Siegel Rare Neuroimmune Association
TO SUPPORT AND ADVOCATE FOR INDIVIDUALS AND THEIR FAMILIES DIAGNOSED WITH RARE NEUROIMMUNE DISORDERS OF THE CENTRAL NERVOUS SYSTEM; TO PROMOTE AWARENESS AND TO EMPOWER PATIENTS, FAMILIES, CLINICIANS AND SCIENTISTS THROUGH EDUCATION PROGRAMS AND PUBLICATIONS AND TO ADVANCE THE SCIENTIFIC UNDERSTANDING OF AND THERAPY DEVELOPMENT FOR THESE RARE DISORDERS BY SUPPORTING THE TRAINING OF CLINICIANS-SCIENTISTS DEDICATED TO THESE RARE DISORDERS AND BY SUPPORTING BASIC AND CLINICAL RESEARCH. OUR GOAL IS TO IMPROVE THE QUALITY OF LIFE OF INDIVIDUALS WITH RARE NEUROIMMUNE DISORDERS.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$1.6M
-4.9% YoY
Annual Giving
$138K
+71.9% YoY
Grant Count
3
+50.0% YoY
Avg Grant Size
$46K
+14.6% YoY
About Siegel Rare Neuroimmune Association
Based on IRS filings
Siegel Rare Neuroimmune Association is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in POWELL, OH. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $1.6M in total assets. In 2024, it awarded 3 grants totaling $138K. Net investment income was $93K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $1,638,076 | $1,723,037 | $1,636,191 |
| Revenue | $1,493,618 | $1,270,268 | $1,218,351 |
| Expenses | $1,614,877 | $1,225,221 | $1,096,315 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $92,764 | $48,161 | $-17,636 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 3 recipients in 2024
Grant Size Distribution
12 grants across all recorded years
Open Grants
2 open opportunities from Siegel Rare Neuroimmune Association
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include University of Utah ($50,000), Massachusetts General Hospital ($47,500), Johns Hopkins School of Medicine ($40,000).
| Recipient | Purpose | Amount |
|---|---|---|
| Johns Hopkins School of Medicine Baltimore, MD | Fellowship award for salary, benefits and supplies for Fellow training in the clinical treatment of and research pertaining to rare neuroiummune diseases | $40,000 |
| University of Utah Salt Lake City, UT | Fellowship award for salary, benefits and supplies for Fellow training in the clinical treatment of and research pertaining to rare neuroimmune disorders and a second grant to study the Effects of Social Determinants of Health Factors in Transverse Myelitis:Epidemiology of the National Veterans Health Administration Population | $50,000 |
| MASSACHUSETTS GENERAL HOSPITAL BOSTON, MA | Fellowship award for salary, benefits and supplies for Fellow training in the clinical treatment of and research pertaining to rare neuroiummune diseases and a second grant to investigate Headache and Eye Pain Associated with Rare Neuroimmune Disorders | $47,500 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Chitra Krishnan | Executive Director | 40 | $136,560 |
| Gabrielle deFiebre | Director of Research and Programs | 40 | $111,300 |
| Lana Harder | Director | 5 | — |
| Sanford J Siegel | President | 20 | — |
| Deborah Capen | Secretary | 20 | — |
| Linda Malecky | Treasurer, Vice President | 20 | — |
| Bruce L Downey | Director | 3 | — |
| Benjamin M Greenberg MD | Director | 5 | — |
| Douglas A Kerr MD PHD | Director | 5 | — |
| Carlos A Pardo-Villamizar MD | Director | 5 | — |
| Barbara Sattler | Director | 5 | — |
| Jason Robbins | Director | 8 | — |
| Peter C Johnson | Director | 3 | — |
| Dennis Wolfe | Director | 3 | — |
| James T Lubin | Executive Committee Member | 20 | — |
| Dave Evans | Director | 3 | — |
| Michael Levy | Director | 5 | — |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Siegel Rare Neuroimmune Association?
Siegel Rare Neuroimmune Association is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in POWELL, OH. It holds $1.6M in total assets as of 2024.
How large is Siegel Rare Neuroimmune Association?
As of 2024, Siegel Rare Neuroimmune Association holds $1.6M in total assets with $1.5M in annual revenue. It awarded 3 grants totaling $138K in 2024.
Where does Siegel Rare Neuroimmune Association operate?
Siegel Rare Neuroimmune Association has awarded grants in Massachusetts, Maryland, New York, Texas, Utah.
What size grants does Siegel Rare Neuroimmune Association award?
In 2024, Siegel Rare Neuroimmune Association awarded 3 grants totaling $138K — an average of about $46K per grant, based on its IRS Form 990 filings.
What is Siegel Rare Neuroimmune Association's EIN?
Siegel Rare Neuroimmune Association's EIN (Employer Identification Number) is 91-1780467. IRS Form 990 filing data is available on this page for 2020–2024.
Explore Open Grants
Browse active grant opportunities in Siegel Rare Neuroimmune Association's focus areas in our free grants database
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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