Rare Olive Org Inc
Rare Olive Org Inc supports treatment research and patient advocacy for Lunapark Syndrome LNPK an ultra-rare genetic disorder. Founded by a family whose daughter was the first known LNPK case in the United States we are committed to building a path forward for patients and families worldwide.
Rare Olive Org Inc at a glance
In short: Rare Olive Org Inc gave $300K across 1 grant in 2024 (avg $300K), mostly in Texas. Source: 2024 IRS Form 990.
- Annual giving (2024)
- $299,677
- Grants made (2024)
- 1
- Average grant
- $299,677
- Median grant
- $299,677
- Total assets
- $137,497
- +426.2% vs 2023
- Primary geography
- Texas (100% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026.
Who Rare Olive Org Inc funds
How this funder distributes its grants
Top Recipients
Top recipient in 2024
The largest 2024 recipient was Steven Gray Laboratory UTSW Medical ($300K).
Grant Size Distribution
1 grant across all recorded years
The most common grant size was in the $250–500K range: 1 grant of 1 (100%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of the 2024 grant dollars on its one itemized grant.
States
Cities
Giving History
Giving Over Time
Total grant dollars and number of grants per year
In 2024 it made 1 grant totaling $300K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Steven Gray Laboratory UTSW Medical Dallas, TX | Sponsored research grant with the Gray Lab at University of Texas Southwestern to develop validate and test safety and efficacy of a gene replacement therapy in restoring the LNPK protein in a mouse disease model. | $299,677 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $137,497 | $414,642 | $303,287 | $299,677 | 1 | $915 |
| 2023 | $26,130 | $76,978 | $103,054 | — | — | — |
About Rare Olive Org Inc
Based on IRS filings
Rare Olive Org Inc is a public charity, based in Bethesda, MD. IRS filing data is available from 2023 through 2024. As of 2024, the organization holds $137K in total assets. In 2024, it awarded 1 grant totaling $300K. Net investment income was $915.
Leadership & Key People
Officers and directors from IRS filings
Rare Olive Org Inc is led by Lauren Flickinger, President CEO since 2024 (on filings since 2023); none of the 2 officers listed in 2024 report compensation.
Officers on the 2024 filing
Lauren Flickinger
President CEO
President & CEO → President CEO, 2024
On filings since 2023
10 hrs/week
No compensation reported
Andrew Flickinger
Treasurer Secretary
Treasurer & Secretary → Treasurer Secretary, 2024
On filings since 2023
5 hrs/week
No compensation reported
Data from IRS Form 990 filings, 2023–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Frequently asked questions about Rare Olive Org Inc
How much does Rare Olive Org Inc give each year?
Rare Olive Org Inc gave $300K across 1 grant in 2024, according to its 2024 IRS Form 990.
How large is Rare Olive Org Inc?
Rare Olive Org Inc reported $137K in total assets on its 2024 IRS Form 990. Its revenue that year was $415K.
Where does Rare Olive Org Inc operate?
Rare Olive Org Inc has awarded grants in Texas.
What is Rare Olive Org Inc's EIN?
Rare Olive Org Inc's EIN (Employer Identification Number) is 92-0771031. IRS Form 990 filing data is available on this page for 2023–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(2)
When this profile's IRS filing data changed on Grantable
- Updated Form 990-EZ for fiscal year 2023 (received by the IRS April 14, 2026)
- Added Form 990 for fiscal year 2024 (received by the IRS June 2, 2026)
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Figures come from Rare Olive Org Inc's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.
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