Siegel Rare Neuroimmune Association
To support and advocate for individuals and their families diagnosed with rare neuroimmune disorders of the central nervous system; to promote awareness and to empower patients, families, clinicians and scientists through education programs and publications and to advance the scientific understanding of and therapy development for these rare disorders by supporting the training of clinicians-scientists dedicated to these rare disorders and by supporting basic and clinical research. Our goal is to improve the quality of life of individuals with rare neuroimmune disorders.
Siegel Rare Neuroimmune Association at a glance
In short: Siegel Rare Neuroimmune Association gave $138K across 3 grants in 2024 (avg $46K), top state Utah. Source: 2024 IRS Form 990.
- Annual giving (2024)
- $137,500
- +71.9% vs 2023
- Grants made (2024)
- 3
- +50.0% vs 2023
- Average grant
- $45,833
- +14.6% vs 2023
- Median grant
- $47,500
- Total assets
- $1,638,076
- -4.9% vs 2023
- Primary geography
- Utah (36% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026.
How to apply to Siegel Rare Neuroimmune Association
Open Grants
2 open opportunities from Siegel Rare Neuroimmune Association
Who Siegel Rare Neuroimmune Association funds
How this funder distributes its grants
Top Recipients
Top 2 recipients in 2024
The largest 2024 recipient was University of Utah ($50K). Together the top 2 received $98K.
Organizations only. It also paid 1 grant to individuals ($40,000), which are not listed by name.
Grant Size Distribution
12 grants across all recorded years
The most common grant size was under $50K: 11 grants of 12 (92%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2024 grant dollars across all 3 itemized grants.
Cities
How Siegel Rare Neuroimmune Association gives
- Giving grew 267% from 2021 to 2024. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2024, annual grant giving ranged from $38K (2021) to $138K (2024). In 2024 it made 3 grants totaling $138K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| University of Utah Salt Lake City, UT | Fellowship award for salary, benefits and supplies for Fellow training in the clinical treatment of and research pertaining to rare neuroimmune disorders and a second grant to study the Effects of Social Determinants of Health Factors in Transverse Myelitis:Epidemiology of the National Veterans Health Administration Population | $50,000 |
| Massachusetts General Hospital Boston, MA | Fellowship award for salary, benefits and supplies for Fellow training in the clinical treatment of and research pertaining to rare neuroiummune diseases and a second grant to investigate Headache and Eye Pain Associated with Rare Neuroimmune Disorders | $47,500 |
| 1 grant to individuals Recipients not named | — | $40,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $1,638,076 | $1,493,618 | $1,614,877 | $137,500 | 3 | $92,764 |
| 2023 | $1,723,037 | $1,270,268 | $1,225,221 | $80,000 | 2 | $48,161 |
| 2022 | $1,636,191 | $1,218,351 | $1,096,315 | $52,500 | 2 | $-17,636 |
| 2021 | $1,538,757 | $1,415,891 | $683,121 | $37,500 | 2 | $11,399 |
| 2020 | $776,844 | $752,124 | $577,003 | $41,477 | 3 | $-11,214 |
About Siegel Rare Neuroimmune Association
Based on IRS filings
Siegel Rare Neuroimmune Association is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Powell, OH. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $1.6M in total assets. In 2024, it awarded 3 grants totaling $138K. Net investment income was $93K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Siegel Rare Neuroimmune Association is led by Chitra Krishnan, Executive Director on every filing since 2021; 2 of 17 officers listed in 2024 are compensated.
Officers on the 2024 filing
Chitra Krishnan
Executive Director
On filings since 2021
40 hrs/week
$74K (2021) → $137K (2024)
Sanford J Siegel
President
On filings since 2020
20 hrs/week
No compensation reported
Gabrielle deFiebre
Director of Research & Programs
On filings since 2023
40 hrs/week
$104K (2023) → $111K (2024)
Barbara Sattler
Director
On filings since 2020
5 hrs/week
No compensation reported
Benjamin M Greenberg MD
Director
On filings since 2020
5 hrs/week
No compensation reported
Bruce L Downey
Director
On filings since 2020
3 hrs/week
No compensation reported
Carlos A Pardo-Villamizar MD
Director
On filings since 2020
5 hrs/week
No compensation reported
Dave Evans
Director
On filings since 2020
3 hrs/week
No compensation reported
Dennis Wolfe
Director
On filings since 2020
3 hrs/week
No compensation reported
Douglas A Kerr MD PhD
Director
On filings since 2020
5 hrs/week
No compensation reported
Jason Robbins
Director
On filings since 2020
8 hrs/week
No compensation reported
Lana Harder
Director
On filings since 2020
5 hrs/week
No compensation reported
Peter C Johnson
Director
On filings since 2020
3 hrs/week
No compensation reported
Michael Levy
Director
On filings since 2021
5 hrs/week
No compensation reported
Deborah Capen
Secretary
On filings since 2020
20 hrs/week
No compensation reported
James T Lubin
Executive Committee Member
On filings since 2020
20 hrs/week
No compensation reported
Linda Malecky
Treasurer & Vice President
On filings since 2020
20 hrs/week
No compensation reported
Former officers (1)
- Former: Anjali Forber-Pratt (2020) — Director
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
The highest reported compensation on the 2024 filing was $137K, to Chitra Krishnan (Executive Director). 2 officers or directors reported compensation on that filing.
Frequently asked questions about Siegel Rare Neuroimmune Association
How much does Siegel Rare Neuroimmune Association give each year?
Siegel Rare Neuroimmune Association gave $138K across 3 grants in 2024, according to its 2024 IRS Form 990. In 2023 it gave $80K across 2 grants.
What is Siegel Rare Neuroimmune Association's typical grant size?
Siegel Rare Neuroimmune Association's median grant in 2024 was $47,500, and its average grant was $45,833, across 3 grants on its 2024 IRS Form 990.
Where does Siegel Rare Neuroimmune Association give grants?
Siegel Rare Neuroimmune Association's top state is Utah, with 36% of the grant dollars itemized on its 2024 IRS Form 990. The next largest states were Massachusetts (35%) and Maryland (29%).
Does Siegel Rare Neuroimmune Association give general operating support?
Not in 2024: none of the 3 grants with a stated purpose on Siegel Rare Neuroimmune Association's 2024 IRS Form 990 were described as general or operating support.
How large is Siegel Rare Neuroimmune Association?
Siegel Rare Neuroimmune Association reported $1.6M in total assets on its 2024 IRS Form 990. Its revenue that year was $1.5M.
What is Siegel Rare Neuroimmune Association?
Siegel Rare Neuroimmune Association is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Powell, OH. It holds $1.6M in total assets as of 2024.
What is Siegel Rare Neuroimmune Association's EIN?
Siegel Rare Neuroimmune Association's EIN (Employer Identification Number) is 91-1780467. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(6)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS November 10, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS October 20, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS October 5, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS October 10, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS November 10, 2025)
- IRS filings on file for fiscal years 2020–2024
Live grants for the work Siegel Rare Neuroimmune Association funds
Diseases, Disorders & Medical Disciplines Open opportunities, soonest deadline first.
Explore Open Grants
Browse active grant opportunities in Siegel Rare Neuroimmune Association's focus areas in our free grants database
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