Dion Foundation for Children with Rare Diseases Inc
The mission is to increase awareness of rare and ultra-rare diseases that affect children with the intention of raising and allocating funds for research and development of treatments and cures.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$174K
-48.2% YoY
Annual Giving
$850K
+1260.2% YoY
Grant Count
1
+0.0% YoY
Avg Grant Size
$850K
+1260.2% YoY
About Dion Foundation for Children with Rare Diseases Inc
Based on IRS filings
Dion Foundation for Children with Rare Diseases Inc is a nonprofit organization focused on Medical Research, based in MARSHFIELD, MA. IRS filing data is available from 2023 through 2024. As of 2024, the organization holds $174K in total assets. In 2024, it awarded 1 grants totaling $850K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 |
|---|---|---|
| Total Assets | $173,506 | $334,842 |
| Revenue | $776,008 | $468,167 |
| Expenses | $937,344 | $133,325 |
| Qualifying Distributions | — | — |
| Net Investment Income | — | — |
| Distributable Amount | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 1 recipients in 2024
Grant Size Distribution
2 grants across all recorded years
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include Atamyo Therapeutics ($850,150).
| Recipient | Purpose | Amount |
|---|---|---|
| Atamyo Therapeutics | Research | $850,150 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Courtney P | Dion | 30 | — |
| Joseph N | Dion | 30 | — |
| Margaret | Ryan | 3 | — |
| Julia | Ryan | 3 | — |
| Sarah | OBrien | 3 | — |
| Leah | Santo | 3 | — |
| Samantha | Ryan | 3 | — |
| Chris | Burgoyne | 3 | — |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Dion Foundation for Children with Rare Diseases Inc?
Dion Foundation for Children with Rare Diseases Inc is a nonprofit organization focused on Medical Research, based in MARSHFIELD, MA. It holds $174K in total assets as of 2024.
How large is Dion Foundation for Children with Rare Diseases Inc?
As of 2024, Dion Foundation for Children with Rare Diseases Inc holds $174K in total assets with $776K in annual revenue. It awarded 1 grants totaling $850K in 2024.
Where does Dion Foundation for Children with Rare Diseases Inc operate?
Dion Foundation for Children with Rare Diseases Inc has awarded grants in Virginia.
What size grants does Dion Foundation for Children with Rare Diseases Inc award?
In 2024, Dion Foundation for Children with Rare Diseases Inc awarded 1 grants totaling $850K — an average of about $850K per grant, based on its IRS Form 990 filings.
What is Dion Foundation for Children with Rare Diseases Inc's EIN?
Dion Foundation for Children with Rare Diseases Inc's EIN (Employer Identification Number) is 92-2280592. IRS Form 990 filing data is available on this page for 2023–2024.
Explore Open Grants
Browse active grant opportunities in Dion Foundation for Children with Rare Diseases Inc's focus areas in our free grants database
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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