PFF Research Fund to Cure Pulmonary Fibrosis - PFF Patient Registry and Biorepository – Research Opportunities Grant

The Pulmonary Fibrosis Foundation (PFF) offers the Research Fund to Cure Pulmonary Fibrosis, aimed at supporting innovative research to improve the understanding and treatment of pulmonary fibrosis. This initiative includes grants for basic, translational, clinical, and epidemiological research. The PFF Patient Registry, which collects vital health data from thousands of patients, is a key resource for researchers. This funding opportunity is primarily available to U.S.-based applicants, ensuring compliance with tax regulations.

OVERVIEW AND OBJECTIVES
One of the primary missions of the Pulmonary Fibrosis Foundation (PFF) is to fund research that will ultimately lead to successful therapies to improve care and quality of life for those affected by pulmonary fibrosis (PF). As part of this commitment, the Foundation will support new research through its own grant award program and through partnership grants with other patient advocacy organizations.
The Research Fund to Cure Pulmonary Fibrosis was established with the primary goal of funding innovative grants that offer a high likelihood of advancing research that improves the understanding of pulmonary fibrosis and/or that could translate into successful therapies in the following areas:

• Basic Science Translational Research Clinical Research Epidemiological Research Health Services Research
• PFF Patient Registry and Biorepository –Research Opportunities:

The PFF Registry includes the Patient Registry and the Community Registry. Both are crucial research tools in the fight against PF. Starting in 2016, the PFF Patient Registry has collected physician-reported medical information every six months from more than 2,000 patients who obtain care at participating PFF Care Centers across the United States. The Patient Registry collects clinical data, biosamples, and HRCT scans for use by clinical and translational investigators. In July 2022, the PFF Registry expanded to introduce another database, the PFF Community Registry, which relies on self-reported information from patients and lung transplant recipients who have been diagnosed with PF or ILD, as well as their caregivers and biological family members.

Eligibility

United States tax laws restrict the ability of the PFF, a not-for-profit foundation certified by the Internal Revenue Service as a tax-exempt organization pursuant to Section 501(c)(3) of the Internal Revenue Code, to make grants to international applicants. International applicants will be required to certify that grant funds will be used solely for the types of charitable, educational, and scientific purposes permitted to be performed by domestic Section 501(c)(3) organizations and that the grant funds will not benefit private interests, as opposed to the public at large. The determination whether such certification is satisfactory will be made by the PFF in its sole discretion. If you are a non-U.S. citizen working at a U.S. institution, you will need to remain there long enough to finish your project. If you do not have a permanent visa, state in your application that your visa will allow you to remain in the U.S. long enough for you to be productive on the project. Your institution ensures that you have an appropriate work visa.