National Organization for Rare Disorders Inc
Funding Overview
From IRS Form 990 filings · 2019–2025
Total received
$13.5M
Foundation funders
62
Grants recorded
122
Years covered
2019–2025
Who funds National Organization for Rare Disorders Inc?
National Organization for Rare Disorders Inc is funded by 62 grantmakers, led by Critical Path Institute ($9.2M), Silicon Valley Community Foundation ($1.2M), National Tuberous Sclerosis Association ($865K). In total, IRS Form 990 filings record $13.5M in grants to National Organization for Rare Disorders Inc between 2019–2025.
Show all 62 funders
Funding over time
Grant dollars and counts received per year
From 2019 to 2025, annual grant giving ranged from $61K (2019) to $2.7M (2021). In 2025 it made 10 grants totaling $1.7M.
What grants has National Organization for Rare Disorders Inc received?
Individual grants from IRS Form 990 filings, newest first
| Year | Funder | Purpose | Amount |
|---|---|---|---|
| 2025 | Critical Path Institute | SUBAWARD | $1,319,385 |
| 2025 | National Tuberous Sclerosis Association | TSC TRAVEL AND LODGING ASSISTANCE PROGRAM | $150,000 |
| 2025 | (Acpmp) Appendix Cancerpseudomyxoma Peritonei Research Foundation | RESEARCH | $100,000 |
| 2025 | The Leslie & Roslyn Goldstein Foundation | GENERAL SUPPORT | $50,000 |
| 2025 | Northwestern University | Support of research activities | $32,662 |
| 2025 | Charities Aid Foundation America | CHARITABLE DONATION | $10,195 |
| 2025 | Vyuha Inc | GENERAL SUPPORT. THE ORGANIZATION CAN USE THE FUNDS AS NEEDED IN FURTHERANCE OF ITS CHARITABLE PURPOSE. | $10,000 |
| 2025 | The Llee Foundation | GENERAL SUPPORT | $5,000 |
| 2025 | Baird Foundation Inc | HEALTH AND HUMAN SERVICES | $1,500 |
| 2025 | Analog Devices Foundation | GENERAL SUPPORT | $55 |
| 2024 | Critical Path Institute | SUBAWARD | $1,964,277 |
| 2024 | National Tuberous Sclerosis Association | TSC TRAVEL AND LODGING ASSISTANCE PROGRAM | $175,000 |
| 2024 | Jose Antonio Grifols Lucas Foundation Inc | Administration Fee and the Funding for Plasma Donor Emergency Relief Program. | $110,000 |
| 2024 | The Leslie & Roslyn Goldstein Foundation | GENERAL SUPPORT | $100,000 |
| 2024 | Northwestern University | Support of research activities | $36,732 |
| 2024 | Alpha-1 Foundation Inc | — | $30,000 |
| 2024 | The Ressler Family Foundation | GENERAL SUPPORT | $20,000 |
| 2024 | Givinga Foundation Inc | PROGRAM SUPPORT | $16,572 |
| 2024 | Schlinger Family Foundation | General & Unrestricted | $10,000 |
| 2024 | Smidt Family Foundation | IN FURTHERANCE OF SECTION 501(C)(3) CHARITABLE PURPOSE. | $10,000 |
| 2024 | Pharmaceutical Research and Manufacturers of America | GENERAL CONTRIBUTION | $10,000 |
| 2024 | Jewish Community Foundation of Los Angeles | general support | $10,000 |
| 2024 | Vanguard Charitable Endowment Program | FOR RECIPIENT'S EXEMPT PURPOSE | $9,800 |
| 2024 | The Llee Foundation | GENERAL SUPPORT | $5,000 |
| 2024 | Susan Zirkl Z L Memorial Charitable Foundation Trust | RARE DISEASE RESEARCH | $5,000 |
| 2024 | Max and Selma Kupferberg Family Foundation | General & Unrestricted | $3,000 |
| 2024 | The Blank Family Foundation Inc | CHARITABLE | $2,100 |
| 2024 | Clune Cares Foundation Inc | GENERAL OPERATING SUPPORT | $2,000 |
| 2024 | ISEC Charitable Foundation aka ISEC | General & Unrestricted | $1,500 |
| 2024 | Baird Foundation Inc | HEALTH AND HUMAN SERVICES | $1,500 |
Showing 30 most recent of 122 recorded grants.
Frequently Asked Questions
Who funds National Organization for Rare Disorders Inc?
National Organization for Rare Disorders Inc is funded by 62 grantmakers, led by Critical Path Institute ($9.2M), Silicon Valley Community Foundation ($1.2M), National Tuberous Sclerosis Association ($865K). In total, IRS Form 990 filings record $13.5M in grants to National Organization for Rare Disorders Inc between 2019–2025.
Who is National Organization for Rare Disorders Inc's largest funder?
Critical Path Institute is the largest recorded funder of National Organization for Rare Disorders Inc, with $9.2M across 6 grants (2020–2025).
How much grant funding has National Organization for Rare Disorders Inc received?
IRS 990 filings record $13.5M in grants to National Organization for Rare Disorders Inc across 122 grants from 62 funders between 2019–2025. Filings are published on a delay, so recent grants may not appear yet.
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Grant data is drawn from IRS Form 990 filings via Grantable's GrantGraph™. Filings are published on a delay; recent grants may not appear yet.
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