National Scleroderma Foundation Inc
The National Scleroderma Foundation's mission is to advance medical research, promote disease awareness, and provide support and education to people with scleroderma, their families and support networks.
National Scleroderma Foundation Inc at a glance
In short: National Scleroderma Foundation Inc gave $1.2M across 6 grants in 2025 (avg $200K), top state Connecticut. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $1,199,988
- -0.0% vs 2024
- Grants made (2025)
- 6
- +0.0% vs 2024
- Average grant
- $199,998
- -0.0% vs 2024
- Median grant
- $199,998
- Total assets
- $11,259,408
- +0.9% vs 2024
- Primary geography
- Connecticut (33% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
How to apply to National Scleroderma Foundation Inc
Open Grants
10 open opportunities from National Scleroderma Foundation Inc
Conference Scholarship
National Scleroderma Foundation Inc
Amount
Varies
Deadline
Deadline not published
Debra Lurvey Memorial Research Grant
National Scleroderma Foundation Inc
Amount
$200,000
Deadline
Deadline not published
National Scleroderma Foundation: Established Investigator Grant
National Scleroderma Foundation Inc
Amount
Up to US $200,000
Deadline
Deadline not published
Who National Scleroderma Foundation Inc funds
How this funder distributes its grants
Top Recipients
Top 5 recipients in 2025
The largest 2025 recipient was Yale University ($400K across 2 grants). Together the top 5 received $1.2M.
Grant Size Distribution
40 grants across all recorded years
The most common grant size was in the $100–250K range: 39 grants of 40 (98%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2025 grant dollars across all 6 itemized grants.
States
Cities
How National Scleroderma Foundation Inc gives
- Giving fell 51% from 2022 to 2025. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2025, annual grant giving ranged from $1.1M (2021) to $2.4M (2022). In 2025 it made 6 grants totaling $1.2M.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| The Regents of the University of Michigan Pittsburgh, PA | Research | $199,998 |
| Yale University New Haven, CT | Research | $199,998 |
| University of Washington Chicago, IL | Research | $199,998 |
| John Hopkins University Chicago, IL | Research | $199,998 |
| Yale University New Haven, CT | Research | $199,998 |
| Trustees of Dartmouth College Hanover, NH | Research | $199,998 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $11,259,408 | $6,628,652 | $6,783,274 | $1,199,988 | 6 | $1,165,141 |
| 2024 | $11,162,466 | $4,941,722 | $6,956,852 | $1,200,000 | 6 | $970,638 |
| 2023 | $12,897,422 | $6,915,898 | $6,461,742 | $1,600,000 | 8 | $476,604 |
| 2022 | $11,463,074 | $4,581,467 | $6,210,712 | $2,425,000 | 13 | $119,037 |
| 2021 | $13,492,271 | $4,188,631 | $4,468,676 | $1,050,000 | 7 | $211,246 |
| 2020 | $11,612,013 | $3,811,707 | $5,012,061 | $1,200,000 | 8 | $247,976 |
About National Scleroderma Foundation Inc
Based on IRS filings
National Scleroderma Foundation Inc is a public charity focused on Medical Research, based in Danvers, MA. IRS filing data is available from 2020 through 2025. As of 2025, the organization holds $11.3M in total assets. In 2025, it awarded 6 grants totaling $1.2M. Net investment income was $1.2M.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
National Scleroderma Foundation Inc is led by Mary J. Wheatley, CEO on every filing since 2022; 5 of 24 officers listed in 2025 are compensated.
Officers on the 2025 filing
Mary J. Wheatley
CEO
On filings since 2022
37.5 hrs/week
$101K (2022) → $253K (2025)
Kevin Boyanowski
Chair
Director → Chair, 2023
On filings since 2020
2 hrs/week
No compensation reported
Catherine M. Anastasia
Senior Director & Mission Delivery
New on the 2025 filing
37.5 hrs/week
$113K (2025)
Elizabeth J. Mulroy
Senior Director & Chapter Operations
New on the 2025 filing
37.5 hrs/week
$114K (2025)
Christina Loccke
Director
On filings since 2020
2 hrs/week
No compensation reported
Cos Mallozzi
Director
Chair → Director, 2023
On filings since 2020
2 hrs/week
No compensation reported
Jane Ladas
Director
On filings since 2020
2 hrs/week
No compensation reported
Mark Orozco III MBA
Director
On filings since 2020
2 hrs/week
No compensation reported
Mary Blades
Director
On filings since 2020
2 hrs/week
No compensation reported
Courtney Caliendo Esq.
Director
On filings since 2021
2 hrs/week
No compensation reported
Linda Bornstein Baum Od
Director
On filings since 2023
2 hrs/week
No compensation reported
Zeba Hyder
Director
On filings since 2023
2 hrs/week
No compensation reported
Aj Nahmad
Director
On filings since 2024
2 hrs/week
No compensation reported
J. Michael Levengood Esq.
Director
Secretary → Director, 2025
On filings since 2024
2 hrs/week
No compensation reported
Nancy Waltermire
Director
On filings since 2024
2 hrs/week
No compensation reported
Peggy Collins
Director
New on the 2025 filing
2 hrs/week
No compensation reported
Scott Ceresnak MD
Director
New on the 2025 filing
2 hrs/week
No compensation reported
Tera Carter
Director
New on the 2025 filing
2 hrs/week
No compensation reported
Tracy Porter Med Sphr
Director
New on the 2025 filing
2 hrs/week
No compensation reported
Michael B. Hyde
Vice President of Finance
COO & CFO → Vice President of Finance, 2024
On filings since 2021
37.5 hrs/week
$120K (2021) → $131K (2025)
Ashley M. Pruett
Vice President of Community Engagement
On filings since 2024
37.5 hrs/week
$128K (2024) → $144K (2025)
Marcia Walker
Secretary
Director → Secretary, 2025
On filings since 2020
2 hrs/week
No compensation reported
Carol Feghali-Bostwick Ph D.
Vice Chair
On filings since 2023
2 hrs/week
No compensation reported
Blake Embree
Treasurer
On filings since 2024
2 hrs/week
No compensation reported
Former officers (11)
- Former: Tracy Porter (2024) — Director
- Former: Cyndy Besselievre CPA (2020–2023) — Treasurer
- Former: Mike Levengood Esq. (2020–2023) — Secretary
- Former: Jeanne Theissen (2022–2023) — Director
- Former: Michael Pursel (2023) — Director
- Former: Carol Feghali-Bostwick PhD (2020–2022) — Vice Chair
- Former: Greg Marion (2020–2022) — Treasurer
- Former: Linda Baum (2020–2022) — Director
- Former: Robert J. Riggs (2020–2022) — CEO
- Former: Mary Beth Tourbin (2020–2021) — Director
- Former: Kerri Connolly (2021) — Nat. Director of Programs & Serv.
Data from IRS Form 990 filings, 2020–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $253K, to Mary J Wheatley (CEO). 5 officers or directors reported compensation on that filing.
Frequently asked questions about National Scleroderma Foundation Inc
How much does National Scleroderma Foundation Inc give each year?
National Scleroderma Foundation Inc gave $1.2M across 6 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $1.2M across 6 grants.
What is National Scleroderma Foundation Inc's typical grant size?
National Scleroderma Foundation Inc's median grant in 2025 was $199,998, and its average grant was $199,998, across 6 grants on its 2025 IRS Form 990.
Where does National Scleroderma Foundation Inc give grants?
National Scleroderma Foundation Inc's top state is Connecticut, with 33% of the grant dollars itemized on its 2025 IRS Form 990. The next largest states were Illinois (33%) and Pennsylvania (17%). The most frequent recipient cities were New Haven, CT (2 grants) and Chicago, IL (2 grants).
Does National Scleroderma Foundation Inc give general operating support?
Not in 2025: none of the 6 grants with a stated purpose on National Scleroderma Foundation Inc's 2025 IRS Form 990 were described as general or operating support. Recurring purposes include "Research" (6 grants).
Who are National Scleroderma Foundation Inc's largest grantees?
National Scleroderma Foundation Inc's largest 2025 grantees include Yale University ($399,996 across 2 grants), The Regents of the University of Michigan ($199,998) and University of Washington ($199,998), according to its 2025 IRS Form 990. Together they received 67% of its itemized 2025 grant dollars.
How large is National Scleroderma Foundation Inc?
National Scleroderma Foundation Inc reported $11.3M in total assets on its 2025 IRS Form 990. Its revenue that year was $6.6M.
What is National Scleroderma Foundation Inc?
National Scleroderma Foundation Inc is a public charity focused on Medical Research, based in Danvers, MA. It holds $11.3M in total assets as of 2025.
What is National Scleroderma Foundation Inc's EIN?
National Scleroderma Foundation Inc's EIN (Employer Identification Number) is 52-1375827. IRS Form 990 filing data is available on this page for 2020–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(7)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS January 12, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS January 27, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS December 15, 2022)
- Updated Form 990 for fiscal year 2023 (received by the IRS January 18, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS February 5, 2025)
- Updated Form 990 for fiscal year 2025 (received by the IRS February 18, 2026)
- IRS filings on file for fiscal years 2020–2025
Explore Open Grants
Browse active grant opportunities in National Scleroderma Foundation Inc's focus areas in our free grants database
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