Racing for ALS Inc
To raise funds and awareness for research and treatment of motor neuron disease (ALS).
Racing for ALS Inc at a glance
In short: Racing for ALS Inc gave $152K across 2 grants in 2025 (avg $76K), mostly in Massachusetts. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $151,500
- -52.9% vs 2024
- Grants made (2025)
- 2
- +100.0% vs 2024
- Average grant
- $75,750
- -76.4% vs 2024
- Median grant
- $75,750
- Total assets
- $86,683
- -56.5% vs 2024
- Primary geography
- Massachusetts (82% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
Who Racing for ALS Inc funds
How this funder distributes its grants
Top Recipients
Top 2 recipients in 2025
The largest 2025 recipient was The ALS Therapy Development Institute ($124K). Together the top 2 received $152K.
Grant Size Distribution
6 grants across all recorded years
The most common grant size was in the $100–250K range: 3 grants of 6 (50%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2025 grant dollars across all 2 itemized grants.
States
Cities
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2025, annual grant giving ranged from $9K (2020) to $340K (2023). In 2025 it made 2 grants totaling $152K.
Hatched bars: grants paid as reported on the IRS filing, which lists no individual grants for that year.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| The ALS Therapy Development Institute Watertown, MA | To Support Research for ALS | $124,000 |
| Duke ALS Clinic Durham, NC | To Support Research for ALS | $27,500 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $86,683 | $506,322 | $611,804 | $151,500 | 2 | $-9,043 |
| 2024 | $199,119 | $1,041,063 | $983,179 | $321,500 | 1 | $4 |
| 2023 | $210,318 | $876,986 | $920,332 | $339,500 | 2 | $6 |
| 2022 | $296,333 | $759,873 | $743,319 | $236,041 | Total only | $23,558 |
| 2021 | $207,853 | $264,600 | $274,612 | $95,000 | 1 | $1 |
| 2020 | $233,376 | $323,965 | $152,880 | $8,995 | Total only | $1 |
"Total only": grants paid as reported on the IRS filing, which lists no individual grants for that year.
About Racing for ALS Inc
Based on IRS filings
Racing for ALS Inc is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Apex, NC. IRS filing data is available from 2020 through 2025. As of 2025, the organization holds $87K in total assets. In 2025, it awarded 2 grants totaling $152K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Racing for ALS Inc is led by Scott Lloyd, President on every filing since 2020; none of the 4 officers listed in 2025 report compensation.
Officers on the 2025 filing
Scott Lloyd
President
On filings since 2020
5 hrs/week
No compensation reported
Cameron Singleton
Vice President
On filings since 2020
5 hrs/week
No compensation reported
Marya Lloyd
Secretary & Treasurer
Secretary → Secretary & Treasurer, 2023
On filings since 2020
5 hrs/week
No compensation reported
Andrew Trammel
Treasurer
On filings since 2023
5 hrs/week
No compensation reported
Former officers (1)
- Former: David Lloyd Jr. (2020–2022) — Treasurer
Data from IRS Form 990 filings, 2020–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Frequently asked questions about Racing for ALS Inc
How much does Racing for ALS Inc give each year?
Racing for ALS Inc gave $152K across 2 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $322K across 1 grant.
How large is Racing for ALS Inc?
Racing for ALS Inc reported $87K in total assets on its 2025 IRS Form 990. Its revenue that year was $506K.
What is Racing for ALS Inc?
Racing for ALS Inc is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Apex, NC. It holds $87K in total assets as of 2025.
Where does Racing for ALS Inc operate?
Racing for ALS Inc has awarded grants in Massachusetts, North Carolina.
What is Racing for ALS Inc's EIN?
Racing for ALS Inc's EIN (Employer Identification Number) is 85-0750246. IRS Form 990 filing data is available on this page for 2020–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(6)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2021 (received by the IRS April 18, 2022)
- Updated Form 990 for fiscal year 2023 (received by the IRS May 14, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS December 22, 2025)
- Added Form 990 for fiscal year 2025 (received by the IRS June 4, 2026)
- Updated Form 990 for fiscal year 2020 (received by the IRS November 15, 2021)
- Updated Form 990 for fiscal year 2022 (received by the IRS June 16, 2023)
Live grants for the work Racing for ALS Inc funds
Diseases, Disorders & Medical Disciplines Open opportunities, soonest deadline first.
Explore Open Grants
Browse active grant opportunities in Racing for ALS Inc's focus areas in our free grants database
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The filing figures on this page are open data under CC BY 4.0. About GrantGraph Open
Figures come from Racing for ALS Inc's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.
Racing for ALS Inc down — hundreds of funders to go?