Siegel Rare Neuroimmune Association
TO SUPPORT AND ADVOCATE FOR INDIVIDUALS AND THEIR FAMILIES DIAGNOSED WITH RARE NEUROIMMUNE DISORDERS OF THE CENTRAL NERVOUS SYSTEM; TO PROMOTE AWARENESS AND TO EMPOWER PATIENTS, FAMILIES, CLINICIANS AND SCIENTISTS THROUGH EDUCATION PROGRAMS AND PUBLICATIONS AND TO ADVANCE THE SCIENTIFIC UNDERSTANDING OF AND THERAPY DEVELOPMENT FOR THESE RARE DISORDERS BY SUPPORTING THE TRAINING OF CLINICIANS-SCIENTISTS DEDICATED TO THESE RARE DISORDERS AND BY SUPPORTING BASIC AND CLINICAL RESEARCH. OUR GOAL IS TO IMPROVE THE QUALITY OF LIFE OF INDIVIDUALS WITH RARE NEUROIMMUNE DISORDERS.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$1.6M
-4.9% YoY
Annual Giving
$138K
+71.9% YoY
Grant Count
3
+50.0% YoY
Avg Grant Size
$46K
+14.6% YoY
About Siegel Rare Neuroimmune Association
Based on IRS filings
Siegel Rare Neuroimmune Association is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in POWELL, OH. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $1.6M in total assets. In 2024, it awarded 3 grants totaling $138K. Net investment income was $93K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $1,638,076 | $1,723,037 | $1,636,191 |
| Revenue | $1,493,618 | $1,270,268 | $1,218,351 |
| Expenses | $1,614,877 | $1,225,221 | $1,096,315 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $92,764 | $48,161 | $-17,636 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 3 recipients in 2024
Grant Size Distribution
12 grants across all recorded years
Open Grants
2 open opportunities from Siegel Rare Neuroimmune Association
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Chitra Krishnan | Executive Director | 40 | $136,560 |
| Gabrielle deFiebre | Director of Research and Programs | 40 | $111,300 |
| Lana Harder | Director | 5 | — |
| Sanford J Siegel | President | 20 | — |
| Deborah Capen | Secretary | 20 | — |
| Linda Malecky | Treasurer, Vice President | 20 | — |
| Bruce L Downey | Director | 3 | — |
| Benjamin M Greenberg MD | Director | 5 | — |
| Douglas A Kerr MD PHD | Director | 5 | — |
| Carlos A Pardo-Villamizar MD | Director | 5 | — |
| Barbara Sattler | Director | 5 | — |
| Jason Robbins | Director | 8 | — |
| Peter C Johnson | Director | 3 | — |
| Dennis Wolfe | Director | 3 | — |
| James T Lubin | Executive Committee Member | 20 | — |
| Dave Evans | Director | 3 | — |
| Michael Levy | Director | 5 | — |
Subject Areas
Focus areas based on grantmaking activity
Data last updated April 2026. Sourced from IRS Form 990-PF filings.
What could you do with Siegel Rare Neuroimmune Association on Grantable?
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