Down Syndrome Diagnosis Network
TO CONNECT SUPPORT AND PROVIDE ACCURATE INFORMATION TO FAMILIES WITH A DOWN SYNDROME DIAGNOSIS
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$628K
-10.5% YoY
Annual Giving
$14K
+37.5% YoY
Grant Count
1
+0.0% YoY
Avg Grant Size
$14K
+37.5% YoY
About Down Syndrome Diagnosis Network
Based on IRS filings
Down Syndrome Diagnosis Network is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in STILLWATER, MN. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $628K in total assets. In 2024, it awarded 1 grants totaling $14K. Net investment income was $7K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $627,566 | $701,264 | $643,501 |
| Revenue | $562,113 | $636,269 | $500,167 |
| Expenses | $618,904 | $575,865 | $505,978 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $6,883 | $7,110 | $-1,620 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 1 recipients in 2024
Grant Size Distribution
11 grants across all recorded years
Open Grants
1 open opportunity from Down Syndrome Diagnosis Network
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include National Down Syndrome Congress ($13,750).
| Recipient | Purpose | Amount |
|---|---|---|
| NATIONAL DOWN SYNDROME CONGRESS ROSWELL, GA | MEDICAL OUTREACH | $13,750 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| KATHLEEN SEITZ | PRESIDENT | 1 | — |
| PATRICIA NESBITT | VICE PRESIDENT | 1 | — |
| JULIA KAUFMAN | TREASURER | 1 | — |
| TARYN LAGONIGRO | SECRETARY | 1 | — |
| JENNY DI BENEDETTO | DIRECTOR | 1 | — |
| CASSANDRA DRAKE | DIRECTOR | 1 | — |
| BEN HUGHES | DIRECTOR | 1 | — |
| MICHAEL PASCUAL | DIRECTOR | 1 | — |
| JENNIFER DINGMAN | DIRECTOR | 1 | — |
| TONY NOWICKI | DIRECTOR | 1 | — |
| ANNA YEN KIM | DIRECTOR | 1 | — |
| SARAH MESA-HAAS | DIRECTOR | 1 | — |
| MELISSA SHUTWELL | EXECUTIVE DIRECTOR | 32 | $80,250 |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Down Syndrome Diagnosis Network?
Down Syndrome Diagnosis Network is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in STILLWATER, MN. It holds $628K in total assets as of 2024.
How large is Down Syndrome Diagnosis Network?
As of 2024, Down Syndrome Diagnosis Network holds $628K in total assets with $562K in annual revenue. It awarded 1 grants totaling $14K in 2024.
Where does Down Syndrome Diagnosis Network operate?
Down Syndrome Diagnosis Network has awarded grants in Connecticut, Georgia, Kentucky, Michigan, North Carolina, New Jersey, Oklahoma, Oregon, Texas.
What size grants does Down Syndrome Diagnosis Network award?
In 2024, Down Syndrome Diagnosis Network awarded 1 grants totaling $14K — an average of about $14K per grant, based on its IRS Form 990 filings.
What is Down Syndrome Diagnosis Network's EIN?
Down Syndrome Diagnosis Network's EIN (Employer Identification Number) is 46-3042112. IRS Form 990 filing data is available on this page for 2020–2024.
Explore Open Grants
Browse active grant opportunities in Down Syndrome Diagnosis Network's focus areas in our free grants database
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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