FSHD Society
Funding Overview
From IRS Form 990 filings · 2019–2025
Total received
$1.4M
Foundation funders
64
Grants recorded
137
Years covered
2019–2025
Who funds FSHD Society?
FSHD Society is funded by 64 grantmakers, led by Robert C and Ruth Womack Foundation ($290K), Charities Aid Foundation America ($265K), Tribune-Review Charities ($105K). In total, IRS Form 990 filings record $1.4M in grants to FSHD Society between 2019–2025.
Show all 64 funders
Funding over time
Grant dollars and counts received per year
From 2019 to 2025, annual grant giving ranged from $34K (2019) to $348K (2020). In 2025 it made 16 grants totaling $102K.
What grants has FSHD Society received?
Individual grants from IRS Form 990 filings, newest first
| Year | Funder | Purpose | Amount |
|---|---|---|---|
| 2025 | Tribune-Review Charities | CHARITABLE DONATION | $35,000 |
| 2025 | Foglia Family Foundation | GENERAL CHARITABLE PURPOSES | $20,000 |
| 2025 | Florence & Richard Koplow Family | CHARITABLE | $10,000 |
| 2025 | Grand Rapids Community Foundation | IN HONOR OF CYNDI SEGROVES. TO BE USED EXCLUSIVELY FOR RESEARCH. FROM DAVID AND MICHELLE MACKAY | $10,000 |
| 2025 | Charities Aid Foundation America | CHARITABLE DONATION | $7,250 |
| 2025 | The Goldstone Fund Inc | General Purpose | $5,000 |
| 2025 | Friends of FSH Research | RESEARCH STUDIES | $4,000 |
| 2025 | The Sukeforth Family Foundation | General Operating Support | $2,500 |
| 2025 | Ralph G Gorenstein Charitable | GENERAL SUPPORT | $2,400 |
| 2025 | The V & L Marx Foundation | GENERAL CORPORATE PURPOSE | $1,500 |
| 2025 | Cecil Robbins Memorial Fund | GENERAL FND | $1,000 |
| 2025 | Gladstein Family Foundation Inc | FURTHER ORGANIZATIONS GOALS | $1,000 |
| 2025 | JPMorgan Chase Foundation | MATCHING CONTRIBUTION (GENERAL OPERATING SUPPORT) | $800 |
| 2025 | JPMorgan Chase Foundation | MATCHING CONTRIBUTION (GENERAL OPERATING SUPPORT) | $600 |
| 2025 | Yvonne & Leslie Pollack Family | CHARITABLE | $500 |
| 2025 | Lebovitz Foundation | Assist in charitable activities | $54 |
| 2024 | Robert C and Ruth Womack Foundation | Medical Research | $100,000 |
| 2024 | Tribune-Review Charities | CHARITABLE DONATION | $36,000 |
| 2024 | Muscular Dystrophy Association Inc | ADVOCACY | $25,500 |
| 2024 | The Geraldi Norton Foundation | UNRESTRICTED | $25,000 |
| 2024 | Vanguard Charitable Endowment Program | FOR RECIPIENT'S EXEMPT PURPOSE | $21,650 |
| 2024 | Foglia Family Foundation | GENERAL CHARITABLE PURPOSES | $20,000 |
| 2024 | The US Charitable Gift Trust | FOR RECIPIENT'S EXEMPT PURPOSE | $20,000 |
| 2024 | Live to Give Minnesota | — | $7,718 |
| 2024 | The New York Community Trust | FOR GENERAL SUPPORT. | $7,049 |
| 2024 | S & L Marx Foundation | FSHD Research Program | $5,000 |
| 2024 | Morgan Stanley Global Impact Funding Trust Inc | UNRESTRICTED GENERAL SUPPORT | $5,000 |
| 2024 | The Sukeforth Family Foundation | General Operating Support | $2,500 |
| 2024 | Leopardo Charitable Foundation | TO SUPPORT THE ORGANIZATION'S MISSION AND PROVIDE GENERAL OPERATING SUPPORT | $2,500 |
| 2024 | Ralph G Gorenstein Charitable | GENERAL SUPPORT | $2,400 |
Showing 30 most recent of 137 recorded grants.
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Frequently Asked Questions
Who funds FSHD Society?
FSHD Society is funded by 64 grantmakers, led by Robert C and Ruth Womack Foundation ($290K), Charities Aid Foundation America ($265K), Tribune-Review Charities ($105K). In total, IRS Form 990 filings record $1.4M in grants to FSHD Society between 2019–2025.
Who is FSHD Society's largest funder?
Robert C and Ruth Womack Foundation is the largest recorded funder of FSHD Society, with $290K across 3 grants (2022–2024).
How much grant funding has FSHD Society received?
IRS 990 filings record $1.4M in grants to FSHD Society across 137 grants from 64 funders between 2019–2025. Filings are published on a delay, so recent grants may not appear yet.
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Grant data is drawn from IRS Form 990 filings via Grantable's GrantGraph™. Filings are published on a delay; recent grants may not appear yet.
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