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Dravet Syndrome Foundation: Clinical Research Grants

Dravet Syndrome Foundation Inc

Funding Amount

US $250,000

Deadline

Deadline not published

Grant Type

Foundation

Can we apply?

Check your organization against each line. Taken from the listing; confirm with the funder's guidelines.

Eligible organizations

  • Independent investigator affiliated with an academic or research institution.

Other requirements

  • MD, PhD, DO, or equivalent degree.
  • Project has a clinical focus, utilizing patient samples or data.
  • Faculty appointment or offer letter and department/institution commitment of resources and spaceUS citizenship not required

Not eligible / not funded

  • Not eligible: Awards are not given to private companies.

Overview

The Dravet Syndrome Foundation offers Clinical Research Grants aimed at experienced investigators focusing on Dravet syndrome. Grants of $250,000 over two years support projects that address community needs, enhance understanding of the syndrome, and develop novel therapies. Eligibility includes MD, PhD, or equivalent degrees and affiliation with academic institutions. The program prioritizes research on patient history, outcome measurement improvements, and prevention of SUDEP, fostering advancements toward better treatments and potential cures.

Clinical Research Grants are intended for established, experienced, independent investigators affiliated with a research or academic institution whose proposed projects have a clinical focus and investigate hypotheses directly related to Dravet syndrome. Proposals are scored according to NIH guidelines based on the quality of preliminary data, research design, feasibility, investigator’s qualifications, and overall impact. Grants are awarded for $250,000 over 2 years (beginning January 1 of each year), with indirect costs not to exceed 10% of the award.
Investigators applying for a research grant should ensure their proposed project addresses the needs of the Dravet syndrome community and DSF’s mission to support research toward better treatments and a cure for Dravet syndrome.
Clinical Priority Areas include:
Research that helps better characterize the natural history of Dravet syndrome across the patient lifetime, including identifying patient trends, characteristics, epidemiology, or other clinical aspects of Dravet syndrome and/or its comorbiditiesResearch that develops or refines outcome measurements that can fully reflect meaningful improvements in patient symptoms and quality of lifeResearch that helps to understand, predict, and prevent SUDEPResearch that will encourage the development of novel therapies to prevent onset or halt the progression of the Dravet syndrome

Eligibility

MD, PhD, DO, or equivalent degreeProject has a clinical focus, utilizing patient samples or dataIndependent investigator affiliated with an academic or research institutionFaculty appointment or offer letter and department/institution commitment of resources and spaceUS citizenship not required

Ineligibility

Awards are not given to private companies.

Past recipients of this program

Recent awards under this program (from Dravet Syndrome Foundation Inc's IRS filings)

1 grant in Dravet Syndrome Foundation Inc's 2023 filings reference “Clinical Research Grants” in their stated purpose. Amounts and places as reported by the funder.

What Dravet Syndrome Foundation Inc actually gave

Source: IRS Form 990, 2025

Grants in 2025
9
Total given
$2.73M
Median grant
$240K
Range
$9,369–$779K
  • By dollars: Michigan 29%, Colorado 24%, Washington 16%. Top recipient cities: Ann Arbor, MI; Denver, CO; Seattle, WA.
  • 0% of grants with a stated purpose were for general or operating support.

Example grants

  • Regents of the University of Michigan · Ann Arbor, MI

    1. University of Michigan - Special Project Funding:Understanding Phenotypes and…

    $779K

  • Regents of the University of Colorado · Denver, CO

    Dravet Syndrome Natural History Study. The Natural History study will recruit and…

    $662K

  • Allen Institute · Seattle, WA

    Circuit-Selective Whole SCN1A Gene Delivery for Dravet Syndrome. This research focuses…

    $450K

  • The Board of Trustees of the Leland Stanford Junior University · Stanford, CA

    Identification of Behavioral Biomarkers in Children with DS: A Pilot Study In…

    $310K

  • Children's Hospital of Pennsylvania · Philadelphia, PA

    1. In conjunction with Tel Aviv University and Institut de Génétique Moléculaire de…

    $240K

IRS Form 990, 2025. Amounts as reported by the funder. Full 990 history →

Focus Areas & Funding Uses

Fields of Work

  • Science research

Categories

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