Usher Syndrome Society Inc
To use the arts to create empathy in order to raise awareness and funding for Usher Syndrome to ultimately find a cure.
Usher Syndrome Society Inc at a glance
In short: Usher Syndrome Society Inc gave $615K across 3 grants in 2025 (avg $205K), mostly in Massachusetts. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $615,000
- +132.1% vs 2024
- Grants made (2025)
- 3
- +0.0% vs 2024
- Average grant
- $205,000
- +132.1% vs 2024
- Median grant
- $100,000
- Total assets
- $2,313,420
- +13.8% vs 2024
- Primary geography
- Massachusetts (84% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
How to apply to Usher Syndrome Society Inc
- Next open deadline
- October 24, 2026 (2026 USS Translational Research Grant)
Open Grants
1 open opportunity from Usher Syndrome Society Inc
Who Usher Syndrome Society Inc funds
How this funder distributes its grants
Top Recipients
Top 3 recipients in 2025
The largest 2025 recipient was Childrens Hospital Boston ($500K). Together the top 3 received $615K.
Grant Size Distribution
13 grants across all recorded years
The most common grant size was in the $100–250K range: 7 grants of 13 (54%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2025 grant dollars across all 3 itemized grants.
States
Cities
How Usher Syndrome Society Inc gives
- Giving grew 173% from 2022 to 2025. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2019 to 2025, annual grant giving ranged from $40K (2021) to $615K (2025). In 2025 it made 3 grants totaling $615K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Childrens Hospital Boston Boston, MA | Research Usher Syndrome | $500,000 |
| University of Oregon Eugene, OR | Research Usher Syndrome | $100,000 |
| Usher Syndrome Coalition Westford, MA | Research Usher Syndrome | $15,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $2,313,420 | $1,294,589 | $1,009,795 | $615,000 | 3 | $44,024 |
| 2024 | $2,032,699 | $1,540,380 | $450,758 | $265,000 | 3 | $17,979 |
| 2023 | $681,044 | $499,989 | $448,421 | $284,160 | 3 | $10,586 |
| 2022 | $629,476 | $473,469 | $409,823 | $225,000 | 2 | $2,214 |
| 2021 | $565,830 | $340,455 | $133,926 | $40,000 | 2 | $804 |
| 2020 | $359,301 | $319,784 | $164,471 | $100,000 | 4 | $1,842 |
| 2019 | $204,674 | $313,906 | $141,032 | $100,000 | 4 | — |
About Usher Syndrome Society Inc
Based on IRS filings
Usher Syndrome Society Inc is a public charity focused on People with disabilities, based in Needham, MA. IRS filing data is available from 2019 through 2025. As of 2025, the organization holds $2.3M in total assets. In 2025, it awarded 3 grants totaling $615K. Net investment income was $44K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Usher Syndrome Society Inc is led by Nancy Corderman, President since 2024 (on filings since 2019); none of the 8 officers listed in 2025 report compensation.
Officers on the 2025 filing
Nancy Corderman
President
President & D → President & Director, 2020
President & Director → President, 2024
On filings since 2019
50 hrs/week
No compensation reported
Rebecca Alexander
Director
On filings since 2019
5 hrs/week
$3K (2020) → $0 (2025)
Hannah Corderman
Director
On filings since 2019
5 hrs/week
No compensation reported
Peggy Borst
Director
On filings since 2019
10 hrs/week
No compensation reported
Sophia Boccard
Director
On filings since 2019
1 hr/week
No compensation reported
Tori Banu
Director
On filings since 2019
1 hr/week
No compensation reported
Alan Pinto
Director
On filings since 2020
5 hrs/week
No compensation reported
David Corderman
Vice President
Chairman → Chair, 2024
Chair → Vice President, 2025
On filings since 2019
5 hrs/week
No compensation reported
Former officers (1)
- Former: Michael Conn (2024) — Director
Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2022 IRS filing
The highest reported compensation on the 2022 filing was $3K, to Rebecca Alexander (Director).
Frequently asked questions about Usher Syndrome Society Inc
How much does Usher Syndrome Society Inc give each year?
Usher Syndrome Society Inc gave $615K across 3 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $265K across 3 grants.
What is Usher Syndrome Society Inc's typical grant size?
Usher Syndrome Society Inc's median grant in 2025 was $100,000, and its average grant was $205,000, across 3 grants on its 2025 IRS Form 990.
Where does Usher Syndrome Society Inc give grants?
Usher Syndrome Society Inc gives mostly in Massachusetts: 84% of the grant dollars itemized on its 2025 IRS Form 990 went to recipients there. The next largest state was Oregon (16%).
Does Usher Syndrome Society Inc give general operating support?
Not in 2025: none of the 3 grants with a stated purpose on Usher Syndrome Society Inc's 2025 IRS Form 990 were described as general or operating support. Recurring purposes include "Research Usher Syndrome" (3 grants).
How large is Usher Syndrome Society Inc?
Usher Syndrome Society Inc reported $2.3M in total assets on its 2025 IRS Form 990. Its revenue that year was $1.3M.
What is Usher Syndrome Society Inc?
Usher Syndrome Society Inc is a public charity focused on People with disabilities, based in Needham, MA. It holds $2.3M in total assets as of 2025.
What is Usher Syndrome Society Inc's EIN?
Usher Syndrome Society Inc's EIN (Employer Identification Number) is 26-1577154. IRS Form 990 filing data is available on this page for 2019–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(7)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2019 (received by the IRS February 28, 2020)
- Updated Form 990 for fiscal year 2020 (received by the IRS February 18, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS February 21, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS February 15, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS February 13, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS July 16, 2025)
- Updated Form 990 for fiscal year 2025 (received by the IRS March 27, 2026)
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