Foundation to Eradicate Duchenne Inc logo

Foundation to Eradicate Duchenne Inc

Foundation · Grantmaker Alexandria, VA EIN: 71-0874241 Website

THE ORGANIZATION'S MISSION IS TO PROVIDE RESEARCH GRANTS TO FUND AGGRESSIVE RESEARCH INTO TREATMENTS FOR DUCHENNE MUSCULAR DYSTROPHY AND TO SUPPORT THE EFFORT TO TREAT, AND ULTIMATELY CURE, THIS DISEASE.

Key facts about Foundation to Eradicate Duchenne Inc

EIN
71-0874241
Latest 990 filing
Form 990-PF, 2025
Annual giving (2025)
$410,124
Grants made (2025)
7
Average grant
$58,589
Median grant
$50,000
Total assets
$1,539,086
Primary geography
District of Columbia (61% of itemized 2025 grant dollars)

Data from IRS Form 990-PF, 2025; updated September 2026.

Who Foundation to Eradicate Duchenne Inc funds

By grant dollars, the top recipient states for Foundation to Eradicate Duchenne Inc's 7 itemized 2025 grants were District of Columbia (61%), New York (21%) and Virginia (7%). The most frequent recipient cities were Washington, DC (3 grants). None of its 7 grants with a stated purpose were described as general or operating support.

How Foundation to Eradicate Duchenne Inc gives

  • Giving held roughly steady from 2022 to 2025 (−1%). Method

From the foundation's IRS Form 990-PF filings. Methodology.

Next steps with Foundation to Eradicate Duchenne Inc

Financial Overview

From 2025 IRS Form 990-PF · View filing

Total Assets

$1.5M

+17.6% YoY

Annual Giving

$410K

+27.2% YoY

Grant Count

7

+16.7% YoY

Avg Grant Size

$59K

+9.1% YoY

About Foundation to Eradicate Duchenne Inc

Based on IRS filings

Foundation to Eradicate Duchenne Inc is a nonprofit organization focused on Medical Research, based in Alexandria, VA. IRS filing data is available from 2020 through 2025. As of 2025, the organization holds $1.5M in total assets. In 2025, it awarded 7 grants totaling $410K. Net investment income was $614.

Focus Areas

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Geographic Focus

Where this funder awards grants

Grant Distribution by State

8states

Share of all 7 itemized 2025 grant dollars.

Cities

WashingtonPittsburghBinghamtonHackensackRichmondSilver SpringAlbanyAtlantaBinghamptonGaithersburgHuntingtonNew YorkNorfolkPhiladelphiaRockville

Financial History

Multi-year comparison from IRS filings

Revenue
Expenses
Qualifying Distributions
Net Investment Income
$0$303K$606K$909K$1M202020212022202320242025
Metric202520242023
Total Assets$1,539,086$1,308,359$1,030,887
Revenue$1,068,787$1,102,169$826,783
Expenses$856,659$827,891$639,710
Qualifying Distributions———
Net Investment Income$614$141,543$2,721
Distributable Amount———

Data update history

When this profile's IRS filing data changed on Grantable

  1. Added Form 990 for fiscal year 2025 (received by the IRS May 8, 2026)
  2. IRS filings on file for fiscal years 2020–2024

Giving Over Time

Total grant dollars and number of grants per year

$0$119K$238K$357K$476K5 grants20205 grants20215 grants20224 grants20236 grants20247 grants2025

Grant Insights

How this funder distributes its grants

Top Recipients

Top 7 recipients in 2025

Children's Research Institute: $101KChildren's Research Institute$101KChildren's National Heart Center: $100KChildren's National HeartCenter$100KBinghamton University: $87KBinghamton University$87KParent Project Muscular Dystrophy: $50KParent Project MuscularDystrophy$50KOld Dominion University: $27KOld Dominion University$27KOsteogenesis Imperfecta Foundation: $25KOsteogenesis ImperfectaFoundation$25KUniversity of Pittsburgh: $20KUniversity of Pittsburgh$20K

Grant Size Distribution

27 grants across all recorded years

11<$50K9$50–100K7$100–250K$250–500K$500K–1M$1–5M$5M+

Giving History

Grant recipients and amounts by year

Among its reported 2025 grants, the largest recipients include Children's Research Institute ($101,000), Children's National Heart Center ($100,000), Binghamton University ($86,860).

RecipientPurposeAmount
CHILDREN'S RESEARCH INSTITUTE Washington, DCTO FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY$101,000
CHILDREN'S NATIONAL HEART CENTER Washington, DCTO FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY$100,000
BINGHAMTON UNIVERSITY Binghamton, NYTO FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY$86,860
PARENT PROJECT MUSCULAR DYSTROPHY Washington, DCTO FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY$50,000
OLD DOMINION UNIVERSITY Norfolk, VATO FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY$27,055
OSTEOGENESIS IMPERFECTA FOUNDATION Gaithersburg, MDTO FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY$25,000
UNIVERSITY OF PITTSBURGH Pittsburgh, PATO FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY$20,209

Leadership & Key People

Officers and directors from IRS filings

Compensation Overview

No officer or director reported compensation in the available filings.

From 2025 IRS filing

NameTitleHoursCompensation
Joel WoodPresident10—
Scott SinderSecretary5—
James WoodTreasurer5—
Dan CarsonDirector1—
Dave HeilDirector1—
Brad ToddDirector1—
Bill QuirkDirector1—

Subject Areas

Focus areas based on grantmaking activity

Frequently Asked Questions

What is Foundation to Eradicate Duchenne Inc?

Foundation to Eradicate Duchenne Inc is a nonprofit organization focused on Medical Research, based in Alexandria, VA. It holds $1.5M in total assets as of 2025.

How large is Foundation to Eradicate Duchenne Inc?

As of 2025, Foundation to Eradicate Duchenne Inc holds $1.5M in total assets with $1.1M in annual revenue. It awarded 7 grants totaling $410K in 2025.

Where does Foundation to Eradicate Duchenne Inc operate?

Foundation to Eradicate Duchenne Inc has awarded grants in District of Columbia, Georgia, Maryland, New Jersey, New York, Pennsylvania, Virginia, West Virginia.

What size grants does Foundation to Eradicate Duchenne Inc award?

In 2025, Foundation to Eradicate Duchenne Inc awarded 7 grants totaling $410K — an average of about $59K per grant, based on its IRS Form 990 filings.

What is Foundation to Eradicate Duchenne Inc's EIN?

Foundation to Eradicate Duchenne Inc's EIN (Employer Identification Number) is 71-0874241. IRS Form 990 filing data is available on this page for 2020–2025.

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Data last updated September 2026. Sourced from IRS Form 990-PF filings.

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