Danny Did Foundation
To advance public awareness of epilepsy and the risk of sudden unexpected death in epilepsy (SUDEP), to protect people with epilepsy, and to prevent deaths caused by seizures. 3.4 million people are facing the challenges of epilepsy in the U.S. and more than 50 million people are affected by epilepsy worldwide. The issue of aggressively addressing SUDEP is as urgent as it is logical.
Danny Did Foundation at a glance
In short: Danny Did Foundation gave $50K across 3 grants in 2024 (avg $17K), mostly in Maryland. Source: 2024 IRS Form 990.
- Annual giving (2024)
- $50,000
- +66.7% vs 2023
- Grants made (2024)
- 3
- +50.0% vs 2023
- Average grant
- $16,667
- +11.1% vs 2023
- Median grant
- $15,000
- Total assets
- $3,226,076
- +7.7% vs 2023
- Primary geography
- Maryland (50% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026.
How to apply to Danny Did Foundation
Open Grants
7 open opportunities from Danny Did Foundation
Danny Did Foundation Seizure Detection Device Funding
Danny Did Foundation
Amount
Varies
Deadline
Rolling
Devices & Technology Grant
Danny Did Foundation
Amount
Varies
Deadline
Rolling (quarterly review)
EADDL Travel Assistance (Epilepsy Awareness Day at Disney Land)
Danny Did Foundation
Amount
Varies
Deadline
Deadline not published
Who Danny Did Foundation funds
How this funder distributes its grants
Top Recipients
Top 3 recipients in 2024
The largest 2024 recipient was Epilepsy Foundation ($25K). Together the top 3 received $50K.
Grant Size Distribution
7 grants across all recorded years
The most common grant size was under $50K: 7 grants of 7 (100%).
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2022 to 2024, annual grant giving ranged from $30K (2023) to $50K (2024). In 2024 it made 3 grants totaling $50K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Epilepsy Foundation Bowie, MD | Support for Epilepsy Community Events & Conferences | $25,000 |
| American Epilepsy Society Chicago, IL | Support for Sudep Educational Conference | $15,000 |
| Row Foundation Naperville, IL | Support for Sudep Education | $10,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $3,226,076 | $1,697,246 | $1,466,629 | $50,000 | 3 | $94,533 |
| 2023 | $2,995,274 | $1,572,464 | $1,248,428 | $30,000 | 2 | $69,907 |
| 2022 | $2,564,434 | $1,454,711 | $957,390 | $40,000 | 2 | $49,782 |
| 2021 | $2,130,382 | $1,124,024 | $648,162 | — | — | $64,060 |
| 2020 | $1,607,280 | $701,745 | $573,688 | — | — | $10,646 |
About Danny Did Foundation
Based on IRS filings
Danny Did Foundation is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Evanston, IL. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $3.2M in total assets. In 2024, it awarded 3 grants totaling $50K. Net investment income was $95K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Danny Did Foundation is led by Mary Duffy, Executive Director since 2023 (on filings since 2020); 2 of 18 officers listed in 2024 are compensated.
Officers on the 2024 filing
Mary Duffy
Executive Director
Assistant Executive Director → Executive Director, 2023
On filings since 2020
50 hrs/week
$94K (2020) → $111K (2024)
Thomas F. Stanton
President
Executive Director → President, 2023
On filings since 2020
50 hrs/week
$137K (2020) → $172K (2024)
Kurt Florian
Board President
President → Board President, 2023
On filings since 2021
3 hrs/week
No compensation reported
Jeanine McShea
Director
President → Director, 2021
On filings since 2020
3 hrs/week
No compensation reported
John Wrenn
Director
On filings since 2020
3 hrs/week
No compensation reported
Julie Dix
Director
On filings since 2020
3 hrs/week
No compensation reported
Lynn Hanley
Director
Secretary → Director, 2023
On filings since 2020
3 hrs/week
No compensation reported
Tracy Jablonski
Director
On filings since 2020
3 hrs/week
No compensation reported
Jennifer Sime
Director
Vice President → Director, 2023
On filings since 2021
3 hrs/week
No compensation reported
Kari Heideman
Director
On filings since 2021
3 hrs/week
No compensation reported
Jennifer Stoner
Director
On filings since 2023
3 hrs/week
No compensation reported
Katie Onsager
Director
On filings since 2023
3 hrs/week
No compensation reported
Rebecca Garcia Sosa
Director
On filings since 2023
3 hrs/week
No compensation reported
Scot Gillespie
Director
On filings since 2023
3 hrs/week
No compensation reported
John Dreixler
Director
New on the 2024 filing
3 hrs/week
No compensation reported
Caroline McAteer
Vice President
Vice President → Director, 2021
Director → Vice President, 2023
On filings since 2020
3 hrs/week
No compensation reported
Josh Gabby
Treasurer
Director → Treasurer, 2021
On filings since 2020
3 hrs/week
No compensation reported
Diane Garvey
Secretary
Director → Secretary, 2023
On filings since 2021
3 hrs/week
No compensation reported
Former officers (8)
- Former: Dan Kotowski (2020–2022) — Director
- Former: Jerry Luo (2020–2022) — Director
- Former: Margaret Storey (2020–2022) — Director
- Former: Mike Stanton (2020–2022) — Director
- Former: Courtney Murphy (2020) — Director
- Former: Doug Bruno (2020) — Director Emeritus
- Former: Katherine Heideman (2020) — Director
- Former: Scott Verhey (2020) — Director
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
The highest reported compensation on the 2024 filing was $172K, to Thomas F Stanton (President). 2 officers or directors reported compensation on that filing.
Frequently asked questions about Danny Did Foundation
How much does Danny Did Foundation give each year?
Danny Did Foundation gave $50K across 3 grants in 2024, according to its 2024 IRS Form 990. In 2023 it gave $30K across 2 grants.
What is Danny Did Foundation's typical grant size?
Danny Did Foundation's median grant in 2024 was $15,000, and its average grant was $16,667, across 3 grants on its 2024 IRS Form 990.
Where does Danny Did Foundation give grants?
Danny Did Foundation gives mostly in Maryland: 50% of the grant dollars itemized on its 2024 IRS Form 990 went to recipients there. The next largest state was Illinois (50%).
Does Danny Did Foundation give general operating support?
Not in 2024: none of the 3 grants with a stated purpose on Danny Did Foundation's 2024 IRS Form 990 were described as general or operating support.
How large is Danny Did Foundation?
Danny Did Foundation reported $3.2M in total assets on its 2024 IRS Form 990. Its revenue that year was $1.7M.
What is Danny Did Foundation?
Danny Did Foundation is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Evanston, IL. It holds $3.2M in total assets as of 2024.
What is Danny Did Foundation's EIN?
Danny Did Foundation's EIN (Employer Identification Number) is 27-1642251. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(4)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2022 (received by the IRS October 2, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS June 17, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS June 20, 2025)
- IRS filings on file for fiscal years 2020–2024
Explore Open Grants
Browse active grant opportunities in Danny Did Foundation's focus areas in our free grants database
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