American Syringomyelia Alliance Project Inc
To provide support for persons affected by Syringomyelia and Chiari Malformation through support groups, information dissemination, conducting an annual medical conference, and distributing educational materials. Also to raise funds to provide grants for medical research.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$4.4M
+14.0% YoY
Annual Giving
$24K
-26.8% YoY
Grant Count
2
+100.0% YoY
Avg Grant Size
$12K
-63.4% YoY
About American Syringomyelia Alliance Project Inc
Based on IRS filings
American Syringomyelia Alliance Project Inc is a nonprofit organization focused on Adults, based in LONGVIEW, TX. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $4.4M in total assets. In 2024, it awarded 2 grants totaling $24K. Net investment income was $275K.
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $4,423,982 | $3,880,209 | $3,398,622 |
| Revenue | $969,539 | $887,640 | $1,211,738 |
| Expenses | $417,316 | $401,029 | $346,847 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $275,335 | $28,638 | $-17,894 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 2 recipients in 2024
Grant Size Distribution
12 grants across all recorded years
Open Grants
3 open opportunities from American Syringomyelia Alliance Project Inc
ASAP Conference Scholarship
AMERICAN SYRINGOMYELIA ALLIANCE PROJECT INC
Amount
Registration fee waiver + 50% hotel (up to 4 nights)
Deadline
July 1, 2026
Bobby Jones Open (BJO) Equipment Grant
AMERICAN SYRINGOMYELIA ALLIANCE PROJECT INC
Amount
Up to $1,000
Deadline
Rolling / Open
Timothy M. George Fellowship Award
AMERICAN SYRINGOMYELIA ALLIANCE PROJECT INC
Amount
$10,000 - $20,000
Deadline
Rolling / Open
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include University of Utah ($13,246), University of Akron ($11,167).
| Recipient | Purpose | Amount |
|---|---|---|
| University of Akron Akron, OH | Medical Research | $11,167 |
| University of Utah Salt Lake City, UT | Medical Research | $13,246 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Patrice Schaublin | Executive Director | 35 | $65,726 |
| Eric Berning | President | 1 | — |
| Gerald Grant MD | Research chair | 1 | — |
| Robert Keating MD | Medical advisory chair | 1 | — |
| Annie Chapman | Treasurer | 2 | — |
| Richard Simon | director | 1 | — |
| Paolo Bolognese MD | director | 1 | — |
| John Caemmerer | Vice President | 1 | — |
| Molly Lichtenstein | director | 5 | — |
| Michele Raye | Secretary | 2 | — |
| Brian Dlouhy MD | director | 1 | — |
| Ilene Ruhoy MD PhD | director | 1 | — |
| Carina Yang MD | director | 1 | — |
| Jeni Adair | director | 1 | — |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is American Syringomyelia Alliance Project Inc?
American Syringomyelia Alliance Project Inc is a nonprofit organization focused on Adults, based in LONGVIEW, TX. It holds $4.4M in total assets as of 2024.
How large is American Syringomyelia Alliance Project Inc?
As of 2024, American Syringomyelia Alliance Project Inc holds $4.4M in total assets with $970K in annual revenue. It awarded 2 grants totaling $24K in 2024.
Where does American Syringomyelia Alliance Project Inc operate?
American Syringomyelia Alliance Project Inc has awarded grants in California, Idaho, New Jersey, Ohio, Utah, Wisconsin.
What size grants does American Syringomyelia Alliance Project Inc award?
In 2024, American Syringomyelia Alliance Project Inc awarded 2 grants totaling $24K — an average of about $12K per grant, based on its IRS Form 990 filings.
What is American Syringomyelia Alliance Project Inc's EIN?
American Syringomyelia Alliance Project Inc's EIN (Employer Identification Number) is 75-2245195. IRS Form 990 filing data is available on this page for 2020–2024.
Explore Open Grants
Browse active grant opportunities in American Syringomyelia Alliance Project Inc's focus areas in our free grants database
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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