Pulmonary Fibrosis Foundation
The Pulmonary Fibrosis Foundation is committed to accelerating research, empowering our community, and transforming care so that everyone with pulmonary fibrosis can live a better life. Our ultimate goal is to find a cure for pulmonary fibrosis.
Key facts about Pulmonary Fibrosis Foundation
In short: Pulmonary Fibrosis Foundation gave $600K across 6 grants in 2025 (avg $100K), top state New York. Source: 2025 IRS Form 990.
- EIN
- 84-1558631
- Latest 990 filing
- Form 990, 2025
- Annual giving (2025)
- $600,000
- Grants made (2025)
- 6
- Average grant
- $100,000
- Median grant
- $100,000
- Total assets
- $17,464,989
- Primary geography
- New York (17% of itemized 2025 grant dollars)
Data from IRS Form 990, 2025; updated September 2026.
Financial Overview
From 2025 IRS Form 990 · View filing
Total Assets
$17.5M
+14.0% YoY
Annual Giving
$600K
-20.0% YoY
Grant Count
6
-14.3% YoY
Avg Grant Size
$100K
-6.7% YoY
How Pulmonary Fibrosis Foundation gives
- Giving grew 100% from 2022 to 2025. Method
From the foundation's IRS Form 990 filings. Methodology.
About Pulmonary Fibrosis Foundation
Based on IRS filings
Pulmonary Fibrosis Foundation is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Chicago, IL. IRS filing data is available from 2019 through 2025. As of 2025, the organization holds $17.5M in total assets. In 2025, it awarded 6 grants totaling $600K. Net investment income was $632K.
Focus Areas
Open Grants
2 open opportunities from Pulmonary Fibrosis Foundation
PFF Research Fund to Cure Pulmonary Fibrosis - PFF Patient Registry and Biorepository – Research Opportunities Grant
Pulmonary Fibrosis Foundation
Amount
Varies
Deadline
Rolling / Open
PFF Research Fund to Cure Pulmonary Fibrosis - PFF Scholars Grant
Pulmonary Fibrosis Foundation
Amount
US $100,000
Deadline
Rolling / Open
Ready to take the next step with Pulmonary Fibrosis Foundation?
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of all 6 itemized 2025 grant dollars.
States
Cities
Giving Over Time
Total grant dollars and number of grants per year
From 2019 to 2025, annual grant giving ranged from $206K (2019) to $750K (2024). In 2025 it made 6 grants totaling $600K.
Grant Insights
How this funder distributes its grants
Top Recipients
Top 6 recipients in 2025
The largest 2025 recipient was Weill Medical College of Cornell University ($100K). Together the top 6 received $600K.
Grant Size Distribution
28 grants across all recorded years
The most common grant size was in the $100–250K range: 15 grants of 28 (54%).
Giving History
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Weill Medical College of Cornell University New York, NY | Associations of ct-assessed airway diameter and clinical outcomes in pulmonary fibrosis | $100,000 |
| Johns Hopkins University School of Medicine Baltimore, MD | Pulmonary hypertension prediction in patients with interstitial lung disease | $100,000 |
| Cedars-Sinai Medical Center Los Angeles, CA | Regulation of her2 activation in fibroblast invasion and pulmonary fibrosis. | $100,000 |
| University of Kansas Medical Center Research Institute Kansas City, KS | Metabolomics of Preclinical Pulmonary Fibrosis | $100,000 |
| Vanderbilt University Medical Center Nashville, TN | HIF2 Modulation of Alveolar Repair in Pulmonary Fibrosis | $100,000 |
| The Rector & Visitors of the University of Virginia Charlottesville, VA | The role of b-1 cells and igm in pulmonary fibrosis pathogensis | $100,000 |
Financial History
Multi-year comparison from IRS filings
| Metric | 2025 | 2024 | 2023 |
|---|---|---|---|
| Total Assets | $17,464,989 | $15,320,155 | $16,794,445 |
| Revenue | $9,251,199 | $8,276,217 | $11,816,537 |
| Expenses | $7,373,338 | $9,009,001 | $10,341,815 |
| Net Investment Income | $632,494 | $489,278 | $419,803 |
Data update history
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2019 (received by the IRS February 20, 2020)
- Updated Form 990 for fiscal year 2020 (received by the IRS April 15, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS April 25, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS March 31, 2023)
- IRS filings on file for fiscal years 2019–2025
Leadership & Key People
Officers and directors from IRS filings
Pulmonary Fibrosis Foundation is led by Scott Staszak, President & CEO since 2024 (on filings since 2019); 9 of 25 officers listed in 2025 are compensated.
Officers on the 2025 filing
Scott Staszak
President & CEO
Chief Operating Officer → President & CEO, 2024
On filings since 2019
40 hrs/week
$247K (2019) → $422K (2025)
Franck Rahaghi
Former President & CEO
Past President & CEO - Term → Former President & CEO, 2025
On filings since 2024
40 hrs/week
$127K (2024) → $284K (2025)
Wayne Pan MD PhD MBA
Chair
Director → Chair, 2025
On filings since 2023
1 hr/week
No compensation reported
William T Schmidt
Director
President & Chief Executive Officer → CEO - Term & Director, 2024
CEO - Term & Director → Director, 2025
On filings since 2019
1 hr/week
$374K (2019) → $0 (2025)
David McNinch
Director
Interim Chair → Chair, 2024
Chair → Director, 2025
On filings since 2019
1 hr/week
No compensation reported
Jeff Harris
Director
Director → Member, 2022
Member → Director, 2023
On filings since 2019
1 hr/week
No compensation reported
Terence Hales
Director
Secretary → Director, 2024
On filings since 2019
1 hr/week
No compensation reported
Julie Halston
Director
Director → Member, 2022
Member → Director, 2023
On filings since 2021
1 hr/week
No compensation reported
Pj Kamani
Director
Director → Member, 2022
Member → Director, 2023
On filings since 2021
1 hr/week
No compensation reported
Heather Kagel
Director
Member → Director, 2023
On filings since 2022
1 hr/week
No compensation reported
Devi Kumar-Nambiar JD MBA
Director
On filings since 2023
1 hr/week
No compensation reported
Kenneth Fang MD
Director - Term
Director → Director - Term, 2025
On filings since 2023
1 hr/week
No compensation reported
Susan Jacobs Rn Ms
Director
On filings since 2023
1 hr/week
No compensation reported
Grant Ballantyne
Director
New on the 2025 filing
1 hr/week
No compensation reported
Harold R. Collard MD
Director
New on the 2025 filing
1 hr/week
No compensation reported
Seth Klein
Chief Development Officer
Senior Director & Development Ops → Senior Vice President & Development, 2021
Senior Vice President & Development → Chief Development Officer, 2023
On filings since 2019
40 hrs/week
$129K (2019) → $209K (2025)
Zoe Bubany
Vice President, Board & External Relations
On filings since 2020
40 hrs/week
$120K (2020) → $142K (2025)
Janet Bianchetta
Chief Financial Officer
Vice President & Finance → Chief Financial Officer, 2024
On filings since 2022
40 hrs/week
$141K (2022) → $184K (2025)
Jessica Shore
Senior Vice President, Clinical Affairs & Quality
Vice President, Research & Programs → Senior Vice President, Clinical Affairs & Quality, 2024
On filings since 2022
40 hrs/week
$158K (2022) → $202K (2025)
Jennifer Mefford
Vice President & Corporate Partnerships
On filings since 2023
40 hrs/week
$158K (2023) → $173K (2025)
Katherine Bein
Vice President, Advocacy & Programs
On filings since 2024
40 hrs/week
$133K (2024) → $159K (2025)
Amy Wardzala
Vice President & Development
New on the 2025 filing
40 hrs/week
$132K (2025)
Laurie Chandler CFP
Treasurer
Interim Vice Chair & Treasurer → Vice Chair & Treasurer, 2024
Vice Chair & Treasurer → Treasurer, 2025
On filings since 2019
1 hr/week
No compensation reported
Martin Attwell
Secretary
Member → Director, 2023
Director → Secretary, 2025
On filings since 2021
1 hr/week
No compensation reported
Patricia Rosa
Vice Chair
Director → Secretary, 2024
Secretary → Vice Chair, 2025
On filings since 2021
1 hr/week
No compensation reported
Former officers (19)
- Former: Mary Kiener (2024) — Senior Director, Hr & Administrator
- Former: Andy Limper MD (2019–2023) — Director
- Former: George Eliades PhD (2019–2023) — Director
- Former: Laura Sadler (2019–2023) — Chief Marketing Officer
- Former: Junelle Speller (2022–2023) — Vice President & Pff Registry
- Former: Erin McGarry CPA (2023) — Director
- Former: Barbara Murphy (2019–2022) — Member
- Former: Mike Henderson (2019–2022) — Member
- Former: Susan Jacobs (2021–2022) — Member
- Former: Kate Gates (2022) — Vice President, Advocacy & Programs
- Former: Dana A Ball (2020–2021) — Director
- Former: Bill Schmidt (2021) — Director
- Former: Kathryn TREBONSKY (2021) — Vice President & Finance
- Former: Colleen Attwell (2019–2020) — Vice Chair
- Former: Kerrie Trebonsky (2019–2020) — Vice President & Finance
- Former: Pauline Bianchi (2019–2020) — Senior Vice President, Research & Programs
- Former: Rex Edwards (2019–2020) — Vice President, Ccn & Pff Patient Registry
- Former: Wendi Mason (2019–2020) — Direcor
- Former: Jeri Webb (2019) — Associate Vice President, Conf & Meetings
Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $422K, to Scott Staszak (President & CEO). 9 officers or directors reported compensation on that filing.
Frequently asked questions about Pulmonary Fibrosis Foundation
How much does Pulmonary Fibrosis Foundation give each year?
Pulmonary Fibrosis Foundation gave $600K across 6 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $750K across 7 grants.
What is Pulmonary Fibrosis Foundation's typical grant size?
Pulmonary Fibrosis Foundation's median grant in 2025 was $100,000, and its average grant was $100,000, across 6 grants on its 2025 IRS Form 990.
Where does Pulmonary Fibrosis Foundation give grants?
Pulmonary Fibrosis Foundation's top state is New York, with 17% of the grant dollars itemized on its 2025 IRS Form 990. The next largest states were Maryland (17%) and California (17%).
Does Pulmonary Fibrosis Foundation give general operating support?
Not in 2025: none of the 6 grants with a stated purpose on Pulmonary Fibrosis Foundation's 2025 IRS Form 990 were described as general or operating support.
Who are Pulmonary Fibrosis Foundation's largest grantees?
Pulmonary Fibrosis Foundation's largest 2025 grantees include Weill Medical College of Cornell University ($100,000), Johns Hopkins University School of Medicine ($100,000) and Cedars-Sinai Medical Center ($100,000), according to its 2025 IRS Form 990. Together they received 50% of its itemized 2025 grant dollars.
How large is Pulmonary Fibrosis Foundation?
Pulmonary Fibrosis Foundation reported $17.5M in total assets on its 2025 IRS Form 990. Its revenue that year was $9.3M.
What is Pulmonary Fibrosis Foundation?
Pulmonary Fibrosis Foundation is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Chicago, IL. It holds $17.5M in total assets as of 2025.
What is Pulmonary Fibrosis Foundation's EIN?
Pulmonary Fibrosis Foundation's EIN (Employer Identification Number) is 84-1558631. IRS Form 990 filing data is available on this page for 2019–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Here's the math on researching Pulmonary Fibrosis Foundation by hand.
Explore Open Grants
Browse active grant opportunities in Pulmonary Fibrosis Foundation's focus areas in our free grants database
Similar Funders
Funders that support many of the same organizations
Emory University
Atlanta, GA
Emory University funds research, health care, and medical research, including university research awards and subcontract grants to organizations. Its 2024 grants had a median of about $87,500, though awards ranged from about $5,300 to $35.5 million; recipients were concentrated in Georgia, which received 46% of grant dollars. The profile does not state whether Emory accepts unsolicited requests.
Assets
$24.9B
Grants
362
Total Given
$183.7M
Cornell University
Ithaca, NY
Cornell’s grantmaking primarily supports research, including work by universities and research organizations, alongside its broader land-grant mission to serve New York State. In 2025 it reported 338 grants, with a median of $96,461 and awards ranging from $5,043 to $5.66 million; 24% of grant dollars went to New York recipients, with others distributed across several states. The profile does not state whether Cornell accepts unsolicited requests.
Assets
$19.8B
Grants
338
Total Given
$126.7M
The Robert Wood Johnson Foundation
Princeton, NJ
The Robert Wood Johnson Foundation funds work to improve health and health equity in the United States, including health policy, community health, prevention, and social justice. In 2024, its grants ranged from $125 to $12.15 million, with a median of $40,000, and went to recipients across multiple states. The profile does not state whether it accepts unsolicited requests.
Assets
$13.4B
Grants
3,093
Total Given
$622.6M
American Heart Association Inc
Dallas, TX
The American Heart Association funds basic, clinical, behavioral, translational, population, and other research on cardiovascular, cerebrovascular, and brain health, mainly through research awards to eligible U.S.-based nonprofit institutions. In 2025, grants ranged from $5,000 to $9.9 million, with a median award of $20,000. Applications are submitted through designated programs; the profile does not state whether unsolicited requests are accepted.
Assets
$2.0B
Grants
833
Total Given
$198.2M
American Cancer Society Inc
Atlanta, GA
The American Cancer Society funds cancer research, patient support, advocacy, and related programs, with research support available to institutions across the United States. Its 2025 grants ranged from $5,648 to $9.6 million, with a median of $15,000. It accepts applications for research grants through specific programs and ProposalCentral; the profile does not state whether it accepts unsolicited requests for other funding.
Assets
$1.7B
Grants
509
Total Given
$23.1M
Silicon Valley Community Foundation
Mountain View, CA
Silicon Valley Community Foundation funds work in areas such as housing, economic security, education, health, the environment, arts and culture, and civic engagement, with Community Action Grants supporting local, community-led organizations in San Mateo and Santa Clara counties. Its 2024 grants had a median of $51,716, though amounts varied widely; applications depend on the program, and SVCF states that it does not accept unsolicited proposals for advised funds.
Assets
$12.3B
Grants
3,576
Total Given
$3.2B
Kaiser Foundation Hospitals
Oakland, CA
Kaiser Foundation Hospitals supports community health, health-care access, and efforts addressing health inequities, including mental and behavioral health, housing, and employment. Its 2024 grants had a median of $25,000, with most grant dollars going to California; Southern California grants focus on its 14 service areas. For Southern California regional grants, unsolicited letters of inquiry and proposals are not accepted; other application routes described include invited inquiries and open event sponsorship applications.
Assets
$87.4B
Grants
1,122
Total Given
$225.4M
Mayo Clinic Group Return
Rochester, MN
Mayo Clinic Group Return supports healthcare, medical research, education, and community nonprofits, with local grants focused on health priorities such as access to care, mental health, and food security. Its 2024 grant median was about $19,500; giving is concentrated in Minnesota, with community programs also in Arizona and Florida, and eligible nonprofits may apply through its community programs.
Assets
$17.9B
Grants
293
Total Given
$1.7B
The Chicago Community Trust
Chicago, IL
The Chicago Community Trust funds nonprofits addressing economic mobility, wealth gaps, and urgent community needs, with priorities including homeownership, small businesses, education, quality jobs, and investment in underinvested communities. Its 2025 itemized grants had a median of $26,500, though awards vary widely; grants generally benefit Chicago-region residents, and the Trust directs applicants to open opportunities but does not state whether it accepts unsolicited requests.
Assets
$7.1B
Grants
4,316
Total Given
$1.2B
The Allstate Foundation
Northbrook, IL
The Allstate Foundation funds youth empowerment, efforts to prevent and address relationship abuse, nonprofit leadership, and related economic opportunity and equity work. Its 2024 grants ranged from $250 to $2 million, with a median of $1,000, and awards must support work in the United States. It accepts proposals from organizations beyond a preselected list; proposals are reviewed as received.
Assets
—
Grants
2,010
Total Given
$38.0M
Elks National Foundation Inc
Chicago, IL
The Elks National Foundation funds scholarships, youth programs, veterans services, disaster relief, and community projects, primarily through Elks Lodges and state associations in communities across the United States where Elks live and work. Its 2025 grants had a median of $8,500, though amounts varied widely; the listed Beacon and Freedom Grants are limited to Elks Lodges. The profile does not state whether it accepts unsolicited requests.
Assets
$954.1M
Grants
1,536
Total Given
$36.5M
More Funders in Illinois
Pulmonary Fibrosis Foundation down — hundreds of funders to go?