Friends of FSH Research

In filing year 2025, Friends of FSH Research reported 15 grants totaling $949,070. Grants ranged from $4,000 to $164,000, with a median of $45,267. The largest listed awards were $164,000 to Fred Hutchinson Cancer Research, $129,600 to Histone Therapeutics, $108,013 to Research Institute at Nationwide Children’s, and $99,670 to the University of Nevada. The filing lists the purposes of these awards as research studies.

The website describes investigator-initiated grants following requests for proposals, which typically occur in the fall. Proposals are reviewed by the scientific advisory board; the review cycle is approximately one to two months after the submission period closes. The program is open to academic and industry laboratories, principal investigators, postdoctoral fellows, and graduate students. The website also describes occasional Flex Grants for specific FSHD research needs, which may be requested at any time.

For applications, the website asks prospective applicants to first discuss the project’s scope with the organization and provide a brief overview. First-time applicants are asked for background information on themselves and key laboratory personnel, and to review the contract template with their institution. Applicants should be ready to begin if awarded; the institution has two weeks to initiate the contract, and progress reports are due every six months. The website says timely reports are tied to continued funding and future consideration. Proposals are to be submitted by email as preferably one PDF, using at least 12-point font and margins of at least 0.75 inches. A biosketch is required, and new or junior investigators must include a letter of support.

For Flex Grant requests, the website asks applicants to specify the amount requested, how the funds will be used, and how the expenditure will support FSHD cure research. Additional materials may be requested, and successful applicants are expected to report on results.