THE NATIONAL SCLERODERMA FOUNDATION'S MISSION IS TO ADVANCE MEDICAL RESEARCH, PROMOTE DISEASE AWARENESS, AND PROVIDE SUPPORT AND EDUCATION TO PEOPLE WITH SCLERODERMA, THEIR FAMILIES AND SUPPORT NETWORKS.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$11.2M
-13.5% YoY
Annual Giving
$1.2M
-25.0% YoY
Grant Count
6
-25.0% YoY
Avg Grant Size
$200K
+0.0% YoY
About National Scleroderma Foundation Inc
Based on IRS filings
National Scleroderma Foundation Inc is a nonprofit organization focused on Medical Research, based in DANVERS, MA. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $11.2M in total assets. In 2024, it awarded 6 grants totaling $1.2M. Net investment income was $971K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $11,162,466 | $12,897,422 | $11,463,074 |
| Revenue | $4,941,722 | $6,915,898 | $4,581,467 |
| Expenses | $6,956,852 | $6,461,742 | $6,210,712 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $970,638 | $476,604 | $119,037 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 6 recipients in 2024
Grant Size Distribution
27 grants across all recorded years
Open Grants
10 open opportunities from National Scleroderma Foundation Inc
Conference Scholarship
NATIONAL SCLERODERMA FOUNDATION INC
Amount
Varies
Deadline
Rolling / Open
Debra Lurvey Memorial Research Grant
NATIONAL SCLERODERMA FOUNDATION INC
Amount
$200,000
Deadline
Rolling / Open
National Scleroderma Foundation: Established Investigator Grant
NATIONAL SCLERODERMA FOUNDATION INC
Amount
Up to US $200,000
Deadline
Rolling / Open
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include Case Western Reserve University ($200,000), Kao Autoimmunity Institute Cedars-sinai Medical Center ($200,000), The Regents of the University of Michigan ($200,000).
| Recipient | Purpose | Amount |
|---|---|---|
| CASE WESTERN RESERVE UNIVERSITY CLEVELAND, OH | RESEARCH | $200,000 |
| KAO AUTOIMMUNITY INSTITUTE CEDARS-SINAI MEDICAL CENTER LOS ANGELES, CA | RESEARCH | $200,000 |
| THE REGENTS OF THE UNIVERSITY OF MICHIGAN PITTSBURGH, PA | RESEARCH | $200,000 |
| THE REGENTS OF THE UNIVERSITY OF MICHIGAN PITTSBURGH, PA | RESEARCH | $200,000 |
| THE UNIVERSITY OF TEXAS AT EL PASO EL PASO, TX | RESEARCH | $200,000 |
| VIRGINIA COMMONWEALTH UNIVERSITY RICHMOND, VA | RESEARCH | $200,000 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| COS MALLOZZI | DIRECTOR | 2 | — |
| COURTNEY CALIENDO | DIRECTOR | 2 | — |
| CHRISTINA LOCCKE | DIRECTOR | 2 | — |
| MARY BLADES | DIRECTOR | 2 | — |
| TRACY PORTER | DIRECTOR | 2 | — |
| MARK OROZCO III MBA | DIRECTOR | 2 | — |
| LINDA BORNSTEIN BAUM OD | DIRECTOR | 2 | — |
| MARCIA WALKER | DIRECTOR | 2 | — |
| ZEBA HYDER | DIRECTOR | 2 | — |
| NANCY WALTERMIRE | DIRECTOR | 2 | — |
| AJ NAHMAD | DIRECTOR | 2 | — |
| JANE LADAS | DIRECTOR | 2 | — |
| KEVIN BOYANOWSKI | CHAIR (INTERIM TREAS JUL 23-APR 24) | 2 | — |
| CAROL FEGHALI-BOSTWICK PH D | VICE CHAIR | 2 | — |
| J MICHAEL LEVENGOOD ESQ | SECRETARY | 2 | — |
| BLAKE EMBREE | TREASURER (SINCE APR '24) | 2 | — |
| MARY J WHEATLEY | CEO | 40 | $235,945 |
| MICHAEL B HYDE | VP OF FINANCE | 40 | $158,406 |
| ASHLEY M PRUETT | VP OF COMMUNITY ENGAGEMENT | 40 | $127,832 |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is National Scleroderma Foundation Inc?
National Scleroderma Foundation Inc is a nonprofit organization focused on Medical Research, based in DANVERS, MA. It holds $11.2M in total assets as of 2024.
How large is National Scleroderma Foundation Inc?
As of 2024, National Scleroderma Foundation Inc holds $11.2M in total assets with $4.9M in annual revenue. It awarded 6 grants totaling $1.2M in 2024.
Where does National Scleroderma Foundation Inc operate?
National Scleroderma Foundation Inc has awarded grants in California, Illinois, Kansas, Massachusetts, Minnesota, New Hampshire, New Mexico, New York, Ohio, Pennsylvania, South Carolina, Texas, Virginia, Washington.
What size grants does National Scleroderma Foundation Inc award?
In 2024, National Scleroderma Foundation Inc awarded 6 grants totaling $1.2M — an average of about $200K per grant, based on its IRS Form 990 filings.
What is National Scleroderma Foundation Inc's EIN?
National Scleroderma Foundation Inc's EIN (Employer Identification Number) is 52-1375827. IRS Form 990 filing data is available on this page for 2020–2024.
Explore Open Grants
Browse active grant opportunities in National Scleroderma Foundation Inc's focus areas in our free grants database
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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