Dravet Syndrome Foundation Inc
The mission of the Dravet Syndrome Foundation is to aggressively raise funds for Dravet syndrome & related epilepsies; support & fund research; increase awareness; & provide support to affected individuals & families. We understand the ongoing need to fund innovative research, the urgency in finding better treatments, the motivation of our donors to make an impact specifically in the fields of Dravet syndrome and related epilepsies, the importance of transparency and accountability of not only our organization, but the researchers that we fund, and the need for global collaboration in order to find a cure.
Financial Overview
From 2024 IRS Form 990-PF
Total Assets
$8.5M
+13.7% YoY
Annual Giving
$2.0M
+157.7% YoY
Grant Count
7
+40.0% YoY
Avg Grant Size
$284K
+84.1% YoY
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Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $8,536,916 | $7,509,902 | $6,249,148 |
| Revenue | $4,221,622 | $3,257,096 | $2,515,782 |
| Expenses | $4,259,172 | $2,163,052 | $2,028,839 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $304,376 | $218,414 | $88,364 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 7 recipients in 2024
Grant Size Distribution
22 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for .
Who else does Dravet Syndrome Foundation Inc fund?
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Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Mary Anne Meskis | Executive Director | 40 | $172,586 |
| Veronica Hood | Scientific Director | 40 | $165,459 |
| Jamie Cohen | Finance & Program Director | 40 | $108,866 |
| Ted Odlaug PhD | President | 1 | — |
| Ross Nicholas | Vice President | 1 | — |
| Claire Carey | Secretary | 1 | — |
| Josh Goldman | Treasurer | 1 | — |
| Nathan Batt | Trustee | 1 | — |
| Ashley Kerns | Trustee | 1 | — |
| Joseph Sullivan MD | Trustee | 1 | — |
| Bill Kirshner | Trustee | 1 | — |
| Gail Farfel | Trustee | 1 | — |
| Amanda Prather | Trustee | 1 | — |
Geographic Focus
Where this funder has awarded grants
Grant Distribution by State
States
Cities
Data last updated March 2026. Sourced from IRS Form 990-PF filings.
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