PROJECT LYME'S MISSION IS TO ERADICATE THE EPIDEMIC OF LYME DISEASE AND OTHER TICK-BORNE ILLNESSES BY SPREADING AWARENESS, PROVIDING EDUCATIONAL RESOURCES, FUNDING PEER-REVIEWED RESEARCH, AND SUPPORTING ADVOCACY FOR SOLUTIONS TO END THE SUFFERING. SINCE 2016, PROJECT LYME HAS CHALLENGED MISINFORMATION ABOUT DIAGNOSIS AND TREATMENT, ADVOCATED FOR PATIENTS' RIGHTS, AND BUILT A COMMUNITY FOR LYME PATIENTS AS WELL AS THEIR LOVED ONES.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$908K
-23.2% YoY
Annual Giving
$297K
+4.3% YoY
Grant Count
2
-33.3% YoY
Avg Grant Size
$148K
+56.5% YoY
About Project Lyme
Based on IRS filings
Project Lyme is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in NEW YORK, NY. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $908K in total assets. In 2024, it awarded 2 grants totaling $297K. Net investment income was $13K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $907,936 | $1,182,606 | $981,327 |
| Revenue | $546,084 | $982,451 | $790,982 |
| Expenses | $5,051,695 | $781,172 | $778,653 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $12,890 | $73 | — |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 2 recipients in 2024
Grant Size Distribution
10 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| NOAH JOHNSTON | EXECUTIVE DIRECTOR | 40 | $120,000 |
| DAVID ROTH | BOARD MEMBER | 2 | — |
| JENNIFER WEIS | BOARD MEMBER | 5 | — |
| NAN KURZMAN | BOARD MEMBER | 2 | — |
| SCOTT MORESCO | TREASURER | 5 | — |
| KIM DICKSTEIN | SECRETARY | 5 | — |
| MARK WEBER | BOARD MEMBER | 2 | — |
| MELISSA BELL | BOARD MEMBER | 10 | — |
| ISABEL ROSE | BOARD MEMBER | 5 | — |
| ALEXANDRA MORESCO | BOARD CHAIR | 10 | — |
| SUSAN GOLDENBERG | BOARD MEMBER | 5 | — |
| NINA LEVENE | BOARD MEMBER | 1 | — |
Subject Areas
Focus areas based on grantmaking activity
Related Funders
Similar funders by location and focus area
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Hindy's Foundation
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Assets
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Jeanne & Thomas Hardy Family Foundation
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Assets
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Ramsleg Foundation
BRIGHTWATERS, NY
Assets
$543
Grants
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Total Given
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Druckenmiller Foundation
NEW YORK, NY
Assets
$1.8B
Grants
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Total Given
$135.7M
Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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