Congenital Hyperinsulinism International
Congenital Hyperinsulinism International (CHI) is a nonprofit 501(c)(3) corporation dedicated to improving the lives of babies, children, and adults affected by congenital hyperinsulinism (HI). HI is a life-threatening genetic disorder that causes severe low blood sugar (hypoglycemia) in infants and children, though in 50% of patients, the genetic cause is unknown. For those with HI, the beta cells of the pancreas secrete too much insulin in an unregulated manner. Excess insulin causes hypoglycemia. Prolonged or severe hypoglycemia can cause seizures, permanent brain damage, or even death if left untreated. A good prognosis is far more likely with a timely diagnosis and proper management.
Congenital Hyperinsulinism International at a glance
In short: Congenital Hyperinsulinism International gave $67K across 1 grant in 2024 (avg $67K), mostly in Pennsylvania. Source: 2024 IRS Form 990.
- Annual giving (2024)
- $66,715
- +110.8% vs 2023
- Grants made (2024)
- 1
- +0.0% vs 2023
- Average grant
- $66,715
- +110.8% vs 2023
- Median grant
- $66,715
- Total assets
- $2,173,955
- +20.6% vs 2023
- Primary geography
- Pennsylvania (100% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026.
How to apply to Congenital Hyperinsulinism International
Open Grants
2 open opportunities from Congenital Hyperinsulinism International
Mario Batali Foundation Pediatric Rare Disease Research Fund - Congenital Hyperinsulinism
Congenital Hyperinsulinism International
Amount
$25,000
Deadline
Deadline not published
Penn Medicine Orphan Disease Center/CHI Research Fund (Million Dollar Bike Ride)
Congenital Hyperinsulinism International
Amount
Variable (up to $100,000 with matching)
Deadline
Deadline not published
Who Congenital Hyperinsulinism International funds
How this funder distributes its grants
Top Recipients
Top recipient in 2024
The largest 2024 recipient was University of Pennsylvania ($67K).
Grant Size Distribution
6 grants across all recorded years
The most common grant size was under $50K: 5 grants of 6 (83%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of the 2024 grant dollars on its one itemized grant.
States
Cities
How Congenital Hyperinsulinism International gives
- Giving grew 67% from 2021 to 2024. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2024, annual grant giving ranged from $32K (2023) to $67K (2024). In 2024 it made 1 grant totaling $67K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| University of Pennsylvania Philidelphia, PA | Research | $66,715 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $2,173,955 | $1,275,774 | $1,126,855 | $66,715 | 1 | $63,858 |
| 2023 | $1,803,323 | $1,150,291 | $1,043,446 | $31,650 | 1 | $25,235 |
| 2022 | $1,644,315 | $1,262,625 | $834,055 | $40,000 | 1 | — |
| 2021 | $1,177,701 | $888,439 | $541,828 | $40,000 | 1 | — |
| 2020 | $1,097,548 | $707,807 | $467,697 | $50,000 | 2 | — |
About Congenital Hyperinsulinism International
Based on IRS filings
Congenital Hyperinsulinism International is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Glen Ridge, NJ. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $2.2M in total assets. In 2024, it awarded 1 grant totaling $67K. Net investment income was $64K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Congenital Hyperinsulinism International is led by Julie Raskin, CEO since 2023 (on filings since 2020); 3 of 10 officers listed in 2024 are compensated.
Officers on the 2024 filing
Julie Raskin
CEO
Executive Director → CEO, 2023
On filings since 2020
40 hrs/week
$83K (2020) → $114K (2024)
Laura Sullivan
President
Director → President, 2024
On filings since 2023
6 hrs/week
No compensation reported
Pam Williams
Director
On filings since 2020
1 hr/week
No compensation reported
Justyna Montemurro
Director
New on the 2024 filing
1 hr/week
No compensation reported
Trudy Ward
Director
New on the 2024 filing
1 hr/week
No compensation reported
Jennifer Schmitt
COO
On filings since 2023
40 hrs/week
$80K (2023) → $90K (2024)
Tai Pasquini
Cro
On filings since 2023
40 hrs/week
$86K (2023) → $95K (2024)
Julie Sheldon
Vice President
Director → Vice President, 2021
On filings since 2020
1 hr/week
No compensation reported
Mason Smith
Treasurer
On filings since 2020
2 hrs/week
No compensation reported
Sheila Bose
Secretary
Vice President → President, 2021
President → Secretary, 2024
On filings since 2020
6 hrs/week
No compensation reported
Former officers (6)
- Former: Erin Greaves (2020–2023) — Director
- Former: Turaya Bryant Kamau (2020–2023) — Secretary
- Former: Davelyn Hood (2020–2021) — Director
- Former: Dina Tallis (2020–2021) — Director
- Former: Margaret Maher (2020) — Secretary
- Former: Matthew M. Hopkins (2020) — Director
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
The highest reported compensation on the 2024 filing was $114K, to Julie Raskin (CEO). 3 officers or directors reported compensation on that filing.
Frequently asked questions about Congenital Hyperinsulinism International
How much does Congenital Hyperinsulinism International give each year?
Congenital Hyperinsulinism International gave $67K across 1 grant in 2024, according to its 2024 IRS Form 990. In 2023 it gave $32K across 1 grant.
How large is Congenital Hyperinsulinism International?
Congenital Hyperinsulinism International reported $2.2M in total assets on its 2024 IRS Form 990. Its revenue that year was $1.3M.
What is Congenital Hyperinsulinism International?
Congenital Hyperinsulinism International is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Glen Ridge, NJ. It holds $2.2M in total assets as of 2024.
Where does Congenital Hyperinsulinism International operate?
Congenital Hyperinsulinism International has awarded grants in Pennsylvania, Texas.
What is Congenital Hyperinsulinism International's EIN?
Congenital Hyperinsulinism International's EIN (Employer Identification Number) is 20-3068945. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(1)
When this profile's IRS filing data changed on Grantable
- IRS filings on file for fiscal years 2020–2024
Live grants for the work Congenital Hyperinsulinism International funds
Diseases, Disorders & Medical Disciplines Open opportunities, soonest deadline first.
Explore Open Grants
Browse active grant opportunities in Congenital Hyperinsulinism International's focus areas in our free grants database
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Congenital Hyperinsulinism International down — hundreds of funders to go?