Usher Syndrome Society Inc

NEEDHAM, MA EIN: 26-1577154 Website

To use the arts to create empathy in order to raise awareness and funding for Usher Syndrome to ultimately find a cure.

Financial Overview

From 2024 IRS Form 990-PF

Total Assets

$2.0M

+198.5% YoY

Annual Giving

$265K

Grant Count

3

Avg Grant Size

$88K

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Financial History

Multi-year comparison from IRS filings

Revenue
Expenses
Qualifying Distributions
Net Investment Income
$0$424K$847K$1M$2M20202021202220232024
Metric202420232022
Total Assets$2,032,699$681,044$629,476
Revenue$1,540,380$499,989$473,469
Expenses$450,758$448,421$409,823
Qualifying Distributions
Net Investment Income$17,979$10,586$2,214
Distributable Amount

Giving Over Time

Total grant dollars and number of grants per year

$0$66K$133K$199K$265K0 grants20200 grants20210 grants20220 grants20233 grants2024

Grant Insights

How this funder distributes its grants

Top Recipients

Top 3 recipients in 2024

Childrens Hospital Boston$145KUniversity of Oregon$100KUsher Syndrome Coalition$20K

Grant Size Distribution

3 grants across all recorded years

1<$50K$50–100K2$100–250K$250–500K$500K–1M$1–5M$5M+

Giving History

Grant recipients and amounts by year

No grants recorded for .

Who else does Usher Syndrome Society Inc fund?

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Key People

Officers and directors from IRS filings

Compensation Overview

From 2024 IRS filing

From 2024 filing

NameTitleHoursCompensation
Alan PintoDirector5
Rebecca AlexanderDirector5
Tori BanuDirector1
Peggy BorstDirector10
Hannah CordermanDirector5
Sophia BoccardDirector1
Michael ConnDirector5
Nancy CordermanPresident50
David CordermanChair5

Geographic Focus

Where this funder has awarded grants

Grant Distribution by State

2states

Cities

BostonEugeneWestford

Data last updated March 2026. Sourced from IRS Form 990-PF filings.

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