THE NATIONAL SCLERODERMA FOUNDATION'S MISSION IS TO ADVANCE MEDICAL RESEARCH, PROMOTE DISEASE AWARENESS, AND PROVIDE SUPPORT AND EDUCATION TO PEOPLE WITH SCLERODERMA, THEIR FAMILIES AND SUPPORT NETWORKS.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$11.2M
-13.5% YoY
Annual Giving
$1.2M
-25.0% YoY
Grant Count
6
-25.0% YoY
Avg Grant Size
$200K
+0.0% YoY
About National Scleroderma Foundation Inc
Based on IRS filings
National Scleroderma Foundation Inc is a nonprofit organization focused on Medical Research, based in DANVERS, MA. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $11.2M in total assets. In 2024, it awarded 6 grants totaling $1.2M. Net investment income was $971K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $11,162,466 | $12,897,422 | $11,463,074 |
| Revenue | $4,941,722 | $6,915,898 | $4,581,467 |
| Expenses | $6,956,852 | $6,461,742 | $6,210,712 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $970,638 | $476,604 | $119,037 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 6 recipients in 2024
Grant Size Distribution
27 grants across all recorded years
Open Grants
10 open opportunities from National Scleroderma Foundation Inc
Conference Scholarship
NATIONAL SCLERODERMA FOUNDATION INC
Amount
Varies
Deadline
Rolling / Open
Debra Lurvey Memorial Research Grant
NATIONAL SCLERODERMA FOUNDATION INC
Amount
$200,000
Deadline
Rolling / Open
National Scleroderma Foundation: Established Investigator Grant
NATIONAL SCLERODERMA FOUNDATION INC
Amount
Up to US $200,000
Deadline
Rolling / Open
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| COS MALLOZZI | DIRECTOR | 2 | — |
| COURTNEY CALIENDO | DIRECTOR | 2 | — |
| CHRISTINA LOCCKE | DIRECTOR | 2 | — |
| MARY BLADES | DIRECTOR | 2 | — |
| TRACY PORTER | DIRECTOR | 2 | — |
| MARK OROZCO III MBA | DIRECTOR | 2 | — |
| LINDA BORNSTEIN BAUM OD | DIRECTOR | 2 | — |
| MARCIA WALKER | DIRECTOR | 2 | — |
| ZEBA HYDER | DIRECTOR | 2 | — |
| NANCY WALTERMIRE | DIRECTOR | 2 | — |
| AJ NAHMAD | DIRECTOR | 2 | — |
| JANE LADAS | DIRECTOR | 2 | — |
| KEVIN BOYANOWSKI | CHAIR (INTERIM TREAS JUL 23-APR 24) | 2 | — |
| CAROL FEGHALI-BOSTWICK PH D | VICE CHAIR | 2 | — |
| J MICHAEL LEVENGOOD ESQ | SECRETARY | 2 | — |
| BLAKE EMBREE | TREASURER (SINCE APR '24) | 2 | — |
| MARY J WHEATLEY | CEO | 40 | $235,945 |
| MICHAEL B HYDE | VP OF FINANCE | 40 | $158,406 |
| ASHLEY M PRUETT | VP OF COMMUNITY ENGAGEMENT | 40 | $127,832 |
Subject Areas
Focus areas based on grantmaking activity
Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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