Pulmonary Fibrosis Foundation
The Pulmonary Fibrosis Foundation is committed to accelerating research, empowering our community, and transforming care so that everyone with pulmonary fibrosis can live a better life. Our ultimate goal is to find a cure for pulmonary fibrosis.
Pulmonary Fibrosis Foundation at a glance
In short: Pulmonary Fibrosis Foundation gave $600K across 6 grants in 2025 (avg $100K), top state New York. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $600,000
- -20.0% vs 2024
- Grants made (2025)
- 6
- -14.3% vs 2024
- Average grant
- $100,000
- -6.7% vs 2024
- Median grant
- $100,000
- Total assets
- $17,464,989
- +14.0% vs 2024
- Primary geography
- New York (17% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
How to apply to Pulmonary Fibrosis Foundation
Open Grants
2 open opportunities from Pulmonary Fibrosis Foundation
PFF Research Fund to Cure Pulmonary Fibrosis - PFF Patient Registry and Biorepository – Research Opportunities Grant
Pulmonary Fibrosis Foundation
Amount
Varies
Deadline
Deadline not published
PFF Research Fund to Cure Pulmonary Fibrosis - PFF Scholars Grant
Pulmonary Fibrosis Foundation
Amount
US $100,000
Deadline
Deadline not published
Who Pulmonary Fibrosis Foundation funds
How this funder distributes its grants
Top Recipients
Top 6 recipients in 2025
The largest 2025 recipient was Weill Medical College of Cornell University ($100K). Together the top 6 received $600K.
Grant Size Distribution
28 grants across all recorded years
The most common grant size was in the $100–250K range: 15 grants of 28 (54%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2025 grant dollars across all 6 itemized grants.
States
Cities
How Pulmonary Fibrosis Foundation gives
- Giving grew 100% from 2022 to 2025. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2019 to 2025, annual grant giving ranged from $206K (2019) to $750K (2024). In 2025 it made 6 grants totaling $600K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Weill Medical College of Cornell University New York, NY | Associations of ct-assessed airway diameter and clinical outcomes in pulmonary fibrosis | $100,000 |
| Johns Hopkins University School of Medicine Baltimore, MD | Pulmonary hypertension prediction in patients with interstitial lung disease | $100,000 |
| Cedars-Sinai Medical Center Los Angeles, CA | Regulation of her2 activation in fibroblast invasion and pulmonary fibrosis. | $100,000 |
| University of Kansas Medical Center Research Institute Kansas City, KS | Metabolomics of Preclinical Pulmonary Fibrosis | $100,000 |
| Vanderbilt University Medical Center Nashville, TN | HIF2 Modulation of Alveolar Repair in Pulmonary Fibrosis | $100,000 |
| The Rector & Visitors of the University of Virginia Charlottesville, VA | The role of b-1 cells and igm in pulmonary fibrosis pathogensis | $100,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $17,464,989 | $9,251,199 | $7,373,338 | $600,000 | 6 | $632,494 |
| 2024 | $15,320,155 | $8,276,217 | $9,009,001 | $750,000 | 7 | $489,278 |
| 2023 | $16,794,445 | $11,816,537 | $10,341,815 | $545,000 | 6 | $419,803 |
| 2022 | $17,064,469 | $11,007,903 | $9,685,619 | $300,000 | 4 | $297,956 |
| 2021 | $14,745,592 | $8,965,595 | $8,341,845 | $250,000 | 5 | $65,617 |
| 2020 | $10,892,804 | $10,702,044 | $11,291,623 | $300,000 | 6 | $293,084 |
| 2019 | $10,914,467 | $10,448,685 | $8,488,184 | $205,533 | 5 | $275,682 |
About Pulmonary Fibrosis Foundation
Based on IRS filings
Pulmonary Fibrosis Foundation is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Chicago, IL. IRS filing data is available from 2019 through 2025. As of 2025, the organization holds $17.5M in total assets. In 2025, it awarded 6 grants totaling $600K. Net investment income was $632K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Pulmonary Fibrosis Foundation is led by Scott Staszak, President & CEO since 2024 (on filings since 2019); 9 of 25 officers listed in 2025 are compensated.
Officers on the 2025 filing
Scott Staszak
President & CEO
Chief Operating Officer → President & CEO, 2024
On filings since 2019
40 hrs/week
$247K (2019) → $422K (2025)
Franck Rahaghi
Former President & CEO
Past President & CEO - Term → Former President & CEO, 2025
On filings since 2024
40 hrs/week
$127K (2024) → $284K (2025)
Wayne Pan MD PhD MBA
Chair
Director → Chair, 2025
On filings since 2023
1 hr/week
No compensation reported
William T Schmidt
Director
President & Chief Executive Officer → CEO - Term & Director, 2024
CEO - Term & Director → Director, 2025
On filings since 2019
1 hr/week
$374K (2019) → $0 (2025)
David McNinch
Director
Interim Chair → Chair, 2024
Chair → Director, 2025
On filings since 2019
1 hr/week
No compensation reported
Jeff Harris
Director
Director → Member, 2022
Member → Director, 2023
On filings since 2019
1 hr/week
No compensation reported
Terence Hales
Director
Secretary → Director, 2024
On filings since 2019
1 hr/week
No compensation reported
Julie Halston
Director
Director → Member, 2022
Member → Director, 2023
On filings since 2021
1 hr/week
No compensation reported
Pj Kamani
Director
Director → Member, 2022
Member → Director, 2023
On filings since 2021
1 hr/week
No compensation reported
Heather Kagel
Director
Member → Director, 2023
On filings since 2022
1 hr/week
No compensation reported
Devi Kumar-Nambiar JD MBA
Director
On filings since 2023
1 hr/week
No compensation reported
Kenneth Fang MD
Director - Term
Director → Director - Term, 2025
On filings since 2023
1 hr/week
No compensation reported
Susan Jacobs Rn Ms
Director
On filings since 2023
1 hr/week
No compensation reported
Grant Ballantyne
Director
New on the 2025 filing
1 hr/week
No compensation reported
Harold R. Collard MD
Director
New on the 2025 filing
1 hr/week
No compensation reported
Seth Klein
Chief Development Officer
Senior Director & Development Ops → Senior Vice President & Development, 2021
Senior Vice President & Development → Chief Development Officer, 2023
On filings since 2019
40 hrs/week
$129K (2019) → $209K (2025)
Zoe Bubany
Vice President, Board & External Relations
On filings since 2020
40 hrs/week
$120K (2020) → $142K (2025)
Janet Bianchetta
Chief Financial Officer
Vice President & Finance → Chief Financial Officer, 2024
On filings since 2022
40 hrs/week
$141K (2022) → $184K (2025)
Jessica Shore
Senior Vice President, Clinical Affairs & Quality
Vice President, Research & Programs → Senior Vice President, Clinical Affairs & Quality, 2024
On filings since 2022
40 hrs/week
$158K (2022) → $202K (2025)
Jennifer Mefford
Vice President & Corporate Partnerships
On filings since 2023
40 hrs/week
$158K (2023) → $173K (2025)
Katherine Bein
Vice President, Advocacy & Programs
On filings since 2024
40 hrs/week
$133K (2024) → $159K (2025)
Amy Wardzala
Vice President & Development
New on the 2025 filing
40 hrs/week
$132K (2025)
Laurie Chandler CFP
Treasurer
Interim Vice Chair & Treasurer → Vice Chair & Treasurer, 2024
Vice Chair & Treasurer → Treasurer, 2025
On filings since 2019
1 hr/week
No compensation reported
Martin Attwell
Secretary
Member → Director, 2023
Director → Secretary, 2025
On filings since 2021
1 hr/week
No compensation reported
Patricia Rosa
Vice Chair
Director → Secretary, 2024
Secretary → Vice Chair, 2025
On filings since 2021
1 hr/week
No compensation reported
Former officers (19)
- Former: Mary Kiener (2024) — Senior Director, Hr & Administrator
- Former: Andy Limper MD (2019–2023) — Director
- Former: George Eliades PhD (2019–2023) — Director
- Former: Laura Sadler (2019–2023) — Chief Marketing Officer
- Former: Junelle Speller (2022–2023) — Vice President & Pff Registry
- Former: Erin McGarry CPA (2023) — Director
- Former: Barbara Murphy (2019–2022) — Member
- Former: Mike Henderson (2019–2022) — Member
- Former: Susan Jacobs (2021–2022) — Member
- Former: Kate Gates (2022) — Vice President, Advocacy & Programs
- Former: Dana A Ball (2020–2021) — Director
- Former: Bill Schmidt (2021) — Director
- Former: Kathryn TREBONSKY (2021) — Vice President & Finance
- Former: Colleen Attwell (2019–2020) — Vice Chair
- Former: Kerrie Trebonsky (2019–2020) — Vice President & Finance
- Former: Pauline Bianchi (2019–2020) — Senior Vice President, Research & Programs
- Former: Rex Edwards (2019–2020) — Vice President, Ccn & Pff Patient Registry
- Former: Wendi Mason (2019–2020) — Direcor
- Former: Jeri Webb (2019) — Associate Vice President, Conf & Meetings
Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $422K, to Scott Staszak (President & CEO). 9 officers or directors reported compensation on that filing.
Frequently asked questions about Pulmonary Fibrosis Foundation
How much does Pulmonary Fibrosis Foundation give each year?
Pulmonary Fibrosis Foundation gave $600K across 6 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $750K across 7 grants.
What is Pulmonary Fibrosis Foundation's typical grant size?
Pulmonary Fibrosis Foundation's median grant in 2025 was $100,000, and its average grant was $100,000, across 6 grants on its 2025 IRS Form 990.
Where does Pulmonary Fibrosis Foundation give grants?
Pulmonary Fibrosis Foundation's top state is New York, with 17% of the grant dollars itemized on its 2025 IRS Form 990. The next largest states were Maryland (17%) and California (17%).
Does Pulmonary Fibrosis Foundation give general operating support?
Not in 2025: none of the 6 grants with a stated purpose on Pulmonary Fibrosis Foundation's 2025 IRS Form 990 were described as general or operating support.
Who are Pulmonary Fibrosis Foundation's largest grantees?
Pulmonary Fibrosis Foundation's largest 2025 grantees include Weill Medical College of Cornell University ($100,000), Johns Hopkins University School of Medicine ($100,000) and Cedars-Sinai Medical Center ($100,000), according to its 2025 IRS Form 990. Together they received 50% of its itemized 2025 grant dollars.
How large is Pulmonary Fibrosis Foundation?
Pulmonary Fibrosis Foundation reported $17.5M in total assets on its 2025 IRS Form 990. Its revenue that year was $9.3M.
What is Pulmonary Fibrosis Foundation?
Pulmonary Fibrosis Foundation is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Chicago, IL. It holds $17.5M in total assets as of 2025.
What is Pulmonary Fibrosis Foundation's EIN?
Pulmonary Fibrosis Foundation's EIN (Employer Identification Number) is 84-1558631. IRS Form 990 filing data is available on this page for 2019–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(8)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2023 (received by the IRS April 10, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS March 21, 2025)
- Updated Form 990 for fiscal year 2025 (received by the IRS March 20, 2026)
- Updated Form 990 for fiscal year 2019 (received by the IRS February 20, 2020)
- Updated Form 990 for fiscal year 2020 (received by the IRS April 15, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS April 25, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS March 31, 2023)
- IRS filings on file for fiscal years 2019–2025
Live grants for the work Pulmonary Fibrosis Foundation funds
Diseases, Disorders & Medical Disciplines Open opportunities, soonest deadline first.
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Pulmonary Fibrosis Foundation down — hundreds of funders to go?