Project Lyme
Project Lyme's mission is to eradicate the epidemic of lyme disease and other tick-borne illnesses by spreading awareness, providing educational resources, funding peer-reviewed research, and supporting advocacy for solutions to end the suffering. Since 2016, Project Lyme has challenged misinformation about diagnosis and treatment, advocated for patients' rights, and built a community for lyme patients as well as their loved ones.
Project Lyme at a glance
In short: Project Lyme gave $297K across 2 grants in 2024 (avg $148K), mostly in California. Source: 2024 IRS Form 990.
- Annual giving (2024)
- $296,900
- +4.3% vs 2023
- Grants made (2024)
- 2
- -33.3% vs 2023
- Average grant
- $148,450
- +56.5% vs 2023
- Median grant
- $148,450
- Total assets
- $907,936
- -23.2% vs 2023
- Primary geography
- California (100% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026.
Who Project Lyme funds
How this funder distributes its grants
Top Recipients
Top 2 recipients in 2024
The largest 2024 recipient was Bay Area Lyme ($252K). Together the top 2 received $297K.
Grant Size Distribution
10 grants across all recorded years
The most common grant size was under $50K: 4 grants of 10 (40%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2024 grant dollars across all 2 itemized grants.
States
Cities
How Project Lyme gives
- Giving grew 494% from 2021 to 2024. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2024, annual grant giving ranged from $50K (2021) to $539K (2020). In 2024 it made 2 grants totaling $297K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Bay Area Lyme Portola Valley, CA | Monica Embers Project | $251,900 |
| Creative Visions Foundation Malibu, CA | Support for the Distribution of Documentary Film | $45,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $907,936 | $546,084 | $5,051,695 | $296,900 | 2 | $12,890 |
| 2023 | $1,182,606 | $982,451 | $781,172 | $284,574 | 3 | $73 |
| 2022 | $981,327 | $790,982 | $778,653 | $405,305 | 2 | — |
| 2021 | $968,998 | $575,104 | $645,309 | $50,000 | 1 | — |
| 2020 | $1,039,203 | $1,541,914 | $983,981 | $538,896 | 2 | — |
About Project Lyme
Based on IRS filings
Project Lyme is a public charity focused on Diseases, Disorders & Medical Disciplines, based in New York, NY. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $908K in total assets. In 2024, it awarded 2 grants totaling $297K. Net investment income was $13K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Project Lyme is led by Noah Johnston, Executive Director on every filing since 2022; 1 of 12 officers listed in 2024 is compensated.
Officers on the 2024 filing
Noah Johnston
Executive Director
On filings since 2022
40 hrs/week
$106K (2022) → $120K (2024)
Alexandra Moresco
Board Chair
Board Member → Board Chair, 2024
On filings since 2023
10 hrs/week
No compensation reported
David Roth
Board Member
Executive Committee Chair → Board Member, 2024
On filings since 2020
2 hrs/week
No compensation reported
Isabel Rose
Board Member
On filings since 2020
5 hrs/week
No compensation reported
Jennifer Weis
Board Member
Co-Chair → Board Co-Chair, 2021
Board Co-Chair → Board Member, 2024
On filings since 2020
5 hrs/week
No compensation reported
Kim Dickstein
Secretary
On filings since 2020
5 hrs/week
No compensation reported
Mark Weber
Board Member
Treasurer → Board Member, 2023
On filings since 2020
2 hrs/week
No compensation reported
Melissa Bell
Board Member
On filings since 2020
10 hrs/week
No compensation reported
Nan Kurzman
Board Member
Co-Chair → Board Co-Chair, 2021
Board Co-Chair → Board Member, 2024
On filings since 2020
2 hrs/week
No compensation reported
Nina Levene
Board Member
On filings since 2020
1 hr/week
No compensation reported
Susan Goldenberg
Board Member
On filings since 2020
5 hrs/week
No compensation reported
Scott Moresco
Treasurer
On filings since 2023
5 hrs/week
No compensation reported
Former officers (8)
- Former: Bob Forster (2020–2023) — Board Member
- Former: Phyllis Bedford (2023) — Board Member
- Former: Steve Abrams (2023) — Board Member
- Former: Heidi Schecter (2020–2022) — Board Member
- Former: Kathleen Katzmann (2021–2022) — Board Member
- Former: Kristen Farrell (2021–2022) — Board Member
- Former: Drew Goldman (2020–2021) — Board Member
- Former: Brooke Stoddard (2021) — Board Member
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
The highest reported compensation on the 2024 filing was $120K, to Noah Johnston (Executive Director).
Frequently asked questions about Project Lyme
How much does Project Lyme give each year?
Project Lyme gave $297K across 2 grants in 2024, according to its 2024 IRS Form 990. In 2023 it gave $285K across 3 grants.
How large is Project Lyme?
Project Lyme reported $908K in total assets on its 2024 IRS Form 990. Its revenue that year was $546K.
What is Project Lyme?
Project Lyme is a public charity focused on Diseases, Disorders & Medical Disciplines, based in New York, NY. It holds $908K in total assets as of 2024.
Where does Project Lyme operate?
Project Lyme has awarded grants in Arizona, California, New York.
What is Project Lyme's EIN?
Project Lyme's EIN (Employer Identification Number) is 81-1138289. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(6)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS June 10, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS June 10, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS May 30, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS June 14, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS November 11, 2025)
- IRS filings on file for fiscal years 2020–2024
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Browse active grant opportunities in Project Lyme's focus areas in our free grants database
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Figures come from Project Lyme's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.
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