Dion Foundation for Children with Rare Diseases Inc
The mission is to increase awareness of rare and ultra-rare diseases that affect children with the intention of raising and allocating funds for research and development of treatments and cures.
Dion Foundation for Children with Rare Diseases Inc at a glance
In short: Dion Foundation for Children with Rare Diseases Inc gave $850K across 1 grant in 2024 (avg $850K). Source: 2024 IRS Form 990.
- Annual giving (2024)
- $850,150
- +1260.2% vs 2023
- Grants made (2024)
- 1
- +0.0% vs 2023
- Average grant
- $850,150
- +1260.2% vs 2023
- Median grant
- $850,150
- Total assets
- $173,506
- -48.2% vs 2023
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026.
Who Dion Foundation for Children with Rare Diseases Inc funds
How this funder distributes its grants
Top Recipients
Top recipient in 2024
The largest 2024 recipient was Atamyo Therapeutics ($850K).
Grant Size Distribution
2 grants across all recorded years
The most common grant size was in the $50–100K range: 1 grant of 2 (50%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2023 to 2024, annual grant giving ranged from $63K (2023) to $850K (2024). In 2024 it made 1 grant totaling $850K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Atamyo Therapeutics | Research | $850,150 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants |
|---|---|---|---|---|---|
| 2024 | $173,506 | $776,008 | $937,344 | $850,150 | 1 |
| 2023 | $334,842 | $468,167 | $133,325 | $62,500 | 1 |
About Dion Foundation for Children with Rare Diseases Inc
Based on IRS filings
Dion Foundation for Children with Rare Diseases Inc is a public charity focused on Medical Research, based in Marshfield, MA. IRS filing data is available from 2023 through 2024. As of 2024, the organization holds $174K in total assets. In 2024, it awarded 1 grant totaling $850K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Dion Foundation for Children with Rare Diseases Inc's 2024 filing lists 8 officers; none of the 8 officers listed in 2024 report compensation.
Officers on the 2024 filing
Courtney P
Dion
On filings since 2023
30 hrs/week
No compensation reported
Joseph N
Dion
On filings since 2023
30 hrs/week
No compensation reported
Julia
Ryan
On filings since 2023
3 hrs/week
No compensation reported
Leah
Santo
On filings since 2023
3 hrs/week
No compensation reported
Margaret
Ryan
On filings since 2023
3 hrs/week
No compensation reported
Samantha
Ryan
On filings since 2023
3 hrs/week
No compensation reported
Sarah
Obrien
On filings since 2023
3 hrs/week
No compensation reported
Chris
Burgoyne
New on the 2024 filing
3 hrs/week
No compensation reported
Data from IRS Form 990 filings, 2023–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Frequently asked questions about Dion Foundation for Children with Rare Diseases Inc
How much does Dion Foundation for Children with Rare Diseases Inc give each year?
Dion Foundation for Children with Rare Diseases Inc gave $850K across 1 grant in 2024, according to its 2024 IRS Form 990. In 2023 it gave $63K across 1 grant.
How large is Dion Foundation for Children with Rare Diseases Inc?
Dion Foundation for Children with Rare Diseases Inc reported $174K in total assets on its 2024 IRS Form 990. Its revenue that year was $776K.
What is Dion Foundation for Children with Rare Diseases Inc?
Dion Foundation for Children with Rare Diseases Inc is a public charity focused on Medical Research, based in Marshfield, MA. It holds $174K in total assets as of 2024.
Where does Dion Foundation for Children with Rare Diseases Inc operate?
Dion Foundation for Children with Rare Diseases Inc has awarded grants in Virginia.
What is Dion Foundation for Children with Rare Diseases Inc's EIN?
Dion Foundation for Children with Rare Diseases Inc's EIN (Employer Identification Number) is 92-2280592. IRS Form 990 filing data is available on this page for 2023–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(3)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2023 (received by the IRS November 14, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS November 17, 2025)
- IRS filings on file for fiscal years 2023–2024
Live grants for the work Dion Foundation for Children with Rare Diseases Inc funds
Medical Research Open opportunities, soonest deadline first.
- Dr. Richard A. Falls Virginia Lions Eye Institute Research Grant Up to $40,000 (yearly total budget) · Due October 25, 2026
- NSF Graduate Research Fellowship Program (GRFP) $32,000 annually plus $12,000 cost of education allowance · Due October 27, 2026
- Social, Political and Economic Inequality Grants Due October 28, 2026
Explore Open Grants
Browse active grant opportunities in Dion Foundation for Children with Rare Diseases Inc's focus areas in our free grants database
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