Amyotrophic Lateral Sclerosis Association
Our mission is to discover treatments and a cure for als, and to serve, advocate for, and empower people affected by als to live their lives to the fullest.
Amyotrophic Lateral Sclerosis Association at a glance
In short: Amyotrophic Lateral Sclerosis Association gave $3.3M across 2 grants in 2023 (avg $1.7M), mostly in Virginia. Source: 2023 IRS Form 990.
- Annual giving (2023)
- $3,333,099
- Grants made (2023)
- 2
- Average grant
- $1,666,550
- Median grant
- $1,666,550
- Primary geography
- Virginia (100% of itemized 2023 grant dollars)
- Latest 990 filing
- Form 990, 2023 View filing
Data from IRS Form 990, 2023; updated September 2026. Covers 20 months (fiscal year-end changed).
Who Amyotrophic Lateral Sclerosis Association funds
How this funder distributes its grants
Top Recipients
Top recipient in 2023
The largest 2023 recipient was The ALS Association ($3.3M across 2 grants).
Grant Size Distribution
8 grants across all recorded years
The most common grant size was under $50K: 3 grants of 8 (38%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2023 grant dollars across all 2 itemized grants.
States
Cities
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2023, annual grant giving ranged from $251K (2020) to $3.3M (2023, 20 months). In 2023 it made 2 grants totaling $3.3M.
*2023: Covers 20 months (fiscal year-end changed).
Grants by year
Grant recipients and amounts by year
*2023: Covers 20 months (fiscal year-end changed).
| Recipient | Purpose | Amount |
|---|---|---|
| The ALS Association Arlington, VA | Liquidating distribution (see form 990, part iii, line 3 & schedule n) | $1,829,845 |
| The ALS Association Arlington, VA | Research | $1,503,254 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2023* | — | $4,038,701 | $6,173,163 | $3,333,099 | 2 | $307,329 |
| 2022 | $2,655,654 | $4,199,844 | $3,074,863 | $402,945 | 2 | $1,416 |
| 2021 | $1,859,209 | $2,660,252 | $2,454,446 | $251,853 | 2 | $2,447 |
| 2020 | $1,150,493 | $1,883,335 | $2,121,133 | $251,337 | 2 | $1,419 |
*2023: Covers 20 months (fiscal year-end changed).
About Amyotrophic Lateral Sclerosis Association
Based on IRS filings
Amyotrophic Lateral Sclerosis Association is a public charity, based in Tampa, FL. IRS filing data is available from 2020 through 2023. In 2023, it awarded 2 grants totaling $3.3M. Net investment income was $307K.
Leadership & Key People
Officers and directors from IRS filings
Amyotrophic Lateral Sclerosis Association is led by Glenn Stambaugh, Chairman since 2023 (on filings since 2020); none of the 15 officers listed in 2023 report compensation.
Officers on the 2023 filing
Glenn Stambaugh
Chairman
Treasurer → Vice Chairman, 2022
Vice Chairman → Chairman, 2023
On filings since 2020
3 hrs/week
No compensation reported
Ray Carson
Southeast Territory Executive
President & CEO → Southeast Territory Executive, 2023
On filings since 2020
40 hrs/week
$93K (2020) → $0 (2023)
Alecia Jones Bailey
Member
Trustee → Member, 2023
On filings since 2020
3 hrs/week
No compensation reported
Hampton Graham
Immediate Past Chair
Vice Chariman → Chairman, 2022
Chairman → Immediate Past Chair, 2023
On filings since 2020
3 hrs/week
No compensation reported
Jo-Ann Clynch
Member
Trustee → Member, 2023
On filings since 2020
3 hrs/week
No compensation reported
Melissa Spring
Member
Trustee → Member, 2023
On filings since 2020
3 hrs/week
No compensation reported
Sharon Sam Maybrook
Member
Secretary → Member, 2023
On filings since 2020
3 hrs/week
No compensation reported
Troy Fields
Member
Trustee → Treasurer, 2022
Treasurer → Member, 2023
On filings since 2020
3 hrs/week
No compensation reported
Jeff Elbert
Treasurer
Trustee → Treasurer, 2023
On filings since 2021
3 hrs/week
No compensation reported
Ashok Verma MD
Member
Trustee → Member, 2023
On filings since 2022
3 hrs/week
No compensation reported
Brian Chappell
Vice Chairman
Trustee → Vice Chairman, 2023
On filings since 2022
3 hrs/week
No compensation reported
Brittany Harvey
Member
Trustee → Member, 2023
On filings since 2022
3 hrs/week
No compensation reported
Christine Hopkins Reagan
Secretary
New on the 2023 filing
3 hrs/week
No compensation reported
Robert Scott
Member
New on the 2023 filing
3 hrs/week
No compensation reported
Stuart Davidson
Member
New on the 2023 filing
3 hrs/week
No compensation reported
Former officers (8)
- Former: John Cannistra (2020–2022) — Immediate Past Chairman
- Former: John Collins (2020–2022) — Trustee
- Former: Kevin Conn (2020–2022) — Trustee
- Former: Christine Hopkins Rankin (2022) — Trustee
- Former: Christine Hopkins (2021) — Trustee
- Former: Gabby Harrison (2020) — Director of Operations
- Former: Tim Cummings (2020) — Trustee
- Former: Wendy Bitner Rodin (2020) — Trustee
Data from IRS Form 990 filings, 2020–2023. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2022 IRS filing
The highest reported compensation on the 2022 filing was $150K, to Ray Carson (President/CEO).
Frequently asked questions about Amyotrophic Lateral Sclerosis Association
How much does Amyotrophic Lateral Sclerosis Association give each year?
Amyotrophic Lateral Sclerosis Association gave $3.3M across 2 grants in 2023, according to its 2023 IRS Form 990. The 2023 filing year covers 20 months because its fiscal year-end changed. In 2022 it gave $403K across 2 grants.
Where does Amyotrophic Lateral Sclerosis Association operate?
Amyotrophic Lateral Sclerosis Association has awarded grants in District of Columbia, Virginia.
What is Amyotrophic Lateral Sclerosis Association's EIN?
Amyotrophic Lateral Sclerosis Association's EIN (Employer Identification Number) is 94-3124732. IRS Form 990 filing data is available on this page for 2020–2023.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(5)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS December 14, 2020)
- Updated Form 990 for fiscal year 2021 (received by the IRS December 13, 2021)
- Updated Form 990 for fiscal year 2022 (received by the IRS November 21, 2022)
- Updated Form 990 for fiscal year 2023 (received by the IRS August 6, 2024)
- IRS filings on file for fiscal years 2020–2023
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The filing figures on this page are open data under CC BY 4.0. About GrantGraph Open
Figures come from Amyotrophic Lateral Sclerosis Association's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.
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