To use the arts to create empathy in order to raise awareness and funding for Usher Syndrome to ultimately find a cure.
Key facts about Usher Syndrome Society Inc
- EIN
- 26-1577154
- Latest 990 filing
- Form 990-PF, 2025
- Annual giving (2025)
- $615,000
- Grants made (2025)
- 3
- Average grant
- $205,000
- Median grant
- $100,000
- Total assets
- $2,313,420
- Primary geography
- Massachusetts (84% of itemized 2025 grant dollars)
- Next open deadline
- October 24, 2026 (2026 USS Translational Research Grant)
Data from IRS Form 990-PF, 2025; updated September 2026.
Who Usher Syndrome Society Inc funds
By grant dollars, the top recipient states for Usher Syndrome Society Inc's 3 itemized 2025 grants were Massachusetts (84%) and Oregon (16%). None of its 3 grants with a stated purpose were described as general or operating support. Recurring purposes include "Research Usher Syndrome" (3 grants).
Next steps with Usher Syndrome Society Inc
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Financial Overview
From 2025 IRS Form 990-PF · View filing
Total Assets
$2.3M
+13.8% YoY
Annual Giving
$615K
+132.1% YoY
Grant Count
3
+0.0% YoY
Avg Grant Size
$205K
+132.1% YoY
About Usher Syndrome Society Inc
Based on IRS filings
Usher Syndrome Society Inc is a nonprofit organization focused on People with disabilities, based in Needham, MA. IRS filing data is available from 2019 through 2025. As of 2025, the organization holds $2.3M in total assets. In 2025, it awarded 3 grants totaling $615K. Net investment income was $44K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of all 3 itemized 2025 grant dollars.
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2025 | 2024 | 2023 |
|---|---|---|---|
| Total Assets | $2,313,420 | $2,032,699 | $681,044 |
| Revenue | $1,294,589 | $1,540,380 | $499,989 |
| Expenses | $1,009,795 | $450,758 | $448,421 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $44,024 | $17,979 | $10,586 |
| Distributable Amount | — | — | — |
Data update history
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2024 (received by the IRS July 16, 2025)
- Updated Form 990 for fiscal year 2025 (received by the IRS March 27, 2026)
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 3 recipients in 2025
Grant Size Distribution
6 grants across all recorded years
Open Grants
1 open opportunity from Usher Syndrome Society Inc
Giving History
Grant recipients and amounts by year
Among its reported 2025 grants, the largest recipients include Childrens Hospital Boston ($500,000), University of Oregon ($100,000), Usher Syndrome Coalition ($15,000).
| Recipient | Purpose | Amount |
|---|---|---|
| Childrens Hospital Boston Boston, MA | Research Usher Syndrome | $500,000 |
| University of Oregon Eugene, OR | Research Usher Syndrome | $100,000 |
| Usher Syndrome Coalition Westford, MA | Research Usher Syndrome | $15,000 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2022 IRS filing
From 2025 IRS filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Nancy Corderman | President | 50 | — |
| David Corderman | Vice President | 5 | — |
| Alan Pinto | Director | 5 | — |
| Rebecca Alexander | Director | 5 | — |
| Tori Banu | Director | 1 | — |
| Peggy Borst | Director | 10 | — |
| Hannah Corderman | Director | 5 | — |
| Sophia Boccard | Director | 1 | — |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Usher Syndrome Society Inc?
Usher Syndrome Society Inc is a nonprofit organization focused on People with disabilities, based in Needham, MA. It holds $2.3M in total assets as of 2025.
How large is Usher Syndrome Society Inc?
As of 2025, Usher Syndrome Society Inc holds $2.3M in total assets with $1.3M in annual revenue. It awarded 3 grants totaling $615K in 2025.
Where does Usher Syndrome Society Inc operate?
Usher Syndrome Society Inc has awarded grants in Massachusetts, Oregon.
What size grants does Usher Syndrome Society Inc award?
In 2025, Usher Syndrome Society Inc awarded 3 grants totaling $615K — an average of about $205K per grant, based on its IRS Form 990 filings.
What is Usher Syndrome Society Inc's EIN?
Usher Syndrome Society Inc's EIN (Employer Identification Number) is 26-1577154. IRS Form 990 filing data is available on this page for 2019–2025.
Explore Open Grants
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Data last updated September 2026. Sourced from IRS Form 990-PF filings.