Congenital Hyperinsulinism International
Congenital Hyperinsulinism International (CHI) is a nonprofit 501(c)(3) corporation dedicated to improving the lives of babies, children, and adults affected by congenital hyperinsulinism (HI). HI is a life-threatening genetic disorder that causes severe low blood sugar (hypoglycemia) in infants and children, though in 50% of patients, the genetic cause is unknown. For those with HI, the beta cells of the pancreas secrete too much insulin in an unregulated manner. Excess insulin causes hypoglycemia. Prolonged or severe hypoglycemia can cause seizures, permanent brain damage, or even death if left untreated. A good prognosis is far more likely with a timely diagnosis and proper management.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$2.2M
+20.6% YoY
Annual Giving
$67K
+110.8% YoY
Grant Count
1
+0.0% YoY
Avg Grant Size
$67K
+110.8% YoY
About Congenital Hyperinsulinism International
Based on IRS filings
Congenital Hyperinsulinism International is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in GLEN RIDGE, NJ. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $2.2M in total assets. In 2024, it awarded 1 grants totaling $67K. Net investment income was $64K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $2,173,955 | $1,803,323 | $1,644,315 |
| Revenue | $1,275,774 | $1,150,291 | $1,262,625 |
| Expenses | $1,126,855 | $1,043,446 | $834,055 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $63,858 | $25,235 | — |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 1 recipients in 2024
Grant Size Distribution
6 grants across all recorded years
Open Grants
2 open opportunities from Congenital Hyperinsulinism International
Mario Batali Foundation Pediatric Rare Disease Research Fund - Congenital Hyperinsulinism
CONGENITAL HYPERINSULINISM INTERNATIONAL
Amount
$25,000
Deadline
Rolling / Open
Penn Medicine Orphan Disease Center/CHI Research Fund (Million Dollar Bike Ride)
CONGENITAL HYPERINSULINISM INTERNATIONAL
Amount
Variable (up to $100,000 with matching)
Deadline
Rolling / Open
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include University of Pennsylvania ($66,715).
| Recipient | Purpose | Amount |
|---|---|---|
| UNIVERSITY OF PENNSYLVANIA PHILIDELPHIA, PA | RESEARCH | $66,715 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| JULIE RASKIN | CEO | 40 | $114,071 |
| TAI PASQUINI | CRO | 40 | $95,000 |
| JENNIFER SCHMITT | COO | 40 | $90,000 |
| SHEILA BOSE | Secretary | 6 | — |
| LAURA SULLIVAN | President | 6 | — |
| JULIE SHELDON | Vice President | 1 | — |
| MASON SMITH | Treasurer | 2 | — |
| JUSTYNA MONTEMURRO | Director | 1 | — |
| PAM WILLIAMS | Director | 1 | — |
| TRUDY WARD | Director | 1 | — |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Congenital Hyperinsulinism International?
Congenital Hyperinsulinism International is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in GLEN RIDGE, NJ. It holds $2.2M in total assets as of 2024.
How large is Congenital Hyperinsulinism International?
As of 2024, Congenital Hyperinsulinism International holds $2.2M in total assets with $1.3M in annual revenue. It awarded 1 grants totaling $67K in 2024.
Where does Congenital Hyperinsulinism International operate?
Congenital Hyperinsulinism International has awarded grants in Pennsylvania, Texas.
What size grants does Congenital Hyperinsulinism International award?
In 2024, Congenital Hyperinsulinism International awarded 1 grants totaling $67K — an average of about $67K per grant, based on its IRS Form 990 filings.
What is Congenital Hyperinsulinism International's EIN?
Congenital Hyperinsulinism International's EIN (Employer Identification Number) is 20-3068945. IRS Form 990 filing data is available on this page for 2020–2024.
Explore Open Grants
Browse active grant opportunities in Congenital Hyperinsulinism International's focus areas in our free grants database
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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