THE FOUNDATION PROVIDES EDUCATIONAL TOOLS, INFORMATION AND SUPPORT TO INDIVIDUALS CONCERNED WITH THOSE AFFECTED BY ANGELMAN SYNDROME. THE FOUNDATION SUPPORTS AND FUNDS BASIC SCIENCE RESEARCH AND CLINICAL TRIALS.
Financial Overview
From 2025 IRS Form 990-PF · View filing
Total Assets
$2.6M
-0.6% YoY
Annual Giving
$1.2M
Grant Count
8
Avg Grant Size
$147K
About Angelman Syndrome Foundation Inc
Based on IRS filings
Angelman Syndrome Foundation Inc is a nonprofit organization focused on Medical Research, based in AURORA, IL. IRS filing data is available from 2020 through 2025. As of 2025, the organization holds $2.6M in total assets. In 2025, it awarded 8 grants totaling $1.2M. Net investment income was $131K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2025 | 2024 | 2023 |
|---|---|---|---|
| Total Assets | $2,637,296 | $2,653,640 | $2,274,369 |
| Revenue | $3,906,892 | $3,863,609 | $3,638,325 |
| Expenses | $3,721,265 | $3,934,210 | $3,635,328 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $130,984 | $330,532 | $100,472 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 8 recipients in 2025
Grant Size Distribution
8 grants across all recorded years
Open Grants
3 open opportunities from Angelman Syndrome Foundation Inc
Angelman Syndrome Foundation Call for Proposals Grant
ANGELMAN SYNDROME FOUNDATION INC
Amount
Up to US $100,000
Deadline
Rolling / Open
ASF Family Fund Grant
ANGELMAN SYNDROME FOUNDATION INC
Amount
Up to US $5,000
Deadline
Rolling / Open
Jacob Pritzker Fellowship Program
ANGELMAN SYNDROME FOUNDATION INC
Amount
Up to $100,000
Deadline
Rolling / Open
Giving History
Grant recipients and amounts by year
Among its reported 2025 grants, the largest include Regents University of California ($388,725), University of North Carolina ($200,018), Vanderbuilt University Medical Ctr ($167,074).
| Recipient | Purpose | Amount |
|---|---|---|
| UNIVERSITY OF NORTH CAROLINA CHAPEL HILL, NC | RESEARCH | $200,018 |
| NEW YORK UNIVERSITY NEW YORK, NY | RESEARCH | $125,000 |
| CHILDREN'S MERCY HOSPITAL KANSAS CITY, MO | RESEARCH | $11,875 |
| FAST AUSTIN, TX | RESEARCH | $80,726 |
| REGENTS UNIVERSITY OF CALIFORNIA DAVIS, CA | RESEARCH | $388,725 |
| UNIVERSITY OF MASSACHUSETTS HADLEY, MA | RESEARCH | $100,000 |
| VANDERBUILT UNIVERSITY MEDICAL CTR NASHVILLE, TN | RESEARCH | $167,074 |
| UNIVERSITY OF CONNECTICUT HEALTH FARMINGTON, CT | RESEARCH | $100,000 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2025 IRS filing
From 2025 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| AMANDA MOORE | CEO | 40 | $118,419 |
| REBECCA BURDINE | SAC CHAIR | 1 | — |
| APRIL CANTER | DIRECTOR | 1 | — |
| JERALD FRITZ | DIRECTOR | 1 | — |
| TAYLOR GEATHERS | DIRECTOR | 1 | — |
| ESLIN GUICE | DIRECTOR | 1 | — |
| DAN HARVEY | DIRECTOR | 2 | — |
| RICHARD KRAKER | DIRECTOR | 2 | — |
| MINDY MCBRIBE | DIRECTOR | 1 | — |
| CHRISTIAN PACHE | DIRECTOR | 2 | — |
| LIA PERRYMAN | DIRECTOR | 1 | — |
| STEVE PILUSO | DIRECTOR | 1 | — |
| WILLIAM RAKOCZY | DIRECTOR | — | — |
| COURTNEY SWAFFORD | DIRECTOR | 1 | — |
| MARCUS THOMPSON | DIRECTOR | 1 | — |
| CHARLES WINSLOW III | SECRETARY | 1 | — |
| LESLEY MCCULLOUGH MCCALISTER | PRESIDENT | 2 | — |
| ANDREW OBERWAGER | TREASURER | 2 | — |
| JOHN SUGDEN | VICE CHAIR | 2 | — |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Angelman Syndrome Foundation Inc?
Angelman Syndrome Foundation Inc is a nonprofit organization focused on Medical Research, based in AURORA, IL. It holds $2.6M in total assets as of 2025.
How large is Angelman Syndrome Foundation Inc?
As of 2025, Angelman Syndrome Foundation Inc holds $2.6M in total assets with $3.9M in annual revenue. It awarded 8 grants totaling $1.2M in 2025.
Where does Angelman Syndrome Foundation Inc operate?
Angelman Syndrome Foundation Inc has awarded grants in California, Connecticut, Massachusetts, Missouri, North Carolina, New York, Tennessee, Texas.
What size grants does Angelman Syndrome Foundation Inc award?
In 2025, Angelman Syndrome Foundation Inc awarded 8 grants totaling $1.2M — an average of about $147K per grant, based on its IRS Form 990 filings.
What is Angelman Syndrome Foundation Inc's EIN?
Angelman Syndrome Foundation Inc's EIN (Employer Identification Number) is 59-3092842. IRS Form 990 filing data is available on this page for 2020–2025.
Explore Open Grants
Browse active grant opportunities in Angelman Syndrome Foundation Inc's focus areas in our free grants database
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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