Kennedy's Disease Association Inc logo

Kennedy's Disease Association Inc

ATLANTA, GA EIN: 77-0552005 Website

TO EDUCATE, INFORM, AND PROVIDE SUPPORT SERVICES REGARDING KENNEDY'S DISEASE (SPINAL BULBAR MUSCULAR ATROPHY).

Financial Overview

From 2024 IRS Form 990-PF · View filing

Total Assets

$879K

+15.4% YoY

Annual Giving

$293K

-4.8% YoY

Grant Count

4

+0.0% YoY

Avg Grant Size

$73K

-4.8% YoY

About Kennedy's Disease Association Inc

Based on IRS filings

Kennedy's Disease Association Inc is a nonprofit organization focused on Medical Research, based in ATLANTA, GA. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $879K in total assets. In 2024, it awarded 4 grants totaling $293K. Net investment income was $23K.

Focus Areas

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Geographic Focus

Where this funder awards grants

Grant Distribution by State

6states

Cities

BethesdaBrisbaneClevelandCold Spring HarborDetroitIrvinePhiladelphia

Financial History

Multi-year comparison from IRS filings

Revenue
Expenses
Qualifying Distributions
Net Investment Income
$0$187K$373K$560K$747K20202021202220232024
Metric202420232022
Total Assets$879,080$761,855$764,527
Revenue$679,008$454,537$349,920
Expenses$669,795$499,149$195,977
Qualifying Distributions
Net Investment Income$22,680$13,199$-124
Distributable Amount

Giving Over Time

Total grant dollars and number of grants per year

$0$77K$154K$231K$307K0 grants20200 grants20212 grants20224 grants20234 grants2024

Grant Insights

How this funder distributes its grants

Top Recipients

Top 4 recipients in 2024

CASE WESTERN RESERVE UNI…$100KREVIR THERAPUTICS INC$100KUNIVERSITY OF IRVINE$50KBANBURY CENTER$43K

Grant Size Distribution

10 grants across all recorded years

2<$50K5$50–100K3$100–250K$250–500K$500K–1M$1–5M$5M+

Giving History

Grant recipients and amounts by year

Among its reported 2024 grants, the largest include Case Western Reserve University ($100,000), Revir Theraputics Inc ($99,500), University of Irvine ($50,000).

RecipientPurposeAmount
CASE WESTERN RESERVE UNIVERSITY CLEVELAND, OHRESEARCH$100,000
REVIR THERAPUTICS INC BRISBANE, CARESEARCH$99,500
BANBURY CENTER COLD SPRING HARBOR, NYEDUCATION$43,275
UNIVERSITY OF IRVINE IRVINE, CARESEARCH$50,000

Leadership & Key People

Officers and directors from IRS filings

Compensation Overview

From 2024 IRS filing

From 2024 filing

NameTitleHoursCompensation
TERRY THOMPSONPRESIDENT20
JAMESON PARKERVICE PRESIDE5
JOHN LAUBERTREASURER12
KATHY THOMPSONSECRETARY20
STEVEN RITTMASTERBOARD MEMBER2
RON MOFFETTBOARD MEMBER3
SIMON HILLBOARD MEMBER6
DALE TRAXLERBOARD MEMBER2
JOAN SORENSENBOARD MEMBER4
RANDY SOO HOOBOARD MEMBER6

Subject Areas

Focus areas based on grantmaking activity

Frequently Asked Questions

What is Kennedy's Disease Association Inc?

Kennedy's Disease Association Inc is a nonprofit organization focused on Medical Research, based in ATLANTA, GA. It holds $879K in total assets as of 2024.

How large is Kennedy's Disease Association Inc?

As of 2024, Kennedy's Disease Association Inc holds $879K in total assets with $679K in annual revenue. It awarded 4 grants totaling $293K in 2024.

Where does Kennedy's Disease Association Inc operate?

Kennedy's Disease Association Inc has awarded grants in California, Maryland, Michigan, New York, Ohio, Pennsylvania.

What size grants does Kennedy's Disease Association Inc award?

In 2024, Kennedy's Disease Association Inc awarded 4 grants totaling $293K — an average of about $73K per grant, based on its IRS Form 990 filings.

What is Kennedy's Disease Association Inc's EIN?

Kennedy's Disease Association Inc's EIN (Employer Identification Number) is 77-0552005. IRS Form 990 filing data is available on this page for 2020–2024.

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Data last updated April 2026. Sourced from IRS Form 990-PF filings.

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