ASF Family Fund Grant

The ASF Family Fund Grant, offered by the Angelman Syndrome Foundation, provides crucial financial assistance to families of individuals with Angelman syndrome. This rare neuro-genetic disorder affects approximately 500,000 people globally. The fund aims to enhance the quality of life for affected individuals, allowing caregivers to apply for up to $5,000 to cover essential needs. Limitations include restrictions on certain expenses and prior grant awards. This initiative aims to support families through education and necessary resources.

NOTE: During odd years, applications are open twice from April 1 – 14 and October 1 – 14. During even years, it will open once a year October 1 – 14 to accommodate applications for the ASF Family Conference Scholarship. Family Fund applicants receive a response within 8 weeks of the application deadline.Angelman syndrome
Angelman syndrome (AS) is a rare neuro-genetic disorder that occurs in one in 15,000 live births or 500,000 people worldwide. It is caused by a loss of function of the UBE3A gene in the 15th chromosome derived from the mother. Angelman syndrome shares symptoms and characteristics with other disorders including autism, cerebral palsy and Prader-Willi syndrome. Due to the common characteristics, misdiagnosis occurs often.
About the ASF Family Fund
The ASF Family Fund was created to provide financial assistance to families supporting individuals with Angelman syndrome. Family members can apply for funds that are needed to improve the quality of life for an individual with Angelman syndrome.
Limitations for funding
The total requested amount for funding may not be met. There is a funding limit of up to $5,000 per grant award.
Some grants may be funded by reimbursement.
Applicants can submit only one proposal at a time.
Recipients for prosthetic appliances, wheelchairs, beds or other forms of physical or educational assistance; necessary travel reimbursements for clinic travel; or other needs that prove to be worthy of funding, provided there are no other funds, public or private, available for the needs of such individuals.

Eligibility

To be eligible for funding.
Applicant must be a caregiver (legal guardian, primary caregiver, etc) for an individual diagnosed with Angelman syndrome.Request must impact an individual with Angelman syndrome.
Each grant must be made for a charitable purpose as described in sections 180(c) and 501(c)3 of the Internal Revenue Code.

Ineligibility

Request cannot be for rent, utilities or moving expenses.
Applicant cannot have received a grant in the last 5 years. Example, if you are awarded during the October 2019 grant cycle, you would not be eligible to apply again until the April 2025 grant cycle.