Coalition to Cure Calpain 3
To fund research to cure or treat limb-girdle muscular dystrophy type 2a (lgmd2a/r1), a form of calpainopathy, and to raise awareness of the disease among the scientific community, patients, and the public
Key facts about Coalition to Cure Calpain 3
In short: Coalition to Cure Calpain 3 gave $110K across 1 grant in 2025 (avg $110K), mostly in Virginia. Source: 2025 IRS Form 990.
- EIN
- 90-0616879
- Latest 990 filing
- Form 990, 2025
- Annual giving (2025)
- $110,338
- Grants made (2025)
- 1
- Average grant
- $110,338
- Median grant
- $110,338
- Total assets
- $202,514
- Primary geography
- Virginia (100% of itemized 2025 grant dollars)
Data from IRS Form 990, 2025; updated September 2026.
Financial Overview
From 2025 IRS Form 990 · View filing
Total Assets
$203K
-6.5% YoY
Annual Giving
$110K
-19.9% YoY
Grant Count
1
-50.0% YoY
Avg Grant Size
$110K
+60.3% YoY
About Coalition to Cure Calpain 3
Based on IRS filings
Coalition to Cure Calpain 3 is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Westport, CT. IRS filing data is available from 2019 through 2025. As of 2025, the organization holds $203K in total assets. In 2025, it awarded 1 grant totaling $110K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of the 2025 grant dollars on its one itemized grant.
States
Cities
Giving Over Time
Total grant dollars and number of grants per year
From 2019 to 2025, annual grant giving ranged from $110K (2025) to $539K (2023). In 2025 it made 1 grant totaling $110K.
Hatched bars: grants paid as reported on the IRS filing, which lists no individual grants for that year.
Grant Insights
How this funder distributes its grants
Top Recipients
Top recipient in 2025
The largest 2025 recipient was Virginia Commonwealth University ($110K).
Grant Size Distribution
3 grants across all recorded years
The most common grant size was in the $50–100K range: 2 grants of 3 (67%).
Giving History
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Virginia Commonwealth University Richmond, VA | Fund Research to Cure or Treat LGMD2A/R1 | $110,338 |
Financial History
Multi-year comparison from IRS filings
| Metric | 2025 | 2024 | 2023 |
|---|---|---|---|
| Total Assets | $202,514 | $216,629 | $252,048 |
| Revenue | $809,897 | $645,979 | $711,922 |
| Expenses | $640,568 | $455,737 | $770,459 |
Data update history
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2024 (received by the IRS July 23, 2025)
- Added Form 990 for fiscal year 2019 (received by the IRS August 18, 2020)
- Updated Form 990 for fiscal year 2020 (received by the IRS August 12, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS August 23, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS August 16, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS October 10, 2024)
- Added Form 990 for fiscal year 2025 (received by the IRS July 9, 2026)
Leadership & Key People
Officers and directors from IRS filings
Coalition to Cure Calpain 3 is led by Jordan Boslego, President & Treasurer since 2025 (on filings since 2019); 1 of 6 officers listed in 2025 is compensated.
Officers on the 2025 filing
Jordan Boslego
President & Treasurer
President → President & Treasurer, 2025
On filings since 2019
6 hrs/week
No compensation reported
Carol Abraham
Director
On filings since 2022
10 hrs/week
$10K (2022) → $0 (2025)
Jennifer Levy Keiser
Director of Grants
New on the 2025 filing
40 hrs/week
$156K (2025)
Alberto Nobrega
Director
On filings since 2019
3 hrs/week
No compensation reported
Demosthenes Madureira De Pinho
Director
On filings since 2024
1 hr/week
No compensation reported
Michele Wrubel
Secretary
Senior V. President → Senior Vice President, 2024
Senior Vice President → Secretary, 2025
On filings since 2019
25 hrs/week
No compensation reported
Former officers (2)
- Former: Lee Wrubel (2019–2024) — Treasurer
- Former: Demosthenes Madureira De Pinho Neto (2019–2023) — Director
Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $156K, to Jennifer Levy Keiser (Director of Grants).
Frequently asked questions about Coalition to Cure Calpain 3
How much does Coalition to Cure Calpain 3 give each year?
Coalition to Cure Calpain 3 gave $110K across 1 grant in 2025, according to its 2025 IRS Form 990. In 2024 it gave $138K across 2 grants.
How large is Coalition to Cure Calpain 3?
Coalition to Cure Calpain 3 reported $203K in total assets on its 2025 IRS Form 990. Its revenue that year was $810K.
What is Coalition to Cure Calpain 3?
Coalition to Cure Calpain 3 is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Westport, CT. It holds $203K in total assets as of 2025.
Where does Coalition to Cure Calpain 3 operate?
Coalition to Cure Calpain 3 has awarded grants in California, Florida, Virginia.
What is Coalition to Cure Calpain 3's EIN?
Coalition to Cure Calpain 3's EIN (Employer Identification Number) is 90-0616879. IRS Form 990 filing data is available on this page for 2019–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Here's the math on researching Coalition to Cure Calpain 3 by hand.
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