Pulmonary Fibrosis Foundation
TO ACCELERATE THE DEVELOPMENT OF NEW TREATMENTS AND ULTIMATELY A CURE FOR PULMONARY FIBROSIS. UNTIL THIS GOAL IS ACHIEVED, THE PFF IS COMMITTED TO ADVANCING IMPROVED CARE OF PATIENTS WITH PF AND PROVIDING UNEQUALED SUPPORT AND EDUCATION RESOURCES FOR PATIENTS, CAREGIVERS, FAMILY MEMBERS, AND HEALTH CARE PROVIDERS.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$15.3M
-8.8% YoY
Annual Giving
$750K
+37.6% YoY
Grant Count
7
+16.7% YoY
Avg Grant Size
$107K
+18.0% YoY
About Pulmonary Fibrosis Foundation
Based on IRS filings
Pulmonary Fibrosis Foundation is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in CHICAGO, IL. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $15.3M in total assets. In 2024, it awarded 7 grants totaling $750K. Net investment income was $489K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $15,320,155 | $16,794,445 | $17,064,469 |
| Revenue | $8,276,217 | $11,816,537 | $11,007,903 |
| Expenses | $9,009,001 | $10,341,815 | $9,685,619 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $489,278 | $419,803 | $297,956 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 7 recipients in 2024
Grant Size Distribution
28 grants across all recorded years
Open Grants
2 open opportunities from Pulmonary Fibrosis Foundation
PFF Research Fund to Cure Pulmonary Fibrosis - PFF Patient Registry and Biorepository – Research Opportunities Grant
PULMONARY FIBROSIS FOUNDATION
Amount
Varies
Deadline
Rolling / Open
PFF Research Fund to Cure Pulmonary Fibrosis - PFF Scholars Grant
PULMONARY FIBROSIS FOUNDATION
Amount
US $100,000
Deadline
Rolling / Open
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include Trustees of the University of Pennsylvania ($125,000), Trustees of Columbia University in the City of New York ($125,000), Johns Hopkins University School of Medicine ($100,000).
| Recipient | Purpose | Amount |
|---|---|---|
| JOHNS HOPKINS UNIVERSITY SCHOOL OF MEDICINE BALTIMORE, MD | UNDERSTANDING CURRENT ATTITUDES TOWARD ADVANCE CARE PLANNING AND EVALUATION OF THE IMPACT OF AN EDUCATIONAL TOOL IN PATIENTS WITH PULMONARY FIBROSIS | $100,000 |
| THE REGENTS OF THE UNIVERSITY OF MICHIGAN ANN ARBOR, MI | ROLE OF NON-CANONICAL AHR SIGNALING IN CORONAVIRUS EXACERBATIONS OF PULMONARY FIBROSIS | $100,000 |
| UNIVERSITY OF WISCONSIN-MADISON MADISON, WI | FIBRONECTIN-TARGETING PEPTIDE AS A PET-BASED PROBE FOR ACTIVE PULMONARY FIBROSIS | $100,000 |
| THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN DIEGO LA JOLLA, CA | CHARACTERIZATION OF PHENOTYPIC PLASTICITY OF IPF ALVEOLAR EPITHELIAL TYPE II CELLS | $100,000 |
| THE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY REDWOOD, CA | TERT EXPRESSING ALVEOLAR TYPE II CELLS AS UNIPOTENT PROGENITORS WITH EXPANDED PROLIFERATIVE CAPACITIES | $100,000 |
| TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA PHILADELPHIA, PA | NANOTECHNOLOGY TARGETING OF ALVEOLAR EPITHELIAL PROTEOSTASIS IN PULMONARY FIBROSIS | $125,000 |
| TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK NEW YORK, NY | INVESTIGATION OF KIF15 AS A NOVEL FAMILIAL PULMONARY FIBROSIS GENE | $125,000 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| WILLIAM SCHMIDT | CEO - TERM / DIRECTOR | 1 | $174,402 |
| FRANCK RAHAGHI | PAST PRESIDENT & CEO - TERM | 40 | $127,225 |
| DAVID MCNINCH | CHAIR | 1 | — |
| LAURIE CHANDLER CFP | VICE-CHAIR & TREASURER | 1 | — |
| PATRICIA ROSA | SECRETARY | 1 | — |
| MARTIN ATTWELL | DIRECTOR | 1 | — |
| KENNETH FANG MD | DIRECTOR | 1 | — |
| TERENCE HALES | DIRECTOR | 1 | — |
| JULIE HALSTON | DIRECTOR | 1 | — |
| JEFF HARRIS | DIRECTOR | 1 | — |
| SUSAN JACOBS RN MS | DIRECTOR | 1 | — |
| HEATHER KAGEL | DIRECTOR | 1 | — |
| PJ KAMANI | DIRECTOR | 1 | — |
| DEVI KUMAR-NAMBIAR JD MBA | DIRECTOR | 1 | — |
| WAYNE PAN MD PHD MBA | DIRECTOR | 1 | — |
| SCOTT STASZAK | PRESIDENT & CEO | 40 | $330,382 |
| JANET BIANCHETTA | CHIEF FINANCIAL OFFICER | 40 | $148,400 |
| SETH KLEIN | CHIEF DEVELOPMENT OFFICER | 40 | $202,946 |
| JESSICA SHORE | SR. VP, CLINICAL AFFAIRS AND QUALITY | 40 | $175,210 |
| ZOE BUBANY | VP, BOARD AND EXTERNAL RELATIONS | 40 | $147,927 |
| JENNIFER MEFFORD | VP, CORPORATE PARTNERSHIPS | 40 | $153,360 |
| KATHERINE BEIN | VP, ADVOCACY AND PROGRAMS | 40 | $132,680 |
| MARY KIENER | SENIOR DIRECTOR, HR & ADMIN | 40 | $131,540 |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Pulmonary Fibrosis Foundation?
Pulmonary Fibrosis Foundation is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in CHICAGO, IL. It holds $15.3M in total assets as of 2024.
How large is Pulmonary Fibrosis Foundation?
As of 2024, Pulmonary Fibrosis Foundation holds $15.3M in total assets with $8.3M in annual revenue. It awarded 7 grants totaling $750K in 2024.
Where does Pulmonary Fibrosis Foundation operate?
Pulmonary Fibrosis Foundation has awarded grants in California, Colorado, Connecticut, Illinois, Maryland, Michigan, Minnesota, New York, Pennsylvania, Tennessee, Virginia, Vermont, Wisconsin.
What size grants does Pulmonary Fibrosis Foundation award?
In 2024, Pulmonary Fibrosis Foundation awarded 7 grants totaling $750K — an average of about $107K per grant, based on its IRS Form 990 filings.
What is Pulmonary Fibrosis Foundation's EIN?
Pulmonary Fibrosis Foundation's EIN (Employer Identification Number) is 84-1558631. IRS Form 990 filing data is available on this page for 2020–2024.
Explore Open Grants
Browse active grant opportunities in Pulmonary Fibrosis Foundation's focus areas in our free grants database
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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