief Marketing & Mission Officer
Chief Marketing Mission Experience Officer → Chief Marketing & Mission Officer, 2025
On filings since 2023
40 hrs/week
$143K (2023) → $129K (2025)
Alyson Levine
Chief Development Officer
New on the 2025 filing
40 hrs/week
$201K (2025)
Chuck Boderman
Vice Chair
Director → Vice Chair, 2024
On filings since 2019
2 hrs/week
No compensation reported
Larry Little
Secretary
Director → Secretary, 2024
On filings since 2019
2 hrs/week
No compensation reported
Peter Krause
Treasurer
Director → Treasurer, 2024
On filings since 2023
1 hr/week
No compensation reported
Former officers (11)
- Former: Jeff Gelfand (2019–2024) — Chair
- Former: Robert McNamara (2024) — Vice President of Development
- Former: AJ Janower (2023) — Chair
- Former: Chase Jones (2019–2022) — Director
- Former: Jill Scognamiglio (2019–2022) — Director
- Former: Susie Rossick (2019–2022) — Director
- Former: Doug Porter (2019–2021) — Chairman Emeritus
- Former: Donald Goden (2019) — CFO & Secretary
- Former: Joanne Salcido (2019) — Vice President Research & Advocacy
- Former: Kurt Yndestad (2019) — Treasurer
- Former: William Tiller (2019) — President & CEO
Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $320K, to Courtney Davies (CEO/President Through Sept 2024). 7 officers or directors reported compensation on that filing.
Frequently asked questions about Pediatric Brain Tumor Foundation of the United States Inc
How much does Pediatric Brain Tumor Foundation of the United States Inc give each year?
Pediatric Brain Tumor Foundation of the United States Inc gave $791K across 9 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $1.3M across 8 grants.
What is Pediatric Brain Tumor Foundation of the United States Inc's typical grant size?
Pediatric Brain Tumor Foundation of the United States Inc's median grant in 2025 was $60,013, and its average grant was $87,909, across 9 grants on its 2025 IRS Form 990.
Where does Pediatric Brain Tumor Foundation of the United States Inc give grants?
Pediatric Brain Tumor Foundation of the United States Inc's top state is Massachusetts, with 42% of the grant dollars itemized on its 2025 IRS Form 990. The next largest states were Michigan (16%) and Texas (13%).
Does Pediatric Brain Tumor Foundation of the United States Inc give general operating support?
Not in 2025: none of the 9 grants with a stated purpose on Pediatric Brain Tumor Foundation of the United States Inc's 2025 IRS Form 990 were described as general or operating support. Recurring purposes include "Research Grant" (8 grants).
Who are Pediatric Brain Tumor Foundation of the United States Inc's largest grantees?
Pediatric Brain Tumor Foundation of the United States Inc's largest 2025 grantees include Dana-Farber Cancer Institute ($325,000), Regents of the University of Michigan ($125,664) and Society for Neuro-Oncology ($100,000), according to its 2025 IRS Form 990. Together they received 70% of its itemized 2025 grant dollars.
How large is Pediatric Brain Tumor Foundation of the United States Inc?
Pediatric Brain Tumor Foundation of the United States Inc reported $2.9M in total assets on its 2025 IRS Form 990. Its revenue that year was $5.8M.
What is Pediatric Brain Tumor Foundation of the United States Inc?
Pediatric Brain Tumor Foundation of the United States Inc is a public charity focused on Medical Research, based in Winston-Salem, NC. It holds $2.9M in total assets as of 2025.
What is Pediatric Brain Tumor Foundation of the United States Inc's EIN?
Pediatric Brain Tumor Foundation of the United States Inc's EIN (Employer Identification Number) is 58-1966822. IRS Form 990 filing data is available on this page for 2019–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(7)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2021 (received by the IRS June 2, 2022)
- Updated Form 990 for fiscal year 2023 (received by the IRS August 12, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS August 19, 2025)
- Added Form 990 for fiscal year 2019 (received by the IRS August 31, 2020)
- Updated Form 990 for fiscal year 2022 (received by the IRS January 25, 2024)
- Added Form 990 for fiscal year 2025 (received by the IRS August 15, 2026)
- IRS filings on file for fiscal years 2021–2024
Explore Open Grants
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