Osteogenesis Imperfecta Foundation
OUR MISSION IS TO IMPROVE THE QUALITY OF LIFE FOR PEOPLE AFFECTED BY OI THROUGH RESEARCH TO FIND TREATMENTS AND A CURE, EDUCATION, AWARENESS, AND MUTUAL SUPPORT. THERE ARE AT LEAST FOUR DISTINCT FORMS OF OSTEOGENESIS IMPERFECTA REPRESENTING EXTREME VARIATIONS IN SEVERITY AND AFFECTING 20,000 TO 40,000 PEOPLE IN THE UNITED STATES.
Key facts about Osteogenesis Imperfecta Foundation
- EIN
- 23-7076021
- Latest 990 filing
- Form 990-PF, 2025
- Total assets
- $1,660,457
Data from IRS Form 990-PF, 2025; updated September 2026.
Next steps with Osteogenesis Imperfecta Foundation
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Financial Overview
From 2025 IRS Form 990-PF · View filing
Total Assets
$1.7M
-21.9% YoY
Revenue
$2.6M
+14.8% YoY
Net Investment Income
$309K
+441.9% YoY
Expenses
$2.6M
+7.2% YoY
About Osteogenesis Imperfecta Foundation
Based on IRS filings
Osteogenesis Imperfecta Foundation is a nonprofit organization focused on Medical Research, based in Gaithersburg, MD. IRS filing data is available from 2019 through 2025. As of 2025, the organization holds $1.7M in total assets. Net investment income was $309K.
Focus Areas
Ready to take the next step with Osteogenesis Imperfecta Foundation?
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2025 | 2024 | 2023 |
|---|---|---|---|
| Total Assets | $1,660,457 | $2,125,391 | $2,346,165 |
| Revenue | $2,607,851 | $2,271,920 | $2,214,512 |
| Expenses | $2,627,305 | $2,451,085 | $2,085,298 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $309,216 | $57,062 | $50,847 |
| Distributable Amount | — | — | — |
Data update history
When this profile's IRS filing data changed on Grantable
- IRS filings on file for fiscal years 2019–2025
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 0 recipients in 2025
Grant Size Distribution
0 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for 2025.
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2025 IRS filing
From 2025 IRS filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Christine Wyman Rossi | President | 2 | — |
| Kara B Ayers | Vice President | 2 | — |
| Kenneth Finkel | Vice President | 2 | — |
| Michelle Fynan | Vice President | 2 | — |
| James Sharples | Treasurer | 2 | — |
| Karen Braitmayer | Secretary | 2 | — |
| Julie Hocker | Board Member | 2 | — |
| Billy Huang | Board Member | 2 | — |
| Tony Jacobsen | Board Member | 2 | — |
| Cindy Medina | Board Member | 2 | — |
| Wendy E Sacks | Board Member | 2 | — |
| Michael Sheridan | Board Member | 2 | — |
| V Reid Sutton | Board Member | 2 | — |
| Emily F Voorde | Board Member | 2 | — |
| Scott Walls | Board Member | 2 | — |
| Tracy Smith Hart | Chief Executive Officer | 40 | $215,284 |
| Katherine E Carter | Chief Program Officer | 40 | $135,886 |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Osteogenesis Imperfecta Foundation?
Osteogenesis Imperfecta Foundation is a nonprofit organization focused on Medical Research, based in Gaithersburg, MD. It holds $1.7M in total assets as of 2025.
How large is Osteogenesis Imperfecta Foundation?
As of 2025, Osteogenesis Imperfecta Foundation holds $1.7M in total assets with $2.6M in annual revenue.
Where does Osteogenesis Imperfecta Foundation operate?
Osteogenesis Imperfecta Foundation has awarded grants in District of Columbia, Delaware, Florida, Maryland, North Carolina, Nebraska, New York.
What is Osteogenesis Imperfecta Foundation's EIN?
Osteogenesis Imperfecta Foundation's EIN (Employer Identification Number) is 23-7076021. IRS Form 990 filing data is available on this page for 2019–2025.
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Data last updated September 2026. Sourced from IRS Form 990-PF filings.