The Fibrolamellar Cancer Foundation
FIBROLAMELLAR CANCER FOUNDATION,(THE "FOUNDATION") WAS ESTABLISHED TO RAISE AWARENESS AND RESEARCH FUNDS FOR FIBROLAMELLAR CARCINOMA, A RARE FORM OF LIVER CANCER THAT IS PRIMARILY SEEN IN TEENS AND YOUNG ADULTS. CURRENTLY, THERE ARE NO VIABLE TREATMENT OPTIONS OTHER THAN LIVER RESECTION SURGERY. OUR MISSION IS TO FIND A CURE AND RELIABLE TREATMENT OPTIONS FOR THOSE DIAGNOSED WITH THIS RARE DISEASE AS WELL AS ENHANCE COMMUNICATIONS AMONG HEALTHCARE PROFESSIONALS AND PATIENTS.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$10.2M
-2.6% YoY
Annual Giving
$1.4M
-65.6% YoY
Grant Count
7
-36.4% YoY
Avg Grant Size
$200K
-45.9% YoY
About The Fibrolamellar Cancer Foundation
Based on IRS filings
The Fibrolamellar Cancer Foundation is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in GREENWICH, CT. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $10.2M in total assets. In 2024, it awarded 7 grants totaling $1.4M. Net investment income was $325K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $10,229,754 | $10,499,605 | $10,981,422 |
| Revenue | $3,413,883 | $2,960,135 | $6,076,635 |
| Expenses | $2,853,234 | $5,485,040 | $2,563,688 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $325,349 | $719,035 | $3,055 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 7 recipients in 2024
Grant Size Distribution
41 grants across all recorded years
Open Grants
1 open opportunity from The Fibrolamellar Cancer Foundation
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include X-chem Inc ($400,000), Seven Bridges Genomics Inc ($324,000), University of Washington ($200,000).
| Recipient | Purpose | Amount |
|---|---|---|
| UNIVERSITY OF WISCONSIN MADISON, MI | SCIENTIFIC RESEARCH | $138,212 |
| UNIVERSITY OF WASHINGTON SEATTLE, WA | SCIENTIFIC RESEARCH | $200,000 |
| FRED HUTCHINSON CANCER CENTER SEATTLE, WA | SCIENTIFIC RESEARCH | $125,000 |
| DANA-FARBER CANCER INSTITUTE BOSTON, MA | SCIENTIFIC RESEARCH | $15,040 |
| MASSACHUSETTS GENERAL HOSPITAL CANCER CENTER BOSTON, MA | SCIENTIFIC RESEARCH | $199,996 |
| X-CHEM INC WALTHAM, MA | SCIENTIFIC RESEARCH | $400,000 |
| SEVEN BRIDGES GENOMICS INC CHARLESTOWN, MA | SCIENTIFIC RESEARCH | $324,000 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| MARNA O DAVIS | CO-CHAIRPERSON | 25 | — |
| CHARLES W BEERMANN | DIRECTOR | 1 | — |
| DEREK GILCHRIST | DIRECTOR, SECRETARY | 2 | — |
| ANNE ADLER | DIRECTOR | 25 | — |
| JOHN CRAIG | DIRECTOR | 1 | — |
| TAL FRIEDMAN | DIRECTOR | 1 | — |
| CHARLES A DAVIS | CO-CHAIRPERSON | 1 | — |
| LESLIE GRAVES | TREASURER | 1 | — |
| CRAIG MARTIN | DIRECTOR | 1 | — |
| KURT LOSERT | CEO | 40 | $250,500 |
| GUY LEVY | DIRECTOR | 1 | — |
| DR MARK FURTH | CHIEF SCIENCE OFFICER | 40 | $165,271 |
| PAYAL RAY | PROGRAM RESEARCH DIRECTOR | 40 | $153,656 |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is The Fibrolamellar Cancer Foundation?
The Fibrolamellar Cancer Foundation is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in GREENWICH, CT. It holds $10.2M in total assets as of 2024.
How large is The Fibrolamellar Cancer Foundation?
As of 2024, The Fibrolamellar Cancer Foundation holds $10.2M in total assets with $3.4M in annual revenue. It awarded 7 grants totaling $1.4M in 2024.
Where does The Fibrolamellar Cancer Foundation operate?
The Fibrolamellar Cancer Foundation has awarded grants in California, Massachusetts, Maryland, Michigan, New York, Ohio, Tennessee, Texas, Vermont, Washington.
What size grants does The Fibrolamellar Cancer Foundation award?
In 2024, The Fibrolamellar Cancer Foundation awarded 7 grants totaling $1.4M — an average of about $200K per grant, based on its IRS Form 990 filings.
What is The Fibrolamellar Cancer Foundation's EIN?
The Fibrolamellar Cancer Foundation's EIN (Employer Identification Number) is 27-0341021. IRS Form 990 filing data is available on this page for 2020–2024.
Explore Open Grants
Browse active grant opportunities in The Fibrolamellar Cancer Foundation's focus areas in our free grants database
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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