Families of Spinal Muscular Atrophy DBA Cure Sma

Nonprofit · Grant recipient Also a grantmaker → Schaumburg, IL EIN 36-3320440

Funding Overview

From IRS Form 990 filings · 2019–2025

Total received

$3.3M

Foundation funders

56

Grants recorded

129

Years covered

2019–2025

Who funds Families of Spinal Muscular Atrophy DBA Cure Sma?

Families of Spinal Muscular Atrophy DBA Cure Sma is funded by 56 grantmakers, led by Luke 181 Foundation ($2.2M), Charities Aid Foundation America ($134K), GS Donor Advised Philanthropy Fund for Wealth Management Inc ($111K). In total, IRS Form 990 filings record $3.3M in grants to Families of Spinal Muscular Atrophy DBA Cure Sma between 2019–2025.

FunderTotal givenGrantsYears
Luke 181 Foundation$2,240,36252020–2024
Charities Aid Foundation America$133,66772021–2025
GS Donor Advised Philanthropy Fund for Wealth Management Inc$110,92522020–2024
Ctia - the Wireless Association$100,00042020–2024
National Philanthropic Trust$95,27542020–2025
Ettore Richard Derosa Jr Foundation$90,00042021–2024
The Blackbaud Giving Fund$70,63222022–2023
Morgan Stanley Global Impact Funding Trust Inc$60,000112022–2024
Pharmaceutical Research and Manufacturers of America$50,00032020–2024
The Ayco Charitable Foundation$48,85032022–2024
Permobil Foundation$47,40062020–2025
Vanguard Charitable Endowment Program$29,27522021–2023
Real Dare Foundation$25,00022023–2024
St Louis Community Foundation Inc$20,00012020
Spinal Muscular Atrophy Research Team$20,00012020
The Stanley E Hanson Foundation$15,00032020–2022
University of Notre Dame du Lac$15,00012019
Network for Good$14,25512022
Raymond James Charitable Endowment Fund$14,10022022–2024
Greater Houston Community Foundation$13,93312022
United Way Worldwide$11,36222019–2020
Plumbing-Heating-Cooling Contractors of MA Inc$10,00012024
T Rowe Price Program for Charitable Giving Inc$10,00012022
The Community Foundation of Louisville Depository Inc$10,00012022
Natl Christian Charitable Fdn Inc$10,00012021
Show all 56 funders

Funding over time

Grant dollars and counts received per year

$0$250K$500K$750K$1M4 grants2019 15 grants2020 23 grants2021 27 grants2022 30 grants2023 24 grants2024 6 grants2025

From 2019 to 2025, annual grant giving ranged from $25K (2019) to $859K (2024). In 2025 it made 6 grants totaling $114K.

What grants has Families of Spinal Muscular Atrophy DBA Cure Sma received?

Individual grants from IRS Form 990 filings, newest first

YearFunderPurposeAmount
2025National Philanthropic TrustHEALTH$55,525
2025Charities Aid Foundation AmericaCHARITABLE DONATION$39,788
2025Permobil FoundationCHARITABLE GIVING$11,400
2025Central National Gottesman FoundationGENERAL SUPPORT$5,000
2025JPMorgan Chase FoundationMATCHING CONTRIBUTION (GENERAL OPERATING SUPPORT)$1,500
2025Solomon & Rose Turetsky FoundationSPINAL MUSCULAR ATROPHY RESEARCH & SUPPORT$600
2024Luke 181 FoundationFUND CURE FOR SMA$565,181
2024GS Donor Advised Philanthropy Fund for Wealth Management IncMEDICAL / PUBLIC SERVICES$100,725
2024Charities Aid Foundation AmericaCHARITABLE DONATION$29,757
2024Ettore Richard Derosa Jr FoundationTO FIND A CURE FOR SPINAL MUSCULAR ATROPHY, THE NUMBER ONE GENETIC CAUSE.$25,000
2024Ctia - the Wireless AssociationSPONSORSHIP$25,000
2024National Philanthropic TrustEDUCATION$20,750
2024The Ayco Charitable FoundationMEDICAL / PUBLIC SERVICES$17,200
2024Pharmaceutical Research and Manufacturers of AmericaGENERAL CONTRIBUTION$10,000
2024Real Dare FoundationFOR THE GENERAL SUPPORT OF THE ORGANIZATION$10,000
2024Plumbing-Heating-Cooling Contractors of MA IncGeneral Support$10,000
2024Raymond James Charitable Endowment FundGENERAL SUPPORT$9,000
2024Permobil FoundationDonation to an domestically registered charitable organization.$8,000
2024The US Charitable Gift TrustFOR RECIPIENT'S EXEMPT PURPOSE$8,000
2024The Van Grinsven Family FoundationGENERAL$5,000
2024Morgan Stanley Global Impact Funding Trust IncUNRESTRICTED GENERAL SUPPORT$5,000
2024Morgan Stanley Global Impact Funding Trust IncUNRESTRICTED GENERAL SUPPORT$5,000
2024Circle of Service FoundationMATCH/DISCRETIONARY$1,500
2024Wolk Family FoundationCHARITABLE$1,500
2024Enterprise Holdings FoundationProgram Support$1,000
2024JPMorgan Chase FoundationMATCHING CONTRIBUTION (GENERAL OPERATING SUPPORT)$740
2024Edward Jones FoundationDISEASES, DISORDERS, MEDICAL DISCIPLINES$500
2024Solomon & Rose Turetsky FoundationSPINAL MUSCULAR ATROPHY RESEARCH & SUPPORT$400
2024Verizon FoundationOTHER CIVIC / COMMUNITY$100
2024Gannett Foundation IncCHARITABLE PURPOSE$50

Showing 30 most recent of 129 recorded grants.

Frequently Asked Questions

Who funds Families of Spinal Muscular Atrophy DBA Cure Sma?

Families of Spinal Muscular Atrophy DBA Cure Sma is funded by 56 grantmakers, led by Luke 181 Foundation ($2.2M), Charities Aid Foundation America ($134K), GS Donor Advised Philanthropy Fund for Wealth Management Inc ($111K). In total, IRS Form 990 filings record $3.3M in grants to Families of Spinal Muscular Atrophy DBA Cure Sma between 2019–2025.

Who is Families of Spinal Muscular Atrophy DBA Cure Sma's largest funder?

Luke 181 Foundation is the largest recorded funder of Families of Spinal Muscular Atrophy DBA Cure Sma, with $2.2M across 5 grants (2020–2024).

How much grant funding has Families of Spinal Muscular Atrophy DBA Cure Sma received?

IRS 990 filings record $3.3M in grants to Families of Spinal Muscular Atrophy DBA Cure Sma across 129 grants from 56 funders between 2019–2025. Filings are published on a delay, so recent grants may not appear yet.

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Grant data is drawn from IRS Form 990 filings via Grantable's GrantGraph™. Filings are published on a delay; recent grants may not appear yet.

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