Angelman Syndrome Foundation Inc
The foundation provides educational tools, information and support to individuals concerned with those affected by angelman syndrome. The foundation supports and funds basic science research and clinical trials.
Key facts about Angelman Syndrome Foundation Inc
In short: Angelman Syndrome Foundation Inc gave $1.2M across 8 grants in 2025 (avg $147K), top state California. Source: 2025 IRS Form 990.
- EIN
- 59-3092842
- Latest 990 filing
- Form 990, 2025
- Annual giving (2025)
- $1,173,418
- Grants made (2025)
- 8
- Average grant
- $146,677
- Median grant
- $112,500
- Total assets
- $2,637,296
- Primary geography
- California (33% of itemized 2025 grant dollars)
Data from IRS Form 990, 2025; updated September 2026.
Financial Overview
From 2025 IRS Form 990 · View filing
Total Assets
$2.6M
-0.6% YoY
Annual Giving
$1.2M
-5.0% YoY
Grant Count
8
+14.3% YoY
Avg Grant Size
$147K
-16.9% YoY
How Angelman Syndrome Foundation Inc gives
- Giving grew 64% from 2022 to 2025. Method
From the foundation's IRS Form 990 filings. Methodology.
About Angelman Syndrome Foundation Inc
Based on IRS filings
Angelman Syndrome Foundation Inc is a public charity focused on Medical Research, based in Aurora, IL. IRS filing data is available from 2019 through 2025. As of 2025, the organization holds $2.6M in total assets. In 2025, it awarded 8 grants totaling $1.2M. Net investment income was $131K.
Focus Areas
Open Grants
4 open opportunities from Angelman Syndrome Foundation Inc
Angelman Syndrome Foundation Call for Proposals Grant
Angelman Syndrome Foundation Inc
Amount
Up to US $100,000
Deadline
Rolling / Open
ASF Family Fund Grant
Angelman Syndrome Foundation Inc
Amount
Up to US $5,000
Deadline
Rolling / Open
Jacob Pritzker Fellowship Program
Angelman Syndrome Foundation Inc
Amount
Up to $100K
Deadline
Rolling / Open
Ready to take the next step with Angelman Syndrome Foundation Inc?
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2025 grant dollars across all 8 itemized grants.
States
Cities
Giving Over Time
Total grant dollars and number of grants per year
From 2019 to 2025, annual grant giving ranged from $295K (2020) to $1.2M (2024). In 2025 it made 8 grants totaling $1.2M.
Grant Insights
How this funder distributes its grants
Top Recipients
Top 8 recipients in 2025
The largest 2025 recipient was Regents University of California ($389K). Together the top 8 received $1.2M.
Grant Size Distribution
31 grants across all recorded years
The most common grant size was in the $100–250K range: 15 grants of 31 (48%).
Giving History
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Regents University of California Davis, CA | Research | $388,725 |
| University of North Carolina Chapel Hill Chapel Hill, NC | Research | $200,018 |
| Vanderbuilt University Medical Ctr Nashville, TN | Research | $167,074 |
| New York University Dept of Molecular Pathobiology New York, NY | Research | $125,000 |
| University of Massachusetts Amherst Hadley, MA | Research | $100,000 |
| University of Connecticut Health Center Farmington, CT | Research | $100,000 |
| Fast Austin, TX | Research | $80,726 |
| Children's Mercy Hospital Kansas City, MO | Research | $11,875 |
Financial History
Multi-year comparison from IRS filings
| Metric | 2025 | 2024 | 2023 |
|---|---|---|---|
| Total Assets | $2,637,296 | $2,653,640 | $2,274,369 |
| Revenue | $3,906,892 | $3,863,609 | $3,638,325 |
| Expenses | $3,721,265 | $3,934,210 | $3,635,328 |
| Net Investment Income | $130,984 | $330,532 | $100,472 |
Data update history
When this profile's IRS filing data changed on Grantable
- Added Form 990 for fiscal year 2019 (received by the IRS January 28, 2021)
- Updated Form 990 for fiscal year 2020 (received by the IRS January 28, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS February 15, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS August 29, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS January 10, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS January 15, 2025)
- Updated Form 990 for fiscal year 2025 (received by the IRS January 7, 2026)
- IRS filings on file for fiscal years 2020–2025
Leadership & Key People
Officers and directors from IRS filings
Angelman Syndrome Foundation Inc is led by Amanda Moore, CEO on every filing since 2019; 1 of 19 officers listed in 2025 is compensated.
Officers on the 2025 filing
Amanda Moore
CEO
On filings since 2019
40 hrs/week
$38K (2019) → $118K (2025)
Lesley McCullough McCalister
President
Vice President → Vice Chair, 2023
Vice Chair → President, 2024
On filings since 2019
2 hrs/week
No compensation reported
Rebecca Burdine
Sac Chair
Director → Sac Chair, 2023
On filings since 2019
1 hr/week
No compensation reported
Dan Harvey
Director
On filings since 2019
2 hrs/week
No compensation reported
Mindy McBribe
Director
On filings since 2021
1 hr/week
No compensation reported
William Rakoczy
Director
On filings since 2022
No compensation reported
Lia Perryman
Director
On filings since 2023
1 hr/week
No compensation reported
Steve Piluso
Director
On filings since 2023
1 hr/week
No compensation reported
Taylor Geathers
Director
On filings since 2023
1 hr/week
No compensation reported
April Canter
Director
On filings since 2024
1 hr/week
No compensation reported
Christian Pache
Director
On filings since 2024
2 hrs/week
No compensation reported
Courtney Swafford
Director
On filings since 2024
1 hr/week
No compensation reported
Marcus Thompson
Director
On filings since 2024
1 hr/week
No compensation reported
Richard Kraker
Director
On filings since 2024
2 hrs/week
No compensation reported
Eslin Guice
Director
New on the 2025 filing
1 hr/week
No compensation reported
Jerald Fritz
Director
New on the 2025 filing
1 hr/week
No compensation reported
Andrew Oberwager
Treasurer
Director → Treasurer, 2024
On filings since 2021
2 hrs/week
No compensation reported
Charles Winslow III
Secretary
Director → Secretary, 2024
On filings since 2021
1 hr/week
No compensation reported
John Sugden
Vice Chair
Director → Vice Chair, 2024
On filings since 2021
2 hrs/week
No compensation reported
Former officers (18)
- Former: Kyle Rooney (2019–2024) — Past President
- Former: Shannon Moyer (2020–2024) — Director
- Former: David Routh (2021–2024) — Director
- Former: Anna Blanding (2019–2023) — Director
- Former: Eric Wright (2019–2023) — Director
- Former: Michael Cecere (2019–2023) — Treasurer
- Former: Peter England (2020–2023) — Secretary
- Former: Marianne Benet (2023) — Director
- Former: Jim Lamb (2019–2022) — Director
- Former: Susan Ravellette (2019–2022) — Director
- Former: Jim Kubicza (2019–2020) — Director
- Former: Justin Grill MD (2019–2020) — Director
- Former: Kathy Rokita (2019–2020) — President
- Former: Stormy Chamberlain (2019–2020) — Director
- Former: Timothy Bousum (2019–2020) — Secretary
- Former: Elizabeth Jalazo (2019) — Director
- Former: Eric Hamberg (2019) — Director
- Former: Shannon Pruitt (2019) — Director
Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $118K, to Amanda Moore (CEO).
Frequently asked questions about Angelman Syndrome Foundation Inc
How much does Angelman Syndrome Foundation Inc give each year?
Angelman Syndrome Foundation Inc gave $1.2M across 8 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $1.2M across 7 grants.
What is Angelman Syndrome Foundation Inc's typical grant size?
Angelman Syndrome Foundation Inc's median grant in 2025 was $112,500, and its average grant was $146,677, across 8 grants on its 2025 IRS Form 990.
Where does Angelman Syndrome Foundation Inc give grants?
Angelman Syndrome Foundation Inc's top state is California, with 33% of the grant dollars itemized on its 2025 IRS Form 990. The next largest states were North Carolina (17%) and Tennessee (14%).
Does Angelman Syndrome Foundation Inc give general operating support?
Not in 2025: none of the 8 grants with a stated purpose on Angelman Syndrome Foundation Inc's 2025 IRS Form 990 were described as general or operating support. Recurring purposes include "Research" (8 grants).
Who are Angelman Syndrome Foundation Inc's largest grantees?
Angelman Syndrome Foundation Inc's largest 2025 grantees include Regents University of California ($388,725), University of North Carolina Chapel Hill ($200,018) and Vanderbuilt University Medical Ctr ($167,074), according to its 2025 IRS Form 990. Together they received 64% of its itemized 2025 grant dollars.
How large is Angelman Syndrome Foundation Inc?
Angelman Syndrome Foundation Inc reported $2.6M in total assets on its 2025 IRS Form 990. Its revenue that year was $3.9M.
What is Angelman Syndrome Foundation Inc?
Angelman Syndrome Foundation Inc is a public charity focused on Medical Research, based in Aurora, IL. It holds $2.6M in total assets as of 2025.
What is Angelman Syndrome Foundation Inc's EIN?
Angelman Syndrome Foundation Inc's EIN (Employer Identification Number) is 59-3092842. IRS Form 990 filing data is available on this page for 2019–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Here's the math on researching Angelman Syndrome Foundation Inc by hand.
Explore Open Grants
Browse active grant opportunities in Angelman Syndrome Foundation Inc's focus areas in our free grants database
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