American Syringomyelia Alliance Project Inc
To provide support for persons affected by Syringomyelia and Chiari Malformation through support groups, information dissemination, conducting an annual medical conference, and distributing educational materials. Also to raise funds to provide grants for medical research.
Financial Overview
From 2024 IRS Form 990-PF
Total Assets
$4.4M
+14.0% YoY
Annual Giving
$24K
-26.8% YoY
Grant Count
2
+100.0% YoY
Avg Grant Size
$12K
-63.4% YoY
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Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $4,423,982 | $3,880,209 | $3,398,622 |
| Revenue | $969,539 | $887,640 | $1,211,738 |
| Expenses | $417,316 | $401,029 | $346,847 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $275,335 | $28,638 | $-17,894 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 2 recipients in 2024
Grant Size Distribution
12 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for .
Who else does American Syringomyelia Alliance Project Inc fund?
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Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Patrice Schaublin | Executive Director | 35 | $65,726 |
| Eric Berning | President | 1 | — |
| Gerald Grant MD | Research chair | 1 | — |
| Robert Keating MD | Medical advisory chair | 1 | — |
| Annie Chapman | Treasurer | 2 | — |
| Richard Simon | director | 1 | — |
| Paolo Bolognese MD | director | 1 | — |
| John Caemmerer | Vice President | 1 | — |
| Molly Lichtenstein | director | 5 | — |
| Michele Raye | Secretary | 2 | — |
| Brian Dlouhy MD | director | 1 | — |
| Ilene Ruhoy MD PhD | director | 1 | — |
| Carina Yang MD | director | 1 | — |
| Jeni Adair | director | 1 | — |
Geographic Focus
Where this funder has awarded grants
Grant Distribution by State
Cities
Data last updated March 2026. Sourced from IRS Form 990-PF filings.
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