Penn Medicine Orphan Disease Center/CHI Research Fund (Million Dollar Bike Ride)

Penn Medicine Orphan Disease Center/CHI Research Fund

Funder: University of Pennsylvania Orphan Disease Center in partnership with CHI

Amount: Varies based on fundraising; Orphan Disease Center matches up to $50,000, creating potential for up to $100,000

Recurrence: Annual (Million Dollar Bike Ride held each May)

Purpose: Innovative, pre-clinical or clinical studies designed to improve the diagnosis, therapy, or quality of life for those affected by congenital hyperinsulinism

Geographic Scope: Worldwide - researchers from around the world may apply

Evaluation Criteria:

Value to the patient population

Protocol design

Objectiveness of parameters measured

Statistical evaluation proposed

Key Features:

100% of funds raised go directly to the researcher selected for the grant

All administrative fees paid by Orphan Disease Center from their own budget

Grant administered fully by the Orphan Disease Center

Past Winners:

2016: Dr. ChangHong Li

2015: Dr. Diva De Leon (Pilot Study of the Efficacy and Safety of Sirolimus in the Treatment of Congenital Hyperinsulinism)

2014: Dr. Mark Dunne, University of Manchester (Towards Precision Medicine in the Treatment of Congenital Hyperinsulinism in Infancy)

Team Information:

CHI's team name: "Raring to Go for CHI"

Team Captain (2016): Leo Brown (Harvard School of Public Health graduate, HI patient)

Contact Information:

CHI: jpelle@congenitalhi.org, info@congenitalhi.org, 973-544-8372

Million Dollar Bike Ride event typically held in May in Philadelphia