Families of Spinal Muscular Atrophy DBA Cure Sma

Nonprofit · Grant recipient Also a grantmaker → Schaumburg, IL EIN 36-3320440

Funding Overview

From IRS Form 990 filings · 2019–2026

Total received

$3.7M

Foundation funders

92

Grants recorded

180

Years covered

2019–2026

Who funds Families of Spinal Muscular Atrophy DBA Cure Sma?

Families of Spinal Muscular Atrophy DBA Cure Sma is funded by 92 grantmakers, led by Luke 181 Foundation ($2.2M), Charities Aid Foundation America ($134K), Ettore Richard Derosa Jr Foundation ($115K). In total, IRS Form 990 filings record $3.7M in grants to Families of Spinal Muscular Atrophy DBA Cure Sma between 2019–2026.

FunderTotal givenGrantsYears
Luke 181 Foundation$2,240,36252020–2024
Charities Aid Foundation America$133,66772021–2025
Ettore Richard Derosa Jr Foundation$115,00052021–2025
GS Donor Advised Philanthropy Fund for Wealth Management Inc$110,92522020–2024
Ctia - the Wireless Association$100,00042020–2024
National Philanthropic Trust$95,27542020–2025
The Toby and Nataly Ritter$94,50022024–2025
The Weisman Family Foundation$85,00012024
The Blackbaud Giving Fund$70,63222022–2023
Morgan Stanley Global Impact Funding Trust Inc$60,000112022–2024
Pharmaceutical Research and Manufacturers of America$50,00032020–2024
The Ayco Charitable Foundation$48,85032022–2024
Permobil Foundation$47,40062020–2025
Vanguard Charitable Endowment Program$42,27532021–2024
Always Take the Ramp$25,25032024
The Chris and Melody Malachowsky$25,00012024
Real Dare Foundation$25,00022023–2024
Irene Ritter Foundation$20,00022024–2025
St Louis Community Foundation Inc$20,00012020
Spinal Muscular Atrophy Research Team$20,00012020
The Stanley E Hanson Foundation$17,50042020–2024
University of Notre Dame du Lac$15,00012019
Helen V Brach Foundation$14,90022024–2025
Network for Good$14,25512022
Raymond James Charitable Endowment Fund$14,10022022–2024
Show all 92 funders
Greater Houston Community Foundation$13,93312022
The June and Cecil McDole$12,50022024–2025
United Way Worldwide$11,36222019–2020
Blair Family Foundation$10,00012024
Plumbing-Heating-Cooling Contractors of MA Inc$10,00012024
T Rowe Price Program for Charitable Giving Inc$10,00012022
The Community Foundation of Louisville Depository Inc$10,00012022
Natl Christian Charitable Fdn Inc$10,00012021
Anabaptist Foundation$10,00012021
The Caswell Jin Foundation$10,00012020
H & a Bodenheimer Charitable Trust$8,00022024–2025
The US Charitable Gift Trust$8,00012024
Adient Foundation Inc$7,50012025
Ron and Andrea DeFeo Family Foundation$7,50022022
GPK Foundation$7,00022024–2025
Enterprise Holdings Foundation$7,00042020–2024
The Johnny III Foundation$6,00022024–2025
Central National Gottesman Foundation$5,00012025
Greenberg Family Foundation Inc$5,00022024–2025
The Van Grinsven Family Foundation$5,00012024
Community Foundation of Elkhart County Inc$5,00012021
Kitty M Perkins Foundation$5,00022019–2021
The John C Hendry Foundation$4,00012025
Circle of Service Foundation$3,95052020–2024
JPMorgan Chase Foundation$3,76062021–2025
USG Foundation Inc$3,50012024
Vaquero Foundation$2,50022025–2026
Subak Family Foundation$2,50012025
David and Judy Shore Foundation Inc$2,50012024
The Yaspan-Unterberg Foundation Inc$2,50012024
Wolk Family Foundation$2,50022023–2024
Little Man Foundation Incorporated$2,50012022
Hala Charitable Foundation$2,00012025
Oxford Denzler Charitable Trust$2,00012024
Susan Royal Wurth Foundation Inc$1,50012024
Synchrony Foundation$1,50022021–2022
Sheldon J Sandman Family Foundation$1,30012024
Krzyzanowski Foundation$1,00012025
Trent Family Foundation$1,00012025
Solomon & Rose Turetsky Foundation$1,00022024–2025
Rusty & Connie Pace Family Foundation$1,00012024
Gene and Joan Slay Charitable Foundation$1,00012024
Richard D Reis Family Foundation$1,00012024
Jeff and Susie Seitz Charitable$1,00012022
The Amlicke Family Foundation$1,00012019
Chubb Charitable Foundation$70042020–2023
Edward Jones Foundation$60022023–2024
McKesson Foundation Inc$60022022–2023
The Bruno & Lena Degol Family Foundation$50012025
Virgil and Irene Morgan Foundation$50012025
Verizon Foundation$30032020–2024
Gannett Foundation Inc$25832021–2024
Bisarya Family Foundation$25012024
Sempra Foundation$20012022
Republic Bank Foundation Inc$14512023
The Yelp Foundation$10612024
Mitsubishi Electric America Foundation$10512024
The Merchants Bonding Company Foundation$10012024
Equitable Foundation Inc$10012023
Citizens Charitable Foundation$10022022–2023
Reynolds American Foundation$10012022
LPL Financial Foundation Inc$10012021
Zurn Foundation Inc (FKA Rexnord Foundation Inc)$10012021
Pella Rolscreen Foundation$10012021
The O-I Charities Foundation$10012021
American Tower Corporation Foundation$7512024
The Pfizer Foundation Inc$7022024

Funding over time

Grant dollars and counts received per year

$0$500K$1M$1.5M4 grants2019 15 grants2020 23 grants2021 27 grants2022 30 grants2023 56 grants2024 24 grants2025 1 grant2026

From 2019 to 2026, annual grant giving ranged from $2K (2026) to $1.1M (2024). In 2026 it made 1 grant totaling $2K.

What grants has Families of Spinal Muscular Atrophy DBA Cure Sma received?

Individual grants from IRS Form 990 filings, newest first

YearFunderPurposeAmount
2026Vaquero FoundationCURE SPINAL MUSCULAR ATROPHY$1,500
2025The Toby and Nataly RitterTO HELP SUPPORT CHARITABLE ORGANIZATIONS$60,000
2025National Philanthropic TrustHEALTH$55,525
2025Charities Aid Foundation AmericaCHARITABLE DONATION$39,788
2025Ettore Richard Derosa Jr FoundationTO DRIVE RESEARCH FOR TREATMENTS AND A CURE FOR SMA, AND TO SUPPORT AND EMPOWER EVERYONE IMPACTED BY SMA TODAY.$25,000
2025Permobil FoundationCHARITABLE GIVING$11,400
2025Irene Ritter FoundationTO PROVIDE FINANCIAL SUPPORT FOR THE ORGANIZATION'S CHARITABLE PURPOSES$10,000
2025Adient Foundation IncGENERAL OPERATING$7,500
2025The June and Cecil McDoleMEDICAL RESEARCH$7,500
2025Helen V Brach FoundationTo expand local support and care package programs which will benefit children and adults living with Spinal Muscular Atrophy SMA$5,000
2025Central National Gottesman FoundationGENERAL SUPPORT$5,000
2025The John C Hendry FoundationMEDICAL RESEARCH$4,000
2025GPK FoundationUNRESTRICTED$4,000
2025H & a Bodenheimer Charitable TrustUNRESTRICTED$4,000
2025The Johnny III FoundationMEDICAL RESEARCH$3,000
2025Greenberg Family Foundation IncCIVIC$2,500
2025Subak Family FoundationUNRESTRICTED GENERAL$2,500
2025Hala Charitable FoundationSUPPORTING PEOPLE WITH SPINAL MUSCULAR ATROPHY$2,000
2025JPMorgan Chase FoundationMATCHING CONTRIBUTION (GENERAL OPERATING SUPPORT)$1,500
2025Vaquero FoundationCURE SPINAL MUSCULAR ATROPHY$1,000
2025Krzyzanowski FoundationCONTRIBUTION$1,000
2025Trent Family FoundationGENERAL OPERATIONS$1,000
2025Solomon & Rose Turetsky FoundationSPINAL MUSCULAR ATROPHY RESEARCH & SUPPORT$600
2025The Bruno & Lena Degol Family FoundationSPINAL MUSCULAR ATROPHY$500
2025Virgil and Irene Morgan FoundationTO PROVIDE SUPPORT FOR SPINAL MUSCULAR ATROPHY RESEARCH WALK N ROLL FUNDRAISER$500
2024Luke 181 FoundationFUND CURE FOR SMA$565,181
2024GS Donor Advised Philanthropy Fund for Wealth Management IncMEDICAL / PUBLIC SERVICES$100,725
2024The Weisman Family FoundationTO HELP SUPPORT CHARITABLE ORGANIZATIONS$85,000
2024The Toby and Nataly RitterTO HELP SUPPORT CHARITABLE ORGANIZATIONS$34,500
2024Charities Aid Foundation AmericaCHARITABLE DONATION$29,757

Showing 30 most recent of 180 recorded grants.

Frequently Asked Questions

Who funds Families of Spinal Muscular Atrophy DBA Cure Sma?

Families of Spinal Muscular Atrophy DBA Cure Sma is funded by 92 grantmakers, led by Luke 181 Foundation ($2.2M), Charities Aid Foundation America ($134K), Ettore Richard Derosa Jr Foundation ($115K). In total, IRS Form 990 filings record $3.7M in grants to Families of Spinal Muscular Atrophy DBA Cure Sma between 2019–2026.

Who is Families of Spinal Muscular Atrophy DBA Cure Sma's largest funder?

Luke 181 Foundation is the largest recorded funder of Families of Spinal Muscular Atrophy DBA Cure Sma, with $2.2M across 5 grants (2020–2024).

How much grant funding has Families of Spinal Muscular Atrophy DBA Cure Sma received?

IRS 990 filings record $3.7M in grants to Families of Spinal Muscular Atrophy DBA Cure Sma across 180 grants from 92 funders between 2019–2026. Filings are published on a delay, so recent grants may not appear yet.

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Grant data is drawn from IRS Form 990 filings via Grantable's GrantGraph™. Filings are published on a delay; recent grants may not appear yet.

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