Siegel Rare Neuroimmune Association
To support and advocate for individuals and their families diagnosed with rare neuroimmune disorders of the central nervous system; to promote awareness and to empower patients, families, clinicians and scientists through education programs and publications and to advance the scientific understanding of and therapy development for these rare disorders by supporting the training of clinicians-scientists dedicated to these rare disorders and by supporting basic and clinical research. Our goal is to improve the quality of life of individuals with rare neuroimmune disorders.
Siegel Rare Neuroimmune Association at a glance
In short: Siegel Rare Neuroimmune Association gave $138K across 3 grants in 2024 (avg $46K), top state Utah. Source: 2024 IRS Form 990.
- Annual giving (2024)
- $137,500
- +71.9% vs 2023
- Grants made (2024)
- 3
- +50.0% vs 2023
- Average grant
- $45,833
- +14.6% vs 2023
- Median grant
- $47,500
- Total assets
- $1,638,076
- -4.9% vs 2023
- Primary geography
- Utah (36% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026.
How to apply to Siegel Rare Neuroimmune Association
Open Grants
2 open opportunities from Siegel Rare Neuroimmune Association
Who Siegel Rare Neuroimmune Association funds
How this funder distributes its grants
Top Recipients
Top 2 recipients in 2024
The largest 2024 recipient was University of Utah ($50K). Together the top 2 received $98K.
Organizations only. It also paid 1 grant to individuals ($40,000), which are not listed by name.
Grant Size Distribution
12 grants across all recorded years
The most common grant size was under $50K: 11 grants of 12 (92%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2024 grant dollars across all 3 itemized grants.
Cities
How Siegel Rare Neuroimmune Association gives
- Giving grew 267% from 2021 to 2024. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2024, annual grant giving ranged from $38K (2021) to $138K (2024). In 2024 it made 3 grants totaling $138K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| University of Utah Salt Lake City, UT | Fellowship award for salary, benefits and supplies for Fellow training in the clinical treatment of and research pertaining to rare neuroimmune disorders and a second grant to study the Effects of Social Determinants of Health Factors in Transverse Myelitis:Epidemiology of the National Veterans Health Administration Population | $50,000 |
| Massachusetts General Hospital Boston, MA | Fellowship award for salary, benefits and supplies for Fellow training in the clinical treatment of and research pertaining to rare neuroiummune diseases and a second grant to investigate Headache and Eye Pain Associated with Rare Neuroimmune Disorders | $47,500 |
| 1 grant to individuals Recipients not named | — | $40,000 |
Ready to take the next step with Siegel Rare Neuroimmune Association?
Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $1,638,076 | $1,493,618 | $1,614,877 | $137,500 | 3 | $92,764 |
| 2023 | $1,723,037 | $1,270,268 | $1,225,221 | $80,000 | 2 | $48,161 |
| 2022 | $1,636,191 | $1,218,351 | $1,096,315 | $52,500 | 2 | $-17,636 |
| 2021 | $1,538,757 | $1,415,891 | $683,121 | $37,500 | 2 | $11,399 |
| 2020 | $776,844 | $752,124 | $577,003 | $41,477 | 3 | $-11,214 |
About Siegel Rare Neuroimmune Association
Based on IRS filings
Siegel Rare Neuroimmune Association is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Powell, OH. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $1.6M in total assets. In 2024, it awarded 3 grants totaling $138K. Net investment income was $93K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Siegel Rare Neuroimmune Association is led by Chitra Krishnan, Executive Director on every filing since 2021; 2 of 17 officers listed in 2024 are compensated.
Officers on the 2024 filing
Chitra Krishnan
Executive Director
On filings since 2021
40 hrs/week
$74K (2021) → $137K (2024)
Sanford J Siegel
President
On filings since 2020
20 hrs/week
No compensation reported
Gabrielle deFiebre
Director of Research & Programs
On filings since 2023
40 hrs/week
$104K (2023) → $111K (2024)
Barbara Sattler
Director
On filings since 2020
5 hrs/week
No compensation reported
Benjamin M Greenberg MD
Director
On filings since 2020
5 hrs/week
No compensation reported
Bruce L Downey
Director
On filings since 2020
3 hrs/week
No compensation reported
Carlos A Pardo-Villamizar MD
Director
On filings since 2020
5 hrs/week
No compensation reported
Dave Evans
Director
On filings since 2020
3 hrs/week
No compensation reported
Dennis Wolfe
Director
On filings since 2020
3 hrs/week
No compensation reported
Douglas A Kerr MD PhD
Director
On filings since 2020
5 hrs/week
No compensation reported
Jason Robbins
Director
On filings since 2020
8 hrs/week
No compensation reported
Lana Harder
Director
On filings since 2020
5 hrs/week
No compensation reported
Peter C Johnson
Director
On filings since 2020
3 hrs/week
No compensation reported
Michael Levy
Director
On filings since 2021
5 hrs/week
No compensation reported
Deborah Capen
Secretary
On filings since 2020
20 hrs/week
No compensation reported
James T Lubin
Executive Committee Member
On filings since 2020
20 hrs/week
No compensation reported
Linda Malecky
Treasurer & Vice President
On filings since 2020
20 hrs/week
No compensation reported
Former officers (1)
- Former: Anjali Forber-Pratt (2020) — Director
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
The highest reported compensation on the 2024 filing was $137K, to Chitra Krishnan (Executive Director). 2 officers or directors reported compensation on that filing.
Frequently asked questions about Siegel Rare Neuroimmune Association
How much does Siegel Rare Neuroimmune Association give each year?
Siegel Rare Neuroimmune Association gave $138K across 3 grants in 2024, according to its 2024 IRS Form 990. In 2023 it gave $80K across 2 grants.
What is Siegel Rare Neuroimmune Association's typical grant size?
Siegel Rare Neuroimmune Association's median grant in 2024 was $47,500, and its average grant was $45,833, across 3 grants on its 2024 IRS Form 990.
Where does Siegel Rare Neuroimmune Association give grants?
Siegel Rare Neuroimmune Association's top state is Utah, with 36% of the grant dollars itemized on its 2024 IRS Form 990. The next largest states were Massachusetts (35%) and Maryland (29%).
Does Siegel Rare Neuroimmune Association give general operating support?
Not in 2024: none of the 3 grants with a stated purpose on Siegel Rare Neuroimmune Association's 2024 IRS Form 990 were described as general or operating support.
How large is Siegel Rare Neuroimmune Association?
Siegel Rare Neuroimmune Association reported $1.6M in total assets on its 2024 IRS Form 990. Its revenue that year was $1.5M.
What is Siegel Rare Neuroimmune Association?
Siegel Rare Neuroimmune Association is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Powell, OH. It holds $1.6M in total assets as of 2024.
What is Siegel Rare Neuroimmune Association's EIN?
Siegel Rare Neuroimmune Association's EIN (Employer Identification Number) is 91-1780467. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(6)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS November 10, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS October 20, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS October 5, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS October 10, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS November 10, 2025)
- IRS filings on file for fiscal years 2020–2024
Explore Open Grants
Browse active grant opportunities in Siegel Rare Neuroimmune Association's focus areas in our free grants database
Similar Funders
Funders with grantees in common
Intuitive Foundation
Sunnyvale, CA
The Intuitive Foundation funds medical and technology research, robotic-surgery training, and STEM and healthcare pathways, supporting eligible nonprofits in the United States and worldwide. Giving varies widely: 2024 grants ranged from $5,000 to $2.8 million, with a median of about $52,000; clinical research grants offer up to $75,000 per project. It accepts unsolicited online requests, reviewed quarterly.
Assets
$122.7M
Grants
104
Total Given
$12.6M
Cystic Fibrosis Foundation
Bethesda, MD
The Cystic Fibrosis Foundation funds cystic fibrosis research, drug development, specialized care, and related training and clinical programs. In 2024, its grants had a median of about $150,000, with awards ranging from $2,800 to nearly $12.9 million; it supports work nationwide. Applications are submitted through specific funding opportunities, but the profile does not state whether unsolicited requests are accepted.
Assets
$5.0B
Grants
624
Total Given
$189.6M
Ernst & Young Foundation
New York, NY
Ernst & Young Foundation supports higher education through employee and partner matching gifts, as well as educational and special-project grants, including research, education forums, and programs that expand educational opportunity. In 2025, it made 637 grants ranging from $5,056 to $316,005, with a median of $13,525, to recipients across multiple states; the largest shares went to New York, Texas, California, Michigan, and Pennsylvania. The profile does not state whether it accepts unsolicited requests.
Assets
$47.6M
Grants
637
Total Given
$16.7M
President and Fellows of Harvard College
Cambridge, MA
Harvard’s grantmaking primarily supports research and education, including research awards and sub-awards to universities, hospitals, and research institutes. In 2025, it reported 352 grants ranging from $5,002 to $27.4 million, with a median of $123,018; recipients were concentrated in Massachusetts, which received 64% of grant dollars. The profile does not state whether Harvard accepts unsolicited requests.
Assets
$79.9B
Grants
352
Total Given
$273.3M
Emergency Medicine Foundation
Irving, TX
The Emergency Medicine Foundation funds research and education to improve emergency medicine and patient care, including investigator-initiated, early-career, pilot, resident, and student research. In 2025, grants ranged from $3,500 to $986,839, with a median of $15,000; it funds U.S.-based institutions, with the largest shares of recent giving going to Texas and Pennsylvania. It invites applications through its listed grant opportunities; the profile does not state whether it accepts unsolicited requests outside those programs.
Assets
$10.6M
Grants
20
Total Given
$2.1M
Northwestern University
Evanston, IL
Northwestern University funds research and community organizations, along with selected programs in community health, transportation research, and investigative journalism. Its 2025 grants ranged from $5,000 to $7.7 million, with a median of about $73,000; grants went largely to U.S. recipients, especially in Illinois, and its ANCHOR program focuses on Evanston and Chicago. The profile does not state whether it accepts unsolicited requests.
Assets
$20.8B
Grants
383
Total Given
$133.4M
More similar funders
More Funders in Ohio
The filing figures on this page are open data under CC BY 4.0. About GrantGraph Open
Figures come from Siegel Rare Neuroimmune Association's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.
Siegel Rare Neuroimmune Association down — hundreds of funders to go?