Ash Registry Inc
ASH Registry Inc. is a Washington, DC-based public charity established by the American Society of Hematology in 2017. It supports collaborative hematology research, including shared data resources and research networks focused on blood diseases.
Ash Registry Inc at a glance
In short: Ash Registry Inc gave $745K across 19 grants in 2025 (avg $39K), top state Texas. 16% of 2025 grantees were new. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $745,222
- -1.7% vs 2024
- Grants made (2025)
- 19
- +46.2% vs 2024
- Average grant
- $39,222
- -32.8% vs 2024
- Median grant
- $48,251
- Total assets
- $3,937,364
- +57.4% vs 2024
- New grantees (estimate)
- 16% first-time grantees (3 of 19, 2025; small sample)
- Primary geography
- Texas (13% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated October 2026. New grantees are estimated by matching recipient names across years (methodology).
How to apply to Ash Registry Inc
- Contact
Mailing address: 2021 L Street Nw 900, Washington, DC 20036
Phone: (202) 776-0544
Application details from Grantable's research on the foundation's public materials; confirm on its website before applying.
Who Ash Registry Inc funds
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2025
The largest 2025 recipient was The Regents of the University of California San Francisco ($50K). Together the top 10 received $497K.
Grant Size Distribution
52 grants across all recorded years
The most common grant size was in the $50–100K range: 20 grants of 52 (38%).
Geographic Focus
Where this funder awards grants
The 2025 grant list shows awards to organizations in multiple states. The largest shares of grant dollars went to recipients in Texas (13%), Georgia (11%), New York (9%), California (7%), and Connecticut (7%). The MM Data Hub Award listing specifies a United States geographic scope.
Grant Distribution by State
Share of 2025 grant dollars across all 19 itemized grants.
States
Cities
Is Ash Registry Inc open to new grantees?
16%
first-time grantees, 2025
In 2025, 3 of 19 grantees (16%) were first-time recipients. With only 19 grantees, that is a small sample: one grantee more or less moves the share by about 5 points. First grants averaged $35K; repeat grants $40K. How we count
Medians: $41K first-time, $49K repeat.
- 58% of 2025 grantees were also funded in 2024. Method
Estimate from itemized grant lists in IRS Form 990 filings (2023–2025). Recipient names are matched across years, so a renamed or misspelled grantee can look new; grants to individuals are left out. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2023 to 2025, annual grant giving ranged from $745K (2025) to $2.0M (2023). In 2025 it made 19 grants totaling $745K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| The Regents of the University of California San Francisco Oakland, CA | Ash RC SCD Research Network Annual Grant Renewal | $50,000 |
| Montefiore Medical Center Bronx, NY | Ash RC SCD Research Network Annual Grant Renewal | $50,000 |
| University of Connecticut Health Center Farmington, CT | Ash RC SCD Research Network Annual Grant Renewal | $50,000 |
| Children's Hospital Medical Center Cincinnati, OH | Ash RC SCD Research Network Annual Grant Renewal | $50,000 |
| Emory University Atlanta, GA | Ash RC SCD Research Network Annual Grant Renewal | $50,000 |
| University of Alabama at Birmingham Birmingham, AL | Ash RC SCD Research Network Annual Grant Renewal | $50,000 |
| The University of Texas Southwestern Medical Center Dallas, TX | Ash RC SCD Research Network Annual Grant Renewal | $50,000 |
| Children's Hospital of Philadelphia Philadelphia, PA | Ash RC SCD Research Network Annual Grant Renewal | $50,000 |
| Newark Beth Israel Medical Center Newark, NJ | Ash RC SCD Research Network Annual Grant Renewal | $48,847 |
| Baylor College of Medicine Houston, TX | Ash RC SCD Research Network Annual Grant Renewal | $48,251 |
Ready to take the next step with Ash Registry Inc?
Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants |
|---|---|---|---|---|---|
| 2025 | $3,937,364 | $4,973,130 | $10,038,615 | $745,222 | 19 |
| 2024 | $2,501,839 | $2,978,964 | $9,678,120 | $758,278 | 13 |
| 2023 | $2,680,075 | $3,222,521 | $11,062,353 | $2,014,356 | 20 |
| 2022 | $1,364,727 | $1,021,874 | $10,089,564 | — | — |
| 2021 | $2,547,175 | $1,111,574 | $7,388,211 | — | — |
| 2020 | $1,091,496 | — | $8,530,430 | — | — |
| 2019 | $1,466,643 | $10,000 | $4,144,131 | — | — |
Research compiled by Grantable AI from public sources. Last updated October 2026.
Mission & Focus Areas
ASH RC’s stated mission is to improve the lives of people affected by blood diseases through collaborative partnerships that accelerate progress in hematology. Its Data Hub aggregates research-grade information on hematologic diseases to support scientific inquiry. The organization’s stated aims include studying diagnosis, disease management, care patterns, and patient experience.
Its work includes the Sickle Cell Disease (SCD) Research Network and a Multiple Myeloma (MM) Research Network. The SCD network facilitates industry-sponsored research and investigator-initiated studies, including observational, pragmatic, comparative-effectiveness, and implementation research. The organization also describes Data Hub awards for early-career SCD investigators and for community hospitals participating in MM research.
Grantmaking
In filing year 2025, ASH Registry reported 19 grants totaling $745,222. Grants ranged from $9,538 to $50,000, with a median of $48,251. Many of the largest awards were $50,000 renewals for the ASH RC SCD Research Network. Recipients included the Regents of the University of an individual recipient, Montefiore Medical Center, University of Connecticut Health Center, Cincinnati Children’s Hospital Medical Center, Emory University, University of Alabama at Birmingham, University of Texas Southwestern Medical Center, and Children’s Hospital of Philadelphia, each receiving $50,000 for an annual network grant renewal. Medical College of Wisconsin received $44,968 for an ASH RC Research Network site grant.
Other 2025 recipients included Children’s Research Institute, which received $30,034. The institute describes its work as translational and clinical medical research and education aimed at improving understanding, prevention, treatment, and care of childhood diseases. Augusta University Research Institute received $28,691; it describes its purpose as serving Augusta University and enhancing its research excellence. Boston Medical Center Corporation received $13,800; it describes its mission as providing excellent, accessible health services regardless of a person’s status or ability to pay.
The SCD Data Hub Award program is described as supporting early-career investigators mentored by advanced-career SCD researchers, with projects using Data Hub information and an expected manuscript submission. Its listed August 7, 2026 deadline has passed. The MM Data Hub Award is described as a U.S. program for eligible community hospitals seeking to contribute clinical data and expand the representativeness of the MM Research Network; its January 8, 2026 letter-of-intent deadline has passed. The SCD award listing also identifies a first cohort selected in January 2026 and a prior September 12, 2025 deadline.
Leadership & Key People
Leadership team and compensation from IRS filings
The 2025 filing lists Mark Crowther as board chair and Gary Shiller as secretary/treasurer. Other listed directors and appointed members are Linda Burns, Roy Silverstein, Christopher Boone, Helen Burstin, Andrew Evens, Marc Ginsky, Bob Lowenberg, and Chris McEntee. Roy Silverstein is listed as liaison to the ASH Executive Committee; Andrew Evens is listed as vice chairperson, and Chris McEntee as appointed member as of May 2025.
Ash Registry Inc is led by Matthew Gertzog, Executive Director since 2022 (on filings since 2020); 6 of 17 officers listed in 2025 are compensated.
Officers on the 2025 filing
Matthew Gertzog
Executive Director
Executive Director → Deputy Executive Director, 2021
Deputy Executive Director → Executive Director, 2022
On filings since 2020
18 hrs/week
$267K (2022) → $324K (2025)
Mark Crowthermdmscfrcpcfrsc
Board Chair
Treasurer - → Board Chair -, 2024
Board Chair - → Board Chair, 2025
On filings since 2023
2 hrs/week
No compensation reported
Kathleen Torres
Senior Director & Data Hub
New on the 2025 filing
40 hrs/week
$399K (2025)
Michelle Walser
Deputy Director & Operations
Deputy Director & Operations Ash Rc → Deputy Director & Operations, 2023
On filings since 2021
40 hrs/week
$205K (2022) → $278K (2025)
Susan Rogers Senior Manager
Learning Community Programs
On filings since 2023
40 hrs/week
$170K (2023) → $192K (2025)
Christopher Dowd
Deputy Director & Business Development
On filings since 2024
40 hrs/week
$239K (2024) → $412K (2025)
Emily Semmel
Deputy Director & Data Hub
New on the 2025 filing
40 hrs/week
$177K (2025)
Martha Liggett Esq.
Ex-Officio
Executive Director → Ex-Officio, 2025
On filings since 2019
2 hrs/week
No compensation reported
Bob Lowenberg MD PhD
Appointed Member
Councillor → Director & Councillor -, 2024
Director & Councillor - → Appointed Member, 2025
On filings since 2020
2 hrs/week
No compensation reported
Andrew Evens Do Mba Msc
App Member Till & Vice Chairperson
Director → App Member Till & Vice Chairperson, 2025
On filings since 2024
2 hrs/week
No compensation reported
Gary Shiller
Secretary & Treasurer
Secretary & Treasurer - → Secretary & Treasurer, 2025
On filings since 2024
2 hrs/week
No compensation reported
Helen Burstin MD MPH
Appointed Member
Director → Appointed Member, 2025
On filings since 2024
2 hrs/week
No compensation reported
Linda Burns MD
Appointed Member
Liaison to Ash Ec → Appointed Member, 2025
On filings since 2024
2 hrs/week
No compensation reported
Marc Ginsky JD
Appointed Member
Director → Appointed Member, 2025
On filings since 2024
2 hrs/week
No compensation reported
Roy Silverstein MD
Liaison to Ash Ec
On filings since 2024
2 hrs/week
No compensation reported
Chris McEntee
Appointed Member
New on the 2025 filing
2 hrs/week
No compensation reported
Christopher Boone Phd Fache
Fhimss - Appointed Member
New on the 2025 filing
2 hrs/week
No compensation reported
Former officers (47)
- Former: Belinda Avalos MD (2019–2024) — Vice President -
- Former: Cynthia E. Dunbar MD (2019–2024) — Secretary -
- Former: Alison Loren (2020–2024) — Councillor -
- Former: Betty Pace MD (2021–2024) — Councillor -
- Former: Jamile M. Shammo MD (2021–2024) — Councillor -
- Former: Kathleen Hewitt (2021–2024) — Senior Director & Data Hub
- Former: Robert A. Brodsky MD (2021–2024) — President -
- Former: Joseph Mikhael Md Frcpc Med (2022–2024) — Treasurer -
- Former: Sarah H. O'Brien Md Msc (2022–2024) — Councillor -
- Former: Wendy Stock MD (2022–2024) — Councillor -
- Former: Charlotte Marie Niemeyer MD (2023–2024) — Councillor -
- Former: Christopher R. Flowers Md Msc (2023–2024) — Councillor -
- Former: Mohandas Narladsc (2023–2024) — President-Elect -
- Former: Christopher Boone Phd Fache Fhimss (2024) — Director
- Former: Robert Plovnick Chief Medical (2024) — Quality Officer -
- Former: Arnold Ganser MD (2019–2023) — Councillor -
- Former: Jane N. Winter MD (2019–2023) — President -
- Former: Robert Plovnick (2020–2023) — Chief Medical Quality Officer
- Former: Nicole Mortier (2023) — Director & Scd Ctn -
- Former: Mark A. Crowther MD (2019–2022) — Treasurer
- Former: Martin S. Tallman MD (2019–2022) — President -
- Former: Agnes Lee Md Msc (2022) — Councillor -
- Former: Charles Chesson Former Chief (2022) — Prof. D & Diversity Officer
- Former: Mohandas Narla Dsc (2022) — Vice President -
- Former: Nicole Mortier Director (2022) — Scd Clinical Trials Network
- Former: Susan Rogers (2022) — Senior Manager & Learning Community Programs
- Former: Agnes Lee (2019–2021) — Councillor
- Former: Charles Chesson (2019–2021) — Chief Prof. Development & Diversity Officer
- Former: Stephanie J. Lee (2019–2021) — President
- Former: Joseph Mikhael (2020–2021) — Councillor
- Former: John C. Byrd (2021) — Councillor
- Former: Louis Grue (2021) — Senior Manager & Clinical Trials Op.
- Former: John C. Byrd See Sch O. (2019–2020) — Board Member
- Former: Robert A. Brodsky See Sch O. (2019–2020) — Secretary
- Former: Roy L. Silverstein See Sch O. (2019–2020) — President
- Former: Steven L. Allen (2019–2020) — Board Member
- Former: Uchenna Onyeachom (2019–2020) — Senior Manager & Data Hub Informatics
- Former: Charles Chesson-Dir Sickle Cell (2020) — Disease Clinical Trial Network
- Former: Cynthia E. Dunbar See Sch O. (2020) — Board Member
- Former: Martin S. Tallman See Sch O. (2020) — Vice President to Pres.-Elect
- Former: Stephanie Lee See Sch O. (2020) — Pres-Elect to President
- Former: Alexis Thompson See Sch O. (2019) — President
- Former: Joseph Mikhael See Sch O. (2019) — Board Member
- Former: Latasha Lee (2019) — Senior Manager & Partnership Engagement
- Former: Mary C. Dinauer (2019) — Board Member
- Former: Susan B. Shurin See Sch O. (2019) — Treasurer
- Former: Terry Gernsheimer (2019) — Board Member
Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $412K, to Christopher Dowd (Deputy DIR., Business Development). 6 officers or directors reported compensation on that filing.
Frequently asked questions about Ash Registry Inc
How much does Ash Registry Inc give each year?
Ash Registry Inc gave $745K across 19 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $758K across 13 grants.
What is Ash Registry Inc's typical grant size?
Ash Registry Inc's median grant in 2025 was $48,251, and its average grant was $39,222, across 19 grants on its 2025 IRS Form 990. Organizations receiving their first grant from Ash Registry Inc that year got $35K on average.
Where does Ash Registry Inc give grants?
Ash Registry Inc's top state is Texas, with 13% of the grant dollars itemized on its 2025 IRS Form 990. The next largest states were Georgia (11%) and New York (9%).
Does Ash Registry Inc give general operating support?
Not in 2025: none of the 19 grants with a stated purpose on Ash Registry Inc's 2025 IRS Form 990 were described as general or operating support. Recurring purposes include "Ash RC SCD Research Network Annual Grant Renewal" (18 grants).
Who are Ash Registry Inc's largest grantees?
Ash Registry Inc's largest 2025 grantees include The Regents of the University of California San Francisco ($50,000), Montefiore Medical Center ($50,000) and University of Connecticut Health Center ($50,000), according to its 2025 IRS Form 990. Together they received 20% of its itemized 2025 grant dollars.
How large is Ash Registry Inc?
Ash Registry Inc reported $3.9M in total assets on its 2025 IRS Form 990. Its revenue that year was $5.0M.
What does Ash Registry Inc fund?
ASH RC’s stated mission is to improve the lives of people affected by blood diseases through collaborative partnerships that accelerate progress in hematology. Its Data Hub aggregates research-grade information on hematologic diseases to support scientific inquiry. See mission & focus areas ↑
How do I apply for a grant from Ash Registry Inc?
Ash Registry Inc has no public application process in the sources Grantable reviewed. Contact the foundation directly before submitting a request.
What is Ash Registry Inc's EIN?
Ash Registry Inc's EIN (Employer Identification Number) is 82-4218205. IRS Form 990 filing data is available on this page for 2019–2025.
Data last updated October 2026. Sourced from IRS Form 990 filings. Research dossier generated October 2026.
Data update history
(4)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2023 (received by the IRS May 3, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS April 23, 2025)
- Updated Form 990 for fiscal year 2025 (received by the IRS April 22, 2026)
- IRS filings on file for fiscal years 2019–2025
Live grants for the work Ash Registry Inc funds
Science & Technology Open opportunities, soonest deadline first.
Explore Open Grants
Browse active grant opportunities in Ash Registry Inc's focus areas in our free grants database
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Cite this profile
Grantable. (2026). Ash Registry Inc funder profile. GrantGraph. Retrieved October 17, 2026, from https://grantable.co/funders/ash-registry-inc-morg_ee36cac791fe44fb8cd2b1be02931f0b
BibTeX
@misc{grantable_824218205_2026,
author = {{Grantable}},
title = {{Ash Registry Inc funder profile}},
howpublished = {GrantGraph},
year = {2026},
url = {https://grantable.co/funders/ash-registry-inc-morg_ee36cac791fe44fb8cd2b1be02931f0b},
note = {Accessed 2026-10-17. Data licensed CC BY 4.0}
}The figures on this page are open data under CC BY 4.0: reuse them with credit to Grantable and a link. Download the data.
Figures come from Ash Registry Inc's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.
Ash Registry Inc down — hundreds of funders to go?