PROJECT LYME'S MISSION IS TO ERADICATE THE EPIDEMIC OF LYME DISEASE AND OTHER TICK-BORNE ILLNESSES BY SPREADING AWARENESS, PROVIDING EDUCATIONAL RESOURCES, FUNDING PEER-REVIEWED RESEARCH, AND SUPPORTING ADVOCACY FOR SOLUTIONS TO END THE SUFFERING. SINCE 2016, PROJECT LYME HAS CHALLENGED MISINFORMATION ABOUT DIAGNOSIS AND TREATMENT, ADVOCATED FOR PATIENTS' RIGHTS, AND BUILT A COMMUNITY FOR LYME PATIENTS AS WELL AS THEIR LOVED ONES.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$908K
-23.2% YoY
Annual Giving
$297K
+4.3% YoY
Grant Count
2
-33.3% YoY
Avg Grant Size
$148K
+56.5% YoY
About Project Lyme
Based on IRS filings
Project Lyme is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in NEW YORK, NY. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $908K in total assets. In 2024, it awarded 2 grants totaling $297K. Net investment income was $13K.
Focus Areas
Ready to take the next step with Project Lyme?
Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $907,936 | $1,182,606 | $981,327 |
| Revenue | $546,084 | $982,451 | $790,982 |
| Expenses | $5,051,695 | $781,172 | $778,653 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $12,890 | $73 | — |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 2 recipients in 2024
Grant Size Distribution
10 grants across all recorded years
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include Bay Area Lyme ($251,900), Creative Visions Foundation ($45,000).
| Recipient | Purpose | Amount |
|---|---|---|
| BAY AREA LYME PORTOLA VALLEY, CA | MONICA EMBERS PROJECT | $251,900 |
| CREATIVE VISIONS FOUNDATION MALIBU, CA | SUPPORT FOR THE DISTRIBUTION OF DOCUMENTARY FILM | $45,000 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| NOAH JOHNSTON | EXECUTIVE DIRECTOR | 40 | $120,000 |
| DAVID ROTH | BOARD MEMBER | 2 | — |
| JENNIFER WEIS | BOARD MEMBER | 5 | — |
| NAN KURZMAN | BOARD MEMBER | 2 | — |
| SCOTT MORESCO | TREASURER | 5 | — |
| KIM DICKSTEIN | SECRETARY | 5 | — |
| MARK WEBER | BOARD MEMBER | 2 | — |
| MELISSA BELL | BOARD MEMBER | 10 | — |
| ISABEL ROSE | BOARD MEMBER | 5 | — |
| ALEXANDRA MORESCO | BOARD CHAIR | 10 | — |
| SUSAN GOLDENBERG | BOARD MEMBER | 5 | — |
| NINA LEVENE | BOARD MEMBER | 1 | — |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Project Lyme?
Project Lyme is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in NEW YORK, NY. It holds $908K in total assets as of 2024.
How large is Project Lyme?
As of 2024, Project Lyme holds $908K in total assets with $546K in annual revenue. It awarded 2 grants totaling $297K in 2024.
Where does Project Lyme operate?
Project Lyme has awarded grants in Arizona, California, New York.
What size grants does Project Lyme award?
In 2024, Project Lyme awarded 2 grants totaling $297K — an average of about $148K per grant, based on its IRS Form 990 filings.
What is Project Lyme's EIN?
Project Lyme's EIN (Employer Identification Number) is 81-1138289. IRS Form 990 filing data is available on this page for 2020–2024.
Explore Open Grants
Browse active grant opportunities in Project Lyme's focus areas in our free grants database
Related Funders
Similar funders by location and focus area
The Reich Family Charitable Trust
BROOKLYN, NY
Assets
$689K
Grants
1
Total Given
$453K
Launa Beuhler Foundation for
BROOKLYN, NY
Assets
$2K
Grants
4
Total Given
$20K
The Hilary Grace Foundation Inc
EAST AMHERST, NY
Assets
$126K
Grants
2
Total Given
$36K
Uw E J Madden Mem Open Hearts Club 10-214880
NEW YORK, NY
Assets
$1.3M
Grants
1
Total Given
$307K
Hindy's Foundation
BROOKLYN, NY
Assets
$142K
Grants
8
Total Given
$225K
Jeanne & Thomas Hardy Family Foundation
NEW YORK, NY
Assets
$3K
Grants
3
Total Given
$3K
Data last updated April 2026. Sourced from IRS Form 990-PF filings.
What could you do with Project Lyme on Grantable?
- Assess strategic fit with your organization
- Draft a tailored letter of inquiry
- Find open RFPs from this funder
- Monitor for new funding opportunities
Go from researching Project Lyme to a real strategy.