Penn Medicine Orphan Disease Center/CHI Research Fund (Million Dollar Bike Ride)

Penn Medicine Orphan Disease Center/CHI Research Fund

Funder: University of Pennsylvania Orphan Disease Center in partnership with CHI

Amount: Varies based on fundraising; Orphan Disease Center matches up to $50,000, creating potential for up to $100,000

Purpose: Innovative, pre-clinical or clinical studies designed to improve the diagnosis, therapy, or quality of life for those affected by congenital hyperinsulinism

Geographic Scope: Worldwide - researchers from around the world may apply

Evaluation Criteria:

• Value to the patient population
• Protocol design
• Objectiveness of parameters measured
• Statistical evaluation proposed

Key Features:

• 100% of funds raised go directly to the researcher selected for the grant
• All administrative fees paid by Orphan Disease Center from their own budget
• Grant administered fully by the Orphan Disease Center

Past Winners:

• 2016: Dr. ChangHong Li
• 2015: Dr. Diva De Leon (Pilot Study of the Efficacy and Safety of Sirolimus in the Treatment of Congenital Hyperinsulinism)
• 2014: Dr. Mark Dunne, University of Manchester (Towards Precision Medicine in the Treatment of Congenital Hyperinsulinism in Infancy)

Team Information:

• CHI's team name: "Raring to Go for CHI"
• Team Captain (2016): Leo Brown (Harvard School of Public Health graduate, HI patient)

Contact Information:

• CHI: jpelle@congenitalhi.org, info@congenitalhi.org, 973-544-8372
• Million Dollar Bike Ride event typically held in May in Philadelphia

Application Process

Participation Options:

1. Ride in the Event: Join the "Raring to Go for CHI" team on May 7, 2016 (or current year event)
2. Virtual Fundraising: Create a CrowdRise team using #StopTheLows photo for those unable to attend the ride

Steps to Participate:

1. Sign up for the Million Dollar Bike Ride
2. Join the CHI team or create your own CrowdRise team
3. Raise funds through personal donations
4. University of Pennsylvania matches funds raised (up to $50,000)

For Researchers:

• Request for Proposals (RFP) released after the ride
• Submit research proposals for consideration
• Awards made by the Orphan Disease Center

Contact for Sign-up:

• Email jpelle@congenitalhi.org for #StopTheLows photos or questions about team setup