The Fibrolamellar Cancer Foundation
FIBROLAMELLAR CANCER FOUNDATION,(THE "FOUNDATION") WAS ESTABLISHED TO RAISE AWARENESS AND RESEARCH FUNDS FOR FIBROLAMELLAR CARCINOMA, A RARE FORM OF LIVER CANCER THAT IS PRIMARILY SEEN IN TEENS AND YOUNG ADULTS. CURRENTLY, THERE ARE NO VIABLE TREATMENT OPTIONS OTHER THAN LIVER RESECTION SURGERY. OUR MISSION IS TO FIND A CURE AND RELIABLE TREATMENT OPTIONS FOR THOSE DIAGNOSED WITH THIS RARE DISEASE AS WELL AS ENHANCE COMMUNICATIONS AMONG HEALTHCARE PROFESSIONALS AND PATIENTS.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$10.2M
-2.6% YoY
Annual Giving
$1.4M
-65.6% YoY
Grant Count
7
-36.4% YoY
Avg Grant Size
$200K
-45.9% YoY
About The Fibrolamellar Cancer Foundation
Based on IRS filings
The Fibrolamellar Cancer Foundation is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in GREENWICH, CT. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $10.2M in total assets. In 2024, it awarded 7 grants totaling $1.4M. Net investment income was $325K.
Focus Areas
Ready to take the next step with The Fibrolamellar Cancer Foundation?
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $10,229,754 | $10,499,605 | $10,981,422 |
| Revenue | $3,413,883 | $2,960,135 | $6,076,635 |
| Expenses | $2,853,234 | $5,485,040 | $2,563,688 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $325,349 | $719,035 | $3,055 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 7 recipients in 2024
Grant Size Distribution
41 grants across all recorded years
Open Grants
1 open opportunity from The Fibrolamellar Cancer Foundation
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| MARNA O DAVIS | CO-CHAIRPERSON | 25 | — |
| CHARLES W BEERMANN | DIRECTOR | 1 | — |
| DEREK GILCHRIST | DIRECTOR, SECRETARY | 2 | — |
| ANNE ADLER | DIRECTOR | 25 | — |
| JOHN CRAIG | DIRECTOR | 1 | — |
| TAL FRIEDMAN | DIRECTOR | 1 | — |
| CHARLES A DAVIS | CO-CHAIRPERSON | 1 | — |
| LESLIE GRAVES | TREASURER | 1 | — |
| CRAIG MARTIN | DIRECTOR | 1 | — |
| KURT LOSERT | CEO | 40 | $250,500 |
| GUY LEVY | DIRECTOR | 1 | — |
| DR MARK FURTH | CHIEF SCIENCE OFFICER | 40 | $165,271 |
| PAYAL RAY | PROGRAM RESEARCH DIRECTOR | 40 | $153,656 |
Subject Areas
Focus areas based on grantmaking activity
Related Funders
Similar funders by location and focus area
Christine E Moser Foundation
NEW BRITAIN, CT
Assets
$767K
Grants
7
Total Given
$36K
The Ravengate Foundation
OLD GREENWICH, CT
Assets
$1.2M
Grants
3
Total Given
$70K
Alderman Family Foundation
SALISBURY, CT
Assets
$33K
Grants
5
Total Given
$650
Calf Island Foundation
GREENWICH, CT
Assets
$172K
Grants
1
Total Given
$10K
Russel R Taylor Foundation
GREENWICH, CT
Assets
$2.6M
Grants
3
Total Given
$224K
Nancy a Larson Foundation Inc
OLD LYME, CT
Assets
$9K
Grants
8
Total Given
$12K
Data last updated April 2026. Sourced from IRS Form 990-PF filings.
What could you do with The Fibrolamellar Cancer Foundation on Grantable?
- Assess strategic fit with your organization
- Draft a tailored letter of inquiry
- Find open RFPs from this funder
- Monitor for new funding opportunities