Hydrocephalus Association
FIND A CURE FOR HYROCEPHALUS AND IMPROVE THE LIVES OF THOSE IMPACTED. WE WILL ACCOMPLISH THIS BY COLLABORATING WITH PATIENTS, CAREGIVERS, RESEARCHERS AND INDUSTRY, RAISING AWARENESS, AND FUNDING INNOVATIVE, HIGH-IMPACT RESEARCH TO PREVENT, TREAT AND CURE HYDROCEPHALUS.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$3.5M
-20.7% YoY
Annual Giving
$824K
+61.3% YoY
Grant Count
11
+22.2% YoY
Avg Grant Size
$75K
+32.0% YoY
About Hydrocephalus Association
Based on IRS filings
Hydrocephalus Association is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in NORTH BETHESDA, MD. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $3.5M in total assets. In 2024, it awarded 11 grants totaling $824K. Net investment income was $180K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $3,458,025 | $4,359,202 | $4,516,368 |
| Revenue | $3,558,664 | $3,628,383 | $4,148,543 |
| Expenses | $4,411,991 | $3,629,656 | $3,617,494 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $180,343 | $137,427 | $48,407 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2024
Grant Size Distribution
43 grants across all recorded years
Open Grants
3 open opportunities from Hydrocephalus Association
HA CONNECT Conference Financial Aid Package
HYDROCEPHALUS ASSOCIATION
Amount
Varies
Deadline
Rolling / Open
Hydrocephalus Association Scholarship Program
HYDROCEPHALUS ASSOCIATION
Amount
Varies
Deadline
Rolling / Open
Innovator Award
HYDROCEPHALUS ASSOCIATION
Amount
$25,000 - $50,000
Deadline
Rolling / Open
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| JASON PRESTON | CHAIR | 4.5 | — |
| TERESA MASTRANGELO | VICE CHAIR | 3.5 | — |
| LYDIA VALADEZ-MCSTAY | VICE CHAIR | 3.5 | — |
| TESSA VAN DER WILLIGEN | VICE CHAIR | 3.5 | — |
| BRETT WEITZ | PAST CHAIR | 3.5 | — |
| HUGH ALLEN | FINANCE COMMITTEE CHAIR | 3.5 | — |
| RAYMOND R MOSER JR JD | DIRECTOR | 3.5 | — |
| SALLY DUNKELBERGER DANIEL | DIRECTOR | 3.5 | — |
| PAM FINLAYSON | DIRECTOR | 3.5 | — |
| MICHAEL SIEGEL PHD | DIRECTOR | 3.5 | — |
| DAVID LIMBRICK MD | DIRECTOR | 3.5 | — |
| MIKE MUHONEN MD | DIRECTOR | 3.5 | — |
| STEPHANIE VOGT | DIRECTOR | 3.5 | — |
| MICHAEL WILLIAMS MD | DIRECTOR | 3.5 | — |
| DEITRA MATTHEWS MPA | DIRECTOR | 3.5 | — |
| SHERYL ROSENBERG JD | DIRECTOR | 3.5 | — |
| KIPP COCO | DIRECTOR | 3.5 | — |
| TAMMY LEE | DIRECTOR | 3.5 | — |
| PETER FINLAYSON | DIRECTOR | 3.5 | — |
| TIM HARRIS | DIRECTOR | 3.5 | — |
| DIANA GRAY | PRESIDENT AND CEO | 45 | $240,680 |
| AMANDA GARZON | CHIEF OPERATING OFFICER | 45 | $141,772 |
| BRIAN SAPHIER | TREASURER AND CFO | 45 | $141,557 |
| LINDA RILEY | NATIONAL DIRECTOR OF DEVELOPMENT | 40 | $138,921 |
| MONICA CHAU | NATIONAL DIRECTOR OF RESEARCH | 40 | $131,153 |
| JUDITH FROEHLICH | NATIONAL DIRECTOR OF MARKETING | 40 | $130,796 |
Subject Areas
Focus areas based on grantmaking activity
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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