Therapies for Inherited Neuropathies Inc
Advocacy and support for treatment and prevention of illnesses or conditions that are hereditary and passed from parent to offspring.
Therapies for Inherited Neuropathies Inc at a glance
In short: Therapies for Inherited Neuropathies Inc gave $14K across 2 grants in 2025 (avg $7K), mostly in Pennsylvania. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $13,624
- Grants made (2025)
- 2
- Average grant
- $6,812
- Median grant
- $6,812
- Total assets
- $606,239
- +72.7% vs 2024
- Primary geography
- Pennsylvania (100% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
Who Therapies for Inherited Neuropathies Inc funds
How this funder distributes its grants
Top Recipients
Top recipient in 2025
The largest 2025 recipient was Charcot-Marie-Tooth Association ($14K across 2 grants).
Grant Size Distribution
5 grants across all recorded years
The most common grant size was under $50K: 5 grants of 5 (100%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2025 grant dollars across all 2 itemized grants.
States
Cities
How Therapies for Inherited Neuropathies Inc gives
- Giving fell 46% from 2022 to 2025. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2019 to 2025, annual grant giving ranged from $10K (2023) to $43K (2021). In 2025 it made 2 grants totaling $14K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Charcot-Marie-Tooth Association Glenolden, PA | Support production of documentary at Camp Footprint | $12,645 |
| Charcot-Marie-Tooth Association Glenolden, PA | Assistance with Peripheral Nerve Society conference cost | $979 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $606,239 | $661,134 | $387,790 | $13,624 | 2 | $5,623 |
| 2024 | $350,964 | $412,123 | $503,277 | — | — | $24,968 |
| 2023 | $423,602 | $232,876 | $119,104 | $10,000 | 1 | $8,319 |
| 2022 | $313,614 | $277,056 | $370,258 | $25,000 | 1 | $83,014 |
| 2021 | $403,044 | $191,310 | $222,193 | $42,500 | 1 | $7,619 |
| 2020 | $433,926 | $379,008 | $195,292 | — | — | — |
| 2019 | $249,968 | $222,300 | $146,566 | $20,000 | 1 | — |
About Therapies for Inherited Neuropathies Inc
Based on IRS filings
Therapies for Inherited Neuropathies Inc is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Baltimore, MD. IRS filing data is available from 2019 through 2025. As of 2025, the organization holds $606K in total assets. In 2025, it awarded 2 grants totaling $14K. Net investment income was $6K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Therapies for Inherited Neuropathies Inc is led by Steven F O'Donnell, Chief Executive Officer on every filing since 2019; none of the 8 officers listed in 2025 report compensation.
Officers on the 2025 filing
Steven F O'Donnell
Chief Executive Officer
On filings since 2019
25 hrs/week
No compensation reported
Sherri E O'Donnell
Secretary
Officer → Secretary, 2024
On filings since 2019
2 hrs/week
No compensation reported
David Todd
Board Member
On filings since 2023
2 hrs/week
No compensation reported
Jimmy Reyes
Board Member
On filings since 2023
2 hrs/week
No compensation reported
Robert Shaffer
Board Member
On filings since 2023
2 hrs/week
No compensation reported
Steve O'Connell
Treasurer
Board Member → Treasurer, 2024
On filings since 2023
2 hrs/week
No compensation reported
Tom Haslach
Board Member
On filings since 2023
2 hrs/week
No compensation reported
David Norcom
Board Member
On filings since 2024
2 hrs/week
No compensation reported
Former officers (2)
- Former: Teresa Saunders (2021–2023) — Chief Financial Officer
- Former: Teresa (2019–2020) — Chief Financial Officer
Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Frequently asked questions about Therapies for Inherited Neuropathies Inc
How much does Therapies for Inherited Neuropathies Inc give each year?
Therapies for Inherited Neuropathies Inc gave $14K across 2 grants in 2025, according to its 2025 IRS Form 990.
How large is Therapies for Inherited Neuropathies Inc?
Therapies for Inherited Neuropathies Inc reported $606K in total assets on its 2025 IRS Form 990. Its revenue that year was $661K.
What is Therapies for Inherited Neuropathies Inc?
Therapies for Inherited Neuropathies Inc is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Baltimore, MD. It holds $606K in total assets as of 2025.
Where does Therapies for Inherited Neuropathies Inc operate?
Therapies for Inherited Neuropathies Inc has awarded grants in Pennsylvania.
What is Therapies for Inherited Neuropathies Inc's EIN?
Therapies for Inherited Neuropathies Inc's EIN (Employer Identification Number) is 81-5350594. IRS Form 990 filing data is available on this page for 2019–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(5)
When this profile's IRS filing data changed on Grantable
- Added Form 990 for fiscal year 2019 (received by the IRS March 13, 2020)
- Updated Form 990 for fiscal year 2021 (received by the IRS May 31, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS June 26, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS May 30, 2024)
- Added Form 990 for fiscal year 2025 (received by the IRS July 27, 2026)
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