Lewy Body Dementia Association Inc
The Lewy Body Dementia Association (LBDA) is a public charity based in Lilburn, Georgia, that supports people affected by Lewy body dementia (LBD) through education, support, and research. The organization describes itself as a national organization dedicated to improving the lives of people living with LBD.
Lewy Body Dementia Association Inc at a glance
In short: Lewy Body Dementia Association Inc gave $562K across 28 grants in 2025 (avg $20K), top state North Carolina. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $562,198
- +45.1% vs 2024
- Grants made (2025)
- 28
- +12.0% vs 2024
- Average grant
- $20,079
- +29.5% vs 2024
- Median grant
- $12,500
- Total assets
- $10,756,254
- +11.9% vs 2024
- Primary geography
- North Carolina (29% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
How to apply to Lewy Body Dementia Association Inc
- How to Apply
-
For the 2026 New Investigator Pilot Study Award, submit an application through ProposalCentral; the request for applications provides full details. The stated eligibility restriction is that applicants must not have received an NIH R01 in LBD research.
- Review Cycle
- Letters of intent are due April 17, 2026; applications are due June 15, 2026.
- Deadline
- Letters of intent are due April 17, 2026; applications are due June 15, 2026.
- Contact
Mailing address: 912 Killian Hill Road Sw, Lilburn, GA 30047
Phone: (404) 935-6444
Website: https://lbda.org
Application details from Grantable's research on the foundation's public materials; confirm on its website before applying.
Open Grants
1 open opportunity from Lewy Body Dementia Association Inc
Who Lewy Body Dementia Association Inc funds
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2025
The largest 2025 recipient was Duke University ($150K). Together the top 10 received $350K.
Grant Size Distribution
97 grants across all recorded years
The most common grant size was under $50K: 89 grants of 97 (92%).
Geographic Focus
Where this funder awards grants
LBDA describes its work and support as national in scope and says it partners with 27 institutions through its Research Centers of Excellence. Its 2025 grants went to recipients in multiple states; the largest shares of grant dollars went to North Carolina (29%), Florida (16%), and California (11%).
Grant Distribution by State
Share of 2025 grant dollars across all 28 itemized grants.
States
Cities
How Lewy Body Dementia Association Inc gives
Estimate from itemized grant lists in IRS Form 990 filings (2025). Recipient names are matched across years, so a renamed or misspelled grantee can look new; grants to individuals are left out. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2025, annual grant giving ranged from $45K (2021) to $562K (2025). In 2025 it made 28 grants totaling $562K.
Hatched bars: grants paid as reported on the IRS filing, which lists no individual grants for that year.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Duke University Charlotte, NC | Dementia Nomenclature Initiative Project | $149,698 |
| University of Florida Gainesville, FL | New Investigator Pilot Study Award Program | $50,000 |
| Stanford University Redwood City, CA | RCOE Coordinating Center | $50,000 |
| Park Nicollet Methodist Hospital Struthers Parkinson Center Golden Valley, MN | Research Centers of Excellence | $12,500 |
| Virginia Commonwealth University Richmond, VA | Research Centers of Excellence | $12,500 |
| Regents of the University of Michigan Ann Arbor, MI | Research Centers of Excellence | $12,500 |
| Medical University of South Carolina Charleston, SC | Research Centers of Excellence | $12,500 |
| Oregon Health & Science University Portland, OR | Research Centers of Excellence | $12,500 |
| Dignity Health Phoenix, AZ | Research Centers of Excellence | $12,500 |
| Columbia University in the City of New York New York, NY | Research Centers of Excellence | $12,500 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $10,756,254 | $5,102,891 | $4,440,540 | $562,198 | 28 | $292,238 |
| 2024 | $9,612,448 | $4,977,169 | $4,040,700 | $387,500 | 25 | $123,553 |
| 2023 | $8,179,993 | $3,641,562 | $3,055,794 | $300,000 | 22 | $254,372 |
| 2022 | $7,321,282 | $4,183,987 | $2,648,788 | $207,500 | 22 | $32,517 |
| 2021 | $6,013,384 | $2,872,342 | $2,382,784 | $45,000 | Total only | $500 |
| 2020 | $5,554,767 | $3,748,830 | $2,037,647 | $72,500 | 4 | $559 |
"Total only": grants paid as reported on the IRS filing, which lists no individual grants for that year.
Research compiled by Grantable AI from public sources. Last updated September 2026.
Mission & Focus Areas
LBDA’s mission is to optimize quality of life for those affected by LBD by accelerating awareness, advancing research for early diagnosis and improved care, and providing comprehensive education and compassionate support.
Its research funding includes support for academic Research Centers of Excellence and a pilot award for translational or clinical studies intended to develop preliminary data for future grant applications. The pilot award seeks research that advances diagnosis, management, and support for people with LBD and family caregivers.
The 2025 grantees include universities, medical centers, and other research or healthcare institutions. For example, Oregon Health & Science University describes its philanthropic organization’s mission as advancing the university’s missions and responsibly managing gifts; Rush University Medical Center describes its mission as improving health through patient care, education, research, and community partnerships. The Medical University of South Carolina Foundation says it promotes the university’s educational, research, clinical, and other programs. These are the grantees’ stated missions, not LBDA’s.
Grantmaking
In filing year 2025, LBDA reported 28 grants totaling $562,198. Grant amounts ranged from $12,500 to $149,698, with a median of $12,500. The largest award was $149,698 to Duke University in Charlotte, North Carolina, for the Dementia Nomenclature Initiative Project. Other large awards were $50,000 to the University of Florida for its New Investigator Pilot Study Award Program and $50,000 to Stanford University for the RCOE Coordinating Center.
LBDA also awarded $12,500 grants for Research Centers of Excellence to institutions including Park Nicollet Methodist Hospital Struthers Parkinson Center, Virginia Commonwealth University, the University of Michigan, the Medical University of South Carolina, Oregon Health & Science University, Dignity Health, Columbia University, Rush University Medical Center, and the University of Colorado Denver.
For its 2026 New Investigator Pilot Study Award, LBDA intends to make one award of up to $50,000 total, including up to 10% indirect costs, for a one-year project. Eligible applicants include early-stage investigators and established researchers from other fields who have not yet received an NIH R01 in LBD research. Applications must be submitted through ProposalCentral. The filing states that grantees must submit an annual and/or final report on funded activities aligned with the program goals and grant contract.
Leadership & Key People
Leadership team and compensation from IRS filings
The 2025 filing lists Sarah Sung as president; Carla Abdelnour as vice president; Genell Greenberg as secretary; and Jeffrey Jacob as treasurer. It lists Angela Lunde, Anitha Rao MD, Jeffrey Bodington, Jennifer Goldman, Mary-Kay Boler, and Rodney Witcher as members.
Lewy Body Dementia Association Inc is led by Allison Feldman, Executive Director on every filing since 2022; 6 of 16 officers listed in 2025 are compensated.
Officers on the 2025 filing
Allison Feldman
Executive Director
On filings since 2022
40 hrs/week
$107K (2022) → $229K (2025)
Sarah Sung
President
Director → Secretary, 2023
Secretary → President, 2024
On filings since 2022
5 hrs/week
No compensation reported
Julia Wood
Director of Professional & Community Education
On filings since 2022
40 hrs/week
$101K (2022) → $123K (2025)
Keith Fargo
Director of Scientific Initiatives
On filings since 2023
40 hrs/week
$173K (2023) → $189K (2025)
Lena Fung
Director of Development
New on the 2025 filing
40 hrs/week
$114K (2025)
Angela Taylor
Vice President of Strategic Partnerships
Vice President of Strategic Initatives → Vice President of Strategic Initiatives, 2023
Vice President of Strategic Initiatives → Vice President of Strategic Partnerships, 2025
On filings since 2022
40 hrs/week
$140K (2022) → $119K (2025)
Sudhir Sivakumaran
Chief Scientific Officer
New on the 2025 filing
40 hrs/week
$140K (2025)
Anitha Rao MD
Member
Director → Member, 2023
On filings since 2022
2 hrs/week
No compensation reported
Carla Abdelnour
Vice President
Member → Secretary, 2024
Secretary → Vice President, 2025
On filings since 2022
5 hrs/week
No compensation reported
Rodney Witcher
Member
Director → Member, 2023
On filings since 2022
2 hrs/week
No compensation reported
Angela Lunde
Member
On filings since 2023
2 hrs/week
No compensation reported
Jeffrey Jacob
Treasurer
Member → Treasurer, 2025
On filings since 2023
5 hrs/week
No compensation reported
Genell Greenberg
Secretary
Member → Secretary, 2025
On filings since 2024
5 hrs/week
No compensation reported
Jeffrey Bodington
Member
New on the 2025 filing
2 hrs/week
No compensation reported
Jennifer Goldman
Member
New on the 2025 filing
2 hrs/week
No compensation reported
Mary-Kay Boler
Member
New on the 2025 filing
2 hrs/week
No compensation reported
Former officers (12)
- Former: Marshall Cannon (2020–2024) — Vice President
- Former: Roger Bean (2020–2024) — Treasurer
- Former: Ian Richard (2022–2024) — Vice President of Development
- Former: Andy Matteis (2020–2023) — Co-Vice President
- Former: Shannon McCarty-Caplan (2020–2023) — President
- Former: Christina M. Christie (2020–2022) — President
- Former: James Galvin MD (2020–2022) — Director
- Former: Todd Graham (2020–2022) — Executive Director
- Former: Mark Wall (2020–2021) — Executive Director
- Former: Tony Schueth (2020–2021) — Director
- Former: Anglea Lunde (2021) — Director
- Former: Emily N Pualman (2020) — Director
Data from IRS Form 990 filings, 2020–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $229K, to Allison Feldman (Executive Director). 6 officers or directors reported compensation on that filing.
Frequently asked questions about Lewy Body Dementia Association Inc
How much does Lewy Body Dementia Association Inc give each year?
Lewy Body Dementia Association Inc gave $562K across 28 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $388K across 25 grants.
What is Lewy Body Dementia Association Inc's typical grant size?
Lewy Body Dementia Association Inc's median grant in 2025 was $12,500, and its average grant was $20,079, across 28 grants on its 2025 IRS Form 990.
Where does Lewy Body Dementia Association Inc give grants?
Lewy Body Dementia Association Inc's top state is North Carolina, with 29% of the grant dollars itemized on its 2025 IRS Form 990. The next largest states were Florida (16%) and California (11%). The most frequent recipient cities were Gainesville, FL (2 grants).
Does Lewy Body Dementia Association Inc give general operating support?
Not in 2025: none of the 28 grants with a stated purpose on Lewy Body Dementia Association Inc's 2025 IRS Form 990 were described as general or operating support. Recurring purposes include "Research Centers of Excellence" (25 grants).
Who are Lewy Body Dementia Association Inc's largest grantees?
Lewy Body Dementia Association Inc's largest 2025 grantees include Duke University ($149,698), University of Florida ($62,500 across 2 grants) and Stanford University ($50,000), according to its 2025 IRS Form 990. Together they received 47% of its itemized 2025 grant dollars.
How large is Lewy Body Dementia Association Inc?
Lewy Body Dementia Association Inc reported $10.8M in total assets on its 2025 IRS Form 990. Its revenue that year was $5.1M.
What does Lewy Body Dementia Association Inc fund?
LBDA’s mission is to optimize quality of life for those affected by LBD by accelerating awareness, advancing research for early diagnosis and improved care, and providing comprehensive education and compassionate support. See mission & focus areas ↑
How do I apply for a grant from Lewy Body Dementia Association Inc?
For the 2026 New Investigator Pilot Study Award, submit an application through ProposalCentral; the request for applications provides full details. Eligibility and process details are in the grantmaking section of this profile. See how to apply ↑
What is Lewy Body Dementia Association Inc's EIN?
Lewy Body Dementia Association Inc's EIN (Employer Identification Number) is 05-0577683. IRS Form 990 filing data is available on this page for 2020–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings. Research dossier generated September 2026.
Data update history
(7)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS August 27, 2021)
- Updated Form 990 for fiscal year 2022 (received by the IRS November 14, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS October 29, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS November 13, 2025)
- Added Form 990 for fiscal year 2025 (received by the IRS May 14, 2026)
- Updated Form 990 for fiscal year 2021 (received by the IRS September 8, 2022)
- IRS filings on file for fiscal years 2020–2024
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Cite this profile
Grantable. (2026). Lewy Body Dementia Association Inc funder profile. GrantGraph. Retrieved October 6, 2026, from https://grantable.co/funders/lewy-body-dementia-association-inc-morg_b808282494dd4daca360436d94e74be5
BibTeX
@misc{grantable_050577683_2026,
author = {{Grantable}},
title = {{Lewy Body Dementia Association Inc funder profile}},
howpublished = {GrantGraph},
year = {2026},
url = {https://grantable.co/funders/lewy-body-dementia-association-inc-morg_b808282494dd4daca360436d94e74be5},
note = {Accessed 2026-10-06. Data licensed CC BY 4.0}
}The figures on this page are open data under CC BY 4.0: reuse them with credit to Grantable and a link. Download the data.
Figures come from Lewy Body Dementia Association Inc's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.
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