FSHD Society

Nonprofit · Grant recipient Also a grantmaker → Randolph, MA EIN 52-1762747

Funding Overview

From IRS Form 990 filings · 2019–2025

Total received

$1.4M

Foundation funders

62

Grants recorded

132

Years covered

2019–2025

Who funds FSHD Society?

FSHD Society is funded by 62 grantmakers, led by Robert C and Ruth Womack Foundation ($290K), Charities Aid Foundation America ($265K), Tribune-Review Charities ($105K). In total, IRS Form 990 filings record $1.4M in grants to FSHD Society between 2019–2025.

FunderTotal givenGrantsYears
Robert C and Ruth Womack Foundation$290,00032022–2024
Charities Aid Foundation America$264,91332020–2025
Tribune-Review Charities$105,00032023–2025
Vanguard Charitable Endowment Program$97,15042021–2024
The Geraldi Norton Foundation$80,00052020–2024
Collier Community Foundation Inc$74,16512022
Jewish Communal Fund$64,50062019–2021
Muscular Dystrophy Association Inc$53,10032020–2024
S & L Marx Foundation$50,00052020–2024
Foglia Family Foundation$40,00022024–2025
The US Charitable Gift Trust$40,00022023–2024
Grand Rapids Community Foundation$37,76032021–2025
National Philanthropic Trust$28,78522020–2021
The Blackbaud Giving Fund$24,95122022–2023
Randolph D Rouse Foundation Inc$20,00022021–2022
The 4 H Family Foundation Inc$13,27112023
William J & Barbara S Conners Charitable Foundation$12,50012020
Ralph G Gorenstein Charitable$11,20052021–2025
Florence & Richard Koplow Family$11,00022024–2025
The Robert W Wilson Charitable Trust$10,00042020–2023
Live to Give Minnesota$7,71812024
The V & L Marx Foundation$7,50062020–2025
The New York Community Trust$7,04912024
The Goldstone Fund Inc$5,00012025
The Sukeforth Family Foundation$5,00022024–2025
Show all 62 funders

Funding over time

Grant dollars and counts received per year

$0$100K$200K$300K$400K3 grants2019 16 grants2020 24 grants2021 17 grants2022 31 grants2023 27 grants2024 14 grants2025

From 2019 to 2025, annual grant giving ranged from $34K (2019) to $348K (2020). In 2025 it made 14 grants totaling $97K.

What grants has FSHD Society received?

Individual grants from IRS Form 990 filings, newest first

YearFunderPurposeAmount
2025Tribune-Review CharitiesCHARITABLE DONATION$35,000
2025Foglia Family FoundationGENERAL CHARITABLE PURPOSES$20,000
2025Florence & Richard Koplow FamilyCHARITABLE$10,000
2025Grand Rapids Community FoundationIN HONOR OF CYNDI SEGROVES. TO BE USED EXCLUSIVELY FOR RESEARCH. FROM DAVID AND MICHELLE MACKAY$10,000
2025Charities Aid Foundation AmericaCHARITABLE DONATION$7,250
2025The Goldstone Fund IncGeneral Purpose$5,000
2025The Sukeforth Family FoundationGeneral Operating Support$2,500
2025Ralph G Gorenstein CharitableGENERAL SUPPORT$2,400
2025The V & L Marx FoundationGENERAL CORPORATE PURPOSE$1,500
2025Cecil Robbins Memorial FundGENERAL FND$1,000
2025Gladstein Family Foundation IncFURTHER ORGANIZATIONS GOALS$1,000
2025JPMorgan Chase FoundationMATCHING CONTRIBUTION (GENERAL OPERATING SUPPORT)$800
2025Yvonne & Leslie Pollack FamilyCHARITABLE$500
2025Lebovitz FoundationAssist in charitable activities$54
2024Robert C and Ruth Womack FoundationMedical Research$100,000
2024Tribune-Review CharitiesCHARITABLE DONATION$36,000
2024Muscular Dystrophy Association IncADVOCACY$25,500
2024The Geraldi Norton FoundationUNRESTRICTED$25,000
2024Vanguard Charitable Endowment ProgramFOR RECIPIENT'S EXEMPT PURPOSE$21,650
2024Foglia Family FoundationGENERAL CHARITABLE PURPOSES$20,000
2024The US Charitable Gift TrustFOR RECIPIENT'S EXEMPT PURPOSE$20,000
2024Live to Give Minnesota—$7,718
2024The New York Community TrustFOR GENERAL SUPPORT.$7,049
2024S & L Marx FoundationFSHD Research Program$5,000
2024Morgan Stanley Global Impact Funding Trust IncUNRESTRICTED GENERAL SUPPORT$5,000
2024The Sukeforth Family FoundationGeneral Operating Support$2,500
2024Leopardo Charitable FoundationTO SUPPORT THE ORGANIZATION'S MISSION AND PROVIDE GENERAL OPERATING SUPPORT$2,500
2024Ralph G Gorenstein CharitableGENERAL SUPPORT$2,400
2024Driggers FoundationGENERAL SUPPORT$1,500
2024The V & L Marx FoundationGENERAL CORPORATE PURPOSE$1,500

Showing 30 most recent of 132 recorded grants.

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Frequently Asked Questions

Who funds FSHD Society?

FSHD Society is funded by 62 grantmakers, led by Robert C and Ruth Womack Foundation ($290K), Charities Aid Foundation America ($265K), Tribune-Review Charities ($105K). In total, IRS Form 990 filings record $1.4M in grants to FSHD Society between 2019–2025.

Who is FSHD Society's largest funder?

Robert C and Ruth Womack Foundation is the largest recorded funder of FSHD Society, with $290K across 3 grants (2022–2024).

How much grant funding has FSHD Society received?

IRS 990 filings record $1.4M in grants to FSHD Society across 132 grants from 62 funders between 2019–2025. Filings are published on a delay, so recent grants may not appear yet.

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