Lewy Body Dementia Association Inc logo

Lewy Body Dementia Association Inc

LILBURN, GA EIN: 05-0577683 Website

THROUGH OUTREACH, EDUCATION, AND RESEARCH, WE SUPPORT THOSE AFFECTED BY LEWY BODY DEMENTIAS.

Financial Overview

From 2024 IRS Form 990-PF · View filing

Total Assets

$9.6M

+17.5% YoY

Annual Giving

$388K

+29.2% YoY

Grant Count

25

+13.6% YoY

Avg Grant Size

$16K

+13.7% YoY

About Lewy Body Dementia Association Inc

Based on IRS filings

Lewy Body Dementia Association Inc is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in LILBURN, GA. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $9.6M in total assets. In 2024, it awarded 25 grants totaling $388K. Net investment income was $124K.

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Geographic Focus

Where this funder awards grants

Grant Distribution by State

19states
+11 more states

Cities

Ann ArborAtlantaAuroraBaltimoreBostonChapel HillCharlestonCharlestownChicagoClevelandColumbusCoral GablesFremontGainesvilleHoiustonJacksonvilleLa JollaNew YorkPhiladelphiaPhoenix

Financial History

Multi-year comparison from IRS filings

Revenue
Expenses
Qualifying Distributions
Net Investment Income
$0$1M$3M$4M$5M20202021202220232024
Metric202420232022
Total Assets$9,612,448$8,179,993$7,321,282
Revenue$4,977,169$3,641,562$4,183,987
Expenses$4,040,700$3,055,794$2,648,788
Qualifying Distributions
Net Investment Income$123,553$254,372$32,517
Distributable Amount

Giving Over Time

Total grant dollars and number of grants per year

$0$97K$194K$291K$388K4 grants20200 grants202122 grants202222 grants202325 grants2024

Grant Insights

How this funder distributes its grants

Top Recipients

Top 10 recipients in 2024

MAYO CLINIC ROCHESTER MI…$50KUNIVERSITY OF CALIFORNIA…$50KBARROW NEUROLOGICAL INST…$13KCLEVELAND CLINIC FOUNDAT…$13KCOLUMBIA UNIVERSITY$13KEMORY UNIVERSITY$13KJOHNS HOPKINS UNIVERSITY$13KMASSACHUSETTS GENERAL HO…$13KMAYO CLINIC JACKSONVILLE…$13KOREGON HEALTH & SCIENCE …$13K

Grant Size Distribution

73 grants across all recorded years

67<$50K6$50–100K$100–250K$250–500K$500K–1M$1–5M$5M+

Open Grants

1 open opportunity from Lewy Body Dementia Association Inc

Giving History

Grant recipients and amounts by year

Among its reported 2024 grants, the largest include Mayo Clinic Rochester Minnesota ($50,000), University of California San Diego ($50,000), Barrow Neurological Institute ($12,500).

RecipientPurposeAmount
BARROW NEUROLOGICAL INSTITUTE PHOENIX, AZRESEARCH CENTER OF EXCELLENCE AWARD$12,500
CLEVELAND CLINIC FOUNDATION CLEVELAND, OHRESEARCH CENTER OF EXCELLENCE AWARD$12,500
COLUMBIA UNIVERSITY NEW YORK, NYRESEARCH CENTER OF EXCELLENCE AWARD$12,500
EMORY UNIVERSITY ATLANTA, GARESEARCH CENTER OF EXCELLENCE AWARD$12,500
JOHNS HOPKINS UNIVERSITY BALTIMORE, MDRESEARCH CENTER OF EXCELLENCE AWARD$12,500
MASSACHUSETTS GENERAL HOSPITAL BOSTON, MARESEARCH CENTER OF EXCELLENCE AWARD$12,500
MAYO CLINIC ROCHESTER MINNESOTA ROCHESTER, MNRESEARCH CENTER OF EXCELLENCE AWARD$50,000
MAYO CLINIC JACKSONVILLE FLORIDA JACKSONVILLE, FLRESEARCH CENTER OF EXCELLENCE AWARD$12,500
OREGON HEALTH & SCIENCE UNIVERSITY PORTLAND, ORRESEARCH CENTER OF EXCELLENCE AWARD$12,500
RUSH UNIVERSITY MEDICAL CENTER CHICAGO, ILRESEARCH CENTER OF EXCELLENCE AWARD$12,500

Leadership & Key People

Officers and directors from IRS filings

Compensation Overview

From 2024 IRS filing

ALLISON FELDMANEXECUTIVE DIRECTOR$229KKEITH FARGODIRECTOR OF SCIENTIFIC INITI…$182KANGELA TAYLORVICE PRESIDENT OF STRATEGIC …$156KIAN RICHARDVICE PRESIDENT OF DEVELOPMENT$138KJULIA WOODDIRECTOR OF PROFESSIONAL AND…$110K

From 2024 filing

NameTitleHoursCompensation
SARAH SUNGPRESIDENT1
MARSHALL CANNONVICE PRESIDENT1
CARLA ABDELNOURSECRETARY1
ROGER BEANTREASURER1
ANITHA RAO MDMEMBER1
RODNEY WITCHERMEMBER1
ANGELA LUNDEMEMBER1
JEFFREY JACOBMEMBER1
GENELL GREENBERGMEMBER1
ALLISON FELDMANEXECUTIVE DIRECTOR40$229,285
KEITH FARGODIRECTOR OF SCIENTIFIC INITIATIVES40$181,919
ANGELA TAYLORVICE PRESIDENT OF STRATEGIC INITIATIVES40$155,931
IAN RICHARDVICE PRESIDENT OF DEVELOPMENT40$137,931
JULIA WOODDIRECTOR OF PROFESSIONAL AND COMMUNITY EDUCATION40$110,030

Subject Areas

Focus areas based on grantmaking activity

Frequently Asked Questions

What is Lewy Body Dementia Association Inc?

Lewy Body Dementia Association Inc is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in LILBURN, GA. It holds $9.6M in total assets as of 2024.

How large is Lewy Body Dementia Association Inc?

As of 2024, Lewy Body Dementia Association Inc holds $9.6M in total assets with $5.0M in annual revenue. It awarded 25 grants totaling $388K in 2024.

Where does Lewy Body Dementia Association Inc operate?

Lewy Body Dementia Association Inc has awarded grants in Arizona, California, Colorado, District of Columbia, Florida, Georgia, Illinois, Massachusetts, Maryland, Michigan, Minnesota, North Carolina, New York, Ohio, Oregon, Pennsylvania, South Carolina, Texas, Washington.

What size grants does Lewy Body Dementia Association Inc award?

In 2024, Lewy Body Dementia Association Inc awarded 25 grants totaling $388K — an average of about $16K per grant, based on its IRS Form 990 filings.

What is Lewy Body Dementia Association Inc's EIN?

Lewy Body Dementia Association Inc's EIN (Employer Identification Number) is 05-0577683. IRS Form 990 filing data is available on this page for 2020–2024.

Explore Open Grants

Browse active grant opportunities in Lewy Body Dementia Association Inc's focus areas in our free grants database

Related Funders

Similar funders by location and focus area

Data last updated April 2026. Sourced from IRS Form 990-PF filings.

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