Colon Cancer Coalition Inc
Colon Cancer Coalition Inc is a 501(c)(3) nonprofit organization headquartered in Edina, Minnesota (with operations in Minneapolis). The organization promotes colorectal cancer awareness, screening, and prevention through grassroots community engagement and strategic partnerships. The Coalition operates a national network of over 40 run/walk events annually, known as "Get Your Rear in Gear," and provides direct funding and support for colorectal cancer education and screening programs across the United States.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$5.5M
+2.6% YoY
Annual Giving
$969K
-9.5% YoY
Grant Count
43
+2.4% YoY
Avg Grant Size
$23K
-11.6% YoY
Mission & Focus Areas
The Colon Cancer Coalition is dedicated to helping local communities promote prevention and early detection of colon cancer. The organization empowers people to take charge of their health, learn about their family medical history, discuss colon cancer screening with their doctors, and live healthy lifestyles. By normalizing conversations about colon cancer, colonoscopy, and colorectal health, the Coalition aims to overcome fear and decrease deaths from this largely preventable cancer.
Primary focus areas include:
- Colorectal cancer education and awareness
- Screening programs and access to preventive care
- Patient and survivor support
- Community-based prevention initiatives
Grantmaking
The Coalition actively makes grants to support colorectal cancer screening and education initiatives. Recent grants include:
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Geographic Focus
Where this funder awards grants
The Coalition supports colon cancer education and screening efforts across multiple regions, with particular concentration in:
- North Carolina
- Pennsylvania
- Texas
- Massachusetts
- Minnesota
- Brooklyn, New York
The organization has established strong partnerships in Philadelphia and North Carolina, where it collaborates with Thomas Jefferson University Hospital and Novant Presbyterian Hospital to provide colorectal screenings to residents who cannot otherwise afford them.
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
As of 2024:
- Total assets: $5,538,148
- Total revenues: $2,245,626
- Total expenses: $2,367,013
- Total giving: $1,151,179
- Staff: 20 employees
As of 2023:
- Total assets: $5,397,481
- Total revenues: $2,039,125
- Total expenses: $2,111,812
- Staff: 22 employees
The organization holds a Four-Star rating with a 100% score based on Accountability & Finance metrics.
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $5,538,148 | $5,397,481 | $5,683,086 |
| Revenue | $2,245,626 | $2,039,125 | $5,173,678 |
| Expenses | $2,367,013 | $2,111,812 | $2,115,500 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $180,075 | $104,903 | $476 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2024
Grant Size Distribution
186 grants across all recorded years
Open Grants
3 open opportunities from Colon Cancer Coalition Inc
Colon Cancer Coalition Community Grants
COLON CANCER COALITION INC
Amount
Varies
Deadline
Rolling / Open
Get Your Rear in Gear Grant Program
COLON CANCER COALITION INC
Amount
Varies
Deadline
August 1, 2026
Grant Extension
COLON CANCER COALITION INC
Amount
Varies
Deadline
Rolling / Open
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Leadership team and compensation from IRS filings
Kristin Lindquist - Founder and former President. Lindquist founded the organization in 2005 following the loss of her sister to colon cancer. She stepped down as president effective January 6, 2014, but remains a board member and volunteer.
Jeff Smedsrud - Founding board member who became Chairman of the Board following Lindquist's transition.
Anne Carlson - Executive Director. Carlson is a cancer survivor who has remained in this leadership role.
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| CHRIS EVANS | PRESIDENT | 40 | $128,333 |
| AMY SAWDY | CFO | 40 | $97,178 |
| MATTHEW SOROCHTY | CHAIRMAN | 1 | — |
| MONICA BRINGLE | TREASURER | 1 | — |
| MARY HARRIS PHD | SECRETARY | 1 | — |
| MATTHEW FLORY | BOARD MEMBER | 1 | — |
| LISA LALIBERTE | BOARD MEMBER | 1 | — |
| BRIAN SHELLY | BOARD MEMBER | 1 | — |
| ALLISON ROSEN | BOARD MEMBER | 1 | — |
Recent News & Activity
Recent developments and announcements
The Coalition has expanded its grant-making and partnership activities in recent years:
Announced a grant to Bahamas Supports Cost of Cancer through the Get Your Rear in Gear grants program (2023)
Grant Announcement: Get Your Rear in Gear \u2013 Bahamas Supports Cost of\Launched screening improvement initiatives in Brooklyn, New York (2025)
40% of Our Fundraising Goes to Screening Initiatives in Local CommunitiesExpanded partnership with Novant Health to support colorectal cancer services
Improving Colorectal Cancer Screening Across Brooklyn - Colon Cancer CoalitionContinues to coordinate over 40 annual run/walk events nationwide in partnership with local organizations
The organization maintains an active grant opportunity through the Get Your Rear in Gear Grants program.
Subject Areas
Focus areas based on grantmaking activity
Related Funders
Similar funders by location and focus area
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Assets
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Grants
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Total Given
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Assets
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Total Given
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Donald and Luella Zibell Family Foundation
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Assets
—
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Total Given
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Minnesota Citizens Concerned
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Assets
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Total Given
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Clearway Minnesota (sm)
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Assets
—
Grants
6
Total Given
$442K
Data last updated April 2026. Sourced from IRS Form 990-PF filings. Research dossier generated April 2026.
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