Hydrocephalus Association
Find a cure for hyrocephalus and improve the lives of those impacted. We will accomplish this by collaborating with patients, caregivers, researchers and industry, raising awareness, and funding innovative, high-impact research to prevent, treat and cure hydrocephalus.
Hydrocephalus Association at a glance
In short: Hydrocephalus Association gave $606K across 9 grants in 2025 (avg $67K), top state Utah. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $605,535
- -26.5% vs 2024
- Grants made (2025)
- 9
- -18.2% vs 2024
- Average grant
- $67,282
- -10.2% vs 2024
- Median grant
- $50,000
- Total assets
- $4,447,001
- +28.6% vs 2024
- Primary geography
- Utah (37% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
How to apply to Hydrocephalus Association
Open Grants
3 open opportunities from Hydrocephalus Association
HA CONNECT Conference Financial Aid Package
Hydrocephalus Association
Amount
Varies
Deadline
Deadline not published
Hydrocephalus Association Scholarship Program
Hydrocephalus Association
Amount
Varies
Deadline
Deadline not published
Innovator Award
Hydrocephalus Association
Amount
$25,000 - $50,000
Deadline
Deadline not published
Who Hydrocephalus Association funds
How this funder distributes its grants
Top Recipients
Top 9 recipients in 2025
The largest 2025 recipient was University of Utah ($150K). Together the top 9 received $606K.
Grant Size Distribution
43 grants across all recorded years
The most common grant size was in the $50–100K range: 24 grants of 43 (56%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2025 grant dollars across all 9 itemized grants.
States
Cities
How Hydrocephalus Association gives
- Giving held roughly steady from 2022 to 2025 (−5%). Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2025, annual grant giving ranged from $396K (2021) to $824K (2024). In 2025 it made 9 grants totaling $606K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| University of Utah Salt Lake City, UT | To fund the clinical research site for the adult hydrocephalus clinical research network | $149,533 |
| University of California San Francisco Foundation San Francisco, CA | Mechanisms of hydrocepahlus research grant - to fund basic research for the treatment of hydrocephalus | $85,000 |
| Primary Children's Foundation Salt Lake City, UT | To fund the clinical research site for the hydrocephalus clinical research network | $75,000 |
| Yale University New Haven, CT | Mechanisms of hydrocepahlus research grant - to fund basic research for the treatment of hydrocephalus | $50,000 |
| Cincinnati Childrens Hospital Medical Center Cincinnati, OH | Mechanisms of hydrocepahlus research grant - to fund basic research for the treatment of hydrocephalus | $50,000 |
| Nationwide Children's Hospital Columbus, OH | Mechanisms of hydrocepahlus research grant - to fund basic research for the treatment of hydrocephalus | $50,000 |
| University of North Carolina Charlotte, NC | Mechanisms of hydrocepahlus research grant - to fund basic research for the treatment of hydrocephalus | $50,000 |
| UT Southwestern Medical Center Dallas, TX | Mechanisms of hydrocepahlus research grant - to fund basic research for the treatment of hydrocephalus | $49,791 |
| Cleveland Clinic Foundation Cleveland, OH | To fund the clinical research site for the adult hydrocephalus clinical research network | $46,211 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $4,447,001 | $4,383,244 | $3,784,832 | $605,535 | 9 | $209,480 |
| 2024 | $3,458,025 | $3,558,664 | $4,411,991 | $823,833 | 11 | $180,343 |
| 2023 | $4,359,202 | $3,628,383 | $3,629,656 | $510,641 | 9 | $137,427 |
| 2022 | $4,516,368 | $4,148,543 | $3,617,494 | $637,798 | 8 | $48,407 |
| 2021 | $3,795,524 | $3,909,969 | $2,745,199 | $395,684 | 6 | $2,707 |
| 2020 | $2,750,883 | $3,247,779 | $3,139,397 | $737,748 | 9 | $6,229 |
About Hydrocephalus Association
Based on IRS filings
Hydrocephalus Association is a public charity focused on Diseases, Disorders & Medical Disciplines, based in North Bethesda, MD. IRS filing data is available from 2020 through 2025. As of 2025, the organization holds $4.4M in total assets. In 2025, it awarded 9 grants totaling $606K. Net investment income was $209K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Hydrocephalus Association is led by Diana Gray, President & CEO on every filing since 2020; 5 of 17 officers listed in 2025 are compensated.
Officers on the 2025 filing
Diana Gray
President & CEO
On filings since 2020
45 hrs/week
$205K (2020) → $262K (2025)
Hugh Allen
Finance Committee Chair
Director → Finance Committee Chair, 2024
On filings since 2020
3.5 hrs/week
No compensation reported
Stephanie Vogt
Chair
Director → Chair, 2025
On filings since 2022
4.5 hrs/week
No compensation reported
Linda Riley
National Director of Development
Director of Fund Development → National Director of Development, 2023
On filings since 2021
40 hrs/week
$125K (2021) → $142K (2025)
Monica Chau
National Director of Research
National Director of Research Programs → National Director of Research, 2024
On filings since 2023
40 hrs/week
$129K (2023) → $137K (2025)
David Limbrick MD
Director
On filings since 2020
3.5 hrs/week
No compensation reported
Mike Muhonen MD
Director
On filings since 2020
3.5 hrs/week
No compensation reported
Raymond R. Moser Jr. JD
Director
Vice Chair → Director, 2023
On filings since 2020
3.5 hrs/week
No compensation reported
Deitra Matthews Mpa
Director
On filings since 2022
3.5 hrs/week
No compensation reported
Kipp Coco
Director
On filings since 2023
3.5 hrs/week
No compensation reported
Peter Finlayson
Director
On filings since 2024
3.5 hrs/week
No compensation reported
Tim Harris
Director
On filings since 2024
3.5 hrs/week
No compensation reported
Amanda Garzon
Chief Operating Officer
National Director of Program Services → Chief Operating Officer, 2021
On filings since 2020
45 hrs/week
$107K (2020) → $145K (2025)
Brian Saphier
Treasurer & CFO
Chief Financial Officer → Treasurer & CFO, 2023
On filings since 2020
45 hrs/week
$112K (2020) → $145K (2025)
Lydia Rosie Valadez-McStay
Vice Chair
On filings since 2020
3.5 hrs/week
No compensation reported
Sally Dunkelberger Daniel
Vice Chair
Director → Vice Chair, 2025
On filings since 2020
3.5 hrs/week
No compensation reported
Michael Siegel PhD
Vice Chair
Director → Vice Chair, 2025
On filings since 2022
3.5 hrs/week
No compensation reported
Former officers (18)
- Former: Brett Weitz (2020–2024) — Past Chair
- Former: Jason Preston (2020–2024) — Chair
- Former: Michael Williams MD (2020–2024) — Director
- Former: Pam Finlayson (2020–2024) — Director
- Former: Sheryl Rosenberg JD (2020–2024) — Director
- Former: Teresa Mastrangelo (2020–2024) — Vice Chair
- Former: Tessa Van Der Willigen (2020–2024) — Vice Chair
- Former: Judith Froehlich (2023–2024) — National Director of Marketing
- Former: Tammy Lee (2023–2024) — Director
- Former: Eileen Rodger (2020–2023) — Director
- Former: Jennifer Pope (2020–2023) — Director
- Former: Mark Hamilton MD (2020–2023) — Director
- Former: Sally Baldus (2020–2023) — Director
- Former: Susan Fiorella (2020–2023) — Director
- Former: Jason Spears (2023) — Director
- Former: Cliff Goldman (2020–2021) — Director
- Former: Randi Corey (2021) — Director of Special Events
- Former: Guy Fish MD MBA (2020) — Director
Data from IRS Form 990 filings, 2020–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $262K, to Diana Gray (President and CEO). 5 officers or directors reported compensation on that filing.
Frequently asked questions about Hydrocephalus Association
How much does Hydrocephalus Association give each year?
Hydrocephalus Association gave $606K across 9 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $824K across 11 grants.
What is Hydrocephalus Association's typical grant size?
Hydrocephalus Association's median grant in 2025 was $50,000, and its average grant was $67,282, across 9 grants on its 2025 IRS Form 990.
Where does Hydrocephalus Association give grants?
Hydrocephalus Association's top state is Utah, with 37% of the grant dollars itemized on its 2025 IRS Form 990. The next largest states were Ohio (24%) and California (14%). The most frequent recipient cities were Salt Lake City, UT (2 grants).
Does Hydrocephalus Association give general operating support?
Not in 2025: none of the 9 grants with a stated purpose on Hydrocephalus Association's 2025 IRS Form 990 were described as general or operating support.
Who are Hydrocephalus Association's largest grantees?
Hydrocephalus Association's largest 2025 grantees include University of Utah ($149,533), University of California San Francisco Foundation ($85,000) and Primary Children's Foundation ($75,000), according to its 2025 IRS Form 990. Together they received 51% of its itemized 2025 grant dollars.
How large is Hydrocephalus Association?
Hydrocephalus Association reported $4.4M in total assets on its 2025 IRS Form 990. Its revenue that year was $4.4M.
What is Hydrocephalus Association?
Hydrocephalus Association is a public charity focused on Diseases, Disorders & Medical Disciplines, based in North Bethesda, MD. It holds $4.4M in total assets as of 2025.
What is Hydrocephalus Association's EIN?
Hydrocephalus Association's EIN (Employer Identification Number) is 94-3000301. IRS Form 990 filing data is available on this page for 2020–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(7)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS July 29, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS August 29, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS July 10, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS July 15, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS July 10, 2025)
- Added Form 990 for fiscal year 2025 (received by the IRS July 7, 2026)
- IRS filings on file for fiscal years 2020–2024
Live grants for the work Hydrocephalus Association funds
Diseases, Disorders & Medical Disciplines Open opportunities, soonest deadline first.
Explore Open Grants
Browse active grant opportunities in Hydrocephalus Association's focus areas in our free grants database
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Hydrocephalus Association down — hundreds of funders to go?