Down Syndrome Diagnosis Network
TO CONNECT SUPPORT AND PROVIDE ACCURATE INFORMATION TO FAMILIES WITH A DOWN SYNDROME DIAGNOSIS
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$628K
-10.5% YoY
Annual Giving
$14K
+37.5% YoY
Grant Count
1
+0.0% YoY
Avg Grant Size
$14K
+37.5% YoY
About Down Syndrome Diagnosis Network
Based on IRS filings
Down Syndrome Diagnosis Network is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in STILLWATER, MN. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $628K in total assets. In 2024, it awarded 1 grants totaling $14K. Net investment income was $7K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $627,566 | $701,264 | $643,501 |
| Revenue | $562,113 | $636,269 | $500,167 |
| Expenses | $618,904 | $575,865 | $505,978 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $6,883 | $7,110 | $-1,620 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 1 recipients in 2024
Grant Size Distribution
11 grants across all recorded years
Open Grants
1 open opportunity from Down Syndrome Diagnosis Network
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| KATHLEEN SEITZ | PRESIDENT | 1 | — |
| PATRICIA NESBITT | VICE PRESIDENT | 1 | — |
| JULIA KAUFMAN | TREASURER | 1 | — |
| TARYN LAGONIGRO | SECRETARY | 1 | — |
| JENNY DI BENEDETTO | DIRECTOR | 1 | — |
| CASSANDRA DRAKE | DIRECTOR | 1 | — |
| BEN HUGHES | DIRECTOR | 1 | — |
| MICHAEL PASCUAL | DIRECTOR | 1 | — |
| JENNIFER DINGMAN | DIRECTOR | 1 | — |
| TONY NOWICKI | DIRECTOR | 1 | — |
| ANNA YEN KIM | DIRECTOR | 1 | — |
| SARAH MESA-HAAS | DIRECTOR | 1 | — |
| MELISSA SHUTWELL | EXECUTIVE DIRECTOR | 32 | $80,250 |
Subject Areas
Focus areas based on grantmaking activity
Related Funders
Similar funders by location and focus area
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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