Connective Tissue Oncology Society
The society's purpose is to promote education, research, and patient care through the advancement of connective tissue oncology and oncology research.
Connective Tissue Oncology Society at a glance
- Total assets
- $1,853,369
- +7.9% vs 2024
- Revenue (2025)
- $2,352,142
- +29.0% vs 2024
- Net investment income (2025)
- $63,061
- -3.6% vs 2024
- Expenses (2025)
- $2,195,866
- +7.2% vs 2024
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated October 2026.
Who Connective Tissue Oncology Society funds
How this funder distributes its grants
Grant Size Distribution
4 grants across all recorded years
The most common grant size was in the $100–250K range: 3 grants of 4 (75%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2024, annual grant giving ranged from $4K (2023) to $619K (2021). In 2024 it reported $4K in grants paid, as a total without an itemized list.
Hatched bars: grants paid as reported on the IRS filing, which lists no individual grants for that year.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| University of Pittsburgh Pittsburgh, PA | Research | $218,766 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $1,853,369 | $2,352,142 | $2,195,866 | — | — | $63,061 |
| 2024 | $1,717,562 | $1,823,765 | $2,048,655 | $4,166 | Total only | $65,413 |
| 2023 | $1,931,646 | $1,933,129 | $1,714,189 | $4,000 | Total only | $56,266 |
| 2022 | $1,703,294 | $1,806,146 | $1,637,580 | $218,766 | 1 | $15,753 |
| 2021 | $1,534,928 | $1,139,684 | $1,165,243 | $618,782 | 3 | $121 |
| 2020 | $1,560,887 | $2,213,869 | $1,196,532 | $449,967 | 2 | $2,119 |
"Total only": grants paid as reported on the IRS filing, which lists no individual grants for that year.
About Connective Tissue Oncology Society
Based on IRS filings
Connective Tissue Oncology Society is a public charity focused on Education, based in Alexandria, VA. IRS filing data is available from 2020 through 2025. As of 2025, the organization holds $1.9M in total assets. Net investment income was $63K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Connective Tissue Oncology Society is led by Barbara Rapp, Executive Director on every filing since 2020; 1 of 17 officers listed in 2025 is compensated.
Officers on the 2025 filing
Barbara Rapp
Executive Director
On filings since 2020
30 hrs/week
$168K (2020) → $286K (2025)
Silvia Stacchioti MD
President
Secretary → Vice President, 2024
Vice President → President, 2025
On filings since 2020
2 hrs/week
No compensation reported
Nadia Hindi MD
Director
On filings since 2023
1 hr/week
No compensation reported
Rebecca Gladdy MD PhD
Director
On filings since 2023
1 hr/week
No compensation reported
Sandra D'angelo MD
Director
On filings since 2023
1 hr/week
No compensation reported
Torsten Nielson MD PhD
Director
On filings since 2023
1 hr/week
No compensation reported
Ashleigh Guadagnolo MD
Director
On filings since 2024
1 hr/week
No compensation reported
Paul Huang MD
Director
On filings since 2024
1 hr/week
No compensation reported
Sebastian Bauer MD
Director
On filings since 2024
1 hr/week
No compensation reported
Ana Sebio MD PhD
Director
New on the 2025 filing
1 hr/week
No compensation reported
Jason Sicklick Md Facs
Director
New on the 2025 filing
1 hr/week
No compensation reported
Odion Binitie MD PhD
Director
New on the 2025 filing
1 hr/week
No compensation reported
Tom Chen MD
Director
New on the 2025 filing
1 hr/week
No compensation reported
Damon Reed MD
Immediate Past President
Vice President → President, 2024
President → Immediate Past President, 2025
On filings since 2020
1 hr/week
No compensation reported
Maureen O'Sullivan MD
Secretary
Director → Treasurer, 2024
Treasurer → Secretary, 2025
On filings since 2020
2 hrs/week
No compensation reported
Robin Jones MD
Vice President
Treasurer → Secretary, 2024
Secretary → Vice President, 2025
On filings since 2020
2 hrs/week
No compensation reported
Abha Gupta MD
Treasurer
New on the 2025 filing
2 hrs/week
No compensation reported
Former officers (19)
- Former: Carol Swallow MD PhD (2020–2024) — Immediate Past President
- Former: Chandrajit Raut MD (2022–2024) — Director
- Former: Herbert Loong MD (2022–2024) — Director
- Former: Inga-Marie Schaefer MD (2022–2024) — Director
- Former: Noah Federman MD (2022–2024) — Director
- Former: William Tap MD (2020–2023) — Past President
- Former: Bernd Kasper MD PhD (2021–2023) — Director
- Former: E. Alejandro Sweet-Cordero MD (2021–2023) — Director
- Former: Margaret Von Mehren MD (2021–2023) — Director
- Former: Dirk Strauss MD (2020–2022) — Director
- Former: Rick Haas MD (2020–2022) — Past President
- Former: Winette Van Der Graaf MD (2020–2022) — Director
- Former: Elizabeth Demicco MD PhD (2020–2021) — Director
- Former: Eugenie Kleinerman MD (2020–2021) — Director
- Former: Kevin Jones MD (2020–2021) — Director
- Former: Kirsten Sundby Hall MD PhD (2020–2021) — Immediate Past President
- Former: Abha Gupta Md Msc Frcpc (2020) — Director
- Former: Akira Kawai MD (2020) — Immediate Past President
- Former: David Kirsch MD PhD (2020) — Director
Data from IRS Form 990 filings, 2020–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $286K, to Barbara Rapp (Executive Director).
Frequently asked questions about Connective Tissue Oncology Society
How large is Connective Tissue Oncology Society?
Connective Tissue Oncology Society reported $1.9M in total assets on its 2025 IRS Form 990. Its revenue that year was $2.4M.
What is Connective Tissue Oncology Society?
Connective Tissue Oncology Society is a public charity focused on Education, based in Alexandria, VA. It holds $1.9M in total assets as of 2025.
Where does Connective Tissue Oncology Society operate?
Connective Tissue Oncology Society has awarded grants in North Carolina, New York, Pennsylvania.
What is Connective Tissue Oncology Society's EIN?
Connective Tissue Oncology Society's EIN (Employer Identification Number) is 54-1753869. IRS Form 990 filing data is available on this page for 2020–2025.
Data last updated October 2026. Sourced from IRS Form 990 filings.
Data update history
(7)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS April 28, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS August 8, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS October 23, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS April 22, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS October 12, 2025)
- Added Form 990 for fiscal year 2025 (received by the IRS May 13, 2026)
- IRS filings on file for fiscal years 2020–2024
Explore Open Grants
Browse active grant opportunities in Connective Tissue Oncology Society's focus areas in our free grants database
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