Huntington's Disease Foundation
To fund transformative research to find treatments, and ultimately a cure, for huntington's disease.
Key facts about Huntington's Disease Foundation
In short: Huntington's Disease Foundation gave $1.4M across 11 grants in 2025 (avg $127K), top state Massachusetts. Source: 2025 IRS Form 990.
- EIN
- 23-7376197
- Latest 990 filing
- Form 990, 2025
- Annual giving (2025)
- $1,400,000
- Grants made (2025)
- 11
- Average grant
- $127,273
- Median grant
- $100,000
- Total assets
- $23,135,759
- Primary geography
- Massachusetts (43% of itemized 2025 grant dollars)
Data from IRS Form 990, 2025; updated September 2026.
Financial Overview
From 2025 IRS Form 990 · View filing
Total Assets
$23.1M
+5.3% YoY
Annual Giving
$1.4M
-33.6% YoY
Grant Count
11
+10.0% YoY
Avg Grant Size
$127K
-39.7% YoY
How Huntington's Disease Foundation gives
- Giving grew 92% from 2022 to 2025. Method
From the foundation's IRS Form 990 filings. Methodology.
About Huntington's Disease Foundation
Based on IRS filings
Huntington's Disease Foundation is a nonprofit organization focused on Medical Research, based in New York, NY. IRS filing data is available from 2020 through 2025. As of 2025, the organization holds $23.1M in total assets. In 2025, it awarded 11 grants totaling $1.4M. Net investment income was $635K.
Focus Areas
Open Grants
2 open opportunities from Huntington's Disease Foundation
Hereditary Disease Foundation: Postdoctoral Researcher Fellowships Grant
Huntington's Disease Foundation
Amount
Up to US $200,000
Deadline
Rolling / Open
Hereditary Disease Foundation: Transformative Research Award Grant
Huntington's Disease Foundation
Amount
US $300,000 - US $500,000
Deadline
Rolling / Open
Ready to take the next step with Huntington's Disease Foundation?
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of all 11 itemized 2025 grant dollars.
States
Cities
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 8 recipients in 2025
Grant Size Distribution
48 grants across all recorded years
Giving History
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| MASSACHUSETTS GENERAL HOSPITAL (MASS GENERAL) Sommerville, MA | SCIENTIFIC RESEARCH | $200,000 |
| MASSACHUSETTS INSTITUTE OF TECHNOLOGY - MIT Cambridge, MA | SCIENTIFIC RESEARCH | $200,000 |
| THE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY Redwood City, CA | SCIENTIFIC RESEARCH | $200,000 |
| THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS ANGELES Los Angeles, CA | SCIENTIFIC RESEARCH | $200,000 |
| CHAN ZUCKERBERG BIOHUB (SAN FRANCISCO) San Francisco, CA | SCIENTIFIC RESEARCH | $100,000 |
| MASSACHUSETTS GENERAL HOSPITAL (MASS GENERAL) Sommerville, MA | SCIENTIFIC RESEARCH | $100,000 |
| MASSACHUSETTS INSTITUTE OF TECHNOLOGY - MIT Cambridge, MA | SCIENTIFIC RESEARCH | $100,000 |
| THE CORPORATION OF MERCER UNIVERSITY Macon, GA | SCIENTIFIC RESEARCH | $100,000 |
| WASHINGTON UNIVERSITY Seattle, WA | SCIENTIFIC RESEARCH | $100,000 |
| THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS ANGELES Los Angeles, CA | SCIENTIFIC RESEARCH | $50,000 |
Financial History
Multi-year comparison from IRS filings
| Metric | 2025 | 2024 | 2023 |
|---|---|---|---|
| Total Assets | $23,135,759 | $21,978,294 | $18,234,308 |
| Revenue | $4,081,669 | $7,899,221 | $2,578,841 |
| Expenses | $4,326,391 | $4,524,145 | $4,738,635 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $634,776 | $1,243,205 | $488,200 |
| Distributable Amount | — | — | — |
Data update history
When this profile's IRS filing data changed on Grantable
- Added Form 990 for fiscal year 2025 (received by the IRS May 12, 2026)
- IRS filings on file for fiscal years 2020–2024
Leadership & Key People
Officers and directors from IRS filings
Huntington's Disease Foundation is led by Meghan Donaldson, CEO on every filing since 2020; 5 of 21 officers listed in 2025 are compensated.
Officers on the 2025 filing
Meghan Donaldson
CEO
On filings since 2020
40 hrs/week
$110K (2020) → $50K (2025)
Nancy S. Wexler PhD
President
On filings since 2020
1 hr/week
No compensation reported
Karen Newman
Chair
Director → Chair, 2022
On filings since 2020
24 hrs/week
$12K (2024) → $72K (2025)
Julie Porter
Director of Administration
Head of Science → Director of Administration, 2023
On filings since 2022
40 hrs/week
$104K (2022) → $124K (2025)
Sarah Hernandez PhD
Director of Research Programs
On filings since 2023
40 hrs/week
$125K (2023) → $155K (2025)
Berta A. Gehry
Director
On filings since 2020
1 hr/week
No compensation reported
David Housman PhD
Director
On filings since 2020
1 hr/week
No compensation reported
David Zwally
Director
Chair → Director, 2022
On filings since 2020
1 hr/week
No compensation reported
Frank O. Gehry
Director
On filings since 2020
1 hr/week
No compensation reported
Robi Blumenstein
Director
On filings since 2020
1 hr/week
No compensation reported
Sandy Fox
Director
On filings since 2020
1 hr/week
No compensation reported
C. Frank Bennett PhD
Director
On filings since 2022
1 hr/week
No compensation reported
Lauren Baker Pinkus
Director
On filings since 2022
1 hr/week
No compensation reported
Leslie M. Thompson PhD
Director
On filings since 2022
1 hr/week
No compensation reported
Tacie Fox
Director
On filings since 2022
1 hr/week
No compensation reported
Melissa Moser
Director
On filings since 2024
1 hr/week
No compensation reported
Thomas Obersteiner
Director
New on the 2025 filing
1 hr/week
No compensation reported
Tim Kelleher
CFO
On filings since 2024
6 hrs/week
$43K (2024) → $32K (2025)
Alice Wexler PhD
Secretary
On filings since 2020
1 hr/week
No compensation reported
Anne B. Young MD PhD
Vice Chair
On filings since 2020
1 hr/week
No compensation reported
Bruce Donaldson
Treasurer
On filings since 2020
1 hr/week
No compensation reported
Former officers (7)
- Former: Herbert Pardes MD (2020–2024) — Director
- Former: Joan Leiman PhD (2020–2024) — Director
- Former: Erica Matisz (2024) — Director of Development
- Former: Barry Evenchick (2020–2023) — Director
- Former: Travis Carey (2020–2023) — CFO
- Former: Kelly Posner Gerstenhaber PhD (2020–2022) — Director
- Former: David Gerstenhaber (2020) — Director · Filing note: Thru 920
Data from IRS Form 990 filings, 2020–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
Frequently asked questions about Huntington's Disease Foundation
How much does Huntington's Disease Foundation give each year?
Huntington's Disease Foundation gave $1.4M across 11 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $2.1M across 10 grants.
What is Huntington's Disease Foundation's typical grant size?
Huntington's Disease Foundation's median grant in 2025 was $100,000, and its average grant was $127,273, across 11 grants on its 2025 IRS Form 990.
Where does Huntington's Disease Foundation give grants?
Huntington's Disease Foundation's top state is Massachusetts, with 43% of the grant dollars itemized on its 2025 IRS Form 990. The next largest states were California (39%) and Georgia (7%). The most frequent recipient cities were Sommerville, MA (2 grants), Cambridge, MA (2 grants) and Los Angeles, CA (2 grants).
Does Huntington's Disease Foundation give general operating support?
Not in 2025: none of the 11 grants with a stated purpose on Huntington's Disease Foundation's 2025 IRS Form 990 were described as general or operating support. Recurring purposes include "Scientific Research" (11 grants).
Who are Huntington's Disease Foundation's largest grantees?
Huntington's Disease Foundation's largest 2025 grantees include Massachusetts General Hospital (Mass General) ($300,000 across 2 grants), Massachusetts Institute of Technology - MIT ($300,000 across 2 grants) and The Regents of the University of California Los Angeles ($250,000 across 2 grants), according to its 2025 IRS Form 990. Together they received 61% of its itemized 2025 grant dollars.
How large is Huntington's Disease Foundation?
Huntington's Disease Foundation reported $23.1M in total assets on its 2025 IRS Form 990. Its revenue that year was $4.1M.
What is Huntington's Disease Foundation?
Huntington's Disease Foundation is a nonprofit organization focused on Medical Research, based in New York, NY. It holds $23.1M in total assets as of 2025.
What is Huntington's Disease Foundation's EIN?
Huntington's Disease Foundation's EIN (Employer Identification Number) is 23-7376197. IRS Form 990 filing data is available on this page for 2020–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Here's the math on researching Huntington's Disease Foundation by hand.
Explore Open Grants
Browse active grant opportunities in Huntington's Disease Foundation's focus areas in our free grants database
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