National Down Syndrome Congress
Funding Overview
From IRS Form 990 filings · 2018–2025
Total received
$389K
Foundation funders
18
Grants recorded
34
Years covered
2018–2025
Who funds National Down Syndrome Congress?
National Down Syndrome Congress is funded by 18 grantmakers, led by The Anna and John J Sie Foundation ($100K), Marino Family Charitable Foundation Inc ($75K), Linlundh Foundation ($60K). In total, IRS Form 990 filings record $389K in grants to National Down Syndrome Congress between 2018–2025.
| Funder | Total given | Grants | Years |
|---|---|---|---|
| The Anna and John J Sie Foundation | $100,000 | 6 | 2020–2023 |
| Marino Family Charitable Foundation Inc | $75,000 | 5 | 2018–2024 |
| Linlundh Foundation | $60,000 | 1 | 2020 |
| Southern Company Gas Charitable | $35,000 | 2 | 2022–2024 |
| Down Syndrome Diagnosis Network | $34,607 | 3 | 2023–2025 |
| Kim Edwards Charitable Foundation Inc | $25,000 | 5 | 2020–2024 |
| Pharmaceutical Research and Manufacturers of America | $15,000 | 1 | 2020 |
| Georgia State University Foundation Inc | $10,500 | 1 | 2024 |
| UPMC Group | $10,000 | 1 | 2019 |
| America's Charities | $5,756 | 1 | 2020 |
| The Arnold Foundation Inc | $5,000 | 1 | 2023 |
| PulteGroup Inc Charitable Foundation Inc | $5,000 | 1 | 2022 |
| The John and Rosemary Brown Family | $5,000 | 1 | 2022 |
| Harris Family Foundation | $2,525 | 1 | 2025 |
| Bristol-Myers Squibb Foundation Inc | $75 | 1 | 2023 |
| Arthur J Gallagher Foundation | $50 | 1 | 2022 |
| Baird Foundation Inc | $50 | 1 | 2021 |
| Textron Charitable Trust Dtd 122353 | $50 | 1 | 2020 |
Funding over time
Grant dollars and counts received per year
From 2018 to 2025, annual grant giving ranged from $10K (2019) to $126K (2020). In 2025 it made 2 grants totaling $13K.
What grants has National Down Syndrome Congress received?
Individual grants from IRS Form 990 filings, newest first
| Year | Funder | Purpose | Amount |
|---|---|---|---|
| 2025 | Down Syndrome Diagnosis Network | MEDICAL OUTREACH | $10,857 |
| 2025 | Harris Family Foundation | GENERAL SUPPORT | $2,525 |
| 2024 | Southern Company Gas Charitable | COMMUNITY ENRICHMENT | $25,000 |
| 2024 | Marino Family Charitable Foundation Inc | TO FURTHER THE CHARITABLE PURPOSE | $15,000 |
| 2024 | Down Syndrome Diagnosis Network | MEDICAL OUTREACH | $13,750 |
| 2024 | Georgia State University Foundation Inc | OPERATIONS & PROGRAM SUPPORT | $10,500 |
| 2024 | Kim Edwards Charitable Foundation Inc | CHARITABLE | $5,000 |
| 2023 | The Anna and John J Sie Foundation | FOR DOWN SYNDROME SUPPORT. | $20,000 |
| 2023 | Marino Family Charitable Foundation Inc | TO FURTHER THE CHARITABLE PURPOSE | $15,000 |
| 2023 | Down Syndrome Diagnosis Network | MEDICAL OUTREACH | $10,000 |
| 2023 | Kim Edwards Charitable Foundation Inc | CHARITABLE | $5,000 |
| 2023 | The Arnold Foundation Inc | OPERATIONS | $5,000 |
| 2023 | Bristol-Myers Squibb Foundation Inc | EMPLOYEE GIVING PROGRAM | $75 |
| 2022 | The Anna and John J Sie Foundation | FOR DOWN SYNDROME SUPPORT. | $30,000 |
| 2022 | Marino Family Charitable Foundation Inc | TO FURTHER THE CHARITABLE PURPOSE | $15,000 |
| 2022 | Southern Company Gas Charitable | COMMUNITY SUPPORT | $10,000 |
| 2022 | PulteGroup Inc Charitable Foundation Inc | Charitable Event | $5,000 |
| 2022 | Kim Edwards Charitable Foundation Inc | CHARITABLE | $5,000 |
| 2022 | The John and Rosemary Brown Family | GENERAL | $5,000 |
| 2022 | Arthur J Gallagher Foundation | GENERAL EXEMPT PURPOSE | $50 |
| 2021 | The Anna and John J Sie Foundation | Provides information, advocacy and support concerning all aspects of life for individuals with Down Syndrome | $12,500 |
| 2021 | The Anna and John J Sie Foundation | Provides information, advocacy and support concerning all aspects of life for individuals with Down Syndrome | $12,500 |
| 2021 | Kim Edwards Charitable Foundation Inc | CHARITABLE | $5,000 |
| 2021 | Baird Foundation Inc | HEALTH AND HUMAN SERVICES | $50 |
| 2020 | Linlundh Foundation | EDUCATIONAL & COMMUNITY PURPOSES | $60,000 |
| 2020 | Marino Family Charitable Foundation Inc | TO FURTHER THE CHARITABLE PURPOSE | $15,000 |
| 2020 | Pharmaceutical Research and Manufacturers of America | General Contribution | $15,000 |
| 2020 | The Anna and John J Sie Foundation | Provides information, advocacy and support concerning all aspects of life for individuals with Down Syndrome | $12,500 |
| 2020 | The Anna and John J Sie Foundation | Provides information, advocacy and support concerning all aspects of life for individuals with Down Syndrome | $12,500 |
| 2020 | America's Charities | GENERAL SUPPORT | $5,756 |
Showing 30 most recent of 34 recorded grants.
Frequently Asked Questions
Who funds National Down Syndrome Congress?
National Down Syndrome Congress is funded by 18 grantmakers, led by The Anna and John J Sie Foundation ($100K), Marino Family Charitable Foundation Inc ($75K), Linlundh Foundation ($60K). In total, IRS Form 990 filings record $389K in grants to National Down Syndrome Congress between 2018–2025.
Who is National Down Syndrome Congress's largest funder?
The Anna and John J Sie Foundation is the largest recorded funder of National Down Syndrome Congress, with $100K across 6 grants (2020–2023).
How much grant funding has National Down Syndrome Congress received?
IRS 990 filings record $389K in grants to National Down Syndrome Congress across 34 grants from 18 funders between 2018–2025. Filings are published on a delay, so recent grants may not appear yet.
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Grant data is drawn from IRS Form 990 filings via Grantable's GrantGraph™. Filings are published on a delay; recent grants may not appear yet.
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