Spinal Muscular Atrophy Research Team
Raise awareness and funds to support research and a cure for spinal muscular atrophy.
Spinal Muscular Atrophy Research Team at a glance
In short: Spinal Muscular Atrophy Research Team reported $1K in grants paid in 2024 (a total; its filing lists no individual grants). Source: 2024 IRS Form 990.
- Grants paid (2024)
- $1,200 — reported as a total on the IRS filing, without an itemized list
- -99.0% vs 2023
- Total assets
- $91,209
- +370.1% vs 2023
- Revenue (2024)
- $82,952
- -20.0% vs 2023
- Expenses (2024)
- $11,146
- -91.9% vs 2023
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026.
Who Spinal Muscular Atrophy Research Team funds
How this funder distributes its grants
Grant Size Distribution
5 grants across all recorded years
The most common grant size was in the $100–250K range: 2 grants of 5 (40%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
How Spinal Muscular Atrophy Research Team gives
- Giving grew 79% from 2020 to 2023. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2019 to 2024, annual grant giving ranged from $1K (2024) to $345K (2022). In 2024 it reported $1K in grants paid, as a total without an itemized list.
Hatched bars: grants paid as reported on the IRS filing, which lists no individual grants for that year.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| University of Notre Dame Notre Dame, IN | Research | $125,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants |
|---|---|---|---|---|---|
| 2024 | $91,209 | $82,952 | $11,146 | $1,200 | Total only |
| 2023 | $19,403 | $103,635 | $138,215 | $125,000 | 1 |
| 2022 | $53,983 | $241,945 | $354,712 | $345,000 | 1 |
| 2021 | $166,750 | $125,362 | $136,552 | $125,000 | 1 |
| 2020 | $177,940 | $110,845 | $78,138 | $70,000 | 2 |
| 2019 | $146,233 | $245,734 | $267,132 | $249,122 | 2 |
"Total only": grants paid as reported on the IRS filing, which lists no individual grants for that year.
About Spinal Muscular Atrophy Research Team
Based on IRS filings
Spinal Muscular Atrophy Research Team is a public charity focused on Medical Research, based in Lackawanna, NY. IRS filing data is available from 2019 through 2024. As of 2024, the organization holds $91K in total assets. In 2024, it reported $1K in grants paid as a total on its IRS filing, without an itemized list.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Spinal Muscular Atrophy Research Team is led by Catie Gavin, Events Chairman on every filing since 2019; none of the 4 officers listed in 2024 report compensation.
Officers on the 2024 filing
Catie Gavin
Events Chairman
On filings since 2019
10 hrs/week
No compensation reported
Marty Maloney
Chairman & CFO
On filings since 2019
10 hrs/week
No compensation reported
Steve Kull
Vice Chair & Cmco
On filings since 2019
10 hrs/week
No compensation reported
Timothy Reilly
Vice Chair & Cso
On filings since 2019
10 hrs/week
No compensation reported
Data from IRS Form 990 filings, 2019–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Frequently asked questions about Spinal Muscular Atrophy Research Team
How much does Spinal Muscular Atrophy Research Team give each year?
Spinal Muscular Atrophy Research Team reported $1K in grants paid in 2024 on its 2024 IRS Form 990, as a total without an itemized list of grants. In 2023 it gave $125K across 1 grant.
How large is Spinal Muscular Atrophy Research Team?
Spinal Muscular Atrophy Research Team reported $91K in total assets on its 2024 IRS Form 990. Its revenue that year was $83K.
What is Spinal Muscular Atrophy Research Team?
Spinal Muscular Atrophy Research Team is a public charity focused on Medical Research, based in Lackawanna, NY. It holds $91K in total assets as of 2024.
Where does Spinal Muscular Atrophy Research Team operate?
Spinal Muscular Atrophy Research Team has awarded grants in Illinois, Indiana, Maryland, Pennsylvania.
What is Spinal Muscular Atrophy Research Team's EIN?
Spinal Muscular Atrophy Research Team's EIN (Employer Identification Number) is 32-0284955. IRS Form 990 filing data is available on this page for 2019–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(5)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2019 (received by the IRS March 16, 2020)
- Updated Form 990 for fiscal year 2020 (received by the IRS March 3, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS November 21, 2022)
- Updated Form 990 for fiscal year 2024 (received by the IRS August 15, 2025)
- IRS filings on file for fiscal years 2019–2024
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