Systemic Lupus International Collaborati

Private foundation · Grantmaker Pittsburgh, PA EIN: 80-0481892

Systemic Lupus International Collaborati is a private foundation focused on Medical Research, based in Pittsburgh, PA. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $365K in total assets. In 2024, it awarded 2 grants totaling $85K. Net investment income was $11K.

Systemic Lupus International Collaborati at a glance

In short: Systemic Lupus International Collaborati gave $85K across 2 grants in 2024 (avg $43K). Source: 2024 IRS Form 990-PF.

Annual giving (2024)
$85,438
-6.9% vs 2023
Grants made (2024)
2
-60.0% vs 2023
Average grant
$42,719
+132.6% vs 2023
Median grant
$42,719
Total assets
$364,970
-12.4% vs 2023
Latest 990 filing
Form 990-PF, 2024 View filing

Data from IRS Form 990-PF, 2024; updated September 2026.

Who Systemic Lupus International Collaborati funds

How this funder distributes its grants

Top Recipients

Top 2 recipients in 2024

University of Manchester Centre of Epideimology: $50KUniversity of ManchesterCentre of Epideimology$50KThe Governors of University Calgary: $35KThe Governors of UniversityCalgary$35K

The largest 2024 recipient was University of Manchester Centre of Epideimology ($50K). Together the top 2 received $85K.

Grant Size Distribution

35 grants across all recorded years

28<$50K6$50–100K1$100–250K$250–500K$500K–1M$1–5M$5M+

The most common grant size was under $50K: 28 grants of 35 (80%).

Geographic Focus

Where this funder awards grants

Grant Distribution by State

8states

Cities

AtlantaBaltimoreBrooklynCharlestonChicagoLos AngelesManhassetOklahoma CityPittsburgh

How Systemic Lupus International Collaborati gives

  • Giving held roughly steady from 2021 to 2024 (+4%). Method
  • In 2024 it paid out 695% of its IRS minimum distribution (the 5% rule). Method

From the foundation's IRS Form 990-PF filings. Methodology.

Giving History

Giving Over Time

Total grant dollars and number of grants per year

$0$200K$400K$600K5 grants2020 3 grants2021 20 grants2022 5 grants2023 2 grants2024

From 2020 to 2024, annual grant giving ranged from $82K (2021) to $436K (2022). In 2024 it made 2 grants totaling $85K.

Grants by year

Grant recipients and amounts by year

RecipientPurposeAmount
University of Manchester Centre of Epideimology Medical Research - Lupus$50,000
The Governors of University Calgary Medical Research - Lupus$35,438
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Financial History

Multi-year comparison from IRS filings

Figures from IRS filings, by filing year
Filing yearTotal AssetsRevenueExpensesGrants paidGrantsQualifying DistributionsNet Investment IncomeDistributable Amount
2024$364,970$130,225$181,695$85,4382$147,784$10,909$21,267
2023$416,440$15,874$167,675$91,8165$133,641—$26,015
2022$568,083$518,790$501,123$435,70620$490,524—$33,843
2021$556,177$78,781$168,828$82,4083$152,298—$28,194
2020$646,224$545,895$287,392$223,6455——$26,647

Under IRS private-foundation payout rules, Systemic Lupus International Collaborati reported a distributable amount of $21K for 2024 — the minimum it must pay out in qualifying distributions.

Leadership & Key People

Officers and directors from IRS filings

Systemic Lupus International Collaborati is led by Susan Manzi, Director & Chair on every filing since 2023; none of the 7 officers listed in 2024 report compensation.

Officers on the 2024 filing

  • Susan Manzi

    Director & Chair

    On filings since 2023

    2 hrs/week

    No compensation reported

  • Ann Clarke

    Director & Past Chair

    Director & Chair → Director & Past Chair, 2021

    On filings since 2020

    1 hr/week

    No compensation reported

  • Cynthia Aranow

    Director & Treasurer

    On filings since 2020

    2 hrs/week

    No compensation reported

  • John Hanly

    Director

    On filings since 2020

    1 hr/week

    No compensation reported

  • Soren Jacobsen

    Director

    On filings since 2020

    1 hr/week

    No compensation reported

  • Paul Fortin

    Director & Vice Chair

    On filings since 2021

    2 hrs/week

    No compensation reported

  • Anisur Rahman

    Director

    On filings since 2022

    1 hr/week

    No compensation reported

Former officers (3)
  • Former: Anca Askanase (2023) — Director
  • Former: Sue Manzi (2020–2022) — Director & Chair
  • Former: Ian Bruce (2020) — Director

Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.

Frequently asked questions about Systemic Lupus International Collaborati

How much does Systemic Lupus International Collaborati give each year?

Systemic Lupus International Collaborati gave $85K across 2 grants in 2024, according to its 2024 IRS Form 990-PF. In 2023 it gave $92K across 5 grants.

How large is Systemic Lupus International Collaborati?

Systemic Lupus International Collaborati reported $365K in total assets on its 2024 IRS Form 990-PF. It paid out $148K in qualifying distributions that year, against a required minimum of $21K (roughly 5% of its investment assets).

What is Systemic Lupus International Collaborati?

Systemic Lupus International Collaborati is a private foundation focused on Medical Research, based in Pittsburgh, PA. It holds $365K in total assets as of 2024.

Where does Systemic Lupus International Collaborati operate?

Systemic Lupus International Collaborati has awarded grants in California, Georgia, Illinois, Maryland, New York, Oklahoma, Pennsylvania, South Carolina.

What is Systemic Lupus International Collaborati's EIN?

Systemic Lupus International Collaborati's EIN (Employer Identification Number) is 80-0481892. IRS Form 990 filing data is available on this page for 2020–2024.

Data last updated September 2026. Sourced from IRS Form 990-PF filings.

Data update history

(1)

When this profile's IRS filing data changed on Grantable

  1. IRS filings on file for fiscal years 2020–2024

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The filing figures on this page are open data under CC BY 4.0. About GrantGraph Open

Figures come from Systemic Lupus International Collaborati's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.

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