Usher Syndrome Society Inc
To use the arts to create empathy in order to raise awareness and funding for Usher Syndrome to ultimately find a cure.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$2.0M
+198.5% YoY
Annual Giving
$265K
Grant Count
3
Avg Grant Size
$88K
About Usher Syndrome Society Inc
Based on IRS filings
Usher Syndrome Society Inc is a nonprofit organization focused on People with disabilities, based in NEEDHAM, MA. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $2.0M in total assets. In 2024, it awarded 3 grants totaling $265K. Net investment income was $18K.
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $2,032,699 | $681,044 | $629,476 |
| Revenue | $1,540,380 | $499,989 | $473,469 |
| Expenses | $450,758 | $448,421 | $409,823 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $17,979 | $10,586 | $2,214 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 3 recipients in 2024
Grant Size Distribution
3 grants across all recorded years
Open Grants
1 open opportunity from Usher Syndrome Society Inc
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include Childrens Hospital Boston ($145,000), University of Oregon ($100,000), Usher Syndrome Coalition ($20,000).
| Recipient | Purpose | Amount |
|---|---|---|
| Childrens Hospital Boston Boston, MA | Research Usher Syndrome | $145,000 |
| University of Oregon Eugene, OR | Research Usher Syndrome | $100,000 |
| Usher Syndrome Coalition Westford, MA | Research Usher Syndrome | $20,000 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Alan Pinto | Director | 5 | — |
| Rebecca Alexander | Director | 5 | — |
| Tori Banu | Director | 1 | — |
| Peggy Borst | Director | 10 | — |
| Hannah Corderman | Director | 5 | — |
| Sophia Boccard | Director | 1 | — |
| Michael Conn | Director | 5 | — |
| Nancy Corderman | President | 50 | — |
| David Corderman | Chair | 5 | — |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Usher Syndrome Society Inc?
Usher Syndrome Society Inc is a nonprofit organization focused on People with disabilities, based in NEEDHAM, MA. It holds $2.0M in total assets as of 2024.
How large is Usher Syndrome Society Inc?
As of 2024, Usher Syndrome Society Inc holds $2.0M in total assets with $1.5M in annual revenue. It awarded 3 grants totaling $265K in 2024.
Where does Usher Syndrome Society Inc operate?
Usher Syndrome Society Inc has awarded grants in Massachusetts, Oregon.
What size grants does Usher Syndrome Society Inc award?
In 2024, Usher Syndrome Society Inc awarded 3 grants totaling $265K — an average of about $88K per grant, based on its IRS Form 990 filings.
What is Usher Syndrome Society Inc's EIN?
Usher Syndrome Society Inc's EIN (Employer Identification Number) is 26-1577154. IRS Form 990 filing data is available on this page for 2020–2024.
Explore Open Grants
Browse active grant opportunities in Usher Syndrome Society Inc's focus areas in our free grants database
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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