Sickle Cell Disease Association of America Inc
The Sickle Cell Disease Association of America Inc (SCDAA) is a public charity based in Hanover, Maryland, founded in 1972. It works nationally with community-based member organizations to advocate for people affected by sickle cell conditions, build public awareness, support access to care, and advance research toward a universal cure.
Sickle Cell Disease Association of America Inc at a glance
- Total assets
- $2,250,168
- -0.3% vs 2023
- Revenue (2024)
- $1,791,972
- -1.1% vs 2023
- Net investment income (2024)
- $84,250
- +0.6% vs 2023
- Expenses (2024)
- $1,707,722
- -5.7% vs 2023
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026.
How to apply to Sickle Cell Disease Association of America Inc
- Contact
Mailing address: 7240 Parkway Drive, Hanover, MD 21076
Phone: (410) 528-1555
Website: https://sicklecelldisease.org
Application details from Grantable's research on the foundation's public materials; confirm on its website before applying.
Who Sickle Cell Disease Association of America Inc funds
How this funder distributes its grants
Grant Size Distribution
16 grants across all recorded years
The most common grant size was in the $100–250K range: 11 grants of 16 (69%).
Geographic Focus
Where this funder awards grants
SCDAA says its member organizations are located in 30 states and collectively serve people affected by sickle cell disease. Its program description refers to community outreach and services in the United States and Canada. The 2020 grantees listed were based in Georgia, Oklahoma, Pennsylvania, and California.
Grant Distribution by State
States
Cities
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2021, annual grant giving ranged from $1.2M (2021) to $2.1M (2020). In 2021 it reported $1.2M in grants paid, as a total without an itemized list.
Hatched bars: grants paid as reported on the IRS filing, which lists no individual grants for that year.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Sickle Cell Foundation of Georgia Inc Atlanta, GA | To fund SCD research | $266,490 |
| SCDAA-Michigan Chapter Inc Detroit, MI | To fund SCD research | $213,813 |
| Piedmont Health Services and Sickle Cell Agency Greensboro, NC | To fund SCD research | $209,897 |
| Sickle Cell Association of Texas Marc Thomas Foundation Austin, TX | To fund SCD research | $174,203 |
| Supporters of Families with Sickle Cell Disease Tulsa, OK | To fund SCD research | $153,623 |
| Sickle Cell Dusease Association of Illinois Chicago, IL | To fund SCD research | $130,080 |
| James R Clark Memorial Sickle Cell Foundation Columbia, SC | To fund SCD research | $126,443 |
| Children's Sickle Cell Foundation Pittsburgh, PA | To fund SCD research | $123,619 |
| Cayene wellness Center Glendale, CA | To fund SCD research | $116,883 |
| Sickle Cell Association of New Jersey Newark, NJ | To fund SCD research | $109,977 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $2,250,168 | $1,791,972 | $1,707,722 | — | — | $84,250 |
| 2023 | $2,256,766 | $1,811,601 | $1,810,923 | — | — | $83,728 |
| 2022 | $1,952,170 | $1,104,795 | $1,342,644 | — | — | $-96,347 |
| 2021 | $2,360,469 | $3,390,902 | $3,024,558 | $1,240,323 | Total only | $105,021 |
| 2020 | $2,209,830 | $5,839,599 | $5,030,834 | $2,069,527 | 16 | $65,021 |
"Total only": grants paid as reported on the IRS filing, which lists no individual grants for that year.
Research compiled by Grantable AI from public sources. Last updated September 2026.
Mission & Focus Areas
SCDAA’s mission is to advocate for people affected by sickle cell conditions and empower community-based organizations. Its website further describes its work as supporting quality of life, raising public consciousness, and advancing the search for a universal cure.
The organization’s stated program areas include community education and outreach; genetic testing and counseling, case management, and psychosocial support; newborn screening follow-up services, including education, counseling, advocacy, and access to a medical home; and a national network of patients, families, caregivers, and other stakeholders working with researchers on patient-centered and comparative-effectiveness research.
SCDAA’s website identifies advocacy priorities that include access to appropriate and affordable health care, help meeting basic financial, housing, and transportation needs, education and outreach, and research and treatment development.
Organizations that received SCDAA support in 2020 included the Sickle Cell Foundation of Georgia, which described its work as education, screening, and counseling; Supporters of Families with Sickle Cell Disease, which described its mission as improving quality of life for people with sickle cell disease and thalassemia and their families in Oklahoma; Children’s Sickle Cell Foundation, which described providing education and social and economic support to children and families; and the Sickle Cell Disease Foundation of California, which described its aim as improving care and compassion for people with sickle cell disease.
Grantmaking
The 2024 filing reports zero grants. The source material does not provide a recent-year total amount given, typical grant size, or application process.
In 2020, SCDAA supported the following organizations: Sickle Cell Foundation of Georgia ($266,490), Supporters of Families with Sickle Cell Disease ($153,623), Children’s Sickle Cell Foundation ($123,619), and Sickle Cell Disease Foundation of California ($81,693).
Leadership & Key People
Leadership team and compensation from IRS filings
The 2024 filing lists David N Braxton PhD as chair; Ed Folwers as treasurer; Jakela Parker as vice chair; and Genice T Nelson DNP APRN as secretary. It also lists Biree Andemarian MD as chief medical officer, Lewis Hsu MD as vice chief medical officer, Lennette J Benjamin MD as board member emeritus, and Kim Smith-Whitley MD, Regina Hartfield, and Christopher Hollins MBA as members.
Sickle Cell Disease Association of America Inc is led by Beverley Francis-Gibson, President & CEO on filings since 2020; 1 of 18 officers listed in 2024 is compensated.
Officers on the 2024 filing
Beverley Francis-Gibson
President & CEO
On filings since 2020
45 hrs/week
$149K (2020) → $186K (2024)
David N Braxton PhD
Chair
Member → Chair, 2021
On filings since 2020
5 hrs/week
No compensation reported
Leroy Hughes
Vice President
Vice President-Operations → Vice President, 2021
On filings since 2020
45 hrs/week
$106K (2020) → $0 (2024)
Regina Hartfield
Member
Member → President & CEO, 2023
President & CEO → Member, 2024
On filings since 2020
5 hrs/week
$185K (2023) → $0 (2024)
Bernie M Lawrence-Watkins Esq.
Member
Member → Secretary, 2023
Secretary → Member, 2024
On filings since 2020
5 hrs/week
No compensation reported
Biree Andemarian MD
Chief Medical Officer
Vice Chair → Chief Medical Officer, 2021
On filings since 2020
5 hrs/week
No compensation reported
Christopher Hollins MBA
Member
On filings since 2020
5 hrs/week
No compensation reported
Crystal A Riley PharmD MHA MBA
Member
On filings since 2020
5 hrs/week
No compensation reported
Kim Smith-Whitley MD
Member
On filings since 2020
5 hrs/week
No compensation reported
Lennette J Benjamin MD
Board Member Emeritus
Board Member Emeritus → Member, 2023
Member → Board Member Emeritus, 2024
On filings since 2020
5 hrs/week
No compensation reported
Lewis Hsu MD
Vice Chief Medical Officer
Chief Medical Officer → Vice Chief Medical Officer, 2021
On filings since 2020
5 hrs/week
No compensation reported
Tanique Mitchell
Member
On filings since 2020
5 hrs/week
No compensation reported
Thomas L Johnson JD
Member
Member → Chair, 2023
Chair → Member, 2024
On filings since 2020
5 hrs/week
No compensation reported
Ed Folwers
Treasurer
On filings since 2021
5 hrs/week
No compensation reported
Genice T Nelson DNP APRN
Secretary
On filings since 2021
5 hrs/week
No compensation reported
Gwendolyn PolesDO
Member
On filings since 2021
5 hrs/week
No compensation reported
Jakela Parker
Vice Chair
On filings since 2021
5 hrs/week
No compensation reported
Wanda Whitten-Shurney MD
Member
On filings since 2021
5 hrs/week
No compensation reported
Former officers (13)
- Former: Bobby Staten III (2020–2023) — Vice Chair
- Former: Ed Flowers (2020–2023) — Member
- Former: Edward Donnell Ivy (2020–2023) — Member
- Former: JaKela Walker (2020–2023) — Treasurer
- Former: Crystal Riley PharmD (2023) — Member
- Former: Katherine Napier CPA MBA (2023) — Member
- Former: Melissa Creary PhD (2023) — Board Member Emeritus
- Former: Monica Mitchell EdD (2023) — Member
- Former: Reginald Hart (2023) — CFO
- Former: TaLana Hill-Hughes MPH (2023) — Member
- Former: Cassandra A Norman (2020) — CFO
- Former: Gary Gibson (2020) — Member
- Former: Kwaku Ohene-Frempong MD (2020) — Board Member Emeritus
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
The highest reported compensation on the 2024 filing was $186K, to Beverley Francis-Gibson (President/CEO).
Frequently asked questions about Sickle Cell Disease Association of America Inc
How large is Sickle Cell Disease Association of America Inc?
Sickle Cell Disease Association of America Inc reported $2.3M in total assets on its 2024 IRS Form 990. Its revenue that year was $1.8M.
What does Sickle Cell Disease Association of America Inc fund?
SCDAA’s mission is to advocate for people affected by sickle cell conditions and empower community-based organizations. Its website further describes its work as supporting quality of life, raising public consciousness, and advancing the search for a universal cure. See mission & focus areas ↑
How do I apply for a grant from Sickle Cell Disease Association of America Inc?
Sickle Cell Disease Association of America Inc has no public application process in the sources Grantable reviewed. Check sicklecelldisease.org for current guidelines, or contact the foundation directly before submitting a request.
Where does Sickle Cell Disease Association of America Inc make grants?
SCDAA says its member organizations are located in 30 states and collectively serve people affected by sickle cell disease. Its program description refers to community outreach and services in the United States and Canada. The 2020 grantees listed were based in Georgia, Oklahoma, Pennsylvania, and California.
What is Sickle Cell Disease Association of America Inc's EIN?
Sickle Cell Disease Association of America Inc's EIN (Employer Identification Number) is 23-7175985. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings. Research dossier generated September 2026.
Data update history
(3)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS August 12, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS September 26, 2023)
- IRS filings on file for fiscal years 2020–2024
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