Scleroderma Research Foundation
The Scleroderma Research Foundation (SRF) is a public charity based in San Francisco, California, founded in 1987. Its work centers on funding and facilitating research into scleroderma, including efforts to develop improved treatments and ultimately find a cure.
Scleroderma Research Foundation at a glance
In short: Scleroderma Research Foundation gave $3.8M across 26 grants in 2025 (avg $145K), top state California. 8% of 2025 grantees were new. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $3,765,808
- +13.5% vs 2024
- Grants made (2025)
- 26
- +13.0% vs 2024
- Average grant
- $144,839
- +0.4% vs 2024
- Median grant
- $112,475
- Total assets
- $42,239,970
- +28.0% vs 2024
- New grantees (estimate)
- 8% first-time grantees (2 of 26, 2025)
- Primary geography
- California (33% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026. New grantees are estimated by matching recipient names across years (methodology).
How to apply to Scleroderma Research Foundation
- How to Apply
-
The SRF’s listed programs have different eligibility requirements. Postdoctoral Fellowship applicants must have an MD or PhD from a U.S. institution and include a letter from the sponsoring lead investigator; Early Career Grants are for early-career scleroderma clinicians seeking time for substantial research. The SRF’s research-call materials specify the application documents and review process described above.
- Review Cycle
- December 31, 2027, for the three programs listed as currently open; the separate 2026 research-call receipt date has passed.
- Deadline
- December 31, 2027, for the three programs listed as currently open; the separate 2026 research-call receipt date has…
- Next open deadline
- December 31, 2027 (Early Career Grants)
- Contact
Mailing address: 220 Montgomery St Ste 484, San Francisco, CA 94104
Phone: (415) 834-9444
Application details from Grantable's research on the foundation's public materials; confirm on its website before applying.
Open Grants
3 open opportunities from Scleroderma Research Foundation
Early Career Grants
Scleroderma Research Foundation
Amount
Varies
Deadline
Expected ~December
Based on past cycles
Established Investigator and New Faculty Grants
Scleroderma Research Foundation
Amount
Varies
Deadline
Expected ~December
Based on past cycles
Postdoctoral Fellowship Grants
Scleroderma Research Foundation
Amount
Varies
Deadline
Expected ~December
Based on past cycles
Who Scleroderma Research Foundation funds
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2025
The largest 2025 recipient was Regents of Univ of CA-UCSF ($467K). Together the top 10 received $2.7M.
Grant Size Distribution
109 grants across all recorded years
The most common grant size was under $50K: 41 grants of 109 (38%).
Geographic Focus
Where this funder awards grants
The Established Investigator and New Faculty, Postdoctoral Fellowship, and Early Career grant listings specify a United States geographic scope. The SRF’s 2026 research-call eligibility also included researchers at nonprofit domestic or foreign organizations. In its 2025 grantmaking, 33% of grant dollars went to recipients in California, 11% each to New York, Pennsylvania, and Texas, and 10% to Utah.
Grant Distribution by State
Share of 2025 grant dollars across all 26 itemized grants.
States
Cities
Is Scleroderma Research Foundation open to new grantees?
8%
first-time grantees, 2025
In 2025, 2 of 26 grantees (8%) were first-time recipients. First grants averaged $71K; repeat grants $151K. How we count
Medians: $71K first-time, $120K repeat.
Estimate from itemized grant lists in IRS Form 990 filings (2019–2025). Recipient names are matched across years, so a renamed or misspelled grantee can look new; grants to individuals are left out. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2019 to 2025, annual grant giving ranged from $1.7M (2020) to $3.8M (2025). In 2025 it made 26 grants totaling $3.8M.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Regents of Univ of CA-UCSF San Francisco, CA | Research | $466,635 |
| Stanford School of Medicine San Francisco, CA | Research | $459,985 |
| University of Utah Salt Lake City, UT | Research | $365,618 |
| Univ of TX Health Science Ctr Dallas, TX | Research | $314,255 |
| Regents of Univ of Michigan Pittsburgh, PA | Research | $218,440 |
| John Hopkins University Chicago, IL | Research | $212,416 |
| Hospital for Special Surgery New York, NY | Research | $191,356 |
| University of Pittsburgh Pittsburgh, PA | Research | $176,500 |
| NYU Grossman School Medicine New York, NY | Research | $150,000 |
| Boston Childrens Hospital Co Boston, MA | Research | $147,103 |
Ready to take the next step with Scleroderma Research Foundation?
Financial History
Multi-year comparison from IRS filings
The organization reported that $10,427,237 in funds received and disbursed for CONQUEST clinical-trial costs was accounted for on a pass-through basis during the year ended December 31, 2025.
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $42,239,970 | $13,131,089 | $10,325,525 | $3,765,808 | 26 | $1,584,991 |
| 2024 | $32,999,784 | $12,173,161 | $9,622,521 | $3,317,124 | 23 | $1,211,667 |
| 2023 | $18,654,748 | $8,418,038 | $6,487,599 | $2,482,921 | 22 | $904,546 |
| 2022 | $11,143,637 | $5,892,738 | $4,658,602 | $2,414,303 | 20 | $116,754 |
| 2021 | $9,819,469 | $3,768,969 | $3,687,303 | $2,177,289 | 18 | $411,284 |
| 2020 | $9,592,172 | $3,931,140 | $2,957,771 | $1,714,642 | 15 | $347,227 |
| 2019 | $7,445,548 | $5,168,122 | $3,364,239 | $2,077,403 | 18 | $121,580 |
Research compiled by Grantable AI from public sources. Last updated September 2026.
Mission & Focus Areas
The organization’s stated mission is to fund and facilitate promising, high-quality research aimed at new treatments and, ultimately, a cure for scleroderma. Its research program supports work on scleroderma’s pathogenesis and therapeutic approaches, and seeks collaboration among researchers in fields including rheumatology, immunology, genetics, and fibrosis.
The SRF’s listed 2026 research application call sought research on molecular pathogenesis and new interventions, including hypothesis-driven therapeutic approaches. Its program materials describe support for investigator-initiated, exploratory/developmental, and new faculty research. Separately, its grant listings include postdoctoral fellowships and early-career grants for scleroderma research and clinical work.
The 2025 grants listed in the filing were identified as research grants. Recipients include universities, hospitals, and medical institutions. For example, the University of Pittsburgh describes itself as a public research university serving its region and the nation; Northwestern University describes a commitment to teaching and innovative research; and Mayo Clinic describes its work as integrated clinical practice, education, and research. These are the grantees’ own descriptions.
Grantmaking
In filing year 2025, the SRF reported 26 grants totaling $3,765,808. Grant amounts ranged from $11,344 to $466,635, with a median of $112,475. The largest awards included $466,635 to Regents of the University of California–UCSF, $459,985 to Stanford School of Medicine, $365,618 to the University of Utah, and $314,255 to the University of Texas Health Science Center; each was listed for research. Other notable awards were $218,440 to Regents of the University of Michigan, $212,416 to Johns Hopkins University, $191,356 to Hospital for Special Surgery, and $176,500 to the University of Pittsburgh.
For the SRF’s molecular pathogenesis and new interventions research call, the website listed a completed, signed application, supplemental materials, a research proposal, and three letters of recommendation as required materials. The call allowed applications from researchers at nonprofit domestic or foreign organizations, including universities, hospitals, and laboratories, and welcomed both experienced scleroderma researchers and scientists new to the field. The website’s stated receipt date of March 31, 2026, is a past cycle. Separately, the SRF’s grant-program listings identify Established Investigator and New Faculty Grants, Postdoctoral Fellowship Grants, and Early Career Grants as currently open, with a listed deadline of December 31, 2027. The listed restriction for Established Investigator and New Faculty Grants says SRF support generally may not be used for administrative overhead, indirect expenses, or other institutional charges, with few exceptions.
Leadership & Key People
Leadership team and compensation from IRS filings
The 2025 filing lists Gregory Gordon as Chief Medical Officer; Joanne Gold as Executive Director; Gloria Blecha as Vice President of Communications; Hannah Young as Director of Communication; Neha Pamboo as Senior Accounting Manager; and Anoushka Donnelley as Director of Philanthropy. Listed board officers and members are Luke Evnin, PhD, Chairman; Susan Feniger, Secretary; Deann Wright, Treasurer; and Omar Baker, MD, Board Member.
Scleroderma Research Foundation is led by Joanne Gold, Executive Director on every filing since 2020; 6 of 18 officers listed in 2025 are compensated.
Officers on the 2025 filing
Joanne Gold
Executive Director
On filings since 2020
40 hrs/week
$161K (2020) → $220K (2025)
Luke Evnin PhD
Chairman
Chair & Secretary → Chairman, 2020
On filings since 2019
40 hrs/week
No compensation reported
Hannah Young
Director Communications
On filings since 2023
40 hrs/week
$110K (2023) → $131K (2025)
Anoushka Donnelley
Director Philanthropy
New on the 2025 filing
40 hrs/week
$113K (2025)
Gloria Blecha
Vice President Communications
Development Mngr → Senior Director Committee O & Executive Director, 2023
Senior Director Committee O & Executive Director → Vice President Communications, 2024
On filings since 2022
40 hrs/week
$105K (2022) → $179K (2025)
Gregory Gordon
Chief Medical Officer
On filings since 2024
40 hrs/week
$416K (2024) → $526K (2025)
Neha Pamboo
Senior Acct. Manager
New on the 2025 filing
40 hrs/week
$119K (2025)
David Knoller
Board Member
On filings since 2019
1 hr/week
No compensation reported
Deann Wright
Treasurer
President → Secretary, 2020
Secretary → Treasurer, 2024
On filings since 2019
10 hrs/week
No compensation reported
Eric Kau MD
Board Member
On filings since 2019
2 hrs/week
No compensation reported
Sharon Dobie MD
Board Member
On filings since 2019
2 hrs/week
No compensation reported
Susan Feniger
Secretary
Board Member → Treasurer, 2023
Treasurer → Secretary, 2024
On filings since 2019
10 hrs/week
No compensation reported
Violetta Merin
Board Member
On filings since 2019
1 hr/week
No compensation reported
Regina Hall
Board Member
On filings since 2021
1 hr/week
No compensation reported
Jeff Seaman
Board Member
On filings since 2023
2 hrs/week
No compensation reported
Omar Baker MD
Board Member
On filings since 2023
2 hrs/week
No compensation reported
Dan Schimberg
Board Member
New on the 2025 filing
2 hrs/week
No compensation reported
Mark Scher
Board Member
New on the 2025 filing
1 hr/week
No compensation reported
Former officers (9)
- Former: Kate Ceredona (2023–2024) — Director Philanthropy
- Former: Caryn Zucker (2019–2023) — Board Member
- Former: Bob Saget (2019–2022) — Board Member
- Former: Bob Smith (2019–2022) — Treasurer
- Former: Cori Traub (2021) — Director Philanthropy
- Former: Rob Tufel (2020) — Executive Director
- Former: Alex Gonzalez (2019) — Director Development
- Former: Amy Hewitt (2019) — Executive Director
- Former: Tom Frank (2019) — Executive Director
Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $526K, to Gregory Gordon (Chief Medical Officer). 6 officers or directors reported compensation on that filing.
Frequently asked questions about Scleroderma Research Foundation
How much does Scleroderma Research Foundation give each year?
Scleroderma Research Foundation gave $3.8M across 26 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $3.3M across 23 grants.
What is Scleroderma Research Foundation's typical grant size?
Scleroderma Research Foundation's median grant in 2025 was $112,475, and its average grant was $144,839, across 26 grants on its 2025 IRS Form 990. Organizations receiving their first grant from Scleroderma Research Foundation that year got $71K on average.
Where does Scleroderma Research Foundation give grants?
Scleroderma Research Foundation's top state is California, with 33% of the grant dollars itemized on its 2025 IRS Form 990. The next largest states were New York (11%) and Pennsylvania (11%). The most frequent recipient cities were New York, NY (3 grants), San Francisco, CA (2 grants), Dallas, TX (2 grants) and Pittsburgh, PA (2 grants).
Does Scleroderma Research Foundation give general operating support?
Not in 2025: none of the 26 grants with a stated purpose on Scleroderma Research Foundation's 2025 IRS Form 990 were described as general or operating support. Recurring purposes include "Research" (26 grants).
Who are Scleroderma Research Foundation's largest grantees?
Scleroderma Research Foundation's largest 2025 grantees include Regents of Univ of CA-UCSF ($466,635), Stanford School of Medicine ($459,985) and University of Utah ($365,618), according to its 2025 IRS Form 990. Together they received 34% of its itemized 2025 grant dollars.
How large is Scleroderma Research Foundation?
Scleroderma Research Foundation reported $42.2M in total assets on its 2025 IRS Form 990. Its revenue that year was $13.1M.
What does Scleroderma Research Foundation fund?
The organization’s stated mission is to fund and facilitate promising, high-quality research aimed at new treatments and, ultimately, a cure for scleroderma. See mission & focus areas ↑
How do I apply for a grant from Scleroderma Research Foundation?
The SRF’s listed programs have different eligibility requirements. Eligibility and process details are in the grantmaking section of this profile. See how to apply ↑
What is Scleroderma Research Foundation's EIN?
Scleroderma Research Foundation's EIN (Employer Identification Number) is 68-0087234. IRS Form 990 filing data is available on this page for 2019–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings. Research dossier generated September 2026.
Data update history
(8)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS June 30, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS June 9, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS September 21, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS August 28, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS August 28, 2025)
- Added Form 990 for fiscal year 2019 (received by the IRS February 14, 2020)
- Added Form 990 for fiscal year 2025 (received by the IRS June 18, 2026)
- IRS filings on file for fiscal years 2020–2024
Explore Open Grants
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Cite this profile
Grantable. (2026). Scleroderma Research Foundation funder profile. GrantGraph. Retrieved October 14, 2026, from https://grantable.co/funders/scleroderma-research-foundation-morg_da887a46255046108e76d0d3857692dc
BibTeX
@misc{grantable_680087234_2026,
author = {{Grantable}},
title = {{Scleroderma Research Foundation funder profile}},
howpublished = {GrantGraph},
year = {2026},
url = {https://grantable.co/funders/scleroderma-research-foundation-morg_da887a46255046108e76d0d3857692dc},
note = {Accessed 2026-10-14. Data licensed CC BY 4.0}
}The figures on this page are open data under CC BY 4.0: reuse them with credit to Grantable and a link. Download the data.
Figures come from Scleroderma Research Foundation's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.
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