Hunter's Hope Foundation Inc
HUNTER'S HOPE FOUNDATION WAS ESTABLISHED TO ADDRESS THE ACUTE NEED FOR INFORMATION AND RESEARCH WITH RESPECT TO KRABBE DISEASE AND RELATED LEUKODYSTROPHIES. IN ADDITION, WE STRIVE TO SUPPORT AND ENCOURAGE THOSE AFFLICTED AND THEIR FAMILIES AS THEY STRUGGLE TO ENDURE, ADJUST, AND COPE WITH THE DEMANDS OF THE FATAL ILLNESSES. ACCORDINGLY OUR MISSION IS FOUR FOLD:- TO BROADEN PUBLIC AWARENESS OF KRABBE DISEASE AND OTHER LEUKODYSTROPHIES THUS INCREASING THE PROBABILITY OF EARLY DETECTION AND TREATMENT.- TO GATHER AND PROVIDE CURRENT, FUNCTIONAL INFORMATION, AND SERVICE LINKAGES TO FAMILIES OF CHILDREN WITH LEUKODYSTROPHIES.- TO FUND RESEARCH EFFORTS THAT WILL IDENTIFY NEW TREATMENTS, THERAPIES, AND ULTIMATELY, A CURE FOR KRABBE DISEASE AND OTHER LEUKODYSTROPHIES.- TO ESTABLISH AN ALLIANCE OF HOPE THAT WILL NOURISH, AFFIRM, AND CONFRONT THE URGENT NEED FOR MEDICAL, FINANCIAL, AND EMOTIONAL SUPPORT OF FAMILY MEMBERS AND THOSE AFFLICTED WITH LEUKODYSTROPHIES.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$2.3M
-7.8% YoY
Annual Giving
$270K
+22.7% YoY
Grant Count
12
+20.0% YoY
Avg Grant Size
$23K
+2.3% YoY
About Hunter's Hope Foundation Inc
Based on IRS filings
Hunter's Hope Foundation Inc is a nonprofit organization, based in ORCHARD PARK, NY. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $2.3M in total assets. In 2024, it awarded 12 grants totaling $270K. Net investment income was $106K.
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $2,330,776 | $2,528,952 | $1,400,688 |
| Revenue | $1,075,701 | $2,027,964 | $960,552 |
| Expenses | $1,288,858 | $1,066,692 | $834,692 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $106,091 | $47,707 | $12,534 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2024
Grant Size Distribution
48 grants across all recorded years
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include Duke University ($40,000), Kennedy Krieger Institute ($30,000), Massachusetts General Hospital ($30,000).
| Recipient | Purpose | Amount |
|---|---|---|
| ANN & ROBERT H LURIE CHILDREN'S HOSPITAL OF CHICAGO CHICAGO, IL | LEUKODYSTROPHY CARE NETWORK-FAMILY | $20,000 |
| CHILDREN'S HEALTHCARE OF ATLANTA ATLANTA, GA | LEUKODYSTROPHY CARE NETWORK-FAMILY | $20,000 |
| DUKE UNIVERSITY DURHAM, NC | LEUKODYSTROPHY CARE NETWORK-FAMILY | $40,000 |
| KENNEDY KRIEGER INSTITUTE BALTIMORE, MD | LEUKODYSTROPHY CARE NETWORK-FAMILY | $30,000 |
| MASSACHUSETTS GENERAL HOSPITAL BOSTON, MA | LEUKODYSTROPHY CARE NETWORK-FAMILY | $30,000 |
| UNIVERSITY OF ROCHESTERGOLISANO CHILDREN'S HOSPITAL BUFFALO, NY | LEUKODYSTROPHY CARE NETWORK-FAMILY | $20,000 |
| UNIVERSITY OF UTAH PRIMARY CHILDREN'S HOSPITAL SALT LAKE CITY, UT | LEUKODYSTROPHY CARE NETWORK-FAMILY | $30,000 |
| NATIONWIDE CHILDREN'S HOSPITAL COLUMBUS, OH | LEUKODYSTROPHY CARE NETWORK-FAMILY | $15,000 |
| UC DAVIS HEALTH SYSTEM SACRAMENTO, CA | LEUKODYSTROPHY CARE NETWORK-FAMILY | $15,000 |
| CHILDRENS HOSPITAL OF SAN ANTONIO SAN ANTONIO, TX | LEUKODYSTROPHY CARE NETWORK- FAMILY | $20,000 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| JIM KELLY | PRESIDENT | 8 | — |
| JILL KELLY | CHAIRWOMAN | 8 | — |
| PAUL BOSER | TREASURER | 2 | — |
| CAMRYN KELLY | DIRECTOR | 1 | — |
| GREG CONNORS | DIRECTOR | 1 | — |
| PHIL MAY | DIRECTOR | 1 | — |
| STEVEN SCHMITT | DIRECTOR | 1 | — |
| DAVID KERN | DIRECTOR | 1 | — |
| BRAD RYE | DIRECTOR | 1 | — |
| JACQUE WAGGONER | C.E.O. | 40 | $100,000 |
| MELISSA JABLONSKI | FINANCE OFFICER | 40 | $39,979 |
Frequently Asked Questions
How large is Hunter's Hope Foundation Inc?
As of 2024, Hunter's Hope Foundation Inc holds $2.3M in total assets with $1.1M in annual revenue. It awarded 12 grants totaling $270K in 2024.
Where does Hunter's Hope Foundation Inc operate?
Hunter's Hope Foundation Inc has awarded grants in California, Georgia, Illinois, Massachusetts, Maryland, North Carolina, New York, Ohio, Texas, Utah.
What size grants does Hunter's Hope Foundation Inc award?
In 2024, Hunter's Hope Foundation Inc awarded 12 grants totaling $270K — an average of about $23K per grant, based on its IRS Form 990 filings.
What is Hunter's Hope Foundation Inc's EIN?
Hunter's Hope Foundation Inc's EIN (Employer Identification Number) is 16-1552315. IRS Form 990 filing data is available on this page for 2020–2024.
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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