Dion Foundation for Children with Rare Diseases Inc logo

Dion Foundation for Children with Rare Diseases Inc

MARSHFIELD, MA EIN: 92-2280592 Website

The mission is to increase awareness of rare and ultra-rare diseases that affect children with the intention of raising and allocating funds for research and development of treatments and cures.

Financial Overview

From 2024 IRS Form 990-PF · View filing

Total Assets

$174K

-48.2% YoY

Annual Giving

$850K

+1260.2% YoY

Grant Count

1

+0.0% YoY

Avg Grant Size

$850K

+1260.2% YoY

About Dion Foundation for Children with Rare Diseases Inc

Based on IRS filings

Dion Foundation for Children with Rare Diseases Inc is a nonprofit organization focused on Medical Research, based in MARSHFIELD, MA. IRS filing data is available from 2023 through 2024. As of 2024, the organization holds $174K in total assets. In 2024, it awarded 1 grants totaling $850K.

Focus Areas

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Geographic Focus

Where this funder awards grants

Grant Distribution by State

1states

States

Cities

Richmond

Financial History

Multi-year comparison from IRS filings

Revenue
Expenses
Qualifying Distributions
Net Investment Income
$0$258K$516K$773K$1M20232024
Metric20242023
Total Assets$173,506$334,842
Revenue$776,008$468,167
Expenses$937,344$133,325
Qualifying Distributions
Net Investment Income
Distributable Amount

Giving Over Time

Total grant dollars and number of grants per year

$0$213K$425K$638K$850K1 grants20231 grants2024

Grant Insights

How this funder distributes its grants

Top Recipients

Top 1 recipients in 2024

Atamyo Therapeutics$850K

Grant Size Distribution

2 grants across all recorded years

<$50K1$50–100K$100–250K$250–500K1$500K–1M$1–5M$5M+

Giving History

Grant recipients and amounts by year

Among its reported 2024 grants, the largest include Atamyo Therapeutics ($850,150).

RecipientPurposeAmount
Atamyo Therapeutics Research$850,150

Leadership & Key People

Officers and directors from IRS filings

Compensation Overview

From 2024 IRS filing

From 2024 filing

NameTitleHoursCompensation
Courtney PDion30
Joseph NDion30
MargaretRyan3
JuliaRyan3
SarahOBrien3
LeahSanto3
SamanthaRyan3
ChrisBurgoyne3

Subject Areas

Focus areas based on grantmaking activity

Frequently Asked Questions

What is Dion Foundation for Children with Rare Diseases Inc?

Dion Foundation for Children with Rare Diseases Inc is a nonprofit organization focused on Medical Research, based in MARSHFIELD, MA. It holds $174K in total assets as of 2024.

How large is Dion Foundation for Children with Rare Diseases Inc?

As of 2024, Dion Foundation for Children with Rare Diseases Inc holds $174K in total assets with $776K in annual revenue. It awarded 1 grants totaling $850K in 2024.

Where does Dion Foundation for Children with Rare Diseases Inc operate?

Dion Foundation for Children with Rare Diseases Inc has awarded grants in Virginia.

What size grants does Dion Foundation for Children with Rare Diseases Inc award?

In 2024, Dion Foundation for Children with Rare Diseases Inc awarded 1 grants totaling $850K — an average of about $850K per grant, based on its IRS Form 990 filings.

What is Dion Foundation for Children with Rare Diseases Inc's EIN?

Dion Foundation for Children with Rare Diseases Inc's EIN (Employer Identification Number) is 92-2280592. IRS Form 990 filing data is available on this page for 2023–2024.

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Data last updated April 2026. Sourced from IRS Form 990-PF filings.

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