Osteogenesis Imperfecta Foundation

Nonprofit · Grant recipient Also a grantmaker → Gaithersburg, MD EIN 23-7076021

Funding Overview

From IRS Form 990 filings · 2019–2025

Total received

$1.9M

Foundation funders

35

Grants recorded

81

Years covered

2019–2025

Who funds Osteogenesis Imperfecta Foundation?

Osteogenesis Imperfecta Foundation is funded by 35 grantmakers, led by Randolph D Rouse Foundation Inc ($1.3M), Degna Spoldi Private Family Foundation ($150K), National Philanthropic Trust ($83K). In total, IRS Form 990 filings record $1.9M in grants to Osteogenesis Imperfecta Foundation between 2019–2025.

FunderTotal givenGrantsYears
Randolph D Rouse Foundation Inc$1,300,00052020–2024
Degna Spoldi Private Family Foundation$150,00032022–2024
National Philanthropic Trust$82,75032020–2025
Pledgeling Foundation$56,32422021–2022
Foundation to Eradicate Duchenne Inc$50,00022023–2025
Silicon Valley Community Foundation$50,00012021
Children's Orthopaedic Surgery Foundatio$30,00342019–2024
The Karina Foundation$30,00042020–2023
Boston Foundation Inc$30,00022021–2022
Arlyne Marks Charitable Foundation$22,00032023–2025
The Wood Curtin Family Fnd Inc$20,00042020–2023
The Blackbaud Giving Fund$12,98322022–2023
The Miami Foundation Inc$10,00012024
Wood Family Foundation Inc$10,00022023–2024
Blanche March Foundation$10,00052020–2024
Gardenia Foundation$10,00012023
Laurie and Reed Morian Foundation$8,00032021–2023
Louis & Phyllis Friedman Foundation$6,00022024–2025
Judith and Henry Sauer Charitable$6,00022022–2023
Herman & Walter Samuelson$5,00012025
The Rosenthal Foundation Inc$5,00012024
American Society for Bone and Mineral Research$5,00012020
Central National Gottesman Foundation$2,50012020
The Rosenfeld Foundation$2,35012019
Mark a and Deborah a Wilhelm Foundation$2,00042021–2024
Show all 35 funders

Funding over time

Grant dollars and counts received per year

$0$200K$400K$600K4 grants2019 12 grants2020 14 grants2021 16 grants2022 16 grants2023 13 grants2024 6 grants2025

From 2019 to 2025, annual grant giving ranged from $13K (2019) to $468K (2023). In 2025 it made 6 grants totaling $67K.

What grants has Osteogenesis Imperfecta Foundation received?

Individual grants from IRS Form 990 filings, newest first

YearFunderPurposeAmount
2025National Philanthropic TrustHUMAN SERVICES$26,250
2025Foundation to Eradicate Duchenne IncTO FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY$25,000
2025Louis & Phyllis Friedman FoundationOPERATIONS$5,000
2025Arlyne Marks Charitable FoundationCharitable$5,000
2025Herman & Walter SamuelsonRESEARCH FUND$5,000
2025St Anthony Helpsin furtherance of charitable purpose$250
2024Randolph D Rouse Foundation IncGENERAL USE BY QUALIFIED DONEE ORGANIZATION$315,000
2024Degna Spoldi Private Family FoundationTO FUND RESEARCH$50,000
2024National Philanthropic TrustRELIGION$26,250
2024Children's Orthopaedic Surgery FoundatioGeneral Support$10,000
2024The Miami Foundation IncPROGRAM SUPPORT$10,000
2024Arlyne Marks Charitable FoundationCharitable$7,000
2024The Rosenthal Foundation IncCONTRIBUTION TO 501(C) CHARITY FOR UNRESTRICTED PURPOSES$5,000
2024Wood Family Foundation IncOPERATIONS$5,000
2024Blanche March FoundationRESEARCH AND SUPPORT$2,000
2024Louis & Phyllis Friedman FoundationUNBREAKABLE SPIRIT FUND$1,000
2024St Anthony Helpsin furtherance of charitable purpose$250
2024Mark a and Deborah a Wilhelm FoundationGENERAL$250
2024Texas Instruments FoundationDONATIONS TO COLLEGES, UNIVERSITIES AND OTHER ORGANIZATIONS UNDER "MATCHING GIFTS PROGRAM."$100
2023Randolph D Rouse Foundation IncGENERAL USE BY QUALIFIED DONEE ORGANIZATION$335,000
2023Degna Spoldi Private Family FoundationTO FUND RESEARCH$50,000
2023Foundation to Eradicate Duchenne IncTO FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY$25,000
2023Arlyne Marks Charitable FoundationCharitable$10,000
2023Gardenia FoundationGENERAL FUND$10,000
2023The Karina FoundationJamie Kendall Fund$10,000
2023The Blackbaud Giving FundGENERAL SUPPORT$5,483
2023Judith and Henry Sauer CharitableHEALTH$5,000
2023Laurie and Reed Morian FoundationBOOTS & BLING FOR BETTER BONES DONATION$5,000
2023The Wood Curtin Family Fnd IncCharity$5,000
2023Wood Family Foundation IncOPERATIONS$5,000

Showing 30 most recent of 81 recorded grants.

Frequently Asked Questions

Who funds Osteogenesis Imperfecta Foundation?

Osteogenesis Imperfecta Foundation is funded by 35 grantmakers, led by Randolph D Rouse Foundation Inc ($1.3M), Degna Spoldi Private Family Foundation ($150K), National Philanthropic Trust ($83K). In total, IRS Form 990 filings record $1.9M in grants to Osteogenesis Imperfecta Foundation between 2019–2025.

Who is Osteogenesis Imperfecta Foundation's largest funder?

Randolph D Rouse Foundation Inc is the largest recorded funder of Osteogenesis Imperfecta Foundation, with $1.3M across 5 grants (2020–2024).

How much grant funding has Osteogenesis Imperfecta Foundation received?

IRS 990 filings record $1.9M in grants to Osteogenesis Imperfecta Foundation across 81 grants from 35 funders between 2019–2025. Filings are published on a delay, so recent grants may not appear yet.

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Grant data is drawn from IRS Form 990 filings via Grantable's GrantGraph™. Filings are published on a delay; recent grants may not appear yet.

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