ALS United Connecticut
The mission of the ALS United Connecticut is to provide comprehensive support to improve quality of life for people with als and their families, while advocating for increased support and advancing innovative research for new treatments and an end to als.
ALS United Connecticut at a glance
- Total assets
- $3,899,080
- +36.8% vs 2025
- Revenue (2026)
- $2,633,099
- +46.5% vs 2025
- Net investment income (2026)
- $110,383
- +17.6% vs 2025
- Expenses (2026)
- $1,817,483
- +19.3% vs 2025
- Latest 990 filing
- Form 990, 2026 View filing
Data from IRS Form 990, 2026; updated September 2026.
Who ALS United Connecticut funds
Giving History
Giving Over Time
Total grant dollars and number of grants per year
In 2021 it made 1 grant totaling $50K.
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2026 | $3,899,080 | $2,633,099 | $1,817,483 | — | — | $110,383 |
| 2025 | $2,850,683 | $1,797,027 | $1,523,311 | — | — | $93,855 |
| 2024 | $2,501,459 | $1,626,569 | $1,495,214 | — | — | $72,053 |
| 2023 | $2,442,059 | $1,255,316 | $1,444,510 | — | — | $47,002 |
| 2022 | $2,655,935 | $1,541,822 | $1,382,807 | — | — | $38,539 |
| 2021 | $2,442,239 | $1,786,511 | $1,190,099 | $50,000 | 1 | $30,183 |
| 2020 | $1,839,532 | $1,195,447 | $1,026,691 | — | — | $37,392 |
About ALS United Connecticut
Based on IRS filings
ALS United Connecticut is a public charity focused on Health, based in Stratford, CT. IRS filing data is available from 2020 through 2026. As of 2026, the organization holds $3.9M in total assets. Net investment income was $110K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
ALS United Connecticut is led by Jacky Rose, Executive Director on every filing since 2022; 1 of 10 officers listed in 2026 is compensated.
Officers on the 2026 filing
Jacky Rose
Executive Director
On filings since 2022
40 hrs/week
$88K (2022) → $135K (2026)
Maura Tancredi
Vice President & Chair
Vice President → Vice President & Chair, 2023
On filings since 2020
1 hr/week
No compensation reported
Brian Savo
Director
On filings since 2020
1 hr/week
No compensation reported
Sean Keating
Director
President → Past President & Chair, 2023
Past President & Chair → Director, 2025
On filings since 2020
1 hr/week
No compensation reported
Cheryl Smith
Director
On filings since 2024
1 hr/week
No compensation reported
Judd McArthur
Director
On filings since 2024
1 hr/week
No compensation reported
Dave White
Director
On filings since 2025
1 hr/week
No compensation reported
Diana Terita
Director
New on the 2026 filing
1 hr/week
No compensation reported
Maureen Lahiff
Secretary
Director → Secretary, 2021
On filings since 2020
1 hr/week
No compensation reported
Todd Marcy
Treasurer
On filings since 2020
1 hr/week
No compensation reported
Former officers (8)
- Former: Peter Corbett (2021–2025) — President & Chair
- Former: Brett Keating (2022–2025) — Director
- Former: Mary Nescott (2020–2024) — Director
- Former: Jennifer Fiorillo (2021–2023) — Director
- Former: Sandra Tripodi (2020–2022) — Executive Director
- Former: Jeannine Frink (2021–2022) — Director
- Former: Brian Roberson (2020) — President
- Former: Mike Iacurci (2020) — Secretary
Data from IRS Form 990 filings, 2020–2026. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2026 IRS filing
The highest reported compensation on the 2026 filing was $135K, to Jacky Rose (Executive Director).
Frequently asked questions about ALS United Connecticut
How large is ALS United Connecticut?
ALS United Connecticut reported $3.9M in total assets on its 2026 IRS Form 990. Its revenue that year was $2.6M.
What is ALS United Connecticut?
ALS United Connecticut is a public charity focused on Health, based in Stratford, CT. It holds $3.9M in total assets as of 2026.
Where does ALS United Connecticut operate?
ALS United Connecticut has awarded grants in Virginia.
What is ALS United Connecticut's EIN?
ALS United Connecticut's EIN (Employer Identification Number) is 04-3417472. IRS Form 990 filing data is available on this page for 2020–2026.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(2)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2021 (received by the IRS June 4, 2021)
- Added Form 990 for fiscal year 2026 (received by the IRS August 10, 2026)
Live grants for the work ALS United Connecticut funds
Health Open opportunities, soonest deadline first.
Explore Open Grants
Browse active grant opportunities in ALS United Connecticut's focus areas in our free grants database
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ALS United Connecticut down — hundreds of funders to go?